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follow up on Arndog's husband
Well my husband no loger has a fever, he went for a follow up with the infectious disease doctor last Wednesday and the doc was ready to take him off his meds until he told the doctor that he is still suffering from severe joint pain and fatigue. The doc looked a little concerned and said he should be better by now. So, he…
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I'm searching and searching for the link
to the Magic Broth in the SuperThread.....but can't find it. Anybody? John? p
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End of week number 4....
rads and amifostine......phew! That brings me over half way....YEAH!! Taste has taken a dramatic downturn...not that things taste bad, like metal or salty....just blah...but I'm still eating what I want, and haven't lost any weight. Second chemo is under my belt, and only 3 more weeks of rads... Now I'm waiting to hear…
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Newbie Needs Guidance On Posting to Group
I was diagnosed with Sqaumous Cell Carcinoma (SCC), Base of Tongue (BOT) cancer in late 2009. I would very much like to tell my story in hopes of finding others who have experienced what I have gone through and am going through. I have two goals in being here, one it to tell my story in the hopes that it may help others…
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Tap Out
I have not posted in a while due to a lot of reasons. Needless to say, I have been battling 'the beast' tooth and nail. Well, today, I officially 'tapped out'. I am no longer treating the cancer and I am going to try and enjoy as much as I can. No, I didn't just quit. I fought long and hard, but the Doc's just found about…
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Letter from my doc
Dear Jenny. Just a short note to let you know that your recent ct scan shows no evidence of recurrent disease or new problems. This is a very encouraging result and I look forward to seeing you again in six months time. With warm regards. My doc. How friggin awesome is that?
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An Introduction I Wish I Didn't Have To Make :o)
Hi guys. I recently went to the ENT about a gland on the right side of my neck that did not respond to antibiotics. Ended up having a diagnostic tonsillectomy last Wednesday. I won the prize... squamous cell carcinoma. It's kind of generic for now but I won't know more until my PET scan this week. The CT scan indicated…
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To my base of tongue cancer pals
I was as most know by now diagnosed with BOT, but I had the swelling of the tongue and voice change, (not in my head / a fact) before even getting my 1st treatment which was chemo last week. Still weeks from rads when I expected tongue and thoart issues. My question is did any other BOT have issues before treatment /…
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Just got back from the ENT......
Scope shows that the tumor has shrunk 75% :O! Those were the only words I was wanting to hear during today's appointment... p
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Just diagnosed with SCC on tongue.
Hello, My name is Bob and I am a 37 yr old male. I have had a history of seizures and during these episodes I occasionally chewed/bit through my tongue. Needless to say there was a build up of scar tissue and over the past 3/4 years I would bite it while eating, talking etc. Anyway, about two weeks ago there was an…
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6 month PET scan all great except
Right pterygoid muscles and inferior strap muscles I figure thats because they picked up the radioactive sugar solution because of late parts of my neck have been tender and sore when I lay down I am putting the pick up down to the pain.I am also putting the pain down to weakened muscles from Rad damage but not winging am…
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Ch ch ch changes?
Hi all - I'm fine, but wondering . . . Have any of you taken any steps "back" after treatment? What kind, and when? About three months ago, I started having a more "tender" throat, and more sensitivity while eating. I finished rads two years ago. My docs weren't interested - I look and test fine. I had gotten to where I…
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Parched
I'm so thirsty! Just want to down a gallon of ice cold water! But everything hurts and water burns. How do I get past this? Ideas?
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Shocked
Hello everybody. Was admitted to the hospital for upper body pains last night, I did have a quad bypass 4 years ago and knew something was wrong. My EKG was not normal so I am waiting to see what tests they will run tomorrow, I know of a stress test. But then came the shattering news after they did a cat scan, a tumor…
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Sorry for another question....
I've had 14 Rad treatments as of today. My teeth are very sore. It reminds me of when I had braces and got them tightened. Is this normal? I visited my dentist before treatments started and my teeth are in great shape and I've been flossing/ brushing and then brushing with a cloudier toothpaste every night...
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Your feeding tube come out?
Just a piece of advice for anyone who has his/her tube come out, stick it back in quickly and tape it in. Thursday it happened to me for the first time. For some reason, the balloon deflated. I got out of the shower, dried off and everything was fine. I sat down shirtless to change my trach tie since it was wet. I went to…
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Vocal Cord rads
Anyone here on the boards have just low dose rads for vocal cord C? I'm 1/3 finished (9of28) and hanging in there with a sore throat starting, a little fatigue, and neck sore. I guess what I'm wondering is how bad does this get? I was prescribed the throat liquid with lidocaine and other ingredients to use when I may not…
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Anyone get the license plate on that truck?
So there I was, ending week 5 and going into week 6. My throat was hurting a little bit more, but it was still manageable. I also started feeling hot and flushed around the radiation area, as my skin started to react. But all in all, I was still doing well. Then yesterday, I got hit by a truck. I was in bed all day,…
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finally some good news, thank God
so after my mom's surgery on 3/1/12 for recurrent tongue cancer we went for appointment about brachytherapy. At that time doctor felt that there was more tumor left in the tongue so he asked to do an MRI which in result showed some changes. Mom felt no pain therefore doctor wasn't 100% sure that it was cancer so he did a…
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Rock This Town
I am happy to announce that the benefit my friend Deb and I put on together raised over $3500. It was held April 28th and we are dividing the money between Ashland County Cancer Association and Hospice of North Central Ohio. We have done 6 other benefits starting in 99 but always gave our $$ to just Hospice before. Last…
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Squamous cell carcinoma of the throat
found out today I have stage 3 How bad is this going to be ? what kind of treatments will need to go for Has anyone been in my shoes?
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thickness of saliva
First of all I would like to let you know couple months ago I tried to post and not sure if get posted. Seemed is hard to get in the site each time I logged in.But got to read some of the ffeed back whenever I can logged in. All the feed back are all very confronting and helpful. THANK YOU ALL!! February I was diagnosed…
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Anyone have Throat dilitation advice?
Hello to everyone, My dad is 7 months since his last treatment rad and chemo for tonsil and lymph. We are trying to get off the feeding tube and recently had a throat dilitation (may 9,) the dr. Said it went well , he opened the stricture in his esophagus and to go at his own pace trying different foods. that night he…
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Aquaphor as a moisturizer?
My doc recomended aquaphor as moisurizer but i find it way too greasy, do we need such a greasy stuff? I read thru many many blogs but this whole issue about proper moisurizing is confusing to me. It would be great if you could share how did moisturize i.e. Which moisusrizer, how many times did u apply, how much etc.…
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Who do you call?
I am starting to have an increasing amount of pain on the left side of my jaw right in the joint. Who should I call? My onco, my primary or my dentist? I have recently seen both my onco and my primary, told them of the dull pain but neither one seemed to think it was of concern at the moment so neither did I. But now it…
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Need Help/Information
My husband was diagnosed with laryngeal cancer in July of 2010. He underwent 35 radiations and 2 chemo treatments of cisplatin. A PET scan in late November 2010 showed all clear. In February 2011 he was having trouble breathing and our radiologist sent him directly to the ENT. He was put in the hospital, had a biopsy and…
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3 days since teeth have been extracted
hi everybody i'm out and moving around since Monday having 23 teeth extracted and the chemo port put in its a lot of pain comes and goes but i'm trying to get through it i know i have a bigger task at hand so if all goes well this week Monday i will be doing my mask fitting and Thursday 24 i will be starting my chemo kinda…
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More about MuGuard.........
My Oncologist set me up for a presciption, so today I got a call from Onco Source. She said my insurance would cover all but $350.....PER MONTH! I gasped....and before I could say a word, she said "we have patient help with costs"....Can you do $100 a month :) ....I said yessiree....I can. So while it is very expensive,…
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Chemo Day One YESSS
Follow up from yesterdays Post. I made it, wow soft bed, nice people, tv with a remote on a rope, a mans fantasy, yes i said a remote on a rope. If I may my friends since I have officially taking my first shot at Cancer today, I will be leaving the Newbie status and with your permission maybe a PFC.(Private 1st Class for…
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post treatment - how long till you noticed cancerous swollen lymph nodes totally disappear
Hello, My husband finished his chemo/rads on April 2nd, 2012. Doctors seem happy when they clinically feel his lymph nodes, but he won't get the pet scan until July. The node we can physically feel is the one they took the biopsy from and where the cancer was initially found. Did anyone else notice their lymph nodes…