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For veterand who may need in home care
I was not aware that we (as veterans and/or spouses of veterans) can get paid for needed in home care. Just thought I'd put this out there. http://newoldage.blogs.nytimes.com/2012/09/19/few-know-of-benefit-to-help-aging-veterans/?src=twrhp
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Hey Y'all, get my port out Monday!
Hello Everyone, I haven't been on here in while. I hope that everyone is well. I'm about to go through the posts and check up on everybody. I'm coming up on a year post-treatment and I'm having my port removed Monday. I won't feel like a cyborg any longer! ("Resistance is futile"). I'm now on Facebook, so I hope to connect…
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A Day In My Life :
Sometimes I get so engrossed always talking about our "c" and the aftermath of that "c"...I always enjoyed a post from my online family when they shared a funny moment in their lives...so here is one of mine recently. :) Because "c" is NOT all there is to US!! :)…
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Sore Tongue
Maybe I should know, after all I asked my RAD and ONC doc about the left side of my tongue but neither had a absolute answer. Its a sore that still persists 5 weeks after rads. I was dx with BOT with multiple lymph nodes. 33 RADS 2 Cisplantin 9 Erbitux / just not sure why my tongue was slightly disfigured on the left side,…
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FINALLY HAVE A DIAGNOSIS AND PLAN
Hope all is well with you today. Yesterday I met with my Onco Doc, and I guess it went better than expected. I have Metastatic Disease in my lungs from my original SCC of my Tonsil and neck nodes. He says this is better for me VS A new primary in my Lung. Surgery is a no go as with Lymph Node involvement in my Mediastynum,…
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a thought
here's one for you. i was 38 and my daughter was 14, now she is 30. back in those years, i would never have bet the boat i would be celebrating at dinner tonight. this will be fun, think i will take NED with me john
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My computer
I wish my computer was a better spellur. It allwaays spells worda wrong and it aggrevates me a lot.
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Advice
I finished treatment (Surgery, Rad, Chemo)for stageIV oropharyngeal base of tongue with three nodes in the neck. Although the preliminary post-treatment inspection by the surgeon left him optimistic, I still await my first PET scan post-treatment in about a month. How have any of you handled the anxiety/ terror or awaiting…
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24 HOUR REDIRECTION OF PRAYERS
To all of my CSN buds who have my back, I am asking to redirect any prayers and positive thoughts to a co-worker of my wife. We learned earlier today that the 21 yo daughter of a co-worker of my wife was on one of those 59CC scooters and was hit broadside by an F250 truck. Ironically she was taken by ambulance to a…
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Feeding tube?
My feeding tube was placed 8 days ago, and I am still getting some sharp pain around it, mostly on the left side. The night they placed it I had dry heaves and felt like I pulled a stitch. Did anyone else experience this or am I being a baby? I kind of think it is at least mildly infected, so went to have it checked today,…
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pictionary in ICU
Ok maybe its lack of sleep talking but I got a little tickled. My husband woke up with Versa and 200mg Fentanyl and wanted to tell me and the nurse that his teeth were cutting into his upper lip. He began drawing doodles and getting frustrated as we played dictionary trying to figure out what he was trying to say. Finally…
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YAHOO!!!
DOCTORS EXACT WORDS ON VOUCEMAIL: NO SPOTS OF CANCER!!!!! meeting Friday to get in depth details!!!! HALLELUJAH!!!!
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Biopsy results tomorrow
Good evening my fellow warriors, Tomorrow I get the results to the biopsy I had one of what was 4 at the time now up to 9 new lumps and growing fast. They are becoming more and more painful and need all the prayers you can spare for tomorrow at noon, when I met with my Oncologist. So anxious I may not sleep, but the…
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Aren't feeding tubes fun
Got up this morning and prepared my blended gourmet breakfast in my Ninja blendsr; a great way to start your morning. I closed my tube to fill the syringe with water to flush the tube and when I pulled on the doo-hicky (plug) to allow me to insert ihe syringe the stupid thing broke off in my hand. Now this was a "first"…
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Toluidine Blue Stain question
Hi All. I have a regular appt with my ENT tomorrow. He is very good though I'm not as endeared to him as much as I am my Oncologist. He always does a scope and finger exam so I am expecting that tomorrow. However, a couple of appts ago (2 months ago) I had this raised spot / lump on the inside of my left cheek that I keep…
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Surgery tomorrow
Well we just received confirmation of David's BOT surgery, using the Davinci robot for tomorrow. We are to be at UK hospital at 5:45 for an 8:20 surgery. Hopefully the second time is a charm, since last week we thought he would have surgery only to find out they had rescheduled and not told us. I am a little worried about…
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New to the group...looking for advice and counsel.
I am finished with 35 radiation treatments, 3 chemo and a few hydration follow ups....i am now cancer free and am looking for some fellowship and advice on what happens next..i went through the hard parts but now i wonder how long it will take to be " normal" again? is that really possible? My saliva glands dont seem to…
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The decision was made for us before treatment began - Bobbie
Thank you so much to everyone for thier help, advice, and prayers for Bobbie. Bobbie passed away Monday while at home. We had been trying to decide whether he should start treatment or whether it would be too much for him to take. He was diagnosed with Stage IV about four weeks ago. A week later he had a trech, chemo port,…
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Smoothies that won't set my mouth sours on fire
Hey all, thought I would catch you all up and pick your brains at the same time, especially Phrannie, because she has or is still dealing with the same problems.. Let me backup a bit. My original treatment plan was 3cycles of the nasty chemo cocktail, by infusion 2 drugs by port, and the 3rd drug via "the pump" 35 days of…
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Mouth sores and problems at 4.5 weeks out of rad
I am out 4.5 weeks from radiation (no chemo) and still have mouth sore and sore throat. Is this normal? I also developed thrush for the first time this week. Doc has prescribed nystatin. I also have dry cough becuase of dry throat. Some days are good and some days i have cough all night. Xylimelts still burns my mouth so…
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First PET scan better than I expected
Just got the results today, of Thursdays PET scan. I was told my SCC is "regionally localized" , at least I don't have to worry as much about how far it has spread. I am gearing up to give this cancer one hell of a fight, and I hope to be NED in 6 months, and get on with life.
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Ok, now that I know it's chemo and Rads, what products do I need to gather?
Reading here you guys know what works. What do I need for my skin, mouth sores and all the other products to make this as livable as possible. Thanks folks, Joe
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FRIDAY'S BRONCHOSCOPE AND BIOPSY NOT GOOD NEWS
As I expected going in for the news to not be good, the news is even worse. In addition to the 2 lymph nodes that lit up on my PET in my Mediastynum area, the doc biopsied 3 more areas of tissue that also came back positive for cancer. All I know right now is surgery is no longer an option, the cancer in NOT cureable, only…
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Getting A Little Scanxiety
My scan is Wednesday and I see the doc on Friday. Getting nervous only because I know how large and widespread the tumor in my tonsil was and it was only partially removed during biopsy. I guess I should be more concerned about the lymph nodes but I'm not. I really feel like I'm fine now but its just one of those things I…
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Scan
Well, I have my cat scan of neck and chest on Monday, really nervous about this one after the discovery last May of a 4mm nodule in my lung. I am trying to heed everybody's advice about not to worry too much, but it's hard. Wish it were over and done with. Denis
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Treatments done!!!
Well, finally! Today was the last day of radiation for my Dad. He finished up 35 rads and 7 chemo (Cisplatin). The onc/rad doctor said yesterday that for now everything looks good: lymph nodes are probably not palpable anymore, but he didn't touch his neck because it is very burned. But my Dad says also that he can't feel…
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Just a thought ;)
There are SO MANY good responses on these threads, I wish there was a "like" button...THANK YOU all of you wonderful, caring people!
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Been a while
Been a while since I visited the site. Nice to see some of the old timers are still around but not so good to see so many new people. Looks like a lot of NED which is always encouraging. I recently had my one year eyes to thighs PET/CT which showed nothing unusual. No hotspots or abnormalities. Do most of you get the…
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Xylimelts for dry mouth
I was actually excited to know that I left my water bottle on 2 separate occasions last week. There was a time that I never even sat it down let alone walked off and left it. Saliva improving :-) Matt, I'm going to give you the pat on the back for that one. I went on-line and ordered the sample of Xylimelts. I used one and…
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Awful week - long post!
Hello all! We have been lurking here for awhile but after the last two weeks, need to compare notes with you and see if there were any similar experiences. I'm an RN, so I was hoping that would give me a leg up on handling things, but that has not always been the case. Wife first, nurse second. :) My husband was diagnosed…