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First transfusion today
The nurse came in early this morning and told us David would probably have a transfusion today. His platelets are now 12 and his hemoglobin is 6.9. I have heard this should.do a lot for him. It also appears his system is becoming very acidic. I don't know what they will do about that. I am really hoping we still get to…
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What happens if treatment declined?
Hello, I'm writing about my 94 year old dad. SCC floor of mouth 2001. Surgical resection. NED until 1 year ago. Surgical resection 2nd time this past Jan. Cancer is back. Had CT/PET/ and met w/ H&N surgeon and rad oncologist. (Dad has COPD and is not a good candidate for more surgery AND he is leaning towards no radiation…
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TEP Speech
Okay; I'm posting this as new because there are so many postings on this I just can't wade through all of them. Paul (my boyfriend, recently used to be fiance) had a total laryngectomy in August of this year. That would be just over three months ago. He is doing really well...lots of energy, has his appetite back for the…
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Year Since Total Laryngectomy
Sunday November 18, is one year since my vocal cords were removed (a total laryngectomy). I thought I will mark the anniversary by posting some of the things I learned during the year. The operation and my week-long stay in the ICU was virtually pain free. I think a laryngectomy is harder on the caregiver than the patient.…
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granulation tissue at the G tube stoma
The stoma where the G tube is inserted started to develop granulation tissue a while ago, but this issue became significant just a few days ago. The tissue is forming now at a higher pace, it’s about the size of a pea and it’s very friable (bleeds easily). The reason for this is the increased friction, as the tube moves in…
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Scatterbrained
Hi everyone. I haven't been on for a while, I hope you all had a wonderful Thanksgiving. I have a question that I have been afraid to ask because I'm afraid nobody else has experienced this and then I'll know for sure that I'm just crazy. I finished radiation in September of 2011 of left side of head and neck. I had my…
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I want good news
David has primary plasma cell leukemia. Over 40% of his white blood cells are cancerous. He is very anemic. The doctor said they bone in his hip has been significantly impacted. They are keeping him seven days and are starting a seven chemo drug regimen in the morning. No more treatment for head and neck. The doctor said…
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Must be the season for gift's
Last week I found out the beast is back at my door stop, it's not as bad as the first time but its there.Had B.O.T and lung cancer at stage four.Rad/chemo one year and two months has passed with clean P.E.P scans and now the scan shows activity on anterior tongue at 2cm and a value of 2.6.Yesterday M.R.I have not got…
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PET /CT versus Regular CT of H&N
Well I finally got the call a lot of you may have, after 3 PET/CT scans , the next was scheduled for Monday the 3rd, my insurance has deemed that thePET is not medically necessary for me, they will pay for a H&N CT only, and will only approve one of those every 4 months versus the PET/CT I was getting every 3. While my…
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Tomorrow we ring the bell
Well, tomorrow we ring the bell. We met with the oncologist today and the last Cisplatin was cancelled due to hearing issues and tinnitus. He received 2 out of 3 doses and if he received a third treatment it would be a decreased dose and dr explained that the decreased dose has not been shown to make much difference. He…
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back in the hospital
David has been having frequent nausea again and started vomiting tonight. We came to the ER they said he was pretty dehydrated. His creatinine level is up again. They have decided to admit him. Hopefully this will be a short stay.
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Sinus and nasal passage cancer - joint pain after completion of treatments
Background: Finished 3 chemo, and 35 radiation sessions. Remainder of tumour was removed a couple of months ago, and they're waiting for me to be cancer free for 3 or 4 months before inserting tubes in to my bottom tear ducts which were melted shut. In the last month, I have been hit with joint pain. If there's a joint,…
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Newby
Good evening, Hi, my husband of two years (although we are in our 50's) was just diagnosed with stage four tonsil cancer in October. He has had two surgeries in one day, one tonsil, one neck dissection and this coming week he.has his radiation planning session. The following week he begins 6.5 weeks of rad and chemos. This…
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Tired Of Fealing Bad
I had stage 4 tongue cancer in 2010 They replaced about 7/8 of my tongue with my thigh and all the tissue in my mouth from the tongue down. I also had a double neck dissection with cancer in 38 lymph nodes. I had cisplatin for chemo and radiation. I had 76 grey radiation. Now on to 2012 my jaw still hurts from radiation…
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Checking In
Hi all: No, I haven't forgotten y'all (would never do that!) It's such a balancing act working these days after not having worked for a while! Work is fine but busy, busy, busy. I still marvel at how Charlie did retail for 26 years and absolutely loved it! I've now decided that when the day comes for us to be reunited I…
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Throat pain
Sorry if this topic is repeated but i am having trouble finding info on managing sore throat pain. I even checked the HNC superthread. Maybe i overlooked it in there. The mouth pain has been somewhat manageable. I do not have a peg tube. Dr's did not recommend one because they want me to use my swallow muscles. Too lengthy…
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Stiffness & Tightness & Pulling Sensation - Post Surgery
Dear Forum Members, My dad was operated about two years back for head & neck cancer with radical neck dissection. He has been having consistent stiffness & pulling in the right side of the neck as there was reconstruction done of the muscles. I want to know if any other members or their family members are suffering from…
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Had lung biopsy today
What a way to start a day at 6:30 in the morning. Got to wear the "**** Gown" and this time when they gave me Demarol I didn't dance to the bathroom showing y butt like I literally did the last time. They had me under twilight which I really like bacause sometimes you can awaken and see what they are doing before they…
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question
What is it with this website. I swear I only hit the button once, but sometimes multiple posts are posted....is it me? Joan
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Can't stand waiting
OK the wait to see the hematology oncologist on Monday is killing me. We found out Tuesday there is definitely something wrong, but with the holidays and the clinic being closed Thursday and Friday we had an appointment scheduled for Tuesday. Last night we received another call and they changed our appointment to Monday…
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Cancer Back
It has been almost six years since I was diagnosed and treated for throat cancer. I thought I was cancer free until I had my esophagus stretched about two weeks ago and my doctor saw some tissue that did not look right and had a biopsy done. It is now confirmed my cancer has returned. I had just been checked three months…
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This is an article I wanted to share. HPV Head and Neck Cancers get a 2nd look
http://www.curetoday.com/index.cfm/fuseaction/article.showByTumorType/id/814/tumorCategory/Head and neck I just can't seem to do a link. If someone wants to make this a link be my guest. I found the article interesting. Not being one who wants to spread bad information I ran this article through a well known H&N fellow…
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...that keeps giving...
Couple weeks ago my regular Dr informed me that Arthritis has shown between my 5-6 and 6-7 vertebrae in the Cervical section of my spine. I was telling him about the worsening spasms on the sides of my neck, and how the left Ulnar nerve issue from years ago appears to have reared it's ugly head. He was reading the CT…
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Selective neck dissection swelling problem
Anyone out there experience swelling several weeks after their surgery? I had a selective dissection 5 weeks ago, was healing well but started swelling three days ago, large obvious areas along the incision site, the left side of my neck,and under my chin. Red, warm to the touch, some areas are hard, some soft, but no…
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Need a couple of more prayers
Hey guys. Dad will have another CT scan tomorrow and get the results on the 30th. I have a very strong feeling we will be back in treatment. He is starting to have some mild ear and jaw pain. Please pray that we caught it and time and the chemo works as well has it has before. Also, my boyfriend just found out the he needs…
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Stance to endure
Hey everyone, I was talking with others on how to proceed with issues I'm having. I'll tell you ....10 people will tell you 10 different things. Today I still am unsure of a darn thing. As I have told you guys my dx (adenoid cystic carcinoma) is not cureable, with few tx options. This is not to say people with this dx…
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another step forward
Hi all. I am so glad I found you. My husband had his first surgery to get more diagnostic info. They scoped him under general and took 4-5 biopses....nasoph, both tonsils, BOT, and one lower down. The MD said the only suspicious one was the left tonsil. He said that depending on the path results, he recommends davinci…
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vertigo help
This morning Jim awoke with sever vertigo. Can't move with out feeling like vomiting. Of course all docs are on vacation. I have noticed some hearing loss lately and he had a bout with mild dizziness a couple months ago. My question is, has anyone else experienced severe vertigo after treatment? If so, did it go away on…
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Prayers please!
My husband Nelson is having a sedation MRI today to check for brain/spinal swelling effects from his radiation and chemo treatments. Please send your vibes that they actually find something easily fixed to explain his symptoms. We are at our wits end. Love and healing for all!!
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Another NED - me!
Woo Hoo! Just got NED after my last PET scan in July. The onc. was a little concerned about an area in my neck but he thinks that was just me swallowing during the exam. Let's hope for another NED on at my follow up in March. It may sound small but going from a 3 month PET follow up to a 4 month PET is big to me! 2 year…