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Retraction Statement!
Hi all: Yesterday I posted that my best friend's husband's radiologist had stated after the needle biopsy given Steve's history good chance it was cancer but not sure. Well in talking with Beki last nite doc did not say that so must have been our other friend who added that statement when I talked with her. What the doc…
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Kids and treatment
Hi all, My husband starts chemo and rad tx on the 18th. We are moving to Boston for two months and plan to bring our kids. Our son wants to stay the entire time....he is very anxious to begin with and we are a very tight family....homebodies. Our daughter who is 9 is torn.....wants to be with us but wants to keep her…
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? for HPV+'s
For anyone with a parter with HNC that is HPV+, have they themselves develope that cancer too? I have been reading about HPV and it is becoming almost the leading cause of HNC and HPV is transmitted sexually. I was just wondering is anyone was diagnosised after a loved one was.
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Home After Biopsy
This has been such a bad-news day on this message board that I will make my report brief. Anesthesia -> Biopsy -> Lung Collapse -> Tube In Lung -> Overnight in Hospital -> Clear Liquid Diet (Yuk) -> Minimal Pain :-) -> Can't Pee -> Urinary Catheter / In and Out -> Still Can't Pee -> Urinary Catheter Again (Double Ouie) ->…
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PET scan and AdCC
Wanted to share my history of scans, not to scare, but to encourage you to ask if it does not feel right. Prior to dx I had an ultra sound - showed an ill defined area in submandibular gland. That promted a CT which showed nothing, specificaly nothing in or around the gland. Several doctors later had a MRI, also neg,…
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Life...
Four years ago at this time I was contemplating the easy way out. The unknowns was a monster I was seeing as only worst case scenario. The fact I now write this is proof that monster did not get the best of me, nor the ordeal of tx. And my recovery went very well, I think. 6 months after my last rad my only Sister died. 3…
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1st Visit to a New Surgeon
I was successfully treated for a squamous cell carcinoma on the base of my tongue and tonsil wall (stage III) in 2009. Unfortunately in 2010 I developed osteoradionecrosis which has made the cancer and its treatment seem like a picnic in retrospect. I had about 4 inches of my lower left jaw bone resected in early September…
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Update on Best Friend's Husband
Hi all: Steve came thru his needle biopsy yesterday fine. Still don't have any results yet. There's definitely something there but not sure what. Radiologist told them given his history as a smoker good chance it's cancer but not sure. I told her we're going to hold on to that ray of hope that they're not sure and pray…
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New pix of Chargee Boy
Hi all: New pix of Chargee. He was 9 months old yesterday. That his is TN big orange t-shirt he's sporting. Tough times for us volunteers but we're loyal and won't ever abandon them. Just hope we get the type coach that's needed to turn us around! Rocky top forever! Jan (Basketcase)
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What to Expect with Tongue Cancer
My dad has just been diagnosed with Tongue Cancer. Cancer location is at the back of the tongue. We are not sure yet if it has spread. Can anyone tell me what our family should expect with this kind of cancer? Just trying to gather all the information I can at this point. Thanxs
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If you knew then what you know now...
Hello All, My dad is getting ready for radiation and I need your help. What "tricks" or "tips" do you wish you'd known about earlier in your treatment? Was there something that actually made eating...skin care...or treatment just a little easier? The "packing list" has been great and the discussion on Mugard. Any and all…
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a few more hours
David will officially be done with round one of chemo at around 11:30 tonight. He still has a chemo shot he has to get on the 7th and 11th, but the constant tethering will be over, at least for a couple weeks. They told us he may be able to go home this weekend if we can get his stomach to accept food and fluids. We will…
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One other question about scar tissue
So I can't really find any info on this and know that this group is the best to ask. I have read some threads where others have talked about fibrosis in the neck. Is that because of scar tissue? I think the point I'm getting is is it even valid for me to believe that this spot in my neck is scar tissue. It's small, hard…
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so tired of the hospital
I am really getting tired of the hospital. It will be two weeks on Friday. David got up and took a shower today and that was encouraging. His is tolerating small amounts of tube feeds. I will be glad to get home, but do worry about taking care of him alone. His WBC is .6 absolute neutrophils are .56. His platelets are at…
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SCC Tonsils
Hi all, I am from India. I came to know that I have a tonsil cancer grade II, after my biopsy test. Can anyone suggest me how should I proceed. Till now: 1 - I had pain in my throat and could see a patch, so consulted an ENT specialist. Doc suggested for Biopsy. 2 - Biopsy done, report says - a) Microscopic finding:…
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What do I expect with a PET scan?
Hey friends! I had an appt with my oncologist today and they did a CT scan of my lungs which was clear. During the physical exam he palates a small spot under my jaw that is probably just scar tissue, but some of you may remember me posting that my husband and I are trying to conceive our second child. So, in light of…
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Just getting started
My boyfriend Jeff was diagnosisted with SCC at the base of the tongue a couple weeks ago. He stats rads next tues and chemo fri. 35 rads and 7 chemo. He already had his mask made. The hardest part of the mask is the stick that holds his tongue down. Can anyone relate? I have been reading many of you guys/gals posts since…
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Pain in Kidney area....after tx
Wondering if anyone experienced any lower back pain after treatment? Appears to be near the kidney area. Also a little fluid retention around the lower leg near the ankle. I was reading some of the literature we got prior to treatment and it does appear that the chemo can cause these things. The chemo was Carboplatin &…
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Update From Soccerfreaks
Hello All. I am a friend of Soccerfreaks and have some great news about him for anyone that knows or remembers him. He recently had some scans done. He had his results appointment with his oncologist and is cancer free!! He has a nagging cough, but it is not due to cancer. It may possibly be aspiration related or scar…
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The Beast Strikes Again
Hello Everyone, I am Wolfen. I have been a member of CSN since 2009. In 2008, my daughter, Johnnybegood, was diagnosed with Stage IV Colon Cancer, mets to liver and both lungs. Through numerous rads, chemos, surgeries and countless side effect alleviating meds, she fights bravely on. I have spoken to a few very kind HN…
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Prayer Request
Hi all: Got an urgent prayer request. My best friend's husband had a CT scan yesterday of his lungs and now is having a needle biopsy on Thursday. There are three spots on one lung. Of course nothing is totally sure, but he is 75; has been a drinker and smoker for a long time. I have known my best friend since we were 2…
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Newly Diagnosed but Stage 4 - Scared to do Anything!
Hi, Maybe I've googled too many discussion boards, because I am so scared of doing Anything now. It seems like I'll be so much worse for "quality of life" compared to just going forward as is, with pain medication if/when symptoms worsen. Just want to enjoy my time left with 2 grown children, 2 grandsons, play my guitar,…
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Uplifting website
Just wanted to share this. On my H&N surgeons website I saw a post for this this survivor who sings songs to patients all over the country and world for that matter while they are going thru chemo. I went on his site and read about him and listened to him sing to some of the patients, very touching. His web site is:…
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Info needed from fellow NPC veterans
Hi all! Its been awhile since I have posted though I do come back and check on the board every now and then. I just hit my one year anniversary from treatment last week. I can't believe where I am right now compared to where I was last year at this time. Life is just about back to normal (my new normal that is) however its…
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WBC boost anyone?
We arrived today for our last chemo treatment, but Steve's counts were too low so they sent us back home. His WBC is 1.4 and Lymphocytes, 300 and Neutrophils, 700. Took him 2.5 weeks to get the nausea under control and then his throat was burning so he's using the feeding tube but not as often as he should/could. Til now,…
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Biopsy Tomorrow
My lung (needle) biopsy is tomorrow. Compared to what I've been thru, compared to what my wife and caregiver has been thru, compared to what David is going thru, the biopsy should be a piece of cake. Nevertheless, my anxiety level is high and going up. Both my wife and I will have a tough time sleeping tonight. We will get…
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“Picture Your Life After Cancer”
New Meaning and Drive in Life After Cancer NY Times has a paywall, not sure everybody will be able to read the story. but there is a book out too. and in the blog story, there's a link for adding your photo to the collage. "A new book, 'Picture Your Life After Cancer,' (American Cancer Society) focuses on the living that…
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throat cancer
hi there friends, my name is sylvan and i will be communicating my record of my cancer with photos from the first day i saw it august 13th till this week december 2, 2012. I am on going into my fourth week of radiation and chemo. I will be showing pics from the different changes my tumor has gone thru. I am being treated…
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Good news bad news
Ok so last night went better with the exception of his hiccups and constant staff being in the room. This morning we found out the cancer js responding to treatment. His absolute plasma cell count was .22 down from 2.58. The goal was 1.29 by the 10th day following the start of chemo so we have already made the treatment…
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~Where in the World Are You~ Bumped Up
Thought I'd bump this as there have been many new members the last few months that have not been added or might like to go on the map; Where in the World Are You Best, John