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Talk to me about your experience after chemo/rads...
My mother has been going through the same journey as many of you, but she has been doing it mostly alone. I have read this site off and on, but she has always reuffed my suggestions that she come here, much to my frustration. She was treated for stage IV throat cancer at MD Anderson in Orlando, starting last January. She…
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Tim6003 Heading to Seattle Cancer Care Alliance for lung scan follow-up
Hello family :) (that's me buttering you all up) I am off to Seattle for the reasons stated above. Many of you may remember my last CT w/ contrast showed "granulated glass appearance in the upper left and lower left lung as well as 3 (presumably new) nodes in my lower left lung. The largest node was 7mm. I've gotten some…
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Christmas is in the air~~~
I haven't been posting much lately, family in from Chicago, parties, dinners, shopping and still babysitting my 4 year old..busy, but I read your posts every day and love you all..just no time to answer every post..be kind to each other, and bless you all.. Merry Christmas and the Healthest New Year possible
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Any pain after peg tube removal???
Hi to all, I am just wondering if anyone who had the peg tube removed experienced pain at the site after eating. My dad had his Mickey button removed on Tuesday (hooray) but after he eats he has pain where the Hole was for about an hour. Is this normal? By the way, to celebrate the removal of his button (as we called it),…
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Good Article
This is an interesting article from one of my English newspapers it has also been on CNN and Dr Sanja Gupta, heres the link http://www.dailymail.co.uk/health/article-2246312/Girl-7-beats-leukaemia-revolutionary-treatment-using-HIV-virus-wire-immune-system.html This is the natural product what I have been talking about and…
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Total Laryngectomy
My fiance was diagnosed with stage 3 laryngeal cancer last November (2011) He wasn't a smoker, nor did he drink to excess, but he did work with asbestos and some of the doctors suspect that is the cause. He went through two months of radiation and chemo, still has a g-tube and has not been able to eat since just before…
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trying to find words
I am trying to find something positive to report; however, all I want to do is scream . I want to yell because I am tired of crying. I don't want my husband to die.
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Lung Biopsy Results
Today, Monday Dec 10, I got the results from last week's lung biopsy. Unfortunately, the biopsy was positive for lung cancer; the cancer was squamous cell meaning that it almost assuradely had spread from the neck (larynx). The recommendation from my medical oncologist was to watch it with a CT-Scan every 4 months. When it…
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Rad starts tomorrow
Jeff starts his radiation tomorrow, the journey with the beast starts for real now. The last 2 weeks have just been full of readyness, but reality sets in now. God help me keep it together for him, please.
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The HPV Support Network
advocacy blog from a registered nurse with 24 years worth of knowledge about HPV. unfortunately her last posting was a while ago, but she has a lot to say. postings from 2012 include: "Why the Focus on Cervical Cancer Must End" "HPV Victims Need One Voice" "Does HPV Go Away on Its Own? Parts 1 and 2" "How Regulations…
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Baked potato
Since my posts have become quite depressing as of late I wanted to share a bit of good (or at least comical) news. Today David ate a baked potato in the hospital. I had a long talk with him last night as his PICC line continued to bleed and let him know if he wanted to continue to fight the beast that I was behind him, but…
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Cat Scan Today
Hi all, Well my oncologist lost her peer to peer request with my insurance company to continue with a PET scan every quater. This month it's a CAT , which my insurance has approved for me to have every 4 months.It took the tech longer to find a vein, I have small ones that roll, than the entire scan lasted. I guess I…
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My anger is overwhelming
Hi All, I'm a caregiver. Lost husband to unk. primary cancer/metastasis to bones when he was 39 (about 18 years ago). Experienced subsequent cancer care situations with a friend (prostate) and my Dad, (prostate, SqC--floor of mouth 2002 and recurrence now). Tuesday is mask-fitting day. 1st time for rads. Dad is 94. So,…
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1 down, 32 to go. - and a question or two
Well we did it.. Dan had his first radiation treatment today, he was thrilled, he didn't need to disrobe, and it took less than 10 mins in the room. In fact he said the radiation took less than 2 mins. You have to love technology.. Er...Maybe not. However they did serve chocolate after! We also got a sample of Mugard! 1…
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My feel good story
Over the weekend, my husband & I were out to a nice dinner. I noticed the young couple next to us ordered water and split an entree. I asked the waitress to put their meal on our ticket. When they finished dinner she asked if they wanted anything else and told them they didn't have a bill because we picked it up and said…
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anyone experience pain with a suction machine?
Steve is really struggling with 8/10 -10/10 pain levels with his throat and has increased thick saliva so it hurts when he has to cough/spit. Ahe got a suction machine but says it hurts. I can't find anything on the Net that says it hurt people. Can anyone help here?? Thanks, Traci and Steve tonsil cancer - just finished…
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Stronger
Posting this because all of you show amazing courage and this video is a tribute to that trait. Link: http://www.youtube.com/watch?v=BaQdwTsVtCY
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My mother has throat cancer.
I'm not sure if this is where I should be putting this or what I should be doing. But I feel like I need to seek some kind of advice or whatever it is I'm looking for somewhere... so forgive me if this is the wrong forum or area. My name is Ashley and I'm 22. My mother was diagnosed with throat cancer, not very long ago.…
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Funny Story: Why I'm a Vegetarian.
My first marriage ended in divorce in the 1980's. (My Ex and I continued to share responsibilities for raising our children; now all grown.) I didn't have many dates. BUT it turned out that every woman who went out with me was a vegetarian! Since I was not a vegetarian at the time, any possible relationship never got off…
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Any pain after peg tube removal???
Hi to all, I am just wondering if anyone who had the peg tube removed experienced pain at the site after eating. My dad had his Mickey button removed on Tuesday (hooray) but after he eats he has pain where the Hole was for about an hour. Is this normal? By the way, to celebrate the removal of his button (as we called it),…
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Symptoms showing early
I am curious, if you don't mind sharing. Did those with treatment do better? or are my expectations way off? The Drs told us that Dan would feel great for the first two weeks of treatment, that it wouldn't get bad until the third week. Well it doesn't seem like things are 'great', after just 4 treatments and 1 chemo . His…
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The passing of my beloved husband
In may my journey began with the love of my life, I thought that he would have survive but its been a hell of a journey that turn my life upside down. After having surgery and losing his ability to speak and eat and having a feeding tube, nothing we did was making anything for the better, after been told his tumor had been…
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MDA Visit
Hello New Friends, Hubby had his consult with MDA today. Every staff member was very caring and informative in regard to his welfare(just like the commercial shows it) LOL I'm not making fun of it, but it was a little overwhelming meeting doctor, financial advisor, oncology nurse, clinical advisor, and swallowing…
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Dreaded reality
Today has been an awful day. Yesterday we had hoped of going home today or tomorrow, but that will not happen. David started bleeding again and his numbers are really low. They are giving him platelets now. The doctor came in this morning and said that we need to consider a long term facility because David needs 24 hour…
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Good News So Far!
Scott's last Rad and Chemo treatment was Feb. 28, 2012 and so far NED!!!!! I just want to thank everyone for listening and helping with our questions. We were so confused at times and it really helped to have this network of great people to go to so THANK-YOU, THANK-YOU AND THANK-YOU! A dear friend of ours was recently…
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another straw on the camel's back
On Monday I had a partial barium swallow at the insistence of my new pulmonary Dt and my wife. I told them I couldn't do it because I simply can't sawallow - guess they didn't believe me. When I got there they had all of the things I've seen before, barium solutions, crackers etc. The first thing I had to try was the…
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Retraction Statement!
Hi all: Yesterday I posted that my best friend's husband's radiologist had stated after the needle biopsy given Steve's history good chance it was cancer but not sure. Well in talking with Beki last nite doc did not say that so must have been our other friend who added that statement when I talked with her. What the doc…
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Kids and treatment
Hi all, My husband starts chemo and rad tx on the 18th. We are moving to Boston for two months and plan to bring our kids. Our son wants to stay the entire time....he is very anxious to begin with and we are a very tight family....homebodies. Our daughter who is 9 is torn.....wants to be with us but wants to keep her…
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? for HPV+'s
For anyone with a parter with HNC that is HPV+, have they themselves develope that cancer too? I have been reading about HPV and it is becoming almost the leading cause of HNC and HPV is transmitted sexually. I was just wondering is anyone was diagnosised after a loved one was.
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Home After Biopsy
This has been such a bad-news day on this message board that I will make my report brief. Anesthesia -> Biopsy -> Lung Collapse -> Tube In Lung -> Overnight in Hospital -> Clear Liquid Diet (Yuk) -> Minimal Pain :-) -> Can't Pee -> Urinary Catheter / In and Out -> Still Can't Pee -> Urinary Catheter Again (Double Ouie) ->…