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Head and Neck Cancer

I am still NED FREE ppl.
Hey Guys sorry that I havent been posting here lately its just been busy here with all the stuff I been dealing with but I had my PET scan last thursday and met with the chemo doctor yesterday and he said I am still NED aka cancer free so I been cancer free now for 2 years since nov 2010 and also I just wanted to pass…
pet results in....should I ask prognosis, staging scares me
Hi all, My husband and I actually felt relieved by the PET results as we were hoping there were no other lurking cancers than in his neck (that's enough already). Found out he has scc level 2 lymph node measuring 3.5 x 2.2. The report states that primary is probably same side tonsils as those are enlarged. Also stated no…
Taste buds
I was wondering how come I can taste the first few bites of food and then it's gone. Will my taste ever come back? I know I need to be patient but it's so frustrating some days.
Wow, my body really did not like Miracle Mouthwash
Got some this morning and swished a bit, tasted like crap and numbed my whole mouth. Two hours later, violent vomiting followed by severe diarrhea. Guess that means no more of this stuff for me. Amazing, first time in all three sessions of my Induction I was sick enough to vomit. Eeesh. Joe
Multiple Myeloma
OK so now we have another surprise. David was diagnosed with multiple myeloma today. We go have a bone scan tomorrow and see a hematolgy oncologist next week. I guess I get to be at to cancer sites. Lucky me. OK so yeah I am a little depressed this evening.
Specks - Crappie - Sac-a-Lait ~ Florida Style
Here's a few from Saturday, 10NOV2012... ~ The Before ~ The After They can mess up a skillet real good.... Thrown on a plate with a big scoop of Cheese Grits, and it's a meal hard to beat. Caught these in Lake Kissimmee 10NOV2012... It won't be long until some of you are in the having your taste and saliva again... Here is…
Thanksgiving with NED
Greetings! I don't make it back here as often as I should. As the months turned into years after the end of treatment in late spring in 2010, I kind of got wrapped up in living the "new" normal. All-in-all the new normal has been pretty good. Anyway, I just got the results back from my annual CT Scan of the neck / chest. I…
So recovery off to a rough start need advice from veterans
So about the last 4 days I have started to loose the balance, and back on the nausea train. Around the end of week 5 I lost tolerance for medical formula, and was loosing weight fast, I placed myself on a malt o meal gruel and was able to stabilize, not great but not 2 pounds a day gone either, was only taking an…
NED Thank God as of Nov 14
HI everybody just checking i got the all clear on Wednesday Ned my next scan isn't until Jan 24 ct scan and chest xray so now its on to getting my dental work done and getting back to normal as i can be.Thank you for all the well wishes and prayers
8 weeks out and I think I need to call my doctor!
I finished chemo and radiation for tonsil cancer in August. For the last two weeks I have been experiencing dizzy spells, on standing, confusion during these episodes and I am off balance when I walk sometimes. I keep thinking it will get better but it seemed worse today. Any idea what the problem could be?
what do I do when Cobra runs out?
hello survivors and caregivers, I have survived the cancer but the healthcare system is killing me! I was too sick to work during treatment, and I was discharged from my job after the FMLA ran out. I am on SSD (social security disability) payroll since January of this year. It barely enough to cover my COBRA premium and…
We might be going here again
My mother was diagnosed with Stage IV cancer behind the tongue in July 2010. After finally getting her some medical coverage they were able to start treatment. They tried a combo of erbitux and radiation but due to complications with the erbitux and other chemos she was only able to complete the radiation. After all the…
Anybody else on a PEG permanently?
My diagnosis: no food or drink by mouth - ever - no chance of recovery of swallowing (nerve damage). I've been on Jevity 1.5 for about 6 months and am doing really well. I can do pretty much everything else I want. Questions: Who else is on PEG permanently? What are your attitudes, worries, etc about never eating again? I…
Increased anxiety
It's so odd but now that my husband is nearing treatment my anxiety level is at an all time high. The dr scheduled his first post treatment head/neck ct in January and since then I am more anxious and emotional then ever. I guess it's the realization that nothing, not even all this treatment including surgeries x 2,…
Well...there goes my thyroid!
I just had my first blood work and physical since the end of treatment. Treatment ended about 28 weeks ago. This was all supposed to be routine and to get a baseline after the completion of treatment. I have been tired since finishing rads and erbitux but just assumed it was to be expected and I still believe it is very…
Our caregivers
Our caregivers have it hard, at times I think much harder than we do. Sure, we deal with our disease and all of the ‘wonderful’ impacts from treatments, but I honestly think that they have it worse. They take such good care of us, and they have the additional burden of worrying about our and their futures. My wife was…
Atelectasis
Hello everyone...I rarely post but have been a "long time lurker" and follow along with many of you! My husband was dx in 2010 with stage 4 base of tongue scc and was treated with chemo, rads followed by neck dissection. todate all of his follow ups have been positive, however on the last 2 ct they have noted "bands of…
Introduction and chemo/Erbitux question?
Hi Everyone, My mom is 66 yrs old and has been diagnosed for a 3rd time with Head and neck cancer. She was first diagnosed in 1994. Had neck disection, part of tongue removed, and radiation. She did great (was able to talk again eat etc)and was cancer free until July 2012! We are lucky we had 18 yrs with no cancer!! July…
PEG tube issues?? Here is what worked for me
As most of you know I struggled with nutrition most of my treatment. I was able to use the medical food / formula then all the sudden became intolerant, same with milk, lots of nausea. So I started making gruel out f malt o meal, and it actualy helped, I am now moving to baby food, and although I have to push it through…
First time in 24 yrs I forgot our anniversary
Hey everyone ! I can't believe it, but my husband pointed out that this Sunday will be our 24th year together. So much stress, I just started apologizing then crying, then laughing. We will be spending the day at home, with a nice dinner and rent a movie. I just want to hold him....and realize today is good. He is my…
What food should I try?
I am four weeks post treatment with a peg tube and trying broths, cream soups, milk products are bothering the sores in my mouth so staying away from them for the time being. Should I try soups like vegetable need and see if I can chew and swallow? Or something else, I'm scared. I swallow fine but what if it gets stuck.
Financial assistance???
I have been out of work since May 23, 2012. I used up all my FMLA and am now struggling to pay my bills and rent. Even close to being evicted because I have no money. I've been reading thru here and have read a couple of things about social security and some sort of allowment they have for people with head and neck cancer.…
Bleeding?
I haven't seen this addressed on here just wondering if it's abnormal. Just finished Tx #12 of 35. Occasionally at night I'll wake up with a blood soaked pillow or hack up some blood during the evening. Discussed it with my Rad Dr and she says it's normal. I just haven't seen any one address that on here and was curious to…
Terrible smell toward end of Tx....Is it from the Radiation?
Hi Everyone... So now he says he keeps smelling something terrible...like a sulfur smell...just terrible. Is this just the effects from radiation? Or could it be from the prescription cream they have him putting on his neck. He says no matter where he goes he smells it and it's making him sick to his stomach. He even kind…
rad/chemo possible at local hospital and follow by major cancer cancer?
I am wondering if we choose to go with Dana Farber, can we get daily rad/chemo locally or do we need to travel each day for that? I'll ask the MD's but figured someone here would know. Thanks.
Tongue Cancer Returns - Male / Age 52 - Treatment options?
My dad is currently 52 years old and two years ago he was diagnosed with small N1M10 on his left side of tongue (Stage 1 – squamous cell carcinoma). At that point he was treated with Radiation (33 times - tongue and neck area). Since then he has been in recovery stage, however he has always had discomfort in his tongue. At…
Jaw reconstruction at Moffitt or MD Anderson Orlando
I live in Florida, have stage 4 of mandible and floor of mouth. Wondering about anyones experiences with jaw reconstruction at Moffitt or MD Anderson Orlando. Thanks
SURGERY COMPLETE AND NOW HOME
Hi All. I am KTeacher's sister. I am reporting to you on her surgery, which occured last Thursday, and her recovery from same. The oncologist removed her eye and much tissue surrounding the eye and orbit area. He followed the optic nerve back as far as he could. Reconstruction surgery went great. The microvascular plastic…
Tomorrow is my last treatment, then on to recovery, recieved a very sad phone call a few minutes ago
Well tomorrow is my last day of treatment, and doing relatively well, but just received a phone call from my oldest sister. She told me she was just diagnosed with stage 3 SCC with a primary tumor on the tonsil, with lymph node involvment on the same side, where as mine was same except stage 4 because of node involvement…
Hi All...Just Catching Up
While I haven't posted much lately , I do look at the site, see old familiar names and new . I've been busy since I went back to work full time. Travel for work takes me to northern AZ weekly, I have a 100 mile buried fiber optic project going on , so that keeps me rather busy. I'm in MD right now, flew in yesterday , will…

Head and Neck Cancer

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