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Uplifting website
Just wanted to share this. On my H&N surgeons website I saw a post for this this survivor who sings songs to patients all over the country and world for that matter while they are going thru chemo. I went on his site and read about him and listened to him sing to some of the patients, very touching. His web site is:…
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Info needed from fellow NPC veterans
Hi all! Its been awhile since I have posted though I do come back and check on the board every now and then. I just hit my one year anniversary from treatment last week. I can't believe where I am right now compared to where I was last year at this time. Life is just about back to normal (my new normal that is) however its…
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WBC boost anyone?
We arrived today for our last chemo treatment, but Steve's counts were too low so they sent us back home. His WBC is 1.4 and Lymphocytes, 300 and Neutrophils, 700. Took him 2.5 weeks to get the nausea under control and then his throat was burning so he's using the feeding tube but not as often as he should/could. Til now,…
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Biopsy Tomorrow
My lung (needle) biopsy is tomorrow. Compared to what I've been thru, compared to what my wife and caregiver has been thru, compared to what David is going thru, the biopsy should be a piece of cake. Nevertheless, my anxiety level is high and going up. Both my wife and I will have a tough time sleeping tonight. We will get…
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“Picture Your Life After Cancer”
New Meaning and Drive in Life After Cancer NY Times has a paywall, not sure everybody will be able to read the story. but there is a book out too. and in the blog story, there's a link for adding your photo to the collage. "A new book, 'Picture Your Life After Cancer,' (American Cancer Society) focuses on the living that…
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throat cancer
hi there friends, my name is sylvan and i will be communicating my record of my cancer with photos from the first day i saw it august 13th till this week december 2, 2012. I am on going into my fourth week of radiation and chemo. I will be showing pics from the different changes my tumor has gone thru. I am being treated…
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Good news bad news
Ok so last night went better with the exception of his hiccups and constant staff being in the room. This morning we found out the cancer js responding to treatment. His absolute plasma cell count was .22 down from 2.58. The goal was 1.29 by the 10th day following the start of chemo so we have already made the treatment…
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~Where in the World Are You~ Bumped Up
Thought I'd bump this as there have been many new members the last few months that have not been added or might like to go on the map; Where in the World Are You Best, John
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Reflections...
I was searching for a post from awhile back and came across the one in the link below; Reflections It was one of the first where Dawn and myself first interacted...LOL. A lot of people in the many posts that I read are no longer here for one reason or another. A few I know have passed, and that is both sad, and actually a…
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Dropping in to say hi!
I hope everyone had a good thanksgiving. We had it in our new house we were building while I was in treatment. I cooked the entire meal except a few sides. It went really well. I've got about 70% of my taste back. Saliva is better but hard to say how much is back. I guess about 50%? I have decided I definitely am…
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Chemo brain
Sitting here watching news and NBC evening news is having a segment tonight regarding chemo brain...interested to see what it's about.
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Packing list help please
I could really use some advice. My husband starts radiation and chemo next week, the following week, we were fortunate to be referred to a Hope Lodge during his treatment. We will be at the lodge for 6 or 7 weeks, and I'd like to go as prepared as possible. Part of the agreement to stay is that I am always with him. So I'd…
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Still alive
I don't know if everyone realizes how close David was to dying on Thursday. He doesn't even remember the day. It was so scary and I was looking bid death square in the face. I know the last couple of days I have been so thankful when he awakes in the morning. I know God is giving me one more day with him. An update on his…
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Post NED letdown
It's been a very emotional few days for Nelson. The news that the MRI was clear is an amazing blessing. We are so happy the treatment worked! But he has been cycling between joy that the cancer is dead and sadness because he still feels soooo bad. He cries frequently and is just a bundle of confused emotions. I also go…
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Cancer Back
It has been almost six years since I was diagnosed and treated for throat cancer. I thought I was cancer free until I had my esophagus stretched about two weeks ago and my doctor saw some tissue that did not look right and had a biopsy done. It is now confirmed my cancer has returned. I had just been checked three months…
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(Sick) PUN
My job in otolaryngology is cut throat. (I told you it was sick.)
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Yesterday was a good day
David had a much better day yesterday. No vomiting, fever or much blood loss. He talked to several people and ministered to anyone who crossed his path. He said yesterday was the first day he woke up and thanked God for giving him one more day. He realized the scope of his diagnosis and so does his church now. The whole…
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Radiation
Squamous Cell Carcinoma Cancer was removed from my mouth and neck lymph nodes. All lymph nodes on the right side were removed, and 2 nodes had cancer. The largest size cancer was .9 centimeters. Cancer was not protruding from my node. Five years ago, the same kind of cancer was removed from the mouth area, and no radiation…
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Going off site for awhile
Hello guys and gals, I'm going to not be posting for awhile...need to go into battle mode. I want you all to know I'll be thinking of you all, and keeping you all in my prayers. I just need to focus and prepare for the 18th. I want to enjoy my moments....my family and life without for a few days thinking or talking about…
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DAMN CANCER!!!
Just had to vent to those who truly understand. Thank you.
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What the?!?!
Someone is posting spam stuff on here again. How do prevent this? Billie
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Hyperlinks:
Tim asked how to embed hyperlinks. Well there is no simple solution; but there is a complex solution. One can embed a hyperlink in a message by using the html anchor tag. Sounds easy. Here is the trick. WARNING: All parts of the hyperlink must be balanced. For example all open quotes much have a matching closed quotes. An…
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Does anyone remember the posts about Don Rhymer.....
He was an HNC patient, but also a writer for TV shows, movies etc. I think Deb Lewis posted a few quotes from his blog on here. Very funny guy. I ended upsuscribing to his blog, I enjoyed his writing so much...He passed away day before yesterday...the blog was just updated last night. He had an article published in the…
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Dad's Scan results
Good News I was wrong. The CT scan did show another 10% percent increase in the tumor, but the Dr. said the was still good. He will go back at the end of Jan for a repeat scan. He does not think we should start chemo to soon, since he is not really having many issues. He thinks the pain is coming from the rads. Thank you…
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Adenoid Cystic Carcinoma
Well, Just over two weeks since neck disection and I can move more than my eyeballs. Thats good huh. Still very stiff but I an strecthing and flexing in prep for rad tx's. They said 4 to 6 weeks to heal and we can get going. They removed a bunch of lymph nodes, fat and muscle. All came back NEG. Thank you God! So the…
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Bond, James Bond !!!
Hi to all my cyber family, I came back from my cruise nearly two weeks ago and when I logged on the the board I couldn't believe all the new people who are here, whats going on in this world ? it never stops. I've been reading the posts everyday but it really saddens me to see that some are having a real hard time, yet it…
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Chemo brain is real and identified
Ok someone needs to make this a link..Hint hint John http://www.foxnews.com/health/2012/11/27/evidence-chemo-brain-verified-by-researchers/?cmpid=GoogleNewsEditorsPicks&google_editors_picks=true
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A Month After My Mom's Sudden Passing
Hello everyone. I haven't been back on here since I posted about my mom's sudden death on October 27. I'm having a really hard time coping with it. My first Thanksgiving without her, her birthday is this Saturday, it just all feels like too much. The short lived victory that the mass that was in her neck, was found to be…
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Speaking of tasting things...
My husband has his left tonsil removed along with a bit of the wall behind it, and a left neck dissection a month ago today (3 of 29 nodes effected with 2 having growth outside the nodes). Tonight he wanted wings from a local restaurant, then said they didn't taste right. I ate them too, and they were the same as every…
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Nellie and NED NED NED!!!
I be Nellie and my best friend is NED!! The Onc's office just called and there is no evidence of reoccurance or disease....I am so relieved (I had actually started to manufacture small pains and aches in my neck and head with the stress of waiting and wondering)....I have an evil side that likes to torture myself, it…