-
Reflections...
I was searching for a post from awhile back and came across the one in the link below; Reflections It was one of the first where Dawn and myself first interacted...LOL. A lot of people in the many posts that I read are no longer here for one reason or another. A few I know have passed, and that is both sad, and actually a…
-
Dropping in to say hi!
I hope everyone had a good thanksgiving. We had it in our new house we were building while I was in treatment. I cooked the entire meal except a few sides. It went really well. I've got about 70% of my taste back. Saliva is better but hard to say how much is back. I guess about 50%? I have decided I definitely am…
-
Chemo brain
Sitting here watching news and NBC evening news is having a segment tonight regarding chemo brain...interested to see what it's about.
-
Packing list help please
I could really use some advice. My husband starts radiation and chemo next week, the following week, we were fortunate to be referred to a Hope Lodge during his treatment. We will be at the lodge for 6 or 7 weeks, and I'd like to go as prepared as possible. Part of the agreement to stay is that I am always with him. So I'd…
-
Still alive
I don't know if everyone realizes how close David was to dying on Thursday. He doesn't even remember the day. It was so scary and I was looking bid death square in the face. I know the last couple of days I have been so thankful when he awakes in the morning. I know God is giving me one more day with him. An update on his…
-
Post NED letdown
It's been a very emotional few days for Nelson. The news that the MRI was clear is an amazing blessing. We are so happy the treatment worked! But he has been cycling between joy that the cancer is dead and sadness because he still feels soooo bad. He cries frequently and is just a bundle of confused emotions. I also go…
-
Cancer Back
It has been almost six years since I was diagnosed and treated for throat cancer. I thought I was cancer free until I had my esophagus stretched about two weeks ago and my doctor saw some tissue that did not look right and had a biopsy done. It is now confirmed my cancer has returned. I had just been checked three months…
-
(Sick) PUN
My job in otolaryngology is cut throat. (I told you it was sick.)
-
Yesterday was a good day
David had a much better day yesterday. No vomiting, fever or much blood loss. He talked to several people and ministered to anyone who crossed his path. He said yesterday was the first day he woke up and thanked God for giving him one more day. He realized the scope of his diagnosis and so does his church now. The whole…
-
Radiation
Squamous Cell Carcinoma Cancer was removed from my mouth and neck lymph nodes. All lymph nodes on the right side were removed, and 2 nodes had cancer. The largest size cancer was .9 centimeters. Cancer was not protruding from my node. Five years ago, the same kind of cancer was removed from the mouth area, and no radiation…
-
Going off site for awhile
Hello guys and gals, I'm going to not be posting for awhile...need to go into battle mode. I want you all to know I'll be thinking of you all, and keeping you all in my prayers. I just need to focus and prepare for the 18th. I want to enjoy my moments....my family and life without for a few days thinking or talking about…
-
DAMN CANCER!!!
Just had to vent to those who truly understand. Thank you.
-
What the?!?!
Someone is posting spam stuff on here again. How do prevent this? Billie
-
Hyperlinks:
Tim asked how to embed hyperlinks. Well there is no simple solution; but there is a complex solution. One can embed a hyperlink in a message by using the html anchor tag. Sounds easy. Here is the trick. WARNING: All parts of the hyperlink must be balanced. For example all open quotes much have a matching closed quotes. An…
-
Does anyone remember the posts about Don Rhymer.....
He was an HNC patient, but also a writer for TV shows, movies etc. I think Deb Lewis posted a few quotes from his blog on here. Very funny guy. I ended upsuscribing to his blog, I enjoyed his writing so much...He passed away day before yesterday...the blog was just updated last night. He had an article published in the…
-
Dad's Scan results
Good News I was wrong. The CT scan did show another 10% percent increase in the tumor, but the Dr. said the was still good. He will go back at the end of Jan for a repeat scan. He does not think we should start chemo to soon, since he is not really having many issues. He thinks the pain is coming from the rads. Thank you…
-
Adenoid Cystic Carcinoma
Well, Just over two weeks since neck disection and I can move more than my eyeballs. Thats good huh. Still very stiff but I an strecthing and flexing in prep for rad tx's. They said 4 to 6 weeks to heal and we can get going. They removed a bunch of lymph nodes, fat and muscle. All came back NEG. Thank you God! So the…
-
Bond, James Bond !!!
Hi to all my cyber family, I came back from my cruise nearly two weeks ago and when I logged on the the board I couldn't believe all the new people who are here, whats going on in this world ? it never stops. I've been reading the posts everyday but it really saddens me to see that some are having a real hard time, yet it…
-
Chemo brain is real and identified
Ok someone needs to make this a link..Hint hint John http://www.foxnews.com/health/2012/11/27/evidence-chemo-brain-verified-by-researchers/?cmpid=GoogleNewsEditorsPicks&google_editors_picks=true
-
A Month After My Mom's Sudden Passing
Hello everyone. I haven't been back on here since I posted about my mom's sudden death on October 27. I'm having a really hard time coping with it. My first Thanksgiving without her, her birthday is this Saturday, it just all feels like too much. The short lived victory that the mass that was in her neck, was found to be…
-
Speaking of tasting things...
My husband has his left tonsil removed along with a bit of the wall behind it, and a left neck dissection a month ago today (3 of 29 nodes effected with 2 having growth outside the nodes). Tonight he wanted wings from a local restaurant, then said they didn't taste right. I ate them too, and they were the same as every…
-
Nellie and NED NED NED!!!
I be Nellie and my best friend is NED!! The Onc's office just called and there is no evidence of reoccurance or disease....I am so relieved (I had actually started to manufacture small pains and aches in my neck and head with the stress of waiting and wondering)....I have an evil side that likes to torture myself, it…
-
PEG
Well I guess I bitched enough about the last PEG I got (they went from a 24french to a 20 french and that was not good for blended food)last month I believe that someone nust have heard me. At 2:00 this am I got up to relieve my bladder and my peg just fell out. I went back to sleep and actually enjoyed the sensation of…
-
Metastasis To Lung
Repeat CT: Stuff in lungs grew. Oncologist suggests a biopsy. I'll go along with that suggestion (with much "normal" trepidation.) Lung metastasis has such a poor prognosis. I have so much to do and so little time to do it. I'll fill you in as time goes by. The only thing remaining is to leave my caregiver (wife) in the…
-
p.e.p scan not always right
Just a short story of what great thing that can happen to you when you have faith.I did not have much faith a few weeks ago when the E.N.T said "Your P.E.P scan showed a hot spot" What do you say, when the doc. say's "You need a M.R.I this week and I have a surgon from Loma Linda who is going to take your case" Ya know I…
-
Mask Fitting Today
Well, I must say that for me, the build up was way worse than reality. I'm a bit claustrophobic so I was expecting a really bad event with a Freddy Kruger style hockey mask that was so restrictive I was going to need something a lot stronger than Adavan to keep me on the table. What really happened was they put this damp…
-
what a day
Today David had the new PICC line installed and it bled since 9:30 this morning. They gave him two platelet transfusions and it just isn't clotting well. Then the gave him a antibodies infusion (his body isn't producing enough). He had a reaction of fever and severe rigors. We finally got past that though. He is set to…
-
RIGHT SHOULDER PAIN
Hi everyone. I have yet another question. I had a right neck dissection back in May and was just wondering if pain in the neck and shoulder area was common. More of my shoulder than my neck. Is there anything I can do to relieve the pain besides pills or do I just need to suck it up and hope it goes away? P.S. I love this…
-
surgery soon
What a day ! 3 hr. wait for thorasic guy...several people left due to schedual being pushed back so far. We of coarse stayed as it is 165 mile ride to get to them. I have a 3 cm. spot in my right lung lower lobe. They will be doing VATS to remove it, won't know of coarse if it is mets or another primary til after path is…
-
Lower cost nutritional supplements
It has frustrated me no end to be taken advantage of by the retail sales industry as I shop for liquid dietary supplements. The mark-up is huge, and since I am still partly dependent on liquid supplements nine months post radiation, and will continue to be so in the forseeable future, I have continued to shop for lower…