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It's been one year
Gosh, this year has flown by, of course, several months I was pretty well stoned and really didn't care about time:) I can now say, I'm 1 year out and with the blessings of God, doing real good. November 2,2011, at the James in Columbus Ohio,my awesome team of surgeons used the di vinci robot to remove my epiglottis, I was…
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Comments on my pictures
Hey board friends... I just realized people could comment on my pictures in my profile...wow!! So I apologize if it appeared I was being a snob and did not respond .... ....thank you to all who commented and just so you all will know...anybody in my neck of the woods or who just wants to put McCall on their bucket list is…
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Laser Nerve Stimulation and HBO
It’s about time I give you a report on how things are going with the treatment. The Laser Nerve Stimulation was working great for about the first 10 treatments, but after that it seamed to start going the other way. I now have feeling in some of my teeth and lower jar but lost motor function in the under lining of the face…
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Update from KTeacher's sister...
I saw it on Facebook....sounds like she did well: Hi all. Shirley here, Bev's sister. Bev and Don asked that I post an update on her surgery surgery: Reconstruction surgery went great. Stuffed a bunch of fat from her arm into the void made from the removal of the eye. Took a piece of skin from her arm and made a "flap…
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Sorry, one more question
My husband had a selective right neck dissection in August 2012. Last night I just noticed that his right scapula protrudes much more then his left scapula. It is very obvious and I'm not sure if it is from nerve damage related to surgery or if it has something to do with the radiation he is currently receiving. We have 10…
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Great survival story from Stage IV rare H&N
Hello my H&N family! This was posted on facebook (one of the two H&N groups I belong to). She gave me permission to post here since she is not on this site. Her name is Lyn Challands. I hope it encourages someone!!! :) Tim +++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++ Not sure if I…
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He Ate Out!!
Hubby and I ate out together today for the first time in six months. Following suggestions from some on this board, we hit the buffet at Golden Corral. He tried a little bit of lots of stuff. He was surprised at how good some things were. His favs were the roast and fried chicken -- yes, FRIED CHICKEN!! It was moist and he…
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The good, the bad, the ugly or rants from a survivor
The good: was having scans be NED on 10/29/12. The bad: woke up on 11/1/12 and my hearing was gone, it has been declining since my rhabdomyasarcoma cancer in 1978 and have worn hearing aids for past 20 years so went to ENT and had tests done pretty much deaf(damn ears ain't functioning). Doc says probably from all the…
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Ring around the Collar
I am now about 12 weeks out since last RAD, just wondered if anyone has what I would describe as a feeling of a sunburn but nothing like right after rads, it seems to be just at the base of my neck and it goes all away aroung the neck. I notice it more when I turn my head and although its mild it feels like a sunburn. I…
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My little brother
I first logged in to this site (different cancer) because my husband had a brain tumor. Within a week of his death (October 10th, my little brother (45 years old) was diagnosed with a tumor in his neck. I convinced him to go to MD Anderson. He has been there for the last few days and there has been good news and bad. The…
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OOOO RAHHHHHHH!
I had my two week revisit with the ENT that did my neck dissection, healing very well, and was able to review the pathology report. The 'remnant active disease' was literally just a few cells, according to the report. My ENT declared me NED! Woo Hoo!!!!!!!!!!!! I'll have revisits with him, with my oncologists, but only for…
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PET SCAN and NED
I had my first scan since finishing radiation and erbitux in July, my Onc went over the results and they came back NED. I was so happy that I actually was crying in the doc's office, the results were just too much. I look at this sight all the time for the great information and the inspiring people that respond, I am so…
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PEG Tube
Told I can not eat the day I get my Pet tube in. Do any of you know when you can start eating again and if there are any restrictions. I have a men's breakfast the next day should I cancel?
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Adenoid Cystic Carcinoma Right Submandibular Gland
Hi all. My name is Luke and I was just diagnosed with ACC and I am looking for others with this type of cancer. I have been reading lots of your stories and you all seem so informed. I am scheduled for selective neck disection 11/12/2012 and rad treatment after. There is so much info (not much positive) out their that it…
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Sugery scheduled
Surgery is scheduled for 7:15 tomorrow morning. (Pacific time) I will have my right eye removed and a partial neck dissection. Just want this cancer out. I appreciate your prayers and support. I expect it to be a 10 hour surgery. My sister will post as soon as she is able. I know from the last surgery that I will not be…
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Some symptoms I have a question on. ?
Hello All. I wanted to ask a question if I may? I think I have been doing great. I finished rads on January 20, 2012 and all of my scans and monthly scopes / finger exams have come back normal / NED. I have been out cutting wood (to the tune of four cords now. A cord of wood is 4ft deep, 4ft tall and 8ft long) ....I feel…
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New delays
We were supposed to start chemo today, but the chemo inc thought David was not healthy enough yet. She has postponed his first treatment until next Thursday. He was supposed to do radiation today, but the machine had a glitch. After freaking out about wearing the mask, then they told him they would have to start tomorrow.…
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Ear pain during tx is intensifying..
Has anyone experienced ear pain (sometimes both) during tx? He had some pain before even starting tx and now it's getting worse. Mostly effects the side that is getting radiation. It hurts so bad when he has to cough up the mucus, he plugs both his ears to help with the pain. He's mentioned this to the team at the hospital…
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Neuropathy is getting worse....
at least in my hands. Does this just continue to get worse, or does it peak and then start fading away? It's hard hanging onto something, and nearly impossible to pick up small things...like I'd have a hell of a time picking a dime off a hardwood floor. Makes it hard to write, and even put on mascara...At first it was just…
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Happy
Last Tuesday, I had a cat scan to determine if the spot on my lung ( since November 2011 ) has changed any. Went for discussion today, my lung Dr. says the spot is exactly the same, no growth or change...I don't have to go back for 6 months and that will be an xray. He also admitted He may have jumped the gun on dx of…
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new here
Hi, im Alan and i have been reading a lot of these messages over the past week and finally decided to join. Lots of wonderful advice and encouragement. I need all i can get. I'm stage 3 SCC base of tongue, only one tennis ball size node, none others affected but no primary was found. Tomorrow is #15 rad treatment with 15…
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Just starting
I am going to be starting a combination of chemo and radiation in a couple weeks. Doing chemo once a week and radiation 5 days a week. They suggested that I put in a PET tube. I am having mixed emotion on if that's a good idea or not. Any advice would be appreciated. I started juicing to get used to that, and in my opinion…
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thumbing my nose at the beast
hah! not gonna knock me off so easily, you ****. 3 months after tx ended...PET scan still showed a hot spot in my throat. two weeks after that...my jaw/neck swelled up and the trismus worsened (was barely able to open my mouth). my onc was out on a two-week vacation, but the ENT doc found necrotic tissue deep in my throat…
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Help with Cancer Needs After a Natural Disaster
Hi Folks...wanted to share this information: Frequently Asked Questions for Cancer Patients and Their Caregivers Even during major weather events, the American Cancer Society is there to offer patient services and programs. People in areas affected by storms who need American Cancer Society services should call our…
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Newaround here...
Hi, My name is Kylie- I live in Maumelle, Arkansas (just north of Little Rock) and I was diagnosed with a stage 3 Sarcoma in my right maxillary sinus on June 29, 2012. I feel blessed that several circumstances came together and I was seen by the Chairman of the department of otolaryngology- head and neck surgery-at the…
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My 89 yr old Dad
WE will soon be helping our Dad make decisions on treatment and I may be coming back here to ask opinions of all you wonderful survivors. My Dad's health is good. Very active driving, mall walking, bowling, grocery shopping, bowling, laundry, some yard work, getting meals ready with my Mom (who is doing well with CHF but…
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Bleeding from the mouth after chemo treatment
I usually get me chemo treatment on Tuesday, by Friday I am suctioning out blood from my mouth. Does anyone else have this problem. I have a peg tube, i cant take anything by mouth.
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calling all amateur Oncologists (or even real ones if any are hanging around)
Ok, just to recap I'm SCC BOT Stage 1 w/n2c. Just finished Induction round 2 and all pain, swelling and visual (throat scope) of tumor negative. So, the gold standard treatment is (if no surgery) Induction Chemo followed by 35 RADs w/wo more chemo. So, here's my question, surely there have been other protocols tested.…
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HPV+ ???
When I asked my dr if my tonsil cancer was HPV+, she said that there is "varying degrees" of HPV+. Apparently, some came back positive and some negative. Has anyone else tested not completely positive for HPV??? What does this mean?? Dr. said that there are trials out there right now but not enough data to prove that lower…
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JUST CHECKING IN
Hi everybody just wanted to check in i have been doing good back to work since September running my landscaping company and i am very happy to be at work,working out and enjoying time with my family lawn maintenance is starting to slow down so i'll have more time at home woo hoo so far the scans have come back good ct went…