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Ok...about this tube removal....
After FINALLY getting the two Dr.'s to communicate in the way that made them each happy, I finally got my appointment to get my tube removed. They gave me my choice...to have anithesia when they pull it out (no driving no work for the rest of the day)...OR, just suck it up and have them pull it without anything....I chose…
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Clean PET
Jim finished treatment August 2010 for inoperable advanced hypopharyngeal cancer: today he was told he had a completely clean PET scan last week! Talk about Thanksgiving! We definitely are!
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Results back sooner....dang !
Hello guys and gals, It was almost this time a year ago last time I got crappy news. MRI/CT was good news in the H/N area I'm still considered stable disease. (meaning they cannot tell me if the dx is microscopic...but can tell me it's not growing) I recieved this news on Tuesday...but didn't want to share it til the…
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so many variables
I am so worried about my husband. The doctors are doing a lot of blood work watching for signs the hypercalcemia is coming back. Our chemo dr. told us on Monday that it will come back. David wasn't thrilled to here that. They had put him on a new anti-nausea regimen and it was working great until David started having…
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Just finished 2nd round of Induction-food question
I'm in my second rest period and all of a sudden, meat in any form turns my stomach in knots and, tastes like crap. Ever happen to anyone else? Thanks, Joe
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Last week of treatment
Well, like many have said the treatment bus ride has been rough, but seemed to go by fairly quickly. I think the long train ride back to "normal" will take more time, god knows I am not a patient man. I am down to 5 radiation treatments left and even though I know I will survive them I am not looking forward to the week.…
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Ringing in ears
My husband just completed 19th radiation today and second Cisplatin last week. Now has ringing in the ears constantly and headaches periodically. Has anyone had similar experience or knowledge regarding this. We see the Drs tomorrow but am just wondering if this is common. Thanks to all of you and take care. Joan
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Another KTeacher update from her sister on Facebook....
Saturday was good. She was peppy in the morning and ate some breakfast. She took a few walks up and down the hall, which was great. She ate some lunch. Don visited all day and kept her company and assisted with her drinking and constant moistening her lips. The nurses and doctors came by constantly, which is good. After…
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8 weeks post chemo/rad
Hey everybody! My dad is 8, on Wed he will be 9 weeks post treatment. His weight is stabile, he is trying really hard to eat and drink. It still hurts when he swallows, his tongue is coated white and hurts on the base when the tumour was. It hurts only when he swallows. But he can eat a variety of foods and drinks 2…
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Bon Voyage,
I didn't really want to post this because I've read a lot of posts today of my "family" not doing to good or going through hard times with treatment or bad side effeects from treatment but I just wanted to let you know I go on my cruise in the morning and I am taking a little piece of each and everyone of you with me. So I…
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Lucky or Fooling myself?
Just finished my 8th of 35 rad Tx. I have stage IVa SCC, Lateral Tongue, Floor of Mouth, Mandible and Lymph Nodes. Some of the stories here scare the crap out of me. The "Lump" on the floor of my mouth has all but disappeared, my lymph nodes swelled up like Walnuts after the 1st Tx, but now are almost normal. The only…
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Small Lymph Node
My husband has been cancer free, from hpv stage 4 tonsil cancer now for 19 months. I have a question, the other day I was rubbing the bottom half of his neck, and felt a small lymph node, the size of maybe the tip of my finger. His neck hurts him all the time, but now I felt this. He never had any type of surgery just…
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I'm just beside myself
My husband was diagnosed 3 weeks ago with rhumatoid arthritis, I know this seems way off our topics, but his rhumatolagist put him on a drug she says is used for cancer..methotrexate...she said it may cause mouth sores and losing hair. This is the end of the second week, he takes 3 once a week. I'm very concerned because,…
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Today is the beginning of a new outlook !
Hey everyone ! I wanted to thank you each personally for the responses I received on the news from yesterday. I took Ditto's advice and grieved enough to throw it to the back of the bus and out the back door ! I'm going to visit with family today and maybe out to the casino. Got some great info for my team on types of…
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It's been one year
Gosh, this year has flown by, of course, several months I was pretty well stoned and really didn't care about time:) I can now say, I'm 1 year out and with the blessings of God, doing real good. November 2,2011, at the James in Columbus Ohio,my awesome team of surgeons used the di vinci robot to remove my epiglottis, I was…
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Comments on my pictures
Hey board friends... I just realized people could comment on my pictures in my profile...wow!! So I apologize if it appeared I was being a snob and did not respond .... ....thank you to all who commented and just so you all will know...anybody in my neck of the woods or who just wants to put McCall on their bucket list is…
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Laser Nerve Stimulation and HBO
It’s about time I give you a report on how things are going with the treatment. The Laser Nerve Stimulation was working great for about the first 10 treatments, but after that it seamed to start going the other way. I now have feeling in some of my teeth and lower jar but lost motor function in the under lining of the face…
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Update from KTeacher's sister...
I saw it on Facebook....sounds like she did well: Hi all. Shirley here, Bev's sister. Bev and Don asked that I post an update on her surgery surgery: Reconstruction surgery went great. Stuffed a bunch of fat from her arm into the void made from the removal of the eye. Took a piece of skin from her arm and made a "flap…
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Sorry, one more question
My husband had a selective right neck dissection in August 2012. Last night I just noticed that his right scapula protrudes much more then his left scapula. It is very obvious and I'm not sure if it is from nerve damage related to surgery or if it has something to do with the radiation he is currently receiving. We have 10…
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Great survival story from Stage IV rare H&N
Hello my H&N family! This was posted on facebook (one of the two H&N groups I belong to). She gave me permission to post here since she is not on this site. Her name is Lyn Challands. I hope it encourages someone!!! :) Tim +++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++ Not sure if I…
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He Ate Out!!
Hubby and I ate out together today for the first time in six months. Following suggestions from some on this board, we hit the buffet at Golden Corral. He tried a little bit of lots of stuff. He was surprised at how good some things were. His favs were the roast and fried chicken -- yes, FRIED CHICKEN!! It was moist and he…
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The good, the bad, the ugly or rants from a survivor
The good: was having scans be NED on 10/29/12. The bad: woke up on 11/1/12 and my hearing was gone, it has been declining since my rhabdomyasarcoma cancer in 1978 and have worn hearing aids for past 20 years so went to ENT and had tests done pretty much deaf(damn ears ain't functioning). Doc says probably from all the…
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Ring around the Collar
I am now about 12 weeks out since last RAD, just wondered if anyone has what I would describe as a feeling of a sunburn but nothing like right after rads, it seems to be just at the base of my neck and it goes all away aroung the neck. I notice it more when I turn my head and although its mild it feels like a sunburn. I…
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My little brother
I first logged in to this site (different cancer) because my husband had a brain tumor. Within a week of his death (October 10th, my little brother (45 years old) was diagnosed with a tumor in his neck. I convinced him to go to MD Anderson. He has been there for the last few days and there has been good news and bad. The…
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OOOO RAHHHHHHH!
I had my two week revisit with the ENT that did my neck dissection, healing very well, and was able to review the pathology report. The 'remnant active disease' was literally just a few cells, according to the report. My ENT declared me NED! Woo Hoo!!!!!!!!!!!! I'll have revisits with him, with my oncologists, but only for…
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PET SCAN and NED
I had my first scan since finishing radiation and erbitux in July, my Onc went over the results and they came back NED. I was so happy that I actually was crying in the doc's office, the results were just too much. I look at this sight all the time for the great information and the inspiring people that respond, I am so…
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PEG Tube
Told I can not eat the day I get my Pet tube in. Do any of you know when you can start eating again and if there are any restrictions. I have a men's breakfast the next day should I cancel?
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Adenoid Cystic Carcinoma Right Submandibular Gland
Hi all. My name is Luke and I was just diagnosed with ACC and I am looking for others with this type of cancer. I have been reading lots of your stories and you all seem so informed. I am scheduled for selective neck disection 11/12/2012 and rad treatment after. There is so much info (not much positive) out their that it…
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Sugery scheduled
Surgery is scheduled for 7:15 tomorrow morning. (Pacific time) I will have my right eye removed and a partial neck dissection. Just want this cancer out. I appreciate your prayers and support. I expect it to be a 10 hour surgery. My sister will post as soon as she is able. I know from the last surgery that I will not be…
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Some symptoms I have a question on. ?
Hello All. I wanted to ask a question if I may? I think I have been doing great. I finished rads on January 20, 2012 and all of my scans and monthly scopes / finger exams have come back normal / NED. I have been out cutting wood (to the tune of four cords now. A cord of wood is 4ft deep, 4ft tall and 8ft long) ....I feel…