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Colonoscopy done, check. Hernia surgery done, check! ;) :)
Hello All ... For those that sent the pm's. Thank you. I thouht I would just post a thread for an update. Boy oh boy have the last two days given me some good comedic material to write about one day. May I share just a little? Okay, since you all said yes :) My colonoscopy was yesterday. My hernia surgery today. I'm doing…
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teeth protection
Hi to everyone. I'm new here and eager for all info you can give as well as the opportunity to share and vent. My 26 year old son (physically disabled) was diagnosed with stage IVb SCC (base of tongue, floor of mouth and bilateral lymph nodes). He's at number 28 of 35 rads and has had 4 cisplatin chemos. The situation has…
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HPV Status
Just wanted to say that I never thought how saying that HPV postive status has a better prognosis could affect and be hurtful to some on this site. I realize now that it could be a discouraging comment if you arent' hpv positive. We are all in this together no matter the status and I am sorry to have ever offended anyone.…
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How do you keep food down with PEG?
Hi Everyone, Well last week was the PEG insert. He is being fed via gravity bag. Does meds by syringe. Does his flushing of water before and after. First couple days was able to hold down the food (called 2.0) and now he throws up everytime. Also can't hold his meds down with syringe. Do we know why this could be? He's…
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How long to get back taste and saliva?
Greetings all. It's been a while for me on the board. Sure glad to see almost everyone is doing so well. I have a question about the amount of time it takes to get back at least some taste and some saliva after treatmente ends. I am at 3 weeks and 2 days after radiation and 3 weeks after chemo. I had 33 rad treatments and…
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Question about taste changes
My significant other/spousal equivalent (:-)) is in week 3 of 7 of radiation and has 1 of 3 chemo cycles under his belt for tonsil cancer, stage 4A. He has dry mouth but is tolerating it well with biotene and some xylitol mints and a spray, caphosol. He also has a very sore throat which he is using the caphosol for, just…
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New diagnoses with not enough info
Hi, My husband had a cervical lymph node that showed squamous cells via FNA. I still can't catch my breath and feel like the earth just disappeared under my feet. He has swollen left tonsil on the side of the lymph node and a cough.....but that is all. His bloodwork is perfect. I am petrified to find out what the primary…
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Collection of fluids
Hi everyone I need your help, I taken my hubby to hospital as his right cheeck was swallen n apparently he has an infection apparently a collection of fluid(puss). Surgery is risky n he is under care of doctors has any one had this happen to them and if so please help me.
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Tim 6003 CT Lung Scan back - but "odd" Any advice or opinion?
Okay all ....you all know me well enough to know by now I like it straight and simple with some stats and facts ...so here are my results today with my oncologist visit for a routine follow-up scan....... and I hope to hear some thouhts and feedback from you all. I had been asking for an eyes to thighs scan for the last…
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PICC line tomorrow
Well we go in tomorrow at 8:30 for a PICC line for David. The doctor's continue to worry about his nutrition and hydration. We had a doctor's appointment with the radiation oncologist and David had lost 8 pounds since we saw the doctor last Monday. They were not pleased to say the least. David is doing better with the Two…
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How to say goodbye to your doctor...
Hi all, Briefly, to catch up, my husband is being for treated for lung mets from his tonsil cancer - incurable. Been going to the same oncologist since initial diagnosis February 2011. Since day one, we have not been crazy about his personality. Now that things have gone "south" and we had a second opinion, we MUCH prefer…
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Blood transfusion
Wow, two posts in two days...thanks for being here, everyone! Anyway, my husband will be having a blood transfusion in the morning. He has been off of chemo (reminder, he has lung mets and was on a study) since the second week of September. Taken off the study because of blood counts. Two different doctors (our new…
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Dry mouth
Just thought I would share what I have been using for dry mouth at night recently. Although I realize what works for one does not work for others. I originally tried the Biotene Spray and Mouthwash but found they both were limited in how long they worked, thus I continued waking up about ever hour to take a water…
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Ok...about this tube removal....
After FINALLY getting the two Dr.'s to communicate in the way that made them each happy, I finally got my appointment to get my tube removed. They gave me my choice...to have anithesia when they pull it out (no driving no work for the rest of the day)...OR, just suck it up and have them pull it without anything....I chose…
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Clean PET
Jim finished treatment August 2010 for inoperable advanced hypopharyngeal cancer: today he was told he had a completely clean PET scan last week! Talk about Thanksgiving! We definitely are!
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Results back sooner....dang !
Hello guys and gals, It was almost this time a year ago last time I got crappy news. MRI/CT was good news in the H/N area I'm still considered stable disease. (meaning they cannot tell me if the dx is microscopic...but can tell me it's not growing) I recieved this news on Tuesday...but didn't want to share it til the…
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so many variables
I am so worried about my husband. The doctors are doing a lot of blood work watching for signs the hypercalcemia is coming back. Our chemo dr. told us on Monday that it will come back. David wasn't thrilled to here that. They had put him on a new anti-nausea regimen and it was working great until David started having…
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Just finished 2nd round of Induction-food question
I'm in my second rest period and all of a sudden, meat in any form turns my stomach in knots and, tastes like crap. Ever happen to anyone else? Thanks, Joe
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Last week of treatment
Well, like many have said the treatment bus ride has been rough, but seemed to go by fairly quickly. I think the long train ride back to "normal" will take more time, god knows I am not a patient man. I am down to 5 radiation treatments left and even though I know I will survive them I am not looking forward to the week.…
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Ringing in ears
My husband just completed 19th radiation today and second Cisplatin last week. Now has ringing in the ears constantly and headaches periodically. Has anyone had similar experience or knowledge regarding this. We see the Drs tomorrow but am just wondering if this is common. Thanks to all of you and take care. Joan
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Another KTeacher update from her sister on Facebook....
Saturday was good. She was peppy in the morning and ate some breakfast. She took a few walks up and down the hall, which was great. She ate some lunch. Don visited all day and kept her company and assisted with her drinking and constant moistening her lips. The nurses and doctors came by constantly, which is good. After…
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8 weeks post chemo/rad
Hey everybody! My dad is 8, on Wed he will be 9 weeks post treatment. His weight is stabile, he is trying really hard to eat and drink. It still hurts when he swallows, his tongue is coated white and hurts on the base when the tumour was. It hurts only when he swallows. But he can eat a variety of foods and drinks 2…
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Bon Voyage,
I didn't really want to post this because I've read a lot of posts today of my "family" not doing to good or going through hard times with treatment or bad side effeects from treatment but I just wanted to let you know I go on my cruise in the morning and I am taking a little piece of each and everyone of you with me. So I…
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Lucky or Fooling myself?
Just finished my 8th of 35 rad Tx. I have stage IVa SCC, Lateral Tongue, Floor of Mouth, Mandible and Lymph Nodes. Some of the stories here scare the crap out of me. The "Lump" on the floor of my mouth has all but disappeared, my lymph nodes swelled up like Walnuts after the 1st Tx, but now are almost normal. The only…
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Small Lymph Node
My husband has been cancer free, from hpv stage 4 tonsil cancer now for 19 months. I have a question, the other day I was rubbing the bottom half of his neck, and felt a small lymph node, the size of maybe the tip of my finger. His neck hurts him all the time, but now I felt this. He never had any type of surgery just…
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I'm just beside myself
My husband was diagnosed 3 weeks ago with rhumatoid arthritis, I know this seems way off our topics, but his rhumatolagist put him on a drug she says is used for cancer..methotrexate...she said it may cause mouth sores and losing hair. This is the end of the second week, he takes 3 once a week. I'm very concerned because,…
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Today is the beginning of a new outlook !
Hey everyone ! I wanted to thank you each personally for the responses I received on the news from yesterday. I took Ditto's advice and grieved enough to throw it to the back of the bus and out the back door ! I'm going to visit with family today and maybe out to the casino. Got some great info for my team on types of…
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It's been one year
Gosh, this year has flown by, of course, several months I was pretty well stoned and really didn't care about time:) I can now say, I'm 1 year out and with the blessings of God, doing real good. November 2,2011, at the James in Columbus Ohio,my awesome team of surgeons used the di vinci robot to remove my epiglottis, I was…
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Comments on my pictures
Hey board friends... I just realized people could comment on my pictures in my profile...wow!! So I apologize if it appeared I was being a snob and did not respond .... ....thank you to all who commented and just so you all will know...anybody in my neck of the woods or who just wants to put McCall on their bucket list is…
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Laser Nerve Stimulation and HBO
It’s about time I give you a report on how things are going with the treatment. The Laser Nerve Stimulation was working great for about the first 10 treatments, but after that it seamed to start going the other way. I now have feeling in some of my teeth and lower jar but lost motor function in the under lining of the face…