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Pre-Existing condition?
My Medical Insurance company is starting to question weather or not I had a pre existing condition. I'm on my wifes insurance, she is a nurse at a local hospital and, one would think have excellent insurance, it is expensive enough. Any body else had this BS thrown at them? It's bad enough having to face Radiation and…
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Upgrade Insight
As I know it... I'm not totally sure of the upgrade reasoning other than an old platform, hardware, etc.... There were some discussions on what would be nice as add ons to the existing forum. Mostly all functionality enhancements I had thought. But just to clear some mystery a little (again, as I know it)... Greta is the…
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finally got chocolate back
Well, i am about 2 years post treatment. many thanks to all that post here for their help in my fight. I am pretty much back to normall with a few exceptions. the reason for this post is that i recently got chocolate back. my taste buds slowly returned after treatment, but choclate just kept tasting like dirt. i just could…
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Just need some thoughts
I recently posted about having ear pain and neck pain and received some calming replies. However I called my Onc Doc today about it and received a call from his nurse. She said that the ENT doc we see on the 31st would be able to evaluate that, and then I asked if any information on the PET scan, that was I made my…
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Employee Discount
Well, I think I'm now getting the "Employee Discount" on those rare occasions when I actually eat something in the hospital cafeteria. Husband has now been in there for 10 days and is in his third room. He was given clearance to move from the Telemetry Unit to the Liver/Kidney floor. His heart is functioning as well as it…
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Merry Christmas
Hey all you wonderful warriors, I just want to wish you all a Merry Christmas and a Happy New Year!! I have not been on in awile, my hubby is doing well. Still has balance issues, massive sore throat and now I believe a pinched nerve in his leg. Other than that he's great. I was wondering a few weeks ago I noticed he had…
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Week 4 is the one where the caretaker pulls their hair out?
I am soooooo frustrated, we saw the dr on Friday, and My husband refused to go to the bathroom before his weigh in.. He said water has weight. He then went to sleep last night and in his many trips to the restroom dropped 5 lbs overnight on our scale, in 8 hours. He's suppose to get in 3000 calories, tries things and says…
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It appears that we can send and receive emails...
but there is no notification that there is one waiting in the box....probably a glitch, but one that they should know about. p
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Followup scans....
The other day Staceye was talking about follow-up scans....since she and I have the same Oncologist...and go to the same ENT's office, I suggested that we ask about them at the ENT's since she was getting no where with the Onc. Well....I had an appointment with the ENT, and mentioned that tho the Onc had scheduled my 3…
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NEW NEWS MADE MY DECISION EVEN EASIER
As I have posted recently regarding going on SS Disability and getting the stress out of my life, My decision to actually try to make this happen has just gotten easier. For any of you with kids in college a long way from home, or kids struggling with drug and alcohol abuse, I have one of each. My youngest son is home on…
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There's no place like home !
Hello guys and gals ! Things went well with the VATS/WEDGE resect of my right lung. I lost right around 10 % of the lung itself, and am on oxygen.....for .....???? I will be having a Lung PT person coming to the house a few times a week, until I'm back to a normal routine. Day 2 in hosp.....was tough (pain wise)....still…
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tender and swollen neck 7 weeks post radiation
My husband 2was diagnosed with invasive squamous cell ca of the epiglottis. The staging was cT2N2cM0 Stage 4a. He had 35 radiation treatments totaling 7000cGy and 2 6 hour treatment session of Cisplatin. He finished his treatment on October 26,2012. The past week and a half he has been having throat pain saying it is…
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Strange following breathing treatments
I will repeat myslf partially for newbies and/or those like me with Chemo Brain. After 13 years post treatment I encountered several pretty rough side effects. The first to show up was my chin went totally numb followed by numbness from my right ear all the way down my lower jaw. When I say numb I mean that in the past…
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salivary gland cancer
Is there anyone who was recently diagnosed or had a recurrence of salivary gland cancer?
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Afraid of Possibility of SCC
Hi everyone - I was a long time lurker on these boards because about 10 years ago I lost my father at age 27 to a rare large tumor in his leg that eventually metastacized and caused an Aneurysm. So my story is this, about a year or two ago I saw white patches on the sides of my tongue and immediately was concerned as I'm a…
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Peace, Comfort & Healing to My Online Family
I just wanted to wish each of you all (cancer patients, survivors and caregivers) a very Merry Christmas. I know we are all from different geographic areas as well as many walks of faith, but you all, everyone of you will never know how strongly I feel towards each of you. So no matter where you are physcially at or your…
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Merry Christmas
Just wanted to send everyone on this site a very Merry Christmas wish and hope that the new year brings the best gift of all...the gift of health. God bless all of you and thank you for all of the support, advice and care that you have taken the time to offer me since our fight with cancer began.
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Merry Christmas to all...
Whatever your holiday, whatever your celebration, I wish you all a very pleasant and fulfilled Day. i am grateful you have all touched my life and my heart. hugs, Kari
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Merry Christmas to all!
I wanted to wish all of my CSN friends a Merry Christmas. A year ago I had no clue that I would have found all of you this year. I had just noticed a swollen gland in my neck(or so I thought). The Dr. said oh it will go down, don't worry about it. A year later here I am, done with treatment and have had a clear pet scan.…
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Marry Christmas
Just wishing you all the best as many of you continue in your fight with Cancer into the New Year. Life is a struggle and fight but it can be won, never give up and keep your focus on being a survivor. I just finished HBO treatment Friday; it did not do what the doctors had hoped it would do but there was a lot of other…
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Have a safe and forward looking holiday.
Be grateful for your friends and family (both on and off line) and that you have a reasonable chance to beat this beast. Even though it seems that my reaction to the RADS have manifested themselfs much earlier than others have reported (Only four treatmemts and the back of my throat already feels like hamburger and…
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acute paronychia from erbitux
for those who care about such medical geeky things, I've just learned the technical name for the dreaded "erbitux nails". also sometimes known as "felon" or "whitlow". did a search of these boards for "paronychia", and didn't get a single hit, lol. my docs didn't give it a name either. but there's actually quite a bit of…
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Life path change
As everyone knows David's prognosis is not good and measured in months. I have talked with my work about extending my FMLA, but was unsuccessful. They want me to take a leave of absence and pay $1650 a month for Cobra. David and I have talked and we have decided that it is time for me to cut my ties with my school…
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Good News
A few good things have happened in my life. * I have a new grand daughter, Mia Rose. Unfortunately, she lives in the Midwest and I'm stuck in the Pacific Northwest. It is unlikely I will see her except in photos. * I met with my youngest son and his girlfriend. They came up to Seattle from Oregon. * I successfully used…
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Fridge clean out
So hubby and I decided to come home to Vermont this weekend. We arrived home after a wind storm to a house with no power (nothing unusual for the mountains in Vermont). We got our kids, cranked the wood stove, collected water from stream for flushing toilet, and snuggled in the living room all together. My mother in law…
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Error 324
again, this morning. Error 324 (net::ERR_EMPTY_RESPONSE): The server closed the connection without sending any data. and now, slooooow like molasses on christmas day. apparently the 'upgrade' has not addressed the site's most glaring and persistent problems at all. bah humbug. pardon for not sounding positive about this…
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Swallowing water accomplished!
As most of you know we were struggling with some of the Dr's last orders after tx and they were to SWALLOW! This was a bit of a problem because of the thick mucus and some pain. But after getting great advice from all of my peeps here with using the suction machine more and more rinsing with the salt/baking soda, and…
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How much quality time while undergoing treatment?
Hi all, I searched and read and read and did not find much covering the amount of time each day one could call "quality" time. That is when your mind and body are working well enough you can at least surf the Internet or maybe even write some emails or post an update here. Of course, each person and treatment plan is…
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Christmas plans have been sidetracked
Well I was going to have Christmas in CA with sister, but things change. On flight to CA I passed out and Doctors on board were worried with my past history. They thought I got overheated and as I was wearing a fentanyl patch I may have got to much medicine, so they checked me out and I had a low blood pressure and was…
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Update On My Husband
My hubby remains in the hospital. So many different doctors and nurses coming and going, I've lost count. His renal failure is improving slightly, but he now has a bladder infection which is being treated. They have removed some of the myriad of medications which he normally takes. They are using a different insulin(one he…