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Officially NED !
Well just received the phone call.....and after one year I AM DEEMED NED ! I will still be going in every three months for scans because of the dx I have and staging of. But '13 seems to be a very lucky number for me. I hope to soon go out and celebrate.....and P I am doing the kitchen dance with just a bit of trouble…
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No longer employed
I sent my letter of resignation and it will be accepted as of January 7. Today I get emails shocked my husband is so sick. WTH? Now they are going to pretend they didn't know what I was going through (am going through). I know I am ranting, but don't add insult to injury. The truth is they knew and either didn't care or…
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Parotid tumor, pain always means malignancy?
Hello First of all, please forgive my poor english, this is not my native language (I am from Poland) but I will try to describe my problem as good as I can. Many (at least five) years ago I discovered a strange structure in my salivary gland. I did nothing with it, it was painless, I thought it was a kind of bone or…
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What happened???
Something is different. Nothing is in the same order. Not that i'm OCD but you get used to things right?
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They say ...
Be Careful What You Ask For . I asked for a second opinion, and I'm getting cisplatin, erbitux, and something else. Starting in about 3 weeks. So when I'm bald, and feel like sh*t, my friends, please remind me why I'm doing this. Well, I'm ugly already; so being both bald and ugly won't be such a bad thing. Not that I'm…
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Petty, I know.....
Hey guys, I am more of a lurker than anything, I have gained a lot of encouragement from reading all the posts and I try keep up with those who have things going on- good and unfortunately not so good. Today, though, I am having a "poor me" day and I need a pat on the back, please. My last Chemo was on Nov 1 and my last…
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Had to stop radiation...weeping blood in mouth
Sorry for being so explicit, but my dad had to stop rad treatment for at least one week due to some mouth issues the rad-onc had not seen/expected so soon. Cancer and site of tomo-radiation is floor of mouth, however, this bloody weeping is over the entire roof of mouth with bloody sores on lips and inside cheeks. This…
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Marching Forward
Hi Everyone, Well, we're marching forward here, just at a snail's pace. Hubby has Cardio appt. tomorrow. I really think a mistake was made when they removed all but a fraction of his diuretics in the hospitalization. Feet and legs still severly swollen and urination starting to dwindle(urine is dark brown also). Blood…
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Tough Prognosis part 2
Hello to all the fellow survivors and wishing a Healthy New Year. A big thank you for all the comments, thoughts, & prayers during my recent diagnosis. I am amazed each day at the amount of love that pours out from this site. I also wish to thank those visiting my Caringbridge site it makes my journey easier as well as…
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Gators in the Hood... ~ Photos
On a somewhat lighter note... Those that have mentioned about fishing with me... Being in Florida, part of the local wildlife share many of my fishing holes..., snapped a few photos from New Years Day at the local Crappie fishing hole. I saw a few of these guys out on the bank sunning themself, two were at least 10 - 12',…
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nothing tastes good
Jeff's two favorites-apple sauce which he has at every dinner and coffee ice cream every night tastes yukie now. He is so bummed. Even the coffee we get at Dunkin's everyday is not appealing. It's breaking my heart to see him so misirble. He has only lost about 5 pounds in 4 weeks. We got a reprive on chemo, we are…
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Throat cancer Hpv
I am new here my name is Lili , my husband has HPV tonsil stage 3 , radiation and chemo treatment , he will finish next week, he didn't want the Peg tube and he lost 3o pounds already I am so worried he didn't eat for the last 2 weeks just Gatorade . I wonder how is the healing process of the throat , how long it will take…
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DEJAVU
Its been over a year now back in April 2012 that I introduced myself with a post "Is the Fight Worth It" and got so many uplifting responses. I did fight it and thought I had won back in Oct when I posted NED per the Doctor reviews of the CT scan. Since then however things have changed, my left ear started to bother me and…
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2013 here we come !
Hello everyone ! Well I haven't seen my onc's yet because of all the holiday schedualing.....but did receive path reports in the mail today. My lung was NOT mets or cancer period ! My H/N area came back no malignancies noted. So it's sounding as if I'll be receiving the NED'S thumbs up yet in January. I'm still pretty…
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BELIEVE
For my good "Old" buddy Kent...; Merry Christmas...and BELIEVE, John
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David in the New Year
It sounds like we will start the new year with a blood transfusion. David was very washed out yesterday and didn't even get out of bed until 5 pm. When they drew his blood (while asleep) his hemoglobin was 7.4. They give blood at UK whenever it goes below 8.0 so we are waiting for a call to come in for a transfustion (well…
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Very Tough prognosis my days here are numbered
Thank you all for this great site & all the great people on the bus. It looks like my time on bus will be a few weeks or months. I am home in Minnesota after being in hospital at Salt Lake City over Christmas. They found that cancer has returned & is wrapping around my caratoid arteries, and part of my spine is exposed due…
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CSN Email :(
Took me until yesterday to realize that all of my archived CSN Email messages are gone. :( ( Sorry if I missed an earlier post about this, but does anyone know if these messages are gone for good? There were some wonderful communications from folks that are now gone. I really wanted to keep some of those for a while. Guess…
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Tim6003 Lung Scan Results are in
Here is what the report reads +++++++++++++++++++++++++++ Auxillary regions are clear Mediastinum is normal Lung field assessment shows decreasing nodularity in the superior segment left lower lobe as compared to prior exam, (Nov 7th) now with only one dominant nodular measuring 4mm and other stranding in the area.…
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Connection problems
Gosh is it just me? I'm still having a hard time getting on to the site. I haven't been able to get on for the last 2 days. Any suggestions? Billie
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ShowDown in Orlando....Skiffin16 & Longtermsurvivor
My wife and I had the opportunity to meet Pat (Longtermsurvivor) and his lovely wife today in my neck of the woods... The meeting place couldn't have been more up my alley also... Bass Pro Shop - Orlando. We had lunch, talked for awhile and had a great time, my wife and I were very happy to meet you both Pat. It's always…
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Fighting against fear
I can go hours now without thinking about the cancer. I can't go a whole day yet, but I can make it most of a day. And when I do think about it, it's usually just as a part of my life, as something that happened to me like so many other good or bad periods of my life. Except when I hear about the recurrance of cancer after…
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Infection
I am back! About a week ago one of my husbands mollars fell out. This morning he woke up and his face was swollen where the tooth fell out. He said it's pretty bad and would not give me any details. He is going to see a PA today (not happy about that), his doctor is not in today. Anyways, I hope they get the infection…
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Another Milestone
Happy New Years Eve everyone. Today I reached another milestone in my journey ; 1 year ago today I finished my treatments and continue to be cancer free. While my journey isn't over , I will continue to see my onco and rad docs every 6 months, my ENT every three, with port flushes, CAT scans and throat scopes thrown in for…
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What to expect
if I have to have a partial neck dissection. Im creating a second post to my thoughts post. Seems the ENT will want to do another exam after the results of my PET scan, seems the SUV count (SUV count is picked up on the PET and I googled it, very confusing but seems to be related to many possibilities) did drop from over…
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BarefootBob
With a few members now blogging on CaringBridges.org, I decided to search for BarefootBob (Robert Eckhart) on that site. His wife, Danelle, started the blog but Rob has posted a time or two. Please check out his page for current information regarding him and his current treatment. I hope that everyone had a Merry Christmas…
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Taste Buds
I recently completed 35 radiation treatments plus 3 chemo treatments for tonsil cancer. I am wondering if some of you could tell me how long it took for your taste buds to return and how long before your appetite returned? I am off the feeding tube but only drinking Boost as taste buds and appetite seem to be gone. I think…
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Is there a big disconnect from what I actually see vs. what the doctors keep saying?
First of all, no word on my CT of the lung scan, so this has nothing to do with my health status. I don't know if this is more of a question or just a statement, maybe it's a bit of both. But here it is. Lung Mets: I continue to hear from ALL the doctors I speak to that lung mets from H&N is "rare" I even got a % from one…
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First Feeding Tube Experience
I did not expect it to be as simple as it was. The folks at the Rad center were adament that they wanted me to start at least one feeding a day so that 1) I would maintain/gain some weight and 2) know what to expect when I need it. It turns out it's an extremely easy process, perhaps too easy as eating becomes harder and…
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Dropping by to say hi
I hope everyone had a good Christmas. I have thought about everyone and miss our daily posts. I have had a lot less time to devote to posting to the forum, but I have been reading most everything. David is feeling more himself the last couple of days and he even went upstairs for a shower today. It is nice to see him being…