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Merry Christmas
Just wanted to send everyone on this site a very Merry Christmas wish and hope that the new year brings the best gift of all...the gift of health. God bless all of you and thank you for all of the support, advice and care that you have taken the time to offer me since our fight with cancer began.
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Merry Christmas to all...
Whatever your holiday, whatever your celebration, I wish you all a very pleasant and fulfilled Day. i am grateful you have all touched my life and my heart. hugs, Kari
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Merry Christmas to all!
I wanted to wish all of my CSN friends a Merry Christmas. A year ago I had no clue that I would have found all of you this year. I had just noticed a swollen gland in my neck(or so I thought). The Dr. said oh it will go down, don't worry about it. A year later here I am, done with treatment and have had a clear pet scan.…
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Marry Christmas
Just wishing you all the best as many of you continue in your fight with Cancer into the New Year. Life is a struggle and fight but it can be won, never give up and keep your focus on being a survivor. I just finished HBO treatment Friday; it did not do what the doctors had hoped it would do but there was a lot of other…
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Have a safe and forward looking holiday.
Be grateful for your friends and family (both on and off line) and that you have a reasonable chance to beat this beast. Even though it seems that my reaction to the RADS have manifested themselfs much earlier than others have reported (Only four treatmemts and the back of my throat already feels like hamburger and…
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acute paronychia from erbitux
for those who care about such medical geeky things, I've just learned the technical name for the dreaded "erbitux nails". also sometimes known as "felon" or "whitlow". did a search of these boards for "paronychia", and didn't get a single hit, lol. my docs didn't give it a name either. but there's actually quite a bit of…
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Life path change
As everyone knows David's prognosis is not good and measured in months. I have talked with my work about extending my FMLA, but was unsuccessful. They want me to take a leave of absence and pay $1650 a month for Cobra. David and I have talked and we have decided that it is time for me to cut my ties with my school…
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Good News
A few good things have happened in my life. * I have a new grand daughter, Mia Rose. Unfortunately, she lives in the Midwest and I'm stuck in the Pacific Northwest. It is unlikely I will see her except in photos. * I met with my youngest son and his girlfriend. They came up to Seattle from Oregon. * I successfully used…
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Fridge clean out
So hubby and I decided to come home to Vermont this weekend. We arrived home after a wind storm to a house with no power (nothing unusual for the mountains in Vermont). We got our kids, cranked the wood stove, collected water from stream for flushing toilet, and snuggled in the living room all together. My mother in law…
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Error 324
again, this morning. Error 324 (net::ERR_EMPTY_RESPONSE): The server closed the connection without sending any data. and now, slooooow like molasses on christmas day. apparently the 'upgrade' has not addressed the site's most glaring and persistent problems at all. bah humbug. pardon for not sounding positive about this…
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Swallowing water accomplished!
As most of you know we were struggling with some of the Dr's last orders after tx and they were to SWALLOW! This was a bit of a problem because of the thick mucus and some pain. But after getting great advice from all of my peeps here with using the suction machine more and more rinsing with the salt/baking soda, and…
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How much quality time while undergoing treatment?
Hi all, I searched and read and read and did not find much covering the amount of time each day one could call "quality" time. That is when your mind and body are working well enough you can at least surf the Internet or maybe even write some emails or post an update here. Of course, each person and treatment plan is…
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Christmas plans have been sidetracked
Well I was going to have Christmas in CA with sister, but things change. On flight to CA I passed out and Doctors on board were worried with my past history. They thought I got overheated and as I was wearing a fentanyl patch I may have got to much medicine, so they checked me out and I had a low blood pressure and was…
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Update On My Husband
My hubby remains in the hospital. So many different doctors and nurses coming and going, I've lost count. His renal failure is improving slightly, but he now has a bladder infection which is being treated. They have removed some of the myriad of medications which he normally takes. They are using a different insulin(one he…
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NEW ~ Posting with Photos...
Discovered that you can now put photos in your posts...., that's cool.. Lake Kissimmee from my boat, going out to the main Lake; Largest of a few specks I caught; I know a few of my fishing pictures from Saturday isn't big news, but putting them into posts now is kinda cool. Best, John
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Upgrade...
Oh how we digressed..., LOL. A lot messed up right now... Greta isn't happy at all..., so you can bet she's going to be hammering the IT people to fix what's messed up. At least I got my expressions back, avatar and can reply to posts... Not really diggin this reverse order on replies.., makes it hard to follow the trail…
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NED
My 9 month CT Scan was NED!...Yea...all looks good! A wonderful Christmas present. Ann
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Me either...can't reply...
They're probably still working on it....hope so, cuz it's slower than before if it doesn't kick me off. p
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what a mess - lost my emails
I had a couple private emails that I could not get to because of all the migration issues. Finally got into check and ALL my emails are gone, even my sent box is empty. I an new here but this is a mess.
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Oh this is bad....
Even the older posts are all mixed up. It shows that the same person started a post and also replied last to that same post however, when you open the post and look at the discussionm it shows another member entirely. I'd rather it go back to the way it was before. Billie
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Ned too!!!
Had my 2nd CT with contrast and throat scope and all is clear for which I'm thankful!!!! However, I questioned my Dr. and as I had feared, if this recurs, I will have a trach for which I am almost hysterically fearful!!! I know I could live with it, but the thought chills my blood!! I don't have any risks, so I'm very…
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will not
new site.... does not let me post a reply to any post new site is just as slow as the previous thought i would check to see it allows me to put a new post here goes john
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9 months NED
Fellow H&Ners, I am happy (ecstatic) to say after a call this evening from my radiation oncologist I am officially “NED in the head” . She said my PET/CT scan results were beautiful and it was all good. To be doubly sure I had an exam by my ENT (throat and lower tongue scope, tongue pull to gag and neck feel all-a-round)…
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Desperate for Help- Pain
I am desperate to find some assistance for my Mum, who was diagnosed with Tonsil Cancer (Stage 4a I think) in September 2011 and is continuing to experience significant pain and disability as a result. Mum had a neck dissection with her left tonsil as well as nodes in her neck and shoulder removed. She had 35 treatments of…
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Hi everyone, this is different
I think something is ?
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Transformation of eating and drinking through mouth..
We are now told that the swallowing of both food and drink MUST start through the mouth soon. Swallow, Swallow, Swallow were the instructions. As a caregiver, how do you convince/encourage your loved one to start doing this. He says it's way too sore in his mouth and his tongue hurts badly to drink anything, let alone try…
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I have never
I have never in my 12 months on this board seen so many non replys to posts, whats going on. God bless Tonsil dad, Dan.
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This is too frustrating to use. I'll be back in a few days. maybe they will have it straightened o
C'ya
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Nope, no replies and just as slow (if not slower)
Tomorrow is another day. Goodnight all Joe
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Glad the CSN site is back!
I must be a CSN junkie; I missed it although it was off for only a day or so. I noticed a couple of things that I found useful with the previous format and (apparently) are missing at this newer version. Firstly, I can’t see the user picture. Secondly, I can’t seem to perform a search within the Head&Neck forum (there is a…