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Ned too!!!
Had my 2nd CT with contrast and throat scope and all is clear for which I'm thankful!!!! However, I questioned my Dr. and as I had feared, if this recurs, I will have a trach for which I am almost hysterically fearful!!! I know I could live with it, but the thought chills my blood!! I don't have any risks, so I'm very…
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will not
new site.... does not let me post a reply to any post new site is just as slow as the previous thought i would check to see it allows me to put a new post here goes john
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9 months NED
Fellow H&Ners, I am happy (ecstatic) to say after a call this evening from my radiation oncologist I am officially “NED in the head” . She said my PET/CT scan results were beautiful and it was all good. To be doubly sure I had an exam by my ENT (throat and lower tongue scope, tongue pull to gag and neck feel all-a-round)…
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Desperate for Help- Pain
I am desperate to find some assistance for my Mum, who was diagnosed with Tonsil Cancer (Stage 4a I think) in September 2011 and is continuing to experience significant pain and disability as a result. Mum had a neck dissection with her left tonsil as well as nodes in her neck and shoulder removed. She had 35 treatments of…
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Hi everyone, this is different
I think something is ?
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Transformation of eating and drinking through mouth..
We are now told that the swallowing of both food and drink MUST start through the mouth soon. Swallow, Swallow, Swallow were the instructions. As a caregiver, how do you convince/encourage your loved one to start doing this. He says it's way too sore in his mouth and his tongue hurts badly to drink anything, let alone try…
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I have never
I have never in my 12 months on this board seen so many non replys to posts, whats going on. God bless Tonsil dad, Dan.
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This is too frustrating to use. I'll be back in a few days. maybe they will have it straightened o
C'ya
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Nope, no replies and just as slow (if not slower)
Tomorrow is another day. Goodnight all Joe
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Glad the CSN site is back!
I must be a CSN junkie; I missed it although it was off for only a day or so. I noticed a couple of things that I found useful with the previous format and (apparently) are missing at this newer version. Firstly, I can’t see the user picture. Secondly, I can’t seem to perform a search within the Head&Neck forum (there is a…
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Much better
Much better
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Tracheostomy
Looking for people that was left with Tracheostomy due to their Cancer. I'm a one year survivor from Laryngeal Cancer and was left with a trach. God bless
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Cisplatins side effects
Hi everyone! We are officially on the bus. They changed the plan for us and have decided against 3 high dose cisplatin in favor of 7 weekly low dose cisplatin. My husband has always had hearing loss and ringing in one ear since he was nine. They didn't want to risk it with high doses they couldn't take back or change…
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Two Accomplishments
Two accomplishments today: 1) I ordered a Grande Soy Mocha and did not have to repeat myself. The Barista got it the first time. (The reason this is an accomplishment is that I have had my vocal cords removed and talk by esophageal speech.) 2) I ate peanut butter. (The reason that this is an accomplishment is that my…
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The Upgrade is Coming!
Not sure if anyone noticed Greta's post, there was one also on the CSN Home Page... The Upgrade is Coming! The Cancer Survivors Network is being upgraded. The site will be down from Thursday, December 20 at 9 pm Eastern Time until 9 am Eastern Time Friday. The upgrade will improve functionality and provide a few…
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CSN Planned Outage
CSN will be down from 9 pm Eastern Time Thursday (tomorrow) until 9 am Eastern Time Friday getting a badly needed software upgrade. You will notice a few formatting changes and enhancements. Most importantly, site functionality should improve significantly. Regards, Greta aka Your CSN staff
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Katenorwood / Katie - your name is on my mirror the next few days!!!!
Katie.... Your name is on my mirror for the next few days as of today! Each morning and each night I will whisper an "extra" prayer when I see your name. It's not that I need it in front of me to remember, I just want to make sure you know I am in the trench with you and I am fighting along side of you.... You are cared…
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Radiation Treatments
My husband has been diagnosed with cancer of the Vallecula and is in his third week of radiation treatments. I’m curious to know if anyone that has had or is having radiation treatment ever had problems with the machines at the doctor’s office. Out of the 11 times he’s been five of the those times the machine has broke…
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My heart aches
I haven't posted this to caring bridge as I want David to do it. We had a very sobering talk with our doctor today. I told you he consulted with the lead person in the field of PPCL last week and was encouraged to change his course of treatment. David has been feeling a little better and started asking me questions last…
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Christmas goodies
Hi all: Been burning some midnite oil here getting ready for Christmas and all. Will be leaving Sun. for NC with Chargee in tow for Christmas. Will be a short stay as will be back home on Wed. But am off all week and truly looking forward to that. Had a tree disaster Sun,. nite as my Christmas tree fell and the base broke…
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On My Way
1) I've made an appointment to get a 2nd opinion. It is in the early part of January. I do not post exact dates on public forums. Not because of you, my friends; but because you never know who is reading this. The appointment is with the head of medical oncology at Seattle Cancer Care Alliance. 2) On on my way with the…
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Chicken Or Egg?
First, forgive me if I have asked this question before. I am now past addlebrained. What seems to be the standard protocol? Rads and chemo first or surgery first? Original onc says teeth pulled, then rads and chemo, then surgery. MDA seemed to lean toward pulling teeth during surgery(strange to me), and then rads and…
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The dreaded week III
Well, today is the last day of week 2 of treatments, 10 rads done, and 2 chemos (23 and 4 to go). And, week three has started - everything they told us it would be is happening now. Over the weekend Dan's throat started to bloom with mucositis - he can't swallow the Mugard - it gives him stomach aches. The ENT said today…
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Radiation Ending Soon
How long will I feel bad after radiation ends (finishing 35 treatments). Can only get down a few cans of Ensure a day and some milk and a little pudding. Was wondering how soon after treatment ends before things start improving. And how fast?
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He's not such a bad guy after all.....
This really has not much to do with H&N cancer but it's good news and I must share. My husband is a police officer for the city that we live in. We are a beach city in the South Bay area of Los Angeles. There are 4 little beach cities here in the south bay so most of the police officers from all those different beach…
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Merry Christmas and Happy New Year
I have taken a break from posting, but do log in on occassion and check in on everyone. I wanted to take a second and wish everyone a Merry Christmas and Happy New Year. Sirena
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SOCIAL SECURITY DISABILITY UPDATE
I stopped by a local SS office Friday, and found out the following facts. My diagnosis will qualify my for the "compassionate clause" basically meaning I will qualify for benefits. I have to be either out of work or making less than $1,000.00 / month before I can apply for disability. presently I qualify for $2,315.00 /…
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Things are better left unsaid....
I realize that some people in the outside world of cancer are/can be lost for words when approaching someone they know that is dealing with cancer, but....wow, can't believe what the last couple of days had brought us. Finally got my loved one out of the house. Trying to get a little bit of normal back into his life. We…
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How much pain relief using cannabis?
Hey, the Bay Area is hella expensive but comes with fringe benefits such as the Pacific Ocean, cool breezes and cool summer fog, superb scenery, Silicon Valley, and birthplace of medical marijuana aka "Oaktown". Getting a card is as easy as getting a six pack so I looked but did not find much commentary how well it works…
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What did you do with your mask?
First off, congrats to Nelson for graduating from RC (Radiotheraphy College), with his diploma (mask) proudly displayed in his photo. His post sparked some comments from others about their own mask and what they did with it after their graduation. So, maybe there's enough for a new thread. As I left RC for the last time I…