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Nope, no replies and just as slow (if not slower)
Tomorrow is another day. Goodnight all Joe
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Glad the CSN site is back!
I must be a CSN junkie; I missed it although it was off for only a day or so. I noticed a couple of things that I found useful with the previous format and (apparently) are missing at this newer version. Firstly, I can’t see the user picture. Secondly, I can’t seem to perform a search within the Head&Neck forum (there is a…
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Much better
Much better
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Tracheostomy
Looking for people that was left with Tracheostomy due to their Cancer. I'm a one year survivor from Laryngeal Cancer and was left with a trach. God bless
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Cisplatins side effects
Hi everyone! We are officially on the bus. They changed the plan for us and have decided against 3 high dose cisplatin in favor of 7 weekly low dose cisplatin. My husband has always had hearing loss and ringing in one ear since he was nine. They didn't want to risk it with high doses they couldn't take back or change…
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Two Accomplishments
Two accomplishments today: 1) I ordered a Grande Soy Mocha and did not have to repeat myself. The Barista got it the first time. (The reason this is an accomplishment is that I have had my vocal cords removed and talk by esophageal speech.) 2) I ate peanut butter. (The reason that this is an accomplishment is that my…
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The Upgrade is Coming!
Not sure if anyone noticed Greta's post, there was one also on the CSN Home Page... The Upgrade is Coming! The Cancer Survivors Network is being upgraded. The site will be down from Thursday, December 20 at 9 pm Eastern Time until 9 am Eastern Time Friday. The upgrade will improve functionality and provide a few…
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CSN Planned Outage
CSN will be down from 9 pm Eastern Time Thursday (tomorrow) until 9 am Eastern Time Friday getting a badly needed software upgrade. You will notice a few formatting changes and enhancements. Most importantly, site functionality should improve significantly. Regards, Greta aka Your CSN staff
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Katenorwood / Katie - your name is on my mirror the next few days!!!!
Katie.... Your name is on my mirror for the next few days as of today! Each morning and each night I will whisper an "extra" prayer when I see your name. It's not that I need it in front of me to remember, I just want to make sure you know I am in the trench with you and I am fighting along side of you.... You are cared…
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Radiation Treatments
My husband has been diagnosed with cancer of the Vallecula and is in his third week of radiation treatments. I’m curious to know if anyone that has had or is having radiation treatment ever had problems with the machines at the doctor’s office. Out of the 11 times he’s been five of the those times the machine has broke…
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My heart aches
I haven't posted this to caring bridge as I want David to do it. We had a very sobering talk with our doctor today. I told you he consulted with the lead person in the field of PPCL last week and was encouraged to change his course of treatment. David has been feeling a little better and started asking me questions last…
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Christmas goodies
Hi all: Been burning some midnite oil here getting ready for Christmas and all. Will be leaving Sun. for NC with Chargee in tow for Christmas. Will be a short stay as will be back home on Wed. But am off all week and truly looking forward to that. Had a tree disaster Sun,. nite as my Christmas tree fell and the base broke…
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On My Way
1) I've made an appointment to get a 2nd opinion. It is in the early part of January. I do not post exact dates on public forums. Not because of you, my friends; but because you never know who is reading this. The appointment is with the head of medical oncology at Seattle Cancer Care Alliance. 2) On on my way with the…
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Chicken Or Egg?
First, forgive me if I have asked this question before. I am now past addlebrained. What seems to be the standard protocol? Rads and chemo first or surgery first? Original onc says teeth pulled, then rads and chemo, then surgery. MDA seemed to lean toward pulling teeth during surgery(strange to me), and then rads and…
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The dreaded week III
Well, today is the last day of week 2 of treatments, 10 rads done, and 2 chemos (23 and 4 to go). And, week three has started - everything they told us it would be is happening now. Over the weekend Dan's throat started to bloom with mucositis - he can't swallow the Mugard - it gives him stomach aches. The ENT said today…
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Radiation Ending Soon
How long will I feel bad after radiation ends (finishing 35 treatments). Can only get down a few cans of Ensure a day and some milk and a little pudding. Was wondering how soon after treatment ends before things start improving. And how fast?
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He's not such a bad guy after all.....
This really has not much to do with H&N cancer but it's good news and I must share. My husband is a police officer for the city that we live in. We are a beach city in the South Bay area of Los Angeles. There are 4 little beach cities here in the south bay so most of the police officers from all those different beach…
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Merry Christmas and Happy New Year
I have taken a break from posting, but do log in on occassion and check in on everyone. I wanted to take a second and wish everyone a Merry Christmas and Happy New Year. Sirena
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SOCIAL SECURITY DISABILITY UPDATE
I stopped by a local SS office Friday, and found out the following facts. My diagnosis will qualify my for the "compassionate clause" basically meaning I will qualify for benefits. I have to be either out of work or making less than $1,000.00 / month before I can apply for disability. presently I qualify for $2,315.00 /…
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Things are better left unsaid....
I realize that some people in the outside world of cancer are/can be lost for words when approaching someone they know that is dealing with cancer, but....wow, can't believe what the last couple of days had brought us. Finally got my loved one out of the house. Trying to get a little bit of normal back into his life. We…
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How much pain relief using cannabis?
Hey, the Bay Area is hella expensive but comes with fringe benefits such as the Pacific Ocean, cool breezes and cool summer fog, superb scenery, Silicon Valley, and birthplace of medical marijuana aka "Oaktown". Getting a card is as easy as getting a six pack so I looked but did not find much commentary how well it works…
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What did you do with your mask?
First off, congrats to Nelson for graduating from RC (Radiotheraphy College), with his diploma (mask) proudly displayed in his photo. His post sparked some comments from others about their own mask and what they did with it after their graduation. So, maybe there's enough for a new thread. As I left RC for the last time I…
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Happy Holidays
Hello Everyone, I wanted to send all of you holiday wishes,prayers and hugs. Today is my last day at work until January 2nd and I do not have Internet at home. Please know I will be thinking of all of you and praying that you get to have a warm and safe holiday with your families. Thank you for eveything you have done for…
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water\salt\soda?
What is the recipe please. How often? They told me at the Cancer Ctr and I thought I wrote it down.... I'm just good like that. Luke
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2012 has been one heck of a year
I haven't been posting as much lately because life has come back with a vengeance. It's funny how everything seems to go into slow motion after the cancer diagnosis... or at least it did for me. It took a while to reconnect with life, and just when I thought I was back in the swing of things, my job went kind of sideways.…
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Dad starts radiation tomorrow
Hello New Family, Well, tomorrow marks the 1st of 33 rads for Dad. Hmmmm..."Rads for Dad"--sounds like a rock group. (I see I still have my sense of humor!) Anyway, last week was weird...the mask fitting, sights, sounds, smells...all came back in memory of 20 years ago when my husband was being treated. Different, but…
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throat checkup
Had my visit with the videostrobe and ENT today, everything was normal, no change, will see him again six month. I have had a lousy October and November, in hospital for over three weeks altogether. I had lung surgery in October to remove a small cancerous nodule, I was given the option of wait and see for six months and…
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HAD MY ONCO VISIT EARLIER TODAY
I saw my Oncologist earlier today, and he validated what I had already heard. No visible signs of any tumors from the CT scan. He also thinks that since the large tumors melted away, he is confident that the tiny ones in my nodes in Mediastynum are most likely gone also. Due to the severe side effects from the 5FU, he is…
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base of tongue/node Rad & thyroid?
With radiation on the back of tongue and one the lyphnode has anyone had any damage to their thyroid gland? I just was worrying about it. thanks for any feedback Sue
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Ready to kick some cancer butt
Port in, check, peg placed, check, right with Jesus, check, rumble starts next Monday with first round of chemo cocktail, stay tuned for highlights, fans appreciated! In Christ, Kevin