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Happy Holidays
Hello Everyone, I wanted to send all of you holiday wishes,prayers and hugs. Today is my last day at work until January 2nd and I do not have Internet at home. Please know I will be thinking of all of you and praying that you get to have a warm and safe holiday with your families. Thank you for eveything you have done for…
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water\salt\soda?
What is the recipe please. How often? They told me at the Cancer Ctr and I thought I wrote it down.... I'm just good like that. Luke
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2012 has been one heck of a year
I haven't been posting as much lately because life has come back with a vengeance. It's funny how everything seems to go into slow motion after the cancer diagnosis... or at least it did for me. It took a while to reconnect with life, and just when I thought I was back in the swing of things, my job went kind of sideways.…
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Dad starts radiation tomorrow
Hello New Family, Well, tomorrow marks the 1st of 33 rads for Dad. Hmmmm..."Rads for Dad"--sounds like a rock group. (I see I still have my sense of humor!) Anyway, last week was weird...the mask fitting, sights, sounds, smells...all came back in memory of 20 years ago when my husband was being treated. Different, but…
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throat checkup
Had my visit with the videostrobe and ENT today, everything was normal, no change, will see him again six month. I have had a lousy October and November, in hospital for over three weeks altogether. I had lung surgery in October to remove a small cancerous nodule, I was given the option of wait and see for six months and…
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HAD MY ONCO VISIT EARLIER TODAY
I saw my Oncologist earlier today, and he validated what I had already heard. No visible signs of any tumors from the CT scan. He also thinks that since the large tumors melted away, he is confident that the tiny ones in my nodes in Mediastynum are most likely gone also. Due to the severe side effects from the 5FU, he is…
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base of tongue/node Rad & thyroid?
With radiation on the back of tongue and one the lyphnode has anyone had any damage to their thyroid gland? I just was worrying about it. thanks for any feedback Sue
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Ready to kick some cancer butt
Port in, check, peg placed, check, right with Jesus, check, rumble starts next Monday with first round of chemo cocktail, stay tuned for highlights, fans appreciated! In Christ, Kevin
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Bad breath symptom?
I searched looking for folks having bad breath symptom and surprisingly did not find much at all. How many of you have experienced this condition? ENT says it happens due to the cancer in the throat and not much to do until treatments start. I have tried everything and nothing seems to work. Don
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I feel so different
I love coming to this site because people are truly my friends, but lately I have felt out of place. Yes David has head and neck cancer, but the plasma cell leukemia is ruling our lives right now. The doctor came in today with a new chemo regimine for after Christmas and it doesn't include Cisplatin any more so none of the…
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Sore mouth
Hi everyone, I just found this site, and wish I had found it earlier! I finished my chemo and 35 RAD at the end of October for BOT with one node removed. . Now I am recovering from the side effects of the treatment. Has anyone had a problem with sores on the side of the tongue ? I assume it is a burn from the radiation? It…
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Recovery going well
Hello Friends....I haven't posted for a while as my issues seem insignificant compared to some of the others here, but wanted everyone to know I am doing OK with recovery, get my first pet scan in a couple months, and do my 6 week post treatment with my ENT next week, I hope he addresses my esophageal stricture, eating…
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Recurring cellulitis
I'd posted just after Thanksgiving that I'd developed swelling in my neck (selective dissection 10/16) that after a black Friday spent in the ER, turned out to be cellulitis. I was prescribed a 10 day course of Keflex (500 mg) and being diligent with my meds, completed the entire course and my neck was back to normal a…
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I'm weak and I must confess
Friday night, I went out with 3 girlfriends, small bar, everyone knows each other, band~~anyway, all my friends are smokers, and I caved and had some smokes....now, I'm craving and I need to get over it..just needed to tell my friends on here, as I'm sure you'll understand
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My mama
Hello everyone. My name is Steve Herrera my mama was just diagnosed squamous cell cancer. It started off as a nasal infection and low and behold they found squamous cell. We found out that the tumor is about the size of a baseball :( and it is pressing up against her optic nerve causing double vision. She is nauseous, and…
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I'M TUBELESS!!!
yahoo! much to my dismay, i did not have the tube with the balloon at the end. when he yanked that mother out - WHEW!!! what a rush!!! then after a minute or two it didnt even hurt anymore :o ) hope everyone is well and has a good weekend!!!
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Trying to stay positive but I'm back for morale support and prayer
Hi guys and gals, Wasn't gonna post until after the 18th. Yeah well after todays pre-op....well I need that shove I had earlier asked for. I'm having the vats procedure/wedge resect. I have 37% lung function according to the spirometer tests they have been doing. Both my lungs are enlarged, but my heart so far is strong.…
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Getting pregnant after high dose of Cisplatin
Is this even possible? I am still in my early 30s and my period is back to normal on the 2nd month completing the chemo treatment. Did some web searchings and it seems 2 yrs after the treatment is safe but also seen 5 yrs. I am afraid pregnancy will bring back cancer. I was pregnant when I was diagnosed NPC and had to…
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Getting through the days until first scan.....
Hi All, Just wondering how some of you that have been through your treatment got through your "dark days" after tx to your scan? As a caregiver, I'm finding it a hard to help get him through these dark days. And when I say dark, I literally mean the dark in the sense that he is becoming scared of the dark. Does not like to…
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some people come out of the woodwork and others disappear?
I just have to find out if it's just me or what. I have really close friends....the kind that want to share every detail of the day with you, who have all but dropped me altogether since finding out that my husband has cancer. And then there are people who I know and frankly just acquaintences who have all but offered a…
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Gratitude
Another great week for Nelson's recovery. His first post treatment CT scan officially showed no remaining cancer! He can now say he HAD cancer! He is in the survivor club! He is eating well, driving again and working on getting his energy back. If he continues to maintain his weight without using his feeding tube, it comes…
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LOOKING TO MAKE SOME SERIOUS LIFESTYLE CHANGES AND NEED ADVICE
Due to not only having trouble and being stressed out with trying to cope with having only "treatable cancer" combined with trying to keep my relationship with my wife as healthy as possible and also being stressed out with a job that now will have some uncertianty in 2013, I am giving serious thought to applying for SS…
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Doc said I'd just be "uncomfortable" for a day or two.
He lied. Damn feeding tube hurts like hell. Joe
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chemo precautions?
Me again....I was wondering if anyone who has had cisplatin can answer this. Do you have to be careful with germs/sick kids around someone who is undergoing cisplatin? I assume yes because of the beating the white blood cells take. And of course I ask because my son seems to be coming down with something and my husband is…
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Scans..What ,When and Where? ..AKA if I could remember anything it would be nice..
Sometime ago, someone posted a great chart/table* about scan follow up based on initial staging or something or other... What I am trying to figure out is this: What type of scans Pet, Cat, MRI? When Every 6 months? Where Full Body, just neck? My doctor only wants to do yearly CAT on my head and neck only. In ALL other…
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MERRY CHRISTMAS
°_██_*。*./ .˛* .˛.*.★* *★ 。* ˛. (´• ̮•)*˛°*/.♫.♫*˛.* ˛_Π_____. * ˛* .°( . • . ) ˛°./• '♫ ' •.˛*./_*_*_*_/~\ *. ˛*.。˛* ˛. *。 *(...'•'.. ) *˛╬╬╬╬╬˛°.|田田 |門|╬╬╬╬ . ¯˜"*°•♥•°*"˜¯`´¯˜"*°•♥•°*"˜¯` ´¯˜"*°´¯˜"*°•♥•°*"˜¯`´¯˜"*°• MERRY CHRISTMAS -
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Chemo Brain
How long does it last? And is is usual for it to get worse the farther from treatment? I'm sure everyone is different but some generalities? Hubby has not had chemo (cisplatin ) since June 19 and been off pain meds (diladid and fentyl patch) since early October. Sort term memory's getting worse. He can't remember anything.…
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Anyone else have trouble getting on CSN?
I am having a time getting on CSN discussion board lately. The last few days I was not able to access it from my home or from my work computer. It's running VERY slow and just keeps saying "page not available" On the few attempts I did get in, it booted me off shortly thereafter. Just wanted to make a comment thread so…
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SCAN UPDATE
Well, what a difference 6 weeks makes. 6 weks ago my first every 6 wek scan for the clinical trial I am on revealed that the tumors in my lungs had not shrunk, but did change in appearance. yesterday's result was that the tumors have all but gone away, no resolution, noting recognizable. I am in shock, and this has not yet…
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caring bridge page for David
I have added a caringbridge page for David. If visiting it is under davidgabbard all lower case one word. Thanks.