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Bad breath symptom?
I searched looking for folks having bad breath symptom and surprisingly did not find much at all. How many of you have experienced this condition? ENT says it happens due to the cancer in the throat and not much to do until treatments start. I have tried everything and nothing seems to work. Don
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I feel so different
I love coming to this site because people are truly my friends, but lately I have felt out of place. Yes David has head and neck cancer, but the plasma cell leukemia is ruling our lives right now. The doctor came in today with a new chemo regimine for after Christmas and it doesn't include Cisplatin any more so none of the…
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Sore mouth
Hi everyone, I just found this site, and wish I had found it earlier! I finished my chemo and 35 RAD at the end of October for BOT with one node removed. . Now I am recovering from the side effects of the treatment. Has anyone had a problem with sores on the side of the tongue ? I assume it is a burn from the radiation? It…
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Recovery going well
Hello Friends....I haven't posted for a while as my issues seem insignificant compared to some of the others here, but wanted everyone to know I am doing OK with recovery, get my first pet scan in a couple months, and do my 6 week post treatment with my ENT next week, I hope he addresses my esophageal stricture, eating…
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Recurring cellulitis
I'd posted just after Thanksgiving that I'd developed swelling in my neck (selective dissection 10/16) that after a black Friday spent in the ER, turned out to be cellulitis. I was prescribed a 10 day course of Keflex (500 mg) and being diligent with my meds, completed the entire course and my neck was back to normal a…
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I'm weak and I must confess
Friday night, I went out with 3 girlfriends, small bar, everyone knows each other, band~~anyway, all my friends are smokers, and I caved and had some smokes....now, I'm craving and I need to get over it..just needed to tell my friends on here, as I'm sure you'll understand
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My mama
Hello everyone. My name is Steve Herrera my mama was just diagnosed squamous cell cancer. It started off as a nasal infection and low and behold they found squamous cell. We found out that the tumor is about the size of a baseball :( and it is pressing up against her optic nerve causing double vision. She is nauseous, and…
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I'M TUBELESS!!!
yahoo! much to my dismay, i did not have the tube with the balloon at the end. when he yanked that mother out - WHEW!!! what a rush!!! then after a minute or two it didnt even hurt anymore :o ) hope everyone is well and has a good weekend!!!
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Trying to stay positive but I'm back for morale support and prayer
Hi guys and gals, Wasn't gonna post until after the 18th. Yeah well after todays pre-op....well I need that shove I had earlier asked for. I'm having the vats procedure/wedge resect. I have 37% lung function according to the spirometer tests they have been doing. Both my lungs are enlarged, but my heart so far is strong.…
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Getting pregnant after high dose of Cisplatin
Is this even possible? I am still in my early 30s and my period is back to normal on the 2nd month completing the chemo treatment. Did some web searchings and it seems 2 yrs after the treatment is safe but also seen 5 yrs. I am afraid pregnancy will bring back cancer. I was pregnant when I was diagnosed NPC and had to…
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Getting through the days until first scan.....
Hi All, Just wondering how some of you that have been through your treatment got through your "dark days" after tx to your scan? As a caregiver, I'm finding it a hard to help get him through these dark days. And when I say dark, I literally mean the dark in the sense that he is becoming scared of the dark. Does not like to…
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some people come out of the woodwork and others disappear?
I just have to find out if it's just me or what. I have really close friends....the kind that want to share every detail of the day with you, who have all but dropped me altogether since finding out that my husband has cancer. And then there are people who I know and frankly just acquaintences who have all but offered a…
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Gratitude
Another great week for Nelson's recovery. His first post treatment CT scan officially showed no remaining cancer! He can now say he HAD cancer! He is in the survivor club! He is eating well, driving again and working on getting his energy back. If he continues to maintain his weight without using his feeding tube, it comes…
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LOOKING TO MAKE SOME SERIOUS LIFESTYLE CHANGES AND NEED ADVICE
Due to not only having trouble and being stressed out with trying to cope with having only "treatable cancer" combined with trying to keep my relationship with my wife as healthy as possible and also being stressed out with a job that now will have some uncertianty in 2013, I am giving serious thought to applying for SS…
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Doc said I'd just be "uncomfortable" for a day or two.
He lied. Damn feeding tube hurts like hell. Joe
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chemo precautions?
Me again....I was wondering if anyone who has had cisplatin can answer this. Do you have to be careful with germs/sick kids around someone who is undergoing cisplatin? I assume yes because of the beating the white blood cells take. And of course I ask because my son seems to be coming down with something and my husband is…
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Scans..What ,When and Where? ..AKA if I could remember anything it would be nice..
Sometime ago, someone posted a great chart/table* about scan follow up based on initial staging or something or other... What I am trying to figure out is this: What type of scans Pet, Cat, MRI? When Every 6 months? Where Full Body, just neck? My doctor only wants to do yearly CAT on my head and neck only. In ALL other…
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MERRY CHRISTMAS
°_██_*。*./ .˛* .˛.*.★* *★ 。* ˛. (´• ̮•)*˛°*/.♫.♫*˛.* ˛_Π_____. * ˛* .°( . • . ) ˛°./• '♫ ' •.˛*./_*_*_*_/~\ *. ˛*.。˛* ˛. *。 *(...'•'.. ) *˛╬╬╬╬╬˛°.|田田 |門|╬╬╬╬ . ¯˜"*°•♥•°*"˜¯`´¯˜"*°•♥•°*"˜¯` ´¯˜"*°´¯˜"*°•♥•°*"˜¯`´¯˜"*°• MERRY CHRISTMAS -
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Chemo Brain
How long does it last? And is is usual for it to get worse the farther from treatment? I'm sure everyone is different but some generalities? Hubby has not had chemo (cisplatin ) since June 19 and been off pain meds (diladid and fentyl patch) since early October. Sort term memory's getting worse. He can't remember anything.…
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Anyone else have trouble getting on CSN?
I am having a time getting on CSN discussion board lately. The last few days I was not able to access it from my home or from my work computer. It's running VERY slow and just keeps saying "page not available" On the few attempts I did get in, it booted me off shortly thereafter. Just wanted to make a comment thread so…
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SCAN UPDATE
Well, what a difference 6 weeks makes. 6 weks ago my first every 6 wek scan for the clinical trial I am on revealed that the tumors in my lungs had not shrunk, but did change in appearance. yesterday's result was that the tumors have all but gone away, no resolution, noting recognizable. I am in shock, and this has not yet…
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caring bridge page for David
I have added a caringbridge page for David. If visiting it is under davidgabbard all lower case one word. Thanks.
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does the ACS really get the HPV threat?
I wonder. Recently, Maria Blair (National Vice President of the American Cancer Society) wrote a passionate, well-meaning plea to create a cervical cancer-free world for women and girls. That's terrific, as far as it goes. Creating a Cervical Cancer-Free World for Women and Girls Unfortunately, nowhere in her article does…
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Hi! First post - Just got cancer diagnosis
Hi all, I stumbled upon this board and it seems very legit and active so here I am. Obviously, ppl don't just stumble upon and join a cancer subject board unless they or someone they know have cancer. Last week I saw an ENT who said I had hypopharangeal cancer; however, he referred me to a head/neck cancer specialist…
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NED
I saw my onco today, my CAT scan from monday is NED, I don't have to go back to see her for another 6 months vs the 3 month visits I was having, when she sees me in June we will make a decision as to when to remove my port, I'll still continue with my ENT and rad doc visits. While I'm thrilled with the NED, I am also sad ,…
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An early Christmas blessing..
Hello to all, Our family received an early Christmas blessing I wanted to share with this family, my dad went for his pet-scan and has NED. Thanks be to God.. He was diagnosed 8-8-11 and finished treatment on 10-24-11 so this is our one year Scan. it is overwhelming. I wish you all a happy and healthy holiday and send My…
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Getting outside
I finally left the hospital for a few hours today. I am sitting at home just trying to chill out and find some peace. I love David with all my heart, but 19 days straight in the hospital is making me a little stir crazy. Not to mention how much pain my neck and shoulder is in. We talked with the social worker today and she…
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On our way
Well 3 rads down 32 to go. 1 of 7 chemo starts tomorrow. Rad not too bad. the first day was the worst. they had trouble adjusting Jeff's mask to fit right and line up. 2nd day a little better. Today it was quick he was in there only 12 min. The tongue stick to hold it down really bothers him but he says the mask is not to…
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My CSN family
I want to thank all you head and neck people for becoming part of my family. This has been a very hard and dark place for me the past few months. Today I was doing some figuring and it has been 139 days since my husband has kissed me and 83 since our last hug. It is so hard seeing my best friend so sick and trying to…
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Ready for Battle
I just wanted to say thank you to everyone who reads and responds to these boards. They have been a lifeline to me and when I can't get the server to let me in....I realize how much they mean to me. I have everything ready I think. We are moving to Boston for two months and start Cisplatin/Rads on 12/18. People often ask…