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does the ACS really get the HPV threat?
I wonder. Recently, Maria Blair (National Vice President of the American Cancer Society) wrote a passionate, well-meaning plea to create a cervical cancer-free world for women and girls. That's terrific, as far as it goes. Creating a Cervical Cancer-Free World for Women and Girls Unfortunately, nowhere in her article does…
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Hi! First post - Just got cancer diagnosis
Hi all, I stumbled upon this board and it seems very legit and active so here I am. Obviously, ppl don't just stumble upon and join a cancer subject board unless they or someone they know have cancer. Last week I saw an ENT who said I had hypopharangeal cancer; however, he referred me to a head/neck cancer specialist…
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NED
I saw my onco today, my CAT scan from monday is NED, I don't have to go back to see her for another 6 months vs the 3 month visits I was having, when she sees me in June we will make a decision as to when to remove my port, I'll still continue with my ENT and rad doc visits. While I'm thrilled with the NED, I am also sad ,…
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An early Christmas blessing..
Hello to all, Our family received an early Christmas blessing I wanted to share with this family, my dad went for his pet-scan and has NED. Thanks be to God.. He was diagnosed 8-8-11 and finished treatment on 10-24-11 so this is our one year Scan. it is overwhelming. I wish you all a happy and healthy holiday and send My…
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Getting outside
I finally left the hospital for a few hours today. I am sitting at home just trying to chill out and find some peace. I love David with all my heart, but 19 days straight in the hospital is making me a little stir crazy. Not to mention how much pain my neck and shoulder is in. We talked with the social worker today and she…
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On our way
Well 3 rads down 32 to go. 1 of 7 chemo starts tomorrow. Rad not too bad. the first day was the worst. they had trouble adjusting Jeff's mask to fit right and line up. 2nd day a little better. Today it was quick he was in there only 12 min. The tongue stick to hold it down really bothers him but he says the mask is not to…
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My CSN family
I want to thank all you head and neck people for becoming part of my family. This has been a very hard and dark place for me the past few months. Today I was doing some figuring and it has been 139 days since my husband has kissed me and 83 since our last hug. It is so hard seeing my best friend so sick and trying to…
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Ready for Battle
I just wanted to say thank you to everyone who reads and responds to these boards. They have been a lifeline to me and when I can't get the server to let me in....I realize how much they mean to me. I have everything ready I think. We are moving to Boston for two months and start Cisplatin/Rads on 12/18. People often ask…
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Great News!
Hi all: Just wanted to let y'all know that my bff's husband's Steve's needle biopsy of the lung came back as scar tissue and inflammation! Still want him to see a pulmonolgist but the big news is it wasn't cancer! Praise the Lord! And thank y'all for your prayers! God Bless! Love y'all. Jan (Basketcase)
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SCANXIETY TIME AGAIN
Hello all, and hope everyone is trying to get excited about Christmas and forget about C for a moment. Been a while since I posted any updates, as I continue to struggle with "cureable VS treatable." I did keep my appt. with the Onco. Psychiatrist who made allot of sense, and also placed me on an anti-depressant, that…
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Monday's the day; any suggestions?
Still fairly new to the sight, but looking for some advice on how to get through the next couple of weeks. My husband's surgery to remove part of his tongue and all the lymph nodes on both sides of his neck is Monday morning. I already am having major difficultly sleeping, working, or doing much of anything except…
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heartburn
Had first chemo monday.. third radiation today for tonsil cancer. today since noon fighting horrible heartburn in spite of taking three times dose of rx for usual acid reflux. eating only helps for short time. any ideas
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Talk to me about your experience after chemo/rads...
My mother has been going through the same journey as many of you, but she has been doing it mostly alone. I have read this site off and on, but she has always reuffed my suggestions that she come here, much to my frustration. She was treated for stage IV throat cancer at MD Anderson in Orlando, starting last January. She…
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Tim6003 Heading to Seattle Cancer Care Alliance for lung scan follow-up
Hello family :) (that's me buttering you all up) I am off to Seattle for the reasons stated above. Many of you may remember my last CT w/ contrast showed "granulated glass appearance in the upper left and lower left lung as well as 3 (presumably new) nodes in my lower left lung. The largest node was 7mm. I've gotten some…
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Christmas is in the air~~~
I haven't been posting much lately, family in from Chicago, parties, dinners, shopping and still babysitting my 4 year old..busy, but I read your posts every day and love you all..just no time to answer every post..be kind to each other, and bless you all.. Merry Christmas and the Healthest New Year possible
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Any pain after peg tube removal???
Hi to all, I am just wondering if anyone who had the peg tube removed experienced pain at the site after eating. My dad had his Mickey button removed on Tuesday (hooray) but after he eats he has pain where the Hole was for about an hour. Is this normal? By the way, to celebrate the removal of his button (as we called it),…
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Good Article
This is an interesting article from one of my English newspapers it has also been on CNN and Dr Sanja Gupta, heres the link http://www.dailymail.co.uk/health/article-2246312/Girl-7-beats-leukaemia-revolutionary-treatment-using-HIV-virus-wire-immune-system.html This is the natural product what I have been talking about and…
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Total Laryngectomy
My fiance was diagnosed with stage 3 laryngeal cancer last November (2011) He wasn't a smoker, nor did he drink to excess, but he did work with asbestos and some of the doctors suspect that is the cause. He went through two months of radiation and chemo, still has a g-tube and has not been able to eat since just before…
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trying to find words
I am trying to find something positive to report; however, all I want to do is scream . I want to yell because I am tired of crying. I don't want my husband to die.
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Lung Biopsy Results
Today, Monday Dec 10, I got the results from last week's lung biopsy. Unfortunately, the biopsy was positive for lung cancer; the cancer was squamous cell meaning that it almost assuradely had spread from the neck (larynx). The recommendation from my medical oncologist was to watch it with a CT-Scan every 4 months. When it…
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Rad starts tomorrow
Jeff starts his radiation tomorrow, the journey with the beast starts for real now. The last 2 weeks have just been full of readyness, but reality sets in now. God help me keep it together for him, please.
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The HPV Support Network
advocacy blog from a registered nurse with 24 years worth of knowledge about HPV. unfortunately her last posting was a while ago, but she has a lot to say. postings from 2012 include: "Why the Focus on Cervical Cancer Must End" "HPV Victims Need One Voice" "Does HPV Go Away on Its Own? Parts 1 and 2" "How Regulations…
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Baked potato
Since my posts have become quite depressing as of late I wanted to share a bit of good (or at least comical) news. Today David ate a baked potato in the hospital. I had a long talk with him last night as his PICC line continued to bleed and let him know if he wanted to continue to fight the beast that I was behind him, but…
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Cat Scan Today
Hi all, Well my oncologist lost her peer to peer request with my insurance company to continue with a PET scan every quater. This month it's a CAT , which my insurance has approved for me to have every 4 months.It took the tech longer to find a vein, I have small ones that roll, than the entire scan lasted. I guess I…
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My anger is overwhelming
Hi All, I'm a caregiver. Lost husband to unk. primary cancer/metastasis to bones when he was 39 (about 18 years ago). Experienced subsequent cancer care situations with a friend (prostate) and my Dad, (prostate, SqC--floor of mouth 2002 and recurrence now). Tuesday is mask-fitting day. 1st time for rads. Dad is 94. So,…
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1 down, 32 to go. - and a question or two
Well we did it.. Dan had his first radiation treatment today, he was thrilled, he didn't need to disrobe, and it took less than 10 mins in the room. In fact he said the radiation took less than 2 mins. You have to love technology.. Er...Maybe not. However they did serve chocolate after! We also got a sample of Mugard! 1…
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My feel good story
Over the weekend, my husband & I were out to a nice dinner. I noticed the young couple next to us ordered water and split an entree. I asked the waitress to put their meal on our ticket. When they finished dinner she asked if they wanted anything else and told them they didn't have a bill because we picked it up and said…
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anyone experience pain with a suction machine?
Steve is really struggling with 8/10 -10/10 pain levels with his throat and has increased thick saliva so it hurts when he has to cough/spit. Ahe got a suction machine but says it hurts. I can't find anything on the Net that says it hurt people. Can anyone help here?? Thanks, Traci and Steve tonsil cancer - just finished…
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Stronger
Posting this because all of you show amazing courage and this video is a tribute to that trait. Link: http://www.youtube.com/watch?v=BaQdwTsVtCY
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My mother has throat cancer.
I'm not sure if this is where I should be putting this or what I should be doing. But I feel like I need to seek some kind of advice or whatever it is I'm looking for somewhere... so forgive me if this is the wrong forum or area. My name is Ashley and I'm 22. My mother was diagnosed with throat cancer, not very long ago.…