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some people come out of the woodwork and others disappear?
I just have to find out if it's just me or what. I have really close friends....the kind that want to share every detail of the day with you, who have all but dropped me altogether since finding out that my husband has cancer. And then there are people who I know and frankly just acquaintences who have all but offered a…
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Gratitude
Another great week for Nelson's recovery. His first post treatment CT scan officially showed no remaining cancer! He can now say he HAD cancer! He is in the survivor club! He is eating well, driving again and working on getting his energy back. If he continues to maintain his weight without using his feeding tube, it comes…
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LOOKING TO MAKE SOME SERIOUS LIFESTYLE CHANGES AND NEED ADVICE
Due to not only having trouble and being stressed out with trying to cope with having only "treatable cancer" combined with trying to keep my relationship with my wife as healthy as possible and also being stressed out with a job that now will have some uncertianty in 2013, I am giving serious thought to applying for SS…
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Doc said I'd just be "uncomfortable" for a day or two.
He lied. Damn feeding tube hurts like hell. Joe
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chemo precautions?
Me again....I was wondering if anyone who has had cisplatin can answer this. Do you have to be careful with germs/sick kids around someone who is undergoing cisplatin? I assume yes because of the beating the white blood cells take. And of course I ask because my son seems to be coming down with something and my husband is…
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Scans..What ,When and Where? ..AKA if I could remember anything it would be nice..
Sometime ago, someone posted a great chart/table* about scan follow up based on initial staging or something or other... What I am trying to figure out is this: What type of scans Pet, Cat, MRI? When Every 6 months? Where Full Body, just neck? My doctor only wants to do yearly CAT on my head and neck only. In ALL other…
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MERRY CHRISTMAS
°_██_*。*./ .˛* .˛.*.★* *★ 。* ˛. (´• ̮•)*˛°*/.♫.♫*˛.* ˛_Π_____. * ˛* .°( . • . ) ˛°./• '♫ ' •.˛*./_*_*_*_/~\ *. ˛*.。˛* ˛. *。 *(...'•'.. ) *˛╬╬╬╬╬˛°.|田田 |門|╬╬╬╬ . ¯˜"*°•♥•°*"˜¯`´¯˜"*°•♥•°*"˜¯` ´¯˜"*°´¯˜"*°•♥•°*"˜¯`´¯˜"*°• MERRY CHRISTMAS -
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Chemo Brain
How long does it last? And is is usual for it to get worse the farther from treatment? I'm sure everyone is different but some generalities? Hubby has not had chemo (cisplatin ) since June 19 and been off pain meds (diladid and fentyl patch) since early October. Sort term memory's getting worse. He can't remember anything.…
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Anyone else have trouble getting on CSN?
I am having a time getting on CSN discussion board lately. The last few days I was not able to access it from my home or from my work computer. It's running VERY slow and just keeps saying "page not available" On the few attempts I did get in, it booted me off shortly thereafter. Just wanted to make a comment thread so…
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SCAN UPDATE
Well, what a difference 6 weeks makes. 6 weks ago my first every 6 wek scan for the clinical trial I am on revealed that the tumors in my lungs had not shrunk, but did change in appearance. yesterday's result was that the tumors have all but gone away, no resolution, noting recognizable. I am in shock, and this has not yet…
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caring bridge page for David
I have added a caringbridge page for David. If visiting it is under davidgabbard all lower case one word. Thanks.
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does the ACS really get the HPV threat?
I wonder. Recently, Maria Blair (National Vice President of the American Cancer Society) wrote a passionate, well-meaning plea to create a cervical cancer-free world for women and girls. That's terrific, as far as it goes. Creating a Cervical Cancer-Free World for Women and Girls Unfortunately, nowhere in her article does…
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Hi! First post - Just got cancer diagnosis
Hi all, I stumbled upon this board and it seems very legit and active so here I am. Obviously, ppl don't just stumble upon and join a cancer subject board unless they or someone they know have cancer. Last week I saw an ENT who said I had hypopharangeal cancer; however, he referred me to a head/neck cancer specialist…
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NED
I saw my onco today, my CAT scan from monday is NED, I don't have to go back to see her for another 6 months vs the 3 month visits I was having, when she sees me in June we will make a decision as to when to remove my port, I'll still continue with my ENT and rad doc visits. While I'm thrilled with the NED, I am also sad ,…
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An early Christmas blessing..
Hello to all, Our family received an early Christmas blessing I wanted to share with this family, my dad went for his pet-scan and has NED. Thanks be to God.. He was diagnosed 8-8-11 and finished treatment on 10-24-11 so this is our one year Scan. it is overwhelming. I wish you all a happy and healthy holiday and send My…
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Getting outside
I finally left the hospital for a few hours today. I am sitting at home just trying to chill out and find some peace. I love David with all my heart, but 19 days straight in the hospital is making me a little stir crazy. Not to mention how much pain my neck and shoulder is in. We talked with the social worker today and she…
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On our way
Well 3 rads down 32 to go. 1 of 7 chemo starts tomorrow. Rad not too bad. the first day was the worst. they had trouble adjusting Jeff's mask to fit right and line up. 2nd day a little better. Today it was quick he was in there only 12 min. The tongue stick to hold it down really bothers him but he says the mask is not to…
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My CSN family
I want to thank all you head and neck people for becoming part of my family. This has been a very hard and dark place for me the past few months. Today I was doing some figuring and it has been 139 days since my husband has kissed me and 83 since our last hug. It is so hard seeing my best friend so sick and trying to…
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Ready for Battle
I just wanted to say thank you to everyone who reads and responds to these boards. They have been a lifeline to me and when I can't get the server to let me in....I realize how much they mean to me. I have everything ready I think. We are moving to Boston for two months and start Cisplatin/Rads on 12/18. People often ask…
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Great News!
Hi all: Just wanted to let y'all know that my bff's husband's Steve's needle biopsy of the lung came back as scar tissue and inflammation! Still want him to see a pulmonolgist but the big news is it wasn't cancer! Praise the Lord! And thank y'all for your prayers! God Bless! Love y'all. Jan (Basketcase)
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SCANXIETY TIME AGAIN
Hello all, and hope everyone is trying to get excited about Christmas and forget about C for a moment. Been a while since I posted any updates, as I continue to struggle with "cureable VS treatable." I did keep my appt. with the Onco. Psychiatrist who made allot of sense, and also placed me on an anti-depressant, that…
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Monday's the day; any suggestions?
Still fairly new to the sight, but looking for some advice on how to get through the next couple of weeks. My husband's surgery to remove part of his tongue and all the lymph nodes on both sides of his neck is Monday morning. I already am having major difficultly sleeping, working, or doing much of anything except…
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heartburn
Had first chemo monday.. third radiation today for tonsil cancer. today since noon fighting horrible heartburn in spite of taking three times dose of rx for usual acid reflux. eating only helps for short time. any ideas
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Talk to me about your experience after chemo/rads...
My mother has been going through the same journey as many of you, but she has been doing it mostly alone. I have read this site off and on, but she has always reuffed my suggestions that she come here, much to my frustration. She was treated for stage IV throat cancer at MD Anderson in Orlando, starting last January. She…
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Tim6003 Heading to Seattle Cancer Care Alliance for lung scan follow-up
Hello family :) (that's me buttering you all up) I am off to Seattle for the reasons stated above. Many of you may remember my last CT w/ contrast showed "granulated glass appearance in the upper left and lower left lung as well as 3 (presumably new) nodes in my lower left lung. The largest node was 7mm. I've gotten some…
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Christmas is in the air~~~
I haven't been posting much lately, family in from Chicago, parties, dinners, shopping and still babysitting my 4 year old..busy, but I read your posts every day and love you all..just no time to answer every post..be kind to each other, and bless you all.. Merry Christmas and the Healthest New Year possible
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Any pain after peg tube removal???
Hi to all, I am just wondering if anyone who had the peg tube removed experienced pain at the site after eating. My dad had his Mickey button removed on Tuesday (hooray) but after he eats he has pain where the Hole was for about an hour. Is this normal? By the way, to celebrate the removal of his button (as we called it),…
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Good Article
This is an interesting article from one of my English newspapers it has also been on CNN and Dr Sanja Gupta, heres the link http://www.dailymail.co.uk/health/article-2246312/Girl-7-beats-leukaemia-revolutionary-treatment-using-HIV-virus-wire-immune-system.html This is the natural product what I have been talking about and…
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Total Laryngectomy
My fiance was diagnosed with stage 3 laryngeal cancer last November (2011) He wasn't a smoker, nor did he drink to excess, but he did work with asbestos and some of the doctors suspect that is the cause. He went through two months of radiation and chemo, still has a g-tube and has not been able to eat since just before…
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trying to find words
I am trying to find something positive to report; however, all I want to do is scream . I want to yell because I am tired of crying. I don't want my husband to die.