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Muguard-"NOT MEDICALLY NECESSARY!"
Our health insurance denied covering the muguard because they said it was not medically necessary. If I wa a mean spirited person I would like that clinical pharmadist who made that decission find out one day what is like having your mouth and throat nuked. I sure than it would be "medically necessary" At least the cancer…
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Very stressed
I have found myself very stressed today. I have had many days where I actually believe David will miraculously come through. Today hasn't been one of those days. We finally heard back from Wells Fargo. They want to see if he can find work in six months so they are doing some sort payment plan. If he doesn't find a job in…
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What Can We Expect?
Dear Survivors: I hope that I will be saying that about my fiance in time, but right now we are facing T3N2 of the larynx. The "tumor board" has recommended to try chemo and see if the tumor responds. Can anyone tell me what that really means? And if you've been through something similar? Thanks Colleen
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BarefootBob Robert RIP
Its with a sad heart that I just read on Caring Bridge that we lost Robert this morning. Our prayers go out to his family at this sad time in their life. He was blessed to have them and visa versa. Losing one of our own hurts and for the CSN family we want you all to know you are in our prayers and may God continue to…
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Lympho Vascular Invasion after complete removal of tonsil with ample negative margins
My wife age 64 was diagnosed with stage 2 SCC of the left tonsil and has had a radical neck dissection (biopsy of 33 lympth nodes all negative) and robotic surgery which removed the tonsil and surrounding tissue with ample negative margins. Surgeon indicated that she might be able to avoid Rads due to the success of the…
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CareBridge
Can someone post a link to David's page? I can't find it
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colds or flu?
Have any of you had the flu since completing treatment? Did you get the flu shot vaccine?
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Honest....I'm not ignoring
all the new posts. I'm just having a hard time getting on here, and having the site work for more than the time it takes to answer one post...then goes into it's 90 minute spin....CSN, for all it's old problems did used to work better....it'd go offline for a day every now and then...but that was it. This has been going on…
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Continued Throat soreness
Hello all I have been around this site since my diagnosis in Oct 2011. Not much of a writer, but found so much info on this site sorry I have not chimed in before. I was diagnosed with Stage 3 BOT with minor involvement of 1 node on the same side. Was scheduled for 3 rounds of Chemo, but hearing loss after the second was…
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Clarification received from the surgeon
Hello, I'm 35 years old man with nasopharyngeal carcinoma. I just finish my treatment,35 radiation and 5 chemo+5 FU. I just receive my MRI report and it is very confusing,looks like there is some cancer cell left or other part of my left side of my nose. Now i have no idea what will be next since i finish the regular…
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Mom comes home tomorrow!
I'm definitely excited and a little nervous. I know she's so excited to finally be home, even if it'll be at my house instead of her home... she's just happy to be getting out of the hospital. Despite both of her 'scares' due to an idiot nurse, she passed today's 'pop quizzes' (swallowing, etc) as her doctor called them…
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Still having a hard time getting on CSN
Hi All. I'm desperate here :) I'm really having a hard time getting on CSN. Has been this way since my last post regarding this even with the upgrade. To get on I usually google American Cancer Society Message Board and then click on Discussion boards. However, I seem to have better luck using CIVILMAT's way of getting on…
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January 21st - Tooth extraction
My husband went to see an oral surgeon and they will be extracting #10 and whats left of number 11th (tooth broke off and was infected). At this time, there has been no metion of HBO treatments. I will update his progress. I know a few people have been asking about tooth extractions. Well. my husband will be your guinea…
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Just some additional venting.....again
Tomorrow is my husbands last chemo (20mg cisplatin/30mgs pacitaxol x 6 weeks) - so we are very happy at least one half of the treatment is coming to a close. Then there are only 5 more rads, done next Tuesday. His issues are with nausea. He's throwing up several times a day... In the morning lots of mucous and it's bloody…
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more than half way
20 rads down 15 to go. Insurance denuied the Muguard but the hospital gave some bottles, thank goodness. Jeff does,'t mind taking it anymore since he can't taste it:_ But hard not to drink for an hour. So he drinks his bottle water that tastes like salt water. Everything tastes salty. And just takes the Muguard more often.…
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One down 32 to go
First rad tx done, 32 to go. The folks and Cancer Ctr are all so nice. I,m gonna ask for strength for all of us. Luke
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Miracle, Mom is NED!!!!
Hello Friends, although I don't post that often I read everyday and I follow everyone's journey, this is the place of piece and enouragament for me. For those of you who know my mom's story she had 2 head and neck cancer recurrances since her diagnosis in 2010. After the last surgery in March of 2012 she had scans done and…
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more than half way
20 rads down 15 to go. Insurance denuied the Muguard but the hospital gave some bottles, thank goodness. Jeff does,'t mind taking it anymore since he can't taste it:_ But hard not to drink for an hour. So he drinks his bottle water that tastes like salt water. Everything tastes salty. And just takes the Muguard more often.…
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weird transitions
Hello guys and gals, It's been a few weeks since my hospital stay and I'm physically getting stronger. Some days I sound like a tea kettle going off on the stove top.....lung squeeling at me. I don't use the O2 as much....but still am hanging on to it to get through home based PT. I have my first recheck w/my primary this…
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cancer of the epiglottis
I was wondering if there is anyone whom had/has cancer of the epiglottis. I have been searching symptoms of cancer of the epiglottis to see if spitting is a symptom. I have been unsuccessful. One of my husbands symptoms that brought us to the dr in the first place was constant need to spit. He is 1o weeks post treatment…
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Update on best friend's husband
Hi all: Hope everyone had a wonderful holiday season. I went to Charlie's folks for Christmas as usual. Shorter time though since I'm now working. (DAMN, that working does get in the way doesn't it?) My sister came down Thurs after Christmas and stayed till Sunday. I spent a quiet New Year's Eve with my boys and watching…
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acid reflux
Just a short story of treatment for acid reflux and stomache burning after eating.TX. stage 4 lung and B.O.T ( chemo & rad ) Tried about everything on the market for stomache burning and acid reflux--to include bed raised. Apple cider Vinegar cured, mixed with half water and half Vinegar. Not a very good taste but it shure…
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ALKALINE WATER
Hello,guys (and gals)...I was wondering if anyone belives in the drinking of alkaline water to put cancer at bay?.....also this "Zesting"..which is grading outer layers of lemons and limes,then sprinkling it on a salad....I relize sick folks will try ANYTHING to feel better,I just dont want to spin my wheels.....I heard…
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G tube removed. Finally!
I am glad to report that after 5.5 months I’ve got rid of the G tube. Mine was the type with a small hemisphere (mushroom shaped) end. They pulled it, I felt a kind of quick pain similar with a strong gastric contraction and it was out (with a pop sound). It was kind of painful for the first few minutes, but mainly because…
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only 15 years late
This morning I went for my first ever colonoscopy, the nurse made the comment, I was only 15 years late..really! Anyway, they had to remove lots of polps and I go back to the Dr in 2 weeks for results. For some reason, I'm not afraid or worried,I've put in all in God's hands
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Dear Saliva........
You've been away for far too long and I really miss you! Its been since July 2012 that i finished rads and still no sign of any new saliva. Is it still too soon for me to be whining about this? Its not like me to be negative, I'm usually a glass half full kind of girl but this is making me nuts. I have bad days with the no…
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PMs?
Hi All, I wanted to look at my personal messages - specifically from BarefootBob - and it seems they are GONE. I do hope there is a way to retrieve them because each and every one of them have special meaning to me. Have I missed something with this update? Thank you. Lynda
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Change in staging"depending on which doctor you talk to?
Hi my name is Claude,Ive been following u guys on here for a few months,Ive got more info on here than at the VA I go to..Im greatful for my treatment,but feel doctors are "rushed"....Im experiencing MUCH fear on some days,and peace on other days.....The unknown is SCARY..
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Mouth Pain
Hello, I just joined the site tonight. This is my first post. I had cancer of the tongue that spread to my lymph nodes. August 2012 I had surgery to remove 1/3 of my tongue and the tumor with surrounding lymph nodes. I had 33 radiation treatments and 3 two-part chemo treatments. It was extremely rough to get through. I am…
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What do you think of this poster?
A few months ago I started a Head and Neck cancer support group. There are not many of us out here and I felt really isolated when I went through treatment. I all but stalked Phrannie, when I found out she was local. In any case, here is a draft poster...What do you like and what should I change?