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Head and Neck Cancer

Still having a hard time getting on CSN
Hi All. I'm desperate here :) I'm really having a hard time getting on CSN. Has been this way since my last post regarding this even with the upgrade. To get on I usually google American Cancer Society Message Board and then click on Discussion boards. However, I seem to have better luck using CIVILMAT's way of getting on…
January 21st - Tooth extraction
My husband went to see an oral surgeon and they will be extracting #10 and whats left of number 11th (tooth broke off and was infected). At this time, there has been no metion of HBO treatments. I will update his progress. I know a few people have been asking about tooth extractions. Well. my husband will be your guinea…
Just some additional venting.....again
Tomorrow is my husbands last chemo (20mg cisplatin/30mgs pacitaxol x 6 weeks) - so we are very happy at least one half of the treatment is coming to a close. Then there are only 5 more rads, done next Tuesday. His issues are with nausea. He's throwing up several times a day... In the morning lots of mucous and it's bloody…
more than half way
20 rads down 15 to go. Insurance denuied the Muguard but the hospital gave some bottles, thank goodness. Jeff does,'t mind taking it anymore since he can't taste it:_ But hard not to drink for an hour. So he drinks his bottle water that tastes like salt water. Everything tastes salty. And just takes the Muguard more often.…
One down 32 to go
First rad tx done, 32 to go. The folks and Cancer Ctr are all so nice. I,m gonna ask for strength for all of us. Luke
Miracle, Mom is NED!!!!
Hello Friends, although I don't post that often I read everyday and I follow everyone's journey, this is the place of piece and enouragament for me. For those of you who know my mom's story she had 2 head and neck cancer recurrances since her diagnosis in 2010. After the last surgery in March of 2012 she had scans done and…
more than half way
20 rads down 15 to go. Insurance denuied the Muguard but the hospital gave some bottles, thank goodness. Jeff does,'t mind taking it anymore since he can't taste it:_ But hard not to drink for an hour. So he drinks his bottle water that tastes like salt water. Everything tastes salty. And just takes the Muguard more often.…
weird transitions
Hello guys and gals, It's been a few weeks since my hospital stay and I'm physically getting stronger. Some days I sound like a tea kettle going off on the stove top.....lung squeeling at me. I don't use the O2 as much....but still am hanging on to it to get through home based PT. I have my first recheck w/my primary this…
cancer of the epiglottis
I was wondering if there is anyone whom had/has cancer of the epiglottis. I have been searching symptoms of cancer of the epiglottis to see if spitting is a symptom. I have been unsuccessful. One of my husbands symptoms that brought us to the dr in the first place was constant need to spit. He is 1o weeks post treatment…
Update on best friend's husband
Hi all: Hope everyone had a wonderful holiday season. I went to Charlie's folks for Christmas as usual. Shorter time though since I'm now working. (DAMN, that working does get in the way doesn't it?) My sister came down Thurs after Christmas and stayed till Sunday. I spent a quiet New Year's Eve with my boys and watching…
acid reflux
Just a short story of treatment for acid reflux and stomache burning after eating.TX. stage 4 lung and B.O.T ( chemo & rad ) Tried about everything on the market for stomache burning and acid reflux--to include bed raised. Apple cider Vinegar cured, mixed with half water and half Vinegar. Not a very good taste but it shure…
ALKALINE WATER
Hello,guys (and gals)...I was wondering if anyone belives in the drinking of alkaline water to put cancer at bay?.....also this "Zesting"..which is grading outer layers of lemons and limes,then sprinkling it on a salad....I relize sick folks will try ANYTHING to feel better,I just dont want to spin my wheels.....I heard…
G tube removed. Finally!
I am glad to report that after 5.5 months I’ve got rid of the G tube. Mine was the type with a small hemisphere (mushroom shaped) end. They pulled it, I felt a kind of quick pain similar with a strong gastric contraction and it was out (with a pop sound). It was kind of painful for the first few minutes, but mainly because…
only 15 years late
This morning I went for my first ever colonoscopy, the nurse made the comment, I was only 15 years late..really! Anyway, they had to remove lots of polps and I go back to the Dr in 2 weeks for results. For some reason, I'm not afraid or worried,I've put in all in God's hands
Dear Saliva........
You've been away for far too long and I really miss you! Its been since July 2012 that i finished rads and still no sign of any new saliva. Is it still too soon for me to be whining about this? Its not like me to be negative, I'm usually a glass half full kind of girl but this is making me nuts. I have bad days with the no…
PMs?
Hi All, I wanted to look at my personal messages - specifically from BarefootBob - and it seems they are GONE. I do hope there is a way to retrieve them because each and every one of them have special meaning to me. Have I missed something with this update? Thank you. Lynda
Change in staging"depending on which doctor you talk to?
Hi my name is Claude,Ive been following u guys on here for a few months,Ive got more info on here than at the VA I go to..Im greatful for my treatment,but feel doctors are "rushed"....Im experiencing MUCH fear on some days,and peace on other days.....The unknown is SCARY..
Mouth Pain
Hello, I just joined the site tonight. This is my first post. I had cancer of the tongue that spread to my lymph nodes. August 2012 I had surgery to remove 1/3 of my tongue and the tumor with surrounding lymph nodes. I had 33 radiation treatments and 3 two-part chemo treatments. It was extremely rough to get through. I am…
What do you think of this poster?
A few months ago I started a Head and Neck cancer support group. There are not many of us out here and I felt really isolated when I went through treatment. I all but stalked Phrannie, when I found out she was local. In any case, here is a draft poster...What do you like and what should I change?
HPV H&N on the Today Show
Wow, the Today show just had a segment on the progress of Cancer treatment and spoke about how many cancer cure rates are going up. Dr. Nancy though brought up the "alarming" rise in HPV Head & Neck cancer and was pushing for all children to get the vaccine. Joe Cortney Dallas, TX
Dear Saliva........
You've been away for far too long and I really miss you! Its been since July 2012 that i finished rads and still no sign of any new saliva. Is it still too soon for me to be whining about this? Its not like me to be negative, I'm usually a glass half full kind of girl but this is making me nuts. I have bad days with the no…
Update on my mom's condition
Hello everyone! First of all, I want to apologize for not getting back to some of you when you posted on my original topic ‘My mother has throat cancer.’ I genuinely appreciated everything you all had to say, and it meant so much to me that you took the time to reply. Much of what everyone told me helped SO much in that…
Back at Markey
Well today starts David's next round of 96 hours of continuous chemo. They drew blood and found his hemoglobin is 7.2, which means yr has to have two pints of blood before they can start chemo so start time change from 5 to probably 11 tonight. I am hoping this round goes better. They want to try to do this without another…
Who is shanghai?
And why is it at the bottom of so many posts..old and new?
Pain in shoulder and wrist nerve damage?
Can someone please help me with this my husband has spent the last two weeks in the hospital with pain in his arms and shoulders that is unbearable. Our general md thinks it is nerve damage however, the oncologist seems to not by that it is nerve damage. Has anyone experience and if so what did you do? HELP connie
Week 5 Post Tx....Food not appealing, but must swallow.
We are at 5 weeks post and have the liquid swallowing down pretty darn good, but food is a bit of a struggle. He says nothing seems appealing. Kind of has a funny taste in his mouth. Has tried some strawberry jello and can taste the strawberry and not too bad tasting. Drinking his Ensure/Boost by mouth now and the…
trial phases
just curious, can anybody shed light on the difference in phases? I'm in a 5-year phase-3 erbitux trial--although I didn't catch the phase part until today. there's also a phase-2 erbitux trial going on. thanks!
Back Pain
Things are not well in our household. My wife burned her mouth badly (by eating soup). And it might have gotten infected. She is running a low fever. My back has been hurting. Originally, I thought it was muscle strain; but it has not gotten better. In fact, it has become a magnitude more painful. I am in the middle of…
MD ANDERSON IN AUSTIN TX AND AUSTIN INFORMATION
My wife is being recruited for a big job at Dell Children's Hospital, University of Texas Medical Center and if she accepts, I would need to be able to continue my treatment. I do know MD Anderson has a facility in Austin. Can anyone comment on their experience there, and even recommend an Oncologist who specializes in H&N…
Officially NED !
Well just received the phone call.....and after one year I AM DEEMED NED ! I will still be going in every three months for scans because of the dx I have and staging of. But '13 seems to be a very lucky number for me. I hope to soon go out and celebrate.....and P I am doing the kitchen dance with just a bit of trouble…

Head and Neck Cancer

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