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HPV H&N on the Today Show
Wow, the Today show just had a segment on the progress of Cancer treatment and spoke about how many cancer cure rates are going up. Dr. Nancy though brought up the "alarming" rise in HPV Head & Neck cancer and was pushing for all children to get the vaccine. Joe Cortney Dallas, TX
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Dear Saliva........
You've been away for far too long and I really miss you! Its been since July 2012 that i finished rads and still no sign of any new saliva. Is it still too soon for me to be whining about this? Its not like me to be negative, I'm usually a glass half full kind of girl but this is making me nuts. I have bad days with the no…
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Update on my mom's condition
Hello everyone! First of all, I want to apologize for not getting back to some of you when you posted on my original topic ‘My mother has throat cancer.’ I genuinely appreciated everything you all had to say, and it meant so much to me that you took the time to reply. Much of what everyone told me helped SO much in that…
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Back at Markey
Well today starts David's next round of 96 hours of continuous chemo. They drew blood and found his hemoglobin is 7.2, which means yr has to have two pints of blood before they can start chemo so start time change from 5 to probably 11 tonight. I am hoping this round goes better. They want to try to do this without another…
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Who is shanghai?
And why is it at the bottom of so many posts..old and new?
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Pain in shoulder and wrist nerve damage?
Can someone please help me with this my husband has spent the last two weeks in the hospital with pain in his arms and shoulders that is unbearable. Our general md thinks it is nerve damage however, the oncologist seems to not by that it is nerve damage. Has anyone experience and if so what did you do? HELP connie
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Week 5 Post Tx....Food not appealing, but must swallow.
We are at 5 weeks post and have the liquid swallowing down pretty darn good, but food is a bit of a struggle. He says nothing seems appealing. Kind of has a funny taste in his mouth. Has tried some strawberry jello and can taste the strawberry and not too bad tasting. Drinking his Ensure/Boost by mouth now and the…
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trial phases
just curious, can anybody shed light on the difference in phases? I'm in a 5-year phase-3 erbitux trial--although I didn't catch the phase part until today. there's also a phase-2 erbitux trial going on. thanks!
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Back Pain
Things are not well in our household. My wife burned her mouth badly (by eating soup). And it might have gotten infected. She is running a low fever. My back has been hurting. Originally, I thought it was muscle strain; but it has not gotten better. In fact, it has become a magnitude more painful. I am in the middle of…
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MD ANDERSON IN AUSTIN TX AND AUSTIN INFORMATION
My wife is being recruited for a big job at Dell Children's Hospital, University of Texas Medical Center and if she accepts, I would need to be able to continue my treatment. I do know MD Anderson has a facility in Austin. Can anyone comment on their experience there, and even recommend an Oncologist who specializes in H&N…
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Officially NED !
Well just received the phone call.....and after one year I AM DEEMED NED ! I will still be going in every three months for scans because of the dx I have and staging of. But '13 seems to be a very lucky number for me. I hope to soon go out and celebrate.....and P I am doing the kitchen dance with just a bit of trouble…
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No longer employed
I sent my letter of resignation and it will be accepted as of January 7. Today I get emails shocked my husband is so sick. WTH? Now they are going to pretend they didn't know what I was going through (am going through). I know I am ranting, but don't add insult to injury. The truth is they knew and either didn't care or…
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Parotid tumor, pain always means malignancy?
Hello First of all, please forgive my poor english, this is not my native language (I am from Poland) but I will try to describe my problem as good as I can. Many (at least five) years ago I discovered a strange structure in my salivary gland. I did nothing with it, it was painless, I thought it was a kind of bone or…
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What happened???
Something is different. Nothing is in the same order. Not that i'm OCD but you get used to things right?
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They say ...
Be Careful What You Ask For . I asked for a second opinion, and I'm getting cisplatin, erbitux, and something else. Starting in about 3 weeks. So when I'm bald, and feel like sh*t, my friends, please remind me why I'm doing this. Well, I'm ugly already; so being both bald and ugly won't be such a bad thing. Not that I'm…
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Petty, I know.....
Hey guys, I am more of a lurker than anything, I have gained a lot of encouragement from reading all the posts and I try keep up with those who have things going on- good and unfortunately not so good. Today, though, I am having a "poor me" day and I need a pat on the back, please. My last Chemo was on Nov 1 and my last…
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Had to stop radiation...weeping blood in mouth
Sorry for being so explicit, but my dad had to stop rad treatment for at least one week due to some mouth issues the rad-onc had not seen/expected so soon. Cancer and site of tomo-radiation is floor of mouth, however, this bloody weeping is over the entire roof of mouth with bloody sores on lips and inside cheeks. This…
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Marching Forward
Hi Everyone, Well, we're marching forward here, just at a snail's pace. Hubby has Cardio appt. tomorrow. I really think a mistake was made when they removed all but a fraction of his diuretics in the hospitalization. Feet and legs still severly swollen and urination starting to dwindle(urine is dark brown also). Blood…
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Tough Prognosis part 2
Hello to all the fellow survivors and wishing a Healthy New Year. A big thank you for all the comments, thoughts, & prayers during my recent diagnosis. I am amazed each day at the amount of love that pours out from this site. I also wish to thank those visiting my Caringbridge site it makes my journey easier as well as…
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Gators in the Hood... ~ Photos
On a somewhat lighter note... Those that have mentioned about fishing with me... Being in Florida, part of the local wildlife share many of my fishing holes..., snapped a few photos from New Years Day at the local Crappie fishing hole. I saw a few of these guys out on the bank sunning themself, two were at least 10 - 12',…
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nothing tastes good
Jeff's two favorites-apple sauce which he has at every dinner and coffee ice cream every night tastes yukie now. He is so bummed. Even the coffee we get at Dunkin's everyday is not appealing. It's breaking my heart to see him so misirble. He has only lost about 5 pounds in 4 weeks. We got a reprive on chemo, we are…
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Throat cancer Hpv
I am new here my name is Lili , my husband has HPV tonsil stage 3 , radiation and chemo treatment , he will finish next week, he didn't want the Peg tube and he lost 3o pounds already I am so worried he didn't eat for the last 2 weeks just Gatorade . I wonder how is the healing process of the throat , how long it will take…
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DEJAVU
Its been over a year now back in April 2012 that I introduced myself with a post "Is the Fight Worth It" and got so many uplifting responses. I did fight it and thought I had won back in Oct when I posted NED per the Doctor reviews of the CT scan. Since then however things have changed, my left ear started to bother me and…
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2013 here we come !
Hello everyone ! Well I haven't seen my onc's yet because of all the holiday schedualing.....but did receive path reports in the mail today. My lung was NOT mets or cancer period ! My H/N area came back no malignancies noted. So it's sounding as if I'll be receiving the NED'S thumbs up yet in January. I'm still pretty…
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BELIEVE
For my good "Old" buddy Kent...; Merry Christmas...and BELIEVE, John
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David in the New Year
It sounds like we will start the new year with a blood transfusion. David was very washed out yesterday and didn't even get out of bed until 5 pm. When they drew his blood (while asleep) his hemoglobin was 7.4. They give blood at UK whenever it goes below 8.0 so we are waiting for a call to come in for a transfustion (well…
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Very Tough prognosis my days here are numbered
Thank you all for this great site & all the great people on the bus. It looks like my time on bus will be a few weeks or months. I am home in Minnesota after being in hospital at Salt Lake City over Christmas. They found that cancer has returned & is wrapping around my caratoid arteries, and part of my spine is exposed due…
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CSN Email :(
Took me until yesterday to realize that all of my archived CSN Email messages are gone. :( ( Sorry if I missed an earlier post about this, but does anyone know if these messages are gone for good? There were some wonderful communications from folks that are now gone. I really wanted to keep some of those for a while. Guess…
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Tim6003 Lung Scan Results are in
Here is what the report reads +++++++++++++++++++++++++++ Auxillary regions are clear Mediastinum is normal Lung field assessment shows decreasing nodularity in the superior segment left lower lobe as compared to prior exam, (Nov 7th) now with only one dominant nodular measuring 4mm and other stranding in the area.…
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Connection problems
Gosh is it just me? I'm still having a hard time getting on to the site. I haven't been able to get on for the last 2 days. Any suggestions? Billie