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huge neck lump and swollen nodes.help
hi all. ive just come across this site and i was hoping someone could give me some advice.3 months ago i was putting cream on my face and nevk when i felt a lump as i was rubbing down the left side of my neck.the lump is about 1 inch above my shoulder.i was also getting a lot of aching on that side of my neck and…
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Help! Ive been on disabality for 11 months,my job might not be there..
Hello every one,Ive had a tumor removed from my neck stage 4 patroid cancer,and 33 radation treatments 4 months ago.....I live in Southern Calif,I drive for a nonemergency medical service,Ive been there 4 years.....Ive been off 11 months on state disability....Im released to return to wk Feb 21...........my job says "there…
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Update on my husband/Nurses and Some Doctors needed to be better educated about laryngectomees
My husband had a needle biopsy yesterday, and yes his lung collapsed and he is now a patient. During all of this several of the nurses kept saying he had a trach. I told them repeatedly he has a stoma and that that is his airway now. That if he needed oxygen it can only be given thru the hole in his neck. Some knew, some…
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Help! Ive been on disabality for 11 months,my job might not be there..
Hello every one,Ive had a tumor removed from my neck stage 4 patroid cancer,and 33 radation treatments 4 months ago.....I live in Southern Calif,I drive for a nonemergency medical service,Ive been there 4 years.....Ive been off 11 months on state disability....Im released to return to wk Feb 21...........my job says "there…
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nose feeding tube vs G-tube
Hi Everyone, I was wondering, can you get a feeding tube down thru your nose instead of the G-tube into your stomache? Dad is supposed to be starting RADS on Thrusday and this is a question he has. Also, how quickly will the RADS affect his mouth, saliva glads, dry mouth, ect?
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Can I have your opinion
My mother is 73 years old and is recovering from tongue cancer surgery, where they took out 3/4 of her tongue, broke her jaw, floor reconstruction of her mouth and neck dissection. She had to have the floor reconstruction done twice as sutures came loose the first time. They put a wound vac in my mother's mouth for over a…
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TEP Not Closing
I had a smaller diameter voice prosthesis inserted, with the hopes the hole (TEP) would close down around it. No such luck. I aspirate liquids, and am reduced to using good ol' ThickIt. I guess, one can get used to anything. Finished one month of chemo. Need a CT to see what the chemo did. The next round is in the planning…
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Bowel Changes....
Hi All... I know this could be a very personal topic for most, but I'm hoping for a little advice as to what is normal and when it returns to normal. We are 11 wks post tx and still weining off the narcotics and the fentayl patch (last week for patch..12.5mg) and having bowel issues. They are not consistent. One day it's…
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trouble swallowwing
Hi, I'm new here although I have posted some responses. I had BOT and Tonsil and Throat stage IV diagnosed last dec which (so far) has responded to 3 courses of chem, 35 rads, and modified neck resection to remove about 25 lymphnodes. I had a real rough 2 months with pain, nausea and lots of mucus. I had a feeding tube but…
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Update on Dad
Dad saw the oncologist today and he will start on chemo again this friday. The Dr. said the tumor has not changed that much since two months ago, but he wants to stay ahead of things. We talked about the issues dad was having and he said it was withdrawl from the bad fentanyl patches. Dad will have the same chemo as before…
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Haven't really felt like talking
I am 9 days past my last treatment and continuing what the doc called "the worst two weeks of your treatment", so far he has been right on. Stacey, you nailed it on the head, this hairball is driving me nuts. Today I thought I'd turned a corner, only mild discomfort for most of the day. Now, 7:30 PM and it's back in all…
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My Daughter, Johnnybegood
Just wanted to let everyone know that I spoke to my daughter tonight and she sounded really good. Her latest blood test shows her platelets are up to 120. That's so much better than the 65-70 she been stuck at since last June She's hoping to get the drainage tube out and be able to go home tomorrow. Thank you all so much…
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Get a second opinion
My mum at 55 was diagnosed with aggressive squamus cell carinoma 2 weeks ago. The tumor takes up the right nasal cavity, Right maxillary sinus, Ethmoid sinus cavity and erroded the bone between the nasal cavity and eye socket and possible nerve damage in the cheek. The ent team (ent surgeon, maxo facial surgeon, professor…
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Damage to saliva glands
It's me again I promised my dad I would try to find out some things that he has questions about before he starts his radiation on Thursday I have read so many posts but just wasn't sure- When you take radiation does it destroy your saliva glands and if so do they repair themselves after the radiation is over? How many…
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Oral Neck Cancer Online Workshop
I see Posner is involved. http://www.cancercare.org/connect_workshops/336-treatment_oral_head_neck_cancer_2013-05-15
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Warrior Tracking Chart
hi, One of the things I find hard to keep up on is where everyone is in their battle with the beast. I created a template of something that I would like to get your thoughts on as it might help others as well. I can keep it updated as long as I get the info in some standardized tabular format (yet to be developed). anyway,…
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What is good to help healing process after a removal of the lingual tonsil surgery and biopsies in h
I'm feeling with my hands tied without doing much for my Papi's relieve, he have hart time drinking liquids because his throat have swollen tongue after the surgery, please some suggestions. So I'll help alleviate his pain or make easy his recovery. I feel like I'm not doing nothing to making feel good. Please suggestions,…
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Tired , mucus and unable to eat.
I am writing for my husband John. He was diagnosed with tonsil cancer in Oct. had his tonsils, part of soft pallet, and tongue removed late in Nov. After 2 months of recovery and delays , he started chemo and radiation last week. He complains of being hungry , but full. We can't tell if it is related to mucus Or…
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A side-effect
As some of you may know, I've been dealing with neck spasms on a daily basis for some time, now. Yes, arthritis has shown in two spots at the base of the Cervical section of my spine, but where the spasms happen is where I definitely got zapped with the rads. New Drs in my life, as my General Practitioner recently retired,…
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Polar Ice Caps - the unofficial survey :)
So, how many of us were on line early enough this morning to see the U of Chicago "research" survey briefly posted on the Head Neck forum (until Admin took it down)? The survey supposedly addressed chemotherapy-related alopecia. Upon questioning, the poster admitted to Pat that the real point of the survey was to determine…
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Recently diagnosed with SCC of the Nasal Septum
Hi, I've recently been diagnosed with SCC of the Nasal Septum (Mar 2011). It was discovered accidently (however the radiologist noted the mass on the CT scan) during a surgery to repair a deviated septum (1st surgery). My only symptom was a little nasal stuffiness. I had another surgery (18 Apr 11) to remove the remaining…
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No more cracked and irritated skin
Hi all, One of the many side effects seem to be various forms of chapped, split, rashed skin disorders. I had a single sore from my first round of induction TPF and grabbed the old bag balm without thinking. I also have a dry sore spot in my upper nostril so a dab there too. It got me thinking I never saw anyone mention it…
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Good news for a change
Finally we have received some good news. David is in complete remission from the Plasma Cell Leukemia. His is in doing a full body bone scan to see if there is progress on the condition of his bones. They are going to be doing a lot of tests in the near future. More PET scans, etc. They want to try to make the case the…
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Finally got dentures today
Hi everybody its been a long road from April of last year when i had 23 teeth extracted to start treatment for tonssil cancer stage 4a hpv+ at the age of 29 now i'm 30 woohoo but today i got my implanted dentures there are defnitly some sore spots here and there but they look awesome just hard to get used to i'm going into…
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ENT today. Surgery Monday
So I went to the ENT today and had a scope done. Low and behold he sees a spot on my right tonsil. I will be having my tonsils removed and a biopsy Monday. At first I thought he was joking about Monday but then he sent my to Hospital to do the paperwork. So I guess it is for real. He says the spot is small and he will be…
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advice for problems week after treatment
Hi Everyone. I have been following all the posts and sending positive thoughts and congrats through the air but have not had any time to post. My husband and I and our two kids relocated to another state to complete weekly cisplatin and 35 rads which we finished last week. I have been homeschooling out kids, and taking…
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Taste - Is There Hope?
I am 8 weeks out from my last radiation and chemo. I had (hope operative word is had) neck cancer, unknown primary, one lymph node involved. Had a neck disection, 7 weeks radiation and chemo. I think I have some taste back, but it is so hard to tell if I am really tasting a few things or just a sensation in my mouth. I can…
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Update on Best Friend's Husband
Hi all: Up early this morning so thought I'd check in early! Steve, (my best friend Beki's husband) saw the oncologist yesterday and Praise the Lord the cancer is not in the brain (a good thing). They are concerned about one lymph node that has traveled to upper lobe of lung whereas the other 3 are where the spot is; so…
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Survived This Week
Well, here I am again. Started out the morning in tears, probably just for the he!! of it. Sometimes, I just feel so darned alone. I certainly can't "dump" on my daughter all the time. And as I may have mentioned before, all those "friends" I worked with were just that, "work friends". There is one very special lady that…
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Ok... this Beast is starting to hurt for real :(
Hey folks, On Monday, I visit the dentist to have a tooth extracted and a small cavity filled. That along with previous exams, cleanings and flouride treatments will give me dental clearance for radiation treatment. The journey officially starts next Thursday with surgery to remove the tumor, do further biopsies and…