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Recently diagnosed with SCC of the Nasal Septum
Hi, I've recently been diagnosed with SCC of the Nasal Septum (Mar 2011). It was discovered accidently (however the radiologist noted the mass on the CT scan) during a surgery to repair a deviated septum (1st surgery). My only symptom was a little nasal stuffiness. I had another surgery (18 Apr 11) to remove the remaining…
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No more cracked and irritated skin
Hi all, One of the many side effects seem to be various forms of chapped, split, rashed skin disorders. I had a single sore from my first round of induction TPF and grabbed the old bag balm without thinking. I also have a dry sore spot in my upper nostril so a dab there too. It got me thinking I never saw anyone mention it…
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Good news for a change
Finally we have received some good news. David is in complete remission from the Plasma Cell Leukemia. His is in doing a full body bone scan to see if there is progress on the condition of his bones. They are going to be doing a lot of tests in the near future. More PET scans, etc. They want to try to make the case the…
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Finally got dentures today
Hi everybody its been a long road from April of last year when i had 23 teeth extracted to start treatment for tonssil cancer stage 4a hpv+ at the age of 29 now i'm 30 woohoo but today i got my implanted dentures there are defnitly some sore spots here and there but they look awesome just hard to get used to i'm going into…
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ENT today. Surgery Monday
So I went to the ENT today and had a scope done. Low and behold he sees a spot on my right tonsil. I will be having my tonsils removed and a biopsy Monday. At first I thought he was joking about Monday but then he sent my to Hospital to do the paperwork. So I guess it is for real. He says the spot is small and he will be…
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advice for problems week after treatment
Hi Everyone. I have been following all the posts and sending positive thoughts and congrats through the air but have not had any time to post. My husband and I and our two kids relocated to another state to complete weekly cisplatin and 35 rads which we finished last week. I have been homeschooling out kids, and taking…
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Taste - Is There Hope?
I am 8 weeks out from my last radiation and chemo. I had (hope operative word is had) neck cancer, unknown primary, one lymph node involved. Had a neck disection, 7 weeks radiation and chemo. I think I have some taste back, but it is so hard to tell if I am really tasting a few things or just a sensation in my mouth. I can…
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Update on Best Friend's Husband
Hi all: Up early this morning so thought I'd check in early! Steve, (my best friend Beki's husband) saw the oncologist yesterday and Praise the Lord the cancer is not in the brain (a good thing). They are concerned about one lymph node that has traveled to upper lobe of lung whereas the other 3 are where the spot is; so…
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Survived This Week
Well, here I am again. Started out the morning in tears, probably just for the he!! of it. Sometimes, I just feel so darned alone. I certainly can't "dump" on my daughter all the time. And as I may have mentioned before, all those "friends" I worked with were just that, "work friends". There is one very special lady that…
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Ok... this Beast is starting to hurt for real :(
Hey folks, On Monday, I visit the dentist to have a tooth extracted and a small cavity filled. That along with previous exams, cleanings and flouride treatments will give me dental clearance for radiation treatment. The journey officially starts next Thursday with surgery to remove the tumor, do further biopsies and…
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Really Needed a Good Day
Friends, The first of many scans (CT Lungs) I will take on this journey came back clear after the "official" diagnosis. The first step of a thousand step journey...followup with ENT on Monday and we have sent primlinary reports to MD Anderson in Houston and waiting on them to set up a new patient appointment for the full…
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What a day :(
On top of the stress of Jeff's cancer (seeing the oncolugist tomorrow for 1st follow up) my 13 year old daughter's father passed away this morning of CHF. I had to tell her when got home from school. She was very close to him. He btought her home last night agter her basketball game and looked and sounded good. You just…
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PEG TUBE REMOVAL TODAY
Hi Everyone, I wanted to post an update. I think that those behind me in the treatments stage might appreciate the information. We all experience this journey differently but here is the latest with me. I finished my radiaiton and chemo treatments (for tonsil cancer on left side and lymph node on same side) on Dec 19th. I…
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Just Starting the Journey
The past three weeks have been just crazy and I feel so out of control! Still in the staging process but looking at III tonsil SCC with left nodule involvment. I am just so scaried...my kids come home from school and I have to go to our bedroom because I can't stop crying. My wife has been incredible and I have just been…
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myxofibrosarcoma right nasal cavity
My mother is suffering from myxofibrosarcoma in right nasal cavity. Please let me know the survival possibility
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New diagnosis-I have a Fur ball!
It is driving me C R A Z Y. All this hacking and gagging and throat clearing...and every now and then finally coughing up something that looks horribly similar to ear wax. I consulted with the cat (figured she was experienced in this area) but she just gave me a blank look and tried to drink the milk out of my cereal bowl.…
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Unwelcome, Unexpected Surprise
We met with the MDA Rad Onc today. The good news is that there appears to be no lymph node involvemnt in the lung area, so Ron will be preparing for 4 Rad treatments on the lung which the doc feels will eradicate that tumor. I'll make arrangements to get his teeth pulled as he prepares for the tougher phase, the 35 H&N…
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Was it BS?
Just wondering what happened to the post from this morning from the "17 year old Cody" who was broke but needed to see a doctor? I hate to seem this way but I have a feeling it was a scam of some sort. I want to be wrong but something just didn't seem right. If I'm right in my thinking it's scary because someone out there…
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Appetite
I understand why I have lost my saliva and my taste but does anyone know why I dont get hungry ? I have to force myself to eat just to try to not lose anymore weight.
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Old lady chin :-(
About a month ago I noticed my chin getting more and more wrinkled. I'm 7 mo this out from treatment and it seems to be getting worse. I am pretty sure the rads just depleted all of my collagen in that area. I'd really like to stop receiving gifts from rads. I still have Lhermitte's too and I thought that would be gone by…
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How to add a friend
How do you add someone to your friends list now with this new format? You used to just click on there avator, but not anymore Sue PS Thanks ahead John..I know you will have the answer.
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Cancer and sugar
Hello, I've heard from a friend that sugar in any form, even fruit should be avoided (for a while, for me) to have healthy cell re-growth and prevent cancer. This topic has surley been around, but is new to me. I've done a little reading online, there so much out there. I'm wondering how others here feel. I find it hard to…
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Dealing with Idiots
Jeff's erbitux rash had really got bad.. it's on his face, hands and now stomach. He changed his fentenol patch today on there were blisters under it. No itch, just pain. He thinks he might have them on his tongue also..something popped and oozed on it. We went to the Dr yesterday. I called at 9AM and by noon did not hear…
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Just A Random Thought
Hello All, Just up late and thinking. I know, bad combination. LOL On the Colon Board, we have a member who swears by TCM(Traditional Chinese Medicine). Since, I am relatively new to H&N Cancer and Lung Cancer, I was wondering if any of you have any experience with TCM for these types of cancer, in conjunction with or…
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Silver Something
For some reason the formatting of the superthread is all jumbled up (at least on my machine) and I can't find a product I remember seeing. It was Silver something and it was supposed to be great for neck burns, and man do I have neck burns. Anyone help? Thanks, Joe Cortney Dallas, TX
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more rechecks this afternoon
Hey everyone, Rechecking the lung and chest wall down at Masonic today. And it's suppose to snow. Alrighty then, should be a fun trip. I also want to bring up another issue that is important in understanding our dx's. TUMOR PROFILING This shows our specific DNA and RNA that could match up tx's in the future that could help…
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Rx confusion
Hello again kind friends, I am checking to see if anyone has had similar problems with their prescriptions. I have been prescribed MS coton for pain, this is slow release and the dose prescribed is 60 mg per 12 hrs. which I have been taking. I tried to refill the script the first time but the chemist said the insurance…
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Stir crazy and love starved
I am having a hard time trying to stay chipper and hopeful. I have been stuck in the house for two weeks with the exception of the one doctor's appointment and chemotherapy. We don't have company other than David's mom and we don't want her to have to come out everyday since she hasn't been a widow much longer than I've…
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Can I rent a new body. Lol
I don't know what is wrong with me, but I have been having a lot of numbness and tingling in my hands and arms every night for a few months. my body is really stiff in the mornings and I have to be careful not to trap drown the steps on the way to take care of David in the morning. I have actually fell once and luckily…
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One road ends, another begins
Well folks, tomorrow (Friday 2/1) I wlll have had my last Rad. I had a meeting with my ONC today and he predicted that the next two weeks will be the worst of the journey but slowly, after that I should see some easing of symtoms. This last week has been pretty rough starting with the Thrush, then a significant ramp up in…