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NO DOOM & GLOOM ~ Speckled Perch ~ Crappie Fishing
Camp Mack ~ Lake Kissimmee John Karen These were from this past week-end... Karen is a friend of Shelley my wife. Karen likes to fish, where Shelley is more a girly girl...LOL. Hurry up, get through with your treatments, or just a visit to Florida and look me up. Even a Bad Day of Fishing, is better than a Good Day at…
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Cancer in Pharynx
Hi All, The last few days have been crazy, after my father was diagnosed with Pharyngeal cancer. We are yet to do further checks to identify the stage, spread etc. I am sure everyone here knows how it feels like to receive this news first. By the time we do further checks, I would like to know if anyone here has…
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Dillaudid (Hydromorphone) drug side effects
Anyone have side effects from the drug, Dillaudid? We're 11 wks post tx and trying to get weined off of these drugs, but having a hard time with this drug. Seems as though his stomach hurts along with other body aches and he takes the Dillaudid, then it helps dissolve the pain to almost nothing then the cycle returns…
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Persistent "flem" in throat
I had SCC in 2006 with Rads only then SCC on the other side of my neck in 2012 with Rads and Chemo. I am now 10 months post treatment and continue having "flem" that I have to spit out. I also have lymphedema in my throat which is slowing getting better with the help of hyperbaric treatments. Can anyone else reflect on…
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"Rare Event": the Definition
I have often posted that I thought a "rare event" would be being hit by falling space junk. Then today, 1000 Russians are injured by falling space debris. Not so rare, I guess. So I guess that "rare" is an event that happens to someone else. If it happens to you, it is not rare. How about that for a good definition?
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Introduction to my Mom- Squamos Cell Carcinoma in the Jaw - Stage 4a
Hi everyone, My mom (65 yrs) is currently a cancer patient. Her cancer was detected in April of 2012 and she was diagnosed with Stage 4A squamos cell carcinoma in the jaw in September 2012. The tumor mass is primarily located on the bottom of her chin. The story begins with my mom losing her teeth in the summer of 2011.…
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Not sure if saliva or
m ucus, during the day the left side of my mouth and tongue seem to be constantly wet with either saliva or mucus, likely mucus. Its not really a problem physically but seems to be on the left side but not so much on the right side. The left side of my tongue still has some discomfort but I would not call it pain, more…
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"WTF"
Sorry about the title, but just didn't know what else to say. As you know, we are caught somewhere between the H&N and Lung Cancer. I can't really identify with any of the Lung Cancer posts so I guess you guys are stuck with me for a while. For many years now, I have been presenting each and every physician we see with a…
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Voice TEP
Hi ,I have the TEP but for a back up in case it failes me I have Purchased an I Phone 5 or you could us an I Pad ..And on this phone threw Gus Comunications I have purchased an APP that will speak for me ;they have phrases already on it or you can write whatever you want to say and it will speak for you .I like it a lot…
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Have I
told you lately that I love you?~~~~Happy Valentines Day All!
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Neck Very Puffy After Treatment is Over
Hi all. I cannot tell you how much your replies mean and how much they provide me with the feeling that I am not alone. I am 8 weeks out from last radiation and chemo. Stage IV neck, unknown primary. I had 7 weeks radiation and chemo. Last week I woke with my neck very puffy on the left side, where I had a neck dissection.…
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Pronounced pain in elbow joints and shoulder joints lately?
Hey all... In the last month I have noticed pronounced pain (scale of 4-5) in both elbows and the right shoulder. This is new. I have always had hip joint pain since my treatments ended in Jan 2012 but I attributed that to my dramatic weight loss of 70lbs and hip joints just shifting to a different place (and my oncologist…
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Facial Spasms after radiation
Hello all. Recently joined. My wife found this forum for me and I'm looking for some answers. I'm a 54yo male dianoised with tongue/tonsil cancer in 02/11. I went through 2 weeks or chemo (weeks 1 and 4) and a total of 36 radiation treatments. My lower wisdom teeth were removed 4 weeks after completing radiation treatment.…
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LOOKING for advise and encouragement
I suppose that I need to take one day a time, and not focus on all the negative reactions that my loving Papi- “T”, he will suffer. How I'll be ready without over panic before he starts his treatment. I wonder if I’ll be ready to support him and give to him the right loving care. I wonder if I’ll have the time to be ready…
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One of Us!?
(Please don't read anything political in this at all) Last night I was listening to the State of the Union address. (I am a radio guy and, besides, I was fixing the microwave) At one pojnt I went to the basement where my son was watching the response on tv (school assignment) and just as I looked at it, Rubio reaches off…
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When You Least Expect It...
Hi Folks, I'm home. A bit worse off for the wear unfortunately :( Surgery started with a look see around and a larygoscopy. There was a suspicious area in the back of my tongue that warranted further examination. Turns out they took out my lingual tonsils. They're off to the lab along with more BOT biopsies and the tumors.…
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Stage 4 Tonsil Cancer-It's back?
My husband just informed me that he feels another lump in his neck. His last treatment was 2/28/12 and his last doctor appt was 10/12 where he was NED. He did Chemo and rads but no surgery. If this is back, what are the next steps????? I'm so confused.
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Hoping Maybe Someone Has An Answer
Hello Everyone, For those of you that had a met or another primary in the lung, could you tell me if your chest hurt in that area? Hubby has had a pain in his chest sort of between the breastbone and left lung for a couple of days now. He sent a reading to the cardio on his Carelink Monitor and although he is in A-fib and…
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black mucous post treatment
Hello, Has anyone experienced coughing up black mucous? I am 10 months post treatment and just started having small amounts that I am coughing up. I quit smoking a year ago December when I was diagnosed. Thanks, Robert
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Losing touch
I feel like I am losing touch with my CSN friends. Every time I come to the site I am seeing more and more people I don't know and feeling less viable on the site. I miss everyone and feeling like I can contribute. I am now seeing people who started the journey around the same time and shortly after who are now recovering.…
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One of Us!?
(Please don't read anything political in this at all) Last night I was listening to the State of the Union address. (I am a radio guy and, besides, I was fixing the microwave) At one pojnt I went to the basement where my son was watching the response on tv (school assignment) and just as I looked at it, Rubio reaches off…
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huge neck lump and swollen nodes.help
hi all. ive just come across this site and i was hoping someone could give me some advice.3 months ago i was putting cream on my face and nevk when i felt a lump as i was rubbing down the left side of my neck.the lump is about 1 inch above my shoulder.i was also getting a lot of aching on that side of my neck and…
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Help! Ive been on disabality for 11 months,my job might not be there..
Hello every one,Ive had a tumor removed from my neck stage 4 patroid cancer,and 33 radation treatments 4 months ago.....I live in Southern Calif,I drive for a nonemergency medical service,Ive been there 4 years.....Ive been off 11 months on state disability....Im released to return to wk Feb 21...........my job says "there…
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Update on my husband/Nurses and Some Doctors needed to be better educated about laryngectomees
My husband had a needle biopsy yesterday, and yes his lung collapsed and he is now a patient. During all of this several of the nurses kept saying he had a trach. I told them repeatedly he has a stoma and that that is his airway now. That if he needed oxygen it can only be given thru the hole in his neck. Some knew, some…
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Help! Ive been on disabality for 11 months,my job might not be there..
Hello every one,Ive had a tumor removed from my neck stage 4 patroid cancer,and 33 radation treatments 4 months ago.....I live in Southern Calif,I drive for a nonemergency medical service,Ive been there 4 years.....Ive been off 11 months on state disability....Im released to return to wk Feb 21...........my job says "there…
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nose feeding tube vs G-tube
Hi Everyone, I was wondering, can you get a feeding tube down thru your nose instead of the G-tube into your stomache? Dad is supposed to be starting RADS on Thrusday and this is a question he has. Also, how quickly will the RADS affect his mouth, saliva glads, dry mouth, ect?
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Can I have your opinion
My mother is 73 years old and is recovering from tongue cancer surgery, where they took out 3/4 of her tongue, broke her jaw, floor reconstruction of her mouth and neck dissection. She had to have the floor reconstruction done twice as sutures came loose the first time. They put a wound vac in my mother's mouth for over a…
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TEP Not Closing
I had a smaller diameter voice prosthesis inserted, with the hopes the hole (TEP) would close down around it. No such luck. I aspirate liquids, and am reduced to using good ol' ThickIt. I guess, one can get used to anything. Finished one month of chemo. Need a CT to see what the chemo did. The next round is in the planning…
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Bowel Changes....
Hi All... I know this could be a very personal topic for most, but I'm hoping for a little advice as to what is normal and when it returns to normal. We are 11 wks post tx and still weining off the narcotics and the fentayl patch (last week for patch..12.5mg) and having bowel issues. They are not consistent. One day it's…
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trouble swallowwing
Hi, I'm new here although I have posted some responses. I had BOT and Tonsil and Throat stage IV diagnosed last dec which (so far) has responded to 3 courses of chem, 35 rads, and modified neck resection to remove about 25 lymphnodes. I had a real rough 2 months with pain, nausea and lots of mucus. I had a feeding tube but…