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Swollen salivary gland stopping rad tx for a few days
Hi All, Dad has 10 rad tx left and we'd already been told there would probably be another break in treatment and it came today. His right jaw line from his ear downwards is painful (last night a 10/10--he cried himself to sleep) with an eggsized knot. Dr. thinks it's salivary gland infection and is treating with…
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Reoccurrence and residual disease
I apologize in advance for my following rant, I am just in a bad mood this morning; I am not trying to scare anyone. I hesitated a lot if I should post this or not, but the urge to vent is too great. I recognize myself that some of my comments are controversial. That’s a fear I am facing, reoccurrence and residual disease.…
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Can anyone please explain
how you can have a recurrence when there was no spread of the cancer. My husband was first diagnosed with laryngeal cancer in July 2010. He underwent 35 radiation and 3 chemo treatments for a large tumor with no spread. Then in February 2011 we found out it was back, but according to the specialist we saw, it never went…
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Salivary Gland Transfer
I saw a post from a few years ago on this subject and read about it in another forum. They take one or more of the salivary glands form the area that's due to be irradiated and move them to a safe area during treatment. The result was very positive and while saliva production didn't return to normal pre radiation levels,…
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Our New Journey
I am new to this forum...at least as a contributer. I have been reading since I was first diagnosed last November. I thought I was ready for this, I've had all the scans, appointments, and discussions of side effects. I had my rehearsal run this afternoon, tomorrow starts the rads then Thursday starts the chemo. I thought…
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My Tongue Cancer Survivor Story _ Thick Saliva / Dry Mouth Symptom
I am a Stage four Tongue Cancer Survivor. It has been over 7 years since Radiation treatment.(December, 2005 - January, 2006) I have thick Saliva (mostly in the daytime) and very dry mouth at night. Does anyone else have the thick saliva? It is a horrid side effect, one I can barely live with. Every time I drink anything,…
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New and Scared
Hi all my name is Dennis and I found out that I had throat cancer on the 2nd of jan 2013. Since then I have had surgery to remove my Right tonsil at the VA Hospital in Houston. If any one could give me a Idea of hat the Chemo treatment will be like please let me know. The oncology doctor I saw said he was going to do…
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Please, Send Prayers Or Good Vibes
My daughter, Johnnybegood on the Colon Board, saw her surgeon today. Her patelets refuse to rise enough to allow her to resume Avastin and all other options have been tried, so she will be having a spleen removal this week or next . Her lung tumors have multiplied from 6 to 38, so no lung surgery is possible. Her only hope…
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Another that guy moment
So today we started the weekly chemo. I thought we were going to do one day a week 3 weeks on one off, but it looks like we have four weeks in a row. Anyway we received a phone call from the pharmacy on Saturday evening that we had a prescription ready. We thought it was dexamethasone since we knew we were getting a script…
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Deadly Week
Hello All, I have been very ill and unable to post an update. Approx. Jan. 17, I came down with a stomach virus which put me under the table from severe diarrhea and flu like symptoms. Couldn't eat, but tried to stay hydrated. Tried to stay away from hubby also, but on Jan. 20, he started having trouble breathing. Morning…
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tattoo
I thought I'd show you guys the cool tattoo that my husband got in support of H&N cancer. I go to USC for my surgeon/ENT and their H&N unit has declared the giraffe the official H&N cancer animal. They've taken his long neck and created the cancer ribbon out of it. I think it is so awesome and such a clever idea. This…
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Crappie North ~ Specks South - Fishin Photos...
Figured I'd label this with the fishin photos, for those that don't wanna see them.... Crappie up North, Specks down South, and Sac-A-Lait for those Canjun types... Took the Hewes to Lake Kissimmee yesterday (Saturday 25JAN2013), with a long time work and fishing buddy, to hit up a few specks. We found a few nice ones, 22…
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Giving recognition
A short while ago I was reading a news board online and came across a book that peaked my interest, it was called "Knockout" by Suzanne Somers. This book included interviews with many doctors regarding cancer including one I was particularly interested in: Dr. Stanislaw Burzynski who "pioneered the development and use of…
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Wallet biopsy
Managed to see chemo doc last night, he is extremely busy but stayed back to 8:15 at night to make sure I was seen given the mess around I had before. The first chemo doc told me 2 days prior to treatment I would have to pre pay $1700 the first visit, $250 the second and $150 each time after that (approx) and we have…
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Another year older !
Hello everyone ! I now know what CSN'S saying bringing more birthdays means. I have been given the gift of another year, and also the gift and blessings of getting to know my online family here. 53 yrs. ago I was born into one of the most wonderful loving families and have been able to have my own wonderful loving family.…
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Still Hoarse.
I am so glad that I stumbled onto this site ! Just wish I had found you guys about 6 months ago . This is my first post but I have been reading some of your post for a couple of weeks . I had almost givin up on ever being able to taste food or have any salava again until I started reading some of your post ! My Cancer…
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Half treatment
Spent most of last week in The oral surgeon's office at our Military Hospital here in San Antonio. Because lack of spit has caused the remaining 4 teeth I have on both sides of my lower jaw to become totally rotten they will have to remove them before thay can make my new dentures. But they are only going to give me 10 HBO…
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Bleeding
I am wondering if anyone has experienced bleeding sores in the mouth from radiation? What to do about it, if anything?
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Question on low magnesium
Hey there ! I have had low magnesium since my resect back in "11. The nurses freaked during my last surgery because I guess it bottomed out. Anybody out there know what causes this ? I did a web search.....but nothing made much sense. When I ask about this as I did in the hospital.....they say oh don't worry we've got it…
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B 12 injections
Hi guys ( and gals ) I have to go back to work soon, five months after Rad, I wonder will b12 shots will help? for energy
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PEG TUBE REVIEW
I could have entititled this tread: "Vomiting In All The Right Places". I walked into the oncologist's examining room and promptly vomited. For good measure, I missed the barf bag I was holding. Actually some made the barf bag and some hit the floor. I was also in a quite unresponsive state. One good thing, was that the…
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Sore tongue for how long?
Finished radiation 4 weeks ago. Tongue has huge white patch and even apple juice burns. Still have a lot of pain. How long before things start to get better after radiation? All I can do is drink Boost Plus. Can't swallow anything else. Seems like things are worse now than when in treatment. What have others experienced?
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Well, we complain when CSN is slow :) So thank you it's seems to now be fixed :)
Well the last two weeks the CSN site has really been easy to get on and I have had no errors or problems...and since it's our nature to complain when it's not easy....I just wanted to say a big THANK YOU to those who have worked hard to get us back up. I have been busy with the ski season here in resort town :) ...so I…
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Hopeful oncologist visit
The oncologist can't figure out why Jim has no pain or breathing problems yet. He gave Jim less than a year to live 6 months ago. He has scheduled a lung CT for April which hopefully will show God has done a miracle on Jim. He does want Jim to see his Head and Neck doctor for the lip sore that isn't healing. Debbie
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White blood cell count post treatment still low
Hello, My husband Robert's white blood cell count is at 1.8 nine months post treatment. Family Dr. wants to get his chemo doc involved. Aren't there shots that he could get to boost his cell count?
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chemo above the neck?
Hello,some say this is not practiced...but not the case on here I see
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Ready to pull my hair out
I am having a really hard day today. We found out David will most likely not be a candidate for a bone marrow transplant. We were told that one of the requirements is that you can't have another cancer within the last five years. So his head and neck cancer disqualifies him from getting one. I can't stand never having a…
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Lipo-Flavonoid® Plus ?
Has anyone who has ringing in the ears from Cisplatin tried Lipo-Flavonoid® Plus? I heard it can help stop it. Sue
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Hiya from pascotty
Hi fellow dx. Just want to say hi and let you know that I'm still doing great and loving life. Dx 2009 right tonsil scc and 1 lymph. 34 rads 3 cisplatin. finished treatment April 2010. Have all taste buds back. Saliva is still helped by chewing gum. Yes sugar free. Tinnitus still there but only notice it when I mention it.…
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Cabin fever
Hello everyone ! I'm out about a month from surgery and doing good....but because of this rotten flu that's going around in our area I've been stuck in the house. It is really hitting hard here, had a call from the kid's and people (friends) that they know are in hospital on respirators. Normally very healthy people. I…