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Neck Cramps
Has anyone had the pleasure of experiencing severe neck cramps after a tongue disection? I was cut from ear to ear including the muscles in my neck and now I get neck cramps only on my right side. I have learned to divert them but when I can't catch them on time they are the most painful cramps I have ever experienced.…
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Long Day Tomorrow
Hello All, We met with the Surgical Onc today and surgery is planned for tomorrow. He will have fourteen teeth removed, chemo port put in, and G-tube. I'm guessing about a four hour surgery. He will then be kept in hospital, at least overnight. I'll be meeting with a nutritionist regarding the G-tube in the hospital. The…
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On a Lighter Note *Happy Birthday, John*
Fellow Survivors and Caregivers !! Please join me in wishing John (Skiffin16) a very Happy Birthday today. Let's load him up with birthday wishes. John, we all appreciate you and your words of wisdom and encouragement. You have been there for so many as we face our initial diagnosis, the terror of our treatment plans, and…
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looking for answers to SCC stageIII in the tonsils
Was just wondering about what to expect.I'm A First timer, have been diagnosed with SCC stage III and HPV+ I am a smoker but recently gave that up over a month ago.the cancer is in my left tonsil and have a mass on the side of my neck below the ear.Doctors want to do 33 treatments of radiation and 6 to 7 treatments of…
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Skiffin16
Happy Birthday John! thank you for all you do to help in so many ways here on CSN enjoy your day, may you catch a live well full of fish john
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Sportsman
I am Sorry to let you all know that Larry (Sportsman) passed away yesterday. Please keep his family and Wife in your prayers. He was a wonderful Christian Man who put his faith in the God that he loved God bless and be with them in this time of sorrow Tim Hondo
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hubby done with his chemo and rad today more side effects?
Hello everyone, my husband done with his 3rd chemo yesterday and 33 rad today. SCC base of the tongue cancer stage 3....were so happy that he is done chemo and rad.. but i'm still worry about the more side effects after the treatment. the radiologist told us after the radiation the first week is very hard and expect for…
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Why my husband can’t open his mouth wide open to eat -3rd week of red?
Why my husband can’t open his mouth wide open to eat -3rd week of red As I posted in my first posing that my husband is going with 7weeks of radiation and beside other side effects he having problem opening his mouth to eat!! Is this normal? What I can do to help? Thanks, Hetal
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More to deal with..
Amazing when you think life is going to calm down and just serve up some scan anxiety for a few months, I went to the dr and he ordered 3 MRI's of my spine.. interestingly I have 4 issues. The first, I have something in my thyroid. I have read that only 10% of lumps in thyroids are cancer, but I could become both a the…
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I am losing my warrior...
My dad’s battle with cancer has been stopped. A few weeks ago I wrote about his parotid gland infection. Well, that turned-into a fast-moving sepsis, hospitalization, cessation of radiation treatments, insertion of g-tube, and scans that indicate the cancer has metastasized to the neck area of C3-4; C4-5. I guess I was…
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How do I find my posts?
I asked some questions and I can't find my posts to see the answers. Help!
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Positives and prayer request for my brother-in-law
Hello dear friends, My kid sister called with some scary news. Her hubby had prostrate cancer 2 yrs. ago, and is doctoring w/the V.A. His dx was linked w/his service in Nam. Now he has probable mets to lungs, and had CT done. Will know more this week. He also has a massive blood clot in his lower leg. They sent him home…
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End of 3rd Week
Tomorrow will be last treatment of 3rd week and my husband is getting worse day by day but still working (he is afraid that he might lose his job, his boss is not very cooperative and they also start to look for new person for my husband’s job). I would like to know if anyone has work during the treatment?? Also he started…
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How Did You Chose Your Forum Name...
LOL... I decided to post up an old thread on the subject...check it out. There are some very funny origins, as well as some interesting perceptions of what the various forum names were derived... How Did You Chose Your Screen Name JG
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Pat Derby - the passing of a fellow warrior
Pat Derby - I had the pleasure of meeting her once. She was the founder of ARK 2000, and PAWS, the Performing Animals Welfare Society here in central California. http://www.thepinetree.net/index.php?module=announce&ANN_user_op=view&ANN_id=34182 "It had to begin with elephants. I was born in love with all elephants: not for…
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Just So Disappointed
Just when you think you finally might have all your ducks in a row, one of them drowns! For months now, have been waiting to squeeze in the opportune moment for hubby to have his dental work done. Have kept in contact with oral surgeon regarding all the various setbacks. Last Friday, they called to schedule the surgery and…
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Constanly concerned
Hi everyone, you all seem to be so much help that I wanted to come right here to help me deal with new issue. Ever since being in hospital with apiration phenumonia due to new tx of Dysphagaia, constantly paranoid of cough or gergal sound which is usally phelm to cough out(salvia so bad, to dry to push salvia without water…
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Checking in
I am 4 months post treatment, and for the most part doing OK, struggling with nutrition, still no swallow, and fatiged all the time, when do these symptoms start to get better? I am trying to return to work 1/2 days and it just wipes me out, but can't continue with no income. Feel like I am between a rock and a hard place,…
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Constantly concerned about a sniffle
Hi everyone, you all seem to be so much help that I wanted to come right here to help me deal with new issue. Ever since being in hospital with apiration phenumonia due to new tx of Dysphagaia, constantly paranoid of cough or gergal sound which is usally phelm to cough out(salvia so bad, to dry to push salvia without water…
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Dental questions
Hi all, most of us visit our dentist 3 to 4 times a year for cleaning, what I want to ask is do you do deep gum cleaning or just regular cleaning? personally i never had deep cleaning done before. Any issues doing deep cleaning post radiation?
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A Rare Breed Indeed
Hey everyone, What an absolutely crazy two days. I had an appointment to go see my surgeon on Monday morning to get the staples out and getthe results of the biopsies and surgery. I did make it to my appointment but unfortunately not in the manner I would have preferred. I went to bed Sunday night and was awakened by a…
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Fentenayl pain patch side effects
When dad started on his third time with chemo the doctor incresased his patches to 50 mg. He told me there would not be much of a difference as far as side effects. But I have seen a major difference. Dad is sleeping 20 hours out of the day, says he feels really drunk and is having even more memory problems. Could any of…
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Dental Question for Billie67 and/or those without teeth
HI. I am 5 months out from Tonsil cancer treatment. Prior to treatment I had all of my teeth removed. I saw in a previous post that you said that debris below the gum line can cause loss of bone, etc. If you do not have teeth how can you prevent debris in gum line? I brush my tongue after meals and rinse with biotene…
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Any recovering addicts post cancer treatment
Is there anyone on here that has been a recovering drug addict and than gone through cancer treatment? Jeff has been on the roxinol and fentenol patch. He is having trouble coming off. His thoughts are tending to wonder. He is thinking of going on methadone. Has anyone been through this? Sue
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Finding a doctor
Hello, I'm a 12 year stage 3 cancer survivor. I was diagnosed when I was 21 years old. I'm moving to Madison, Wisconsin and was hoping to get names of great doctors in that area. I also need a dentist who has experience working with oral cancer patients. Any help would be great.
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One of us back to work...
Evening All, Just wanted to say, I am not being rude, but just took on the work challenge again. I work from home so it's not a major change for Dan, however it's another 40-50 hours to toss into all the new jobs I have acquired the last few months. I am able to read more than I have participated, but know I am here.. and…
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Too much chemo for NPCA Non keratinizing Stage 2
I would like to inquire about chemotheraphy protocol. My husband was diagnosed of NPCA stage 2 he went to 3 cycles of cisplatin (1 day admission every cycle) and 3 cycles of cisplatin & 5fu (5 days of admission per cycle). His onco wants him to undergo last cycle of cisplatin & 5fu but before she told us that it will only…
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1 year and almost 4 months (March 2,2013 )
check up and scope....a little nervous
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3rd week of Red
Hello everyone, weekend was great My husband had his first acupuncture therapy and he felt more saliva in his mouth all weekend log and he still have saliva in his mouth so that’s great the sad part is he already have mouth sores and it's hard to eat for him. We started aloe vera juice and l-glutamine powder (one spoon…
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A Very Poor Day
Ran a fever (100.5); which make one feel like sh*t all by itself. Skin burns all over. Burns when just clothes tough it. Legs arms etc. NAUSEA. Other types of pain. Can't concentrate. Hard to even take the meds. So this is what round-2 of chemo is like. Three more weeks of round 2. I did say that chemo would almost kill…