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Osteonecrosis
Andy went to the periodontist today because he has been feeling exposed bone inside his mouth in the jaw bone. He was told it is osteonecrosis from radiation and/or the Xgeva shots he gets for bone metastasis. He will see an oral surgeon tomorrow but, the periodontist says there may be problems with healing in his…
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Random thoughts
For some strange reason, I lay awake last night and thought about why I had cancer and what could have caused it~~ I'm one of those people that will enter heaven, sliding in with a yipee, what a ride! I'm 66 now and all my life have been a chance taker and a try anything woman~~ I worked in a factory for 12 years…
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A new one for me - PARANOIA
Has anyone suffered medicated induced paranois. My husband has been on Vicodin for 2 years and a low dose of prednisone for over 6 months. Along with levvothroxine, heart medicine and neuropathy meds. He just went back to work and he seems to be getting paranoid. Never seen him like this before. I think it has to do with…
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Has anyone had this happen
My husband has been thru laryngeal cancer, radiation, chemo/surgery no spread in lymph nodes. Then last year cancer of the cervical of the esophagus was found with no spread. Another radiation and chemo. PET/CT and scope were clear in September and October. January's PET/CT scan showed a small spot in his right lung that…
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thanks
Hi all, Just wanted to thank you all for responding to my last, accidental double post. Your words all bought comfort to me and turns out my parnoia was simply a cold. I had forgotten ow when I was sick I had to remind myself I will get common things and bumps and lumps but it all won't be the beast. After this last…
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South East Coast Meets North West Coast ~ Skiffin16 - Hawk711 Shoot Out...
Met up with one of my old time buds and CSN Warrior Steve ~ Hawk711 yesterday on his turf, or near it... San Rafael... WOW, it has been a long time since I've been to the San Fran Bay Area..., never really that far north of SF either. Such a beautiful place..., being an artist I would love to have a place like this for…
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Thymic carcinoma
my father is said to have inoperable thymic carcinoma. He did radiation and chemo beforesurgery to try an shrink it. Once they went in for surgery they could not remove it because it wathat teaches to his heart and lungs. Whilewaiting to start over he had a few dizzyspells, busted his head open and all the other fun…
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Newbie. Don't really want to join your club, but you all seem so nice.
Hello all, I've been lurking for some time and have already learned so much from many of you. My husband was diagnosed a month ago, and we were headed down the path of the standard chemoradiation, then went to a tumor review board who instead suggested TORS surgery and neck dissection. When they recommended surgery it was…
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Neck Cramps
Has anyone had the pleasure of experiencing severe neck cramps after a tongue disection? I was cut from ear to ear including the muscles in my neck and now I get neck cramps only on my right side. I have learned to divert them but when I can't catch them on time they are the most painful cramps I have ever experienced.…
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Long Day Tomorrow
Hello All, We met with the Surgical Onc today and surgery is planned for tomorrow. He will have fourteen teeth removed, chemo port put in, and G-tube. I'm guessing about a four hour surgery. He will then be kept in hospital, at least overnight. I'll be meeting with a nutritionist regarding the G-tube in the hospital. The…
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On a Lighter Note *Happy Birthday, John*
Fellow Survivors and Caregivers !! Please join me in wishing John (Skiffin16) a very Happy Birthday today. Let's load him up with birthday wishes. John, we all appreciate you and your words of wisdom and encouragement. You have been there for so many as we face our initial diagnosis, the terror of our treatment plans, and…
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looking for answers to SCC stageIII in the tonsils
Was just wondering about what to expect.I'm A First timer, have been diagnosed with SCC stage III and HPV+ I am a smoker but recently gave that up over a month ago.the cancer is in my left tonsil and have a mass on the side of my neck below the ear.Doctors want to do 33 treatments of radiation and 6 to 7 treatments of…
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Skiffin16
Happy Birthday John! thank you for all you do to help in so many ways here on CSN enjoy your day, may you catch a live well full of fish john
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Sportsman
I am Sorry to let you all know that Larry (Sportsman) passed away yesterday. Please keep his family and Wife in your prayers. He was a wonderful Christian Man who put his faith in the God that he loved God bless and be with them in this time of sorrow Tim Hondo
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hubby done with his chemo and rad today more side effects?
Hello everyone, my husband done with his 3rd chemo yesterday and 33 rad today. SCC base of the tongue cancer stage 3....were so happy that he is done chemo and rad.. but i'm still worry about the more side effects after the treatment. the radiologist told us after the radiation the first week is very hard and expect for…
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Why my husband can’t open his mouth wide open to eat -3rd week of red?
Why my husband can’t open his mouth wide open to eat -3rd week of red As I posted in my first posing that my husband is going with 7weeks of radiation and beside other side effects he having problem opening his mouth to eat!! Is this normal? What I can do to help? Thanks, Hetal
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More to deal with..
Amazing when you think life is going to calm down and just serve up some scan anxiety for a few months, I went to the dr and he ordered 3 MRI's of my spine.. interestingly I have 4 issues. The first, I have something in my thyroid. I have read that only 10% of lumps in thyroids are cancer, but I could become both a the…
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I am losing my warrior...
My dad’s battle with cancer has been stopped. A few weeks ago I wrote about his parotid gland infection. Well, that turned-into a fast-moving sepsis, hospitalization, cessation of radiation treatments, insertion of g-tube, and scans that indicate the cancer has metastasized to the neck area of C3-4; C4-5. I guess I was…
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How do I find my posts?
I asked some questions and I can't find my posts to see the answers. Help!
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Positives and prayer request for my brother-in-law
Hello dear friends, My kid sister called with some scary news. Her hubby had prostrate cancer 2 yrs. ago, and is doctoring w/the V.A. His dx was linked w/his service in Nam. Now he has probable mets to lungs, and had CT done. Will know more this week. He also has a massive blood clot in his lower leg. They sent him home…
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End of 3rd Week
Tomorrow will be last treatment of 3rd week and my husband is getting worse day by day but still working (he is afraid that he might lose his job, his boss is not very cooperative and they also start to look for new person for my husband’s job). I would like to know if anyone has work during the treatment?? Also he started…
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How Did You Chose Your Forum Name...
LOL... I decided to post up an old thread on the subject...check it out. There are some very funny origins, as well as some interesting perceptions of what the various forum names were derived... How Did You Chose Your Screen Name JG
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Pat Derby - the passing of a fellow warrior
Pat Derby - I had the pleasure of meeting her once. She was the founder of ARK 2000, and PAWS, the Performing Animals Welfare Society here in central California. http://www.thepinetree.net/index.php?module=announce&ANN_user_op=view&ANN_id=34182 "It had to begin with elephants. I was born in love with all elephants: not for…
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Just So Disappointed
Just when you think you finally might have all your ducks in a row, one of them drowns! For months now, have been waiting to squeeze in the opportune moment for hubby to have his dental work done. Have kept in contact with oral surgeon regarding all the various setbacks. Last Friday, they called to schedule the surgery and…
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Constanly concerned
Hi everyone, you all seem to be so much help that I wanted to come right here to help me deal with new issue. Ever since being in hospital with apiration phenumonia due to new tx of Dysphagaia, constantly paranoid of cough or gergal sound which is usally phelm to cough out(salvia so bad, to dry to push salvia without water…
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Checking in
I am 4 months post treatment, and for the most part doing OK, struggling with nutrition, still no swallow, and fatiged all the time, when do these symptoms start to get better? I am trying to return to work 1/2 days and it just wipes me out, but can't continue with no income. Feel like I am between a rock and a hard place,…
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Constantly concerned about a sniffle
Hi everyone, you all seem to be so much help that I wanted to come right here to help me deal with new issue. Ever since being in hospital with apiration phenumonia due to new tx of Dysphagaia, constantly paranoid of cough or gergal sound which is usally phelm to cough out(salvia so bad, to dry to push salvia without water…
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Dental questions
Hi all, most of us visit our dentist 3 to 4 times a year for cleaning, what I want to ask is do you do deep gum cleaning or just regular cleaning? personally i never had deep cleaning done before. Any issues doing deep cleaning post radiation?
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A Rare Breed Indeed
Hey everyone, What an absolutely crazy two days. I had an appointment to go see my surgeon on Monday morning to get the staples out and getthe results of the biopsies and surgery. I did make it to my appointment but unfortunately not in the manner I would have preferred. I went to bed Sunday night and was awakened by a…
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Fentenayl pain patch side effects
When dad started on his third time with chemo the doctor incresased his patches to 50 mg. He told me there would not be much of a difference as far as side effects. But I have seen a major difference. Dad is sleeping 20 hours out of the day, says he feels really drunk and is having even more memory problems. Could any of…