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MISSING FROM ROLL CALL - Have not checked in
It has been over a year and prior to January 1, 2012 since we heard from the below folks. If you know the status of any of the listed members, please post and give their status. DO NOT ENROLL or REPORT your personal status on this thread. I would appreciate it if it is posted on the actual ROLL CALL roster. Mahalo.
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Anyone heard of
hey all I was wondering if any of you have any experience with Saligon .. Not sure of the spelling , it's medication to help with saliva In Christ, Kevin
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I Am Numb
First, let me apologize for never being able to post any good news. I'm afraid I wouldn't recognize good news if it hit me square between the eyes. We saw the MDA doc today, and much as expected, not too much can be done for my hubby. The doc was taken aback when he saw the shape my poor hubby is in. The cancer in his lung…
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Good news!!!!!
Hey dear friends!! My dad had his first CT on Wednesday, and today he got a written report!! I guess it all looks pretty much ok and my parents are just thrilled!! Actually when they got this report, Mom immediatelly called me, but when she read it to me, we were not completely sure what exactly does all this mean. So she…
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Concerned
This monring I was roughly awakened by my wife at about 11:30 am. Now what was weired about this is I NEVER sleep later that 7:00 am. and am usually up by and having my coffee by then.. Also that I went to bed right after the superbowl game (around 9:00). Right now, it's 1:00 PM and i'm bone tired and could sleep for the…
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Care tips for long term Erbitux users
It looks like I will be continuing my palliative treatment of Metastatic Cancer with Erbitux. I have been on the drug for 23 weeks and am looking for advice from others who have been on Erbitux long term to combat all of the skin issues associated with the drug. The issues that bother me the most is severe cracked skin on…
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The after tx "Turkey Gobbler"... : )
Hi Folks, I didn't know how else to explain this hanging thing under the chin after treatment. We're calling it the "turkey gobbler" right now...LOL. Any advice about this disappearing or trying to tighten it up? Just curious if this is another gift that keeps on giving? ~Cureitall (Cris)
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Question about HPV+ throat cancer and how it might be spread (Update)
My mother had stage 4 throat cancer, her two year battle ended in October. She was HPV positive. Now I went to the dentist on Wednesday and he said I have a mass that needs to be looked at. I did not tell him about my mother being sick and passing away. But this is like De Ja Vue. All my life my mother and I shared drinks.…
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Hanging On
Just a quick note to let everyone know I'm still hanging on. I have all the side effects of chemo: nausea, GERD, insomnia, constipation, and on and on. I have a few good moments now and then but a lot of poor times in between. I am also having some eye problems (Iritis), a painful swelling I get from time to time. I can't…
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Remember Silver Fox?
She could really use your prayers/intentions/thoughts/hopes/well wishes. She's facing ANOTHER surgery after docs found cancer AGAIN. Dunno how many this is - remember, she's a lary who has had issues with her stoma for some time. She's on FB as Roxanne Jacobs.
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Titanium Plate after mandibulectomy
Hello, I have a titanium plate in my lower jaw due to an inadvertent fracture of my jaw during the removal of the tumor/mandibulectomy. My tumor margins and subsequent lymph nodes removed were clear, so thankfully, I did not need radiation. Is there anyone out there who can share with me how the plate has affected them? I…
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On to the next phase
We are about to go to Jeff's 35th and last radation . Now it's on too healing. Mouth real sore (on fire) Magic mouthwash has really helped. Thank you all for suggesting it. It really puts the fire out. He tried a bite of a milky way the other day and it caused a 5 alarm to erupt, but MM put it out. Neck and face raw and…
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Off for a re-check....brrrrr !
Hello everyone, Off to see the H/N onc this a.m. and it's -1 with a -35 degree wind chill. I don't remember as a child ever hearing about wind chills. Back in the day in Minnesota cold was cold. Should be a good visit....as on the phone I was told NED. But I still have my handy dandy list of questions. Have a wonderful day…
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Anyone getting treatment in Austin, Tx ??
As mentioned in an earlier post, I may be moving from STL to Austin. There is no NCI certified facility in Austin, and my medical team feels ok with me continuing my once a week Erbitux treatments in Austin if we move, my wife's new employer is Seton Health System, and I can receive treatment there, (Shiver Cancer Center)…
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Some days I should just stay in bed !
Hi everyone, I had a pretty big scare today. After such a wonderful visit w/my ENT yesterday. I had severe chest pains that radiated down the left arm. I thought what.....no way this can't be happening. So I went to the hospital for an EKG, and of coarse the enzyme test. Came back all normal (I was so relieved) no signs of…
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Dad is in hospital...parotid gland infection???
Hello All, Monday was supposed to be treatment 24/33 getting Dad into single digits (a smile to Phrannie here ;-) ), but tx was canceled due to what looked to be an infection on the right cheek below ear area. Rx from rad-onc MD was for tetracycline. Well, rx couldn't be filled since it is not available anymore per FDA…
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Outcome of PET/SC scan and another waiting game
Not such great news from my husband's PET/CT scan. Now we are awaiting the scheduling of two biopsies -- lung and at the cervical of the esophagus and a little ways down. Specialist thinks that maybe the PET is wrong concerning the cancer dealing with the cervical of the esophagus and that it is only inflammation.…
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Good News!
Well Dan got his central line put in this morning, and the nurse will be here in an hour to teach me how to administer TPN! Nutrition is on the way! while we were waiting this morning in the IR unit, Dan asked for a bottle of water. I gave it to him and he drank. Normally! Not the painstaking baby sips where it takes him a…
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Last Chemo
Jeff had his final chemo today...YEAAH. 4 rads next week. Chemo was a nightmare today though. They ran an 1 1/2 late, it took 3 nurrses and 6 tries to start the IV. Something that should have had taken 1 and 15 min took 4 hours. At least it was the last and not the first. If it had started this way Jeff would have quit.…
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Something off subject of H&N
Just a share if I may. I am heating our home with wood heat this year (trying to keep electric down). So I cut about 5 cords of wood and purchased 1 cord at the beginning of the season. Thought that might do it...well, beginnig of January I was gettin low and purchased another cord of wood...burned through that pretty darn…
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Phrannie.....you look amazing!!!!
I love your cute hair! You look very chic. Did your hair come in differently than before? My radiation hair loss is coming in sooooo curly! I have some natural wave but this new hair is crazy curly, kind of fun! Anyway, looking good girlie! Billie
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A little worried
I am a tad worried about David. He didn't eat much yesterday and asked me not to hook him up to his feeds this morning. Not that I have never seehe in queasy before, but he is acting very tired and said he feels strange. I miss the days when I could just write this off to a stomach bug. I try not to excessively worry, but…
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Thread error.
Am having trouble transferring the roll call data. I will post it later. Please do not update your status on this thread. Thank you. I do not know how to delete this entry.
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Stomach capacity
Hi folks, hope you are all doing as well as you can be and to exceed your wildest dreams. One quick question: how many 8fl oz. of boost can I insert into my feeding tube at one sitting, can the stomach take 2 or only one? Didn't want to find out the hard way. Thank you in advance Michael.
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Update..
Hi, Not much rest or sleep lately. Last night we were watching for low blood sugars, I don't do well if trying to wake up and at getting back to sleep before the next alarm goes off. Then, after 7 liters of saline in 5 days home, and a additional loss of 6 more lbs in 3 days, the Dr has decided to start TPN feedings this…
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PICC Frustration and anyone have this issue?
On Tuesday morning Dan had his double lumen PICC line inserted. On Tuesday night for 16 hours his first TPN ran over night, Tuesday morning, it flushes, it's put away until 4:30, when it doesn't work. It was blocked. On Wednesday night, we try to flush the first line again, no luck. We run the 16 hr TPN in the second line…
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From My Blog I started today...............
After reading all afternoon I realize I am on a journey of undetermined endourance. I have had sinus problems all my life. Get a couple three sinus infections a year like clock work. Three or four years ago I had a small benigh polyp removed. Two years ago I started to have nose bleeds. Nothing unusual as I have always…
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update on my dad - not good
I wanted to update all of you on my dad. It seems that he has really taken a turn and not in the good direction. Like I posted before this all started on December 29th when he fell two days in a row. He was talking srange stuff and keep thinking there were people in the house. He walking became very bad. When we saw the…
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Had to postpone a treatment today
Hated to do it with only 7 remaining but I got hit with full blown Thrush last night. I had a twinge of a Thrush thought about two days ago and started a Flucononsol (sp?) regime just in case and I'm lucky I did. It was ugly last night but much improved this morning. I still don't think I can keep the mask down through the…
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PEG removal
Hi Everyone, We are going on 9 weeks post and doing well. Liquids, soft foods and still doing the Ensure, Boost, and 2.0 for calorie consumption. Kreg's visit with ENT on Jan 3 was a hand and scope check and the tumor of the tongue and lymnodes were not felt. First PET scan after tx will be end of Feb. This Thursday he…