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Things that make you go "hmmmm".....
I say that because I'm coming up on the 1 year 'discovery' of my beast and wondered, when do we start our 'survivors' count? When they discover the mass in your neck? When the ENT snakes the camera out of your nose and tells you "you have a tumor on the base of your tongue? When the pathology report comes back from the…
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Rash from Erbitux/Radiation
My sweet 83 year old mom recently finished treatment for a large tumor that started in the tonsil area and spread into the lumph nodes. Her last radiation treatment was on 2/19/13 and her last Erbitux on 2/22/13. She tolerated the treatments well but in the last weeks began developing the rash that we were told by both…
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Johnny 5 ~ New Thread...
Johnny 5 Posts: 1 Joined: Mar 2013 Mar 02, 2013 - 12:26 pm How's John Doing New I am 51, overweight but in otherwise great health. Recently diagnosed w an encapsulated SSC in my tonsil after about 6 - 8 weeks of increased swelling on one side after strep throat inflated both tonsils. Surgeon staged it at - "stage 2+" (he…
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HERO
I want to thank everyone for all your advice and encouragement to my husband, Papapaul....when he is encouraged, I am encouraged. you are all so brave.... groovygrammy
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Newly diagnosed with tonsil cancer radiation treatments and chemo to start in a few weeks asking for
My name is Vicki and this is my first post. I'm asking for advice for my husband John, 57, who was diagnosed with Stage IVa tonsil cancer in July. He found a lump on right side of neck in June, was sent to ENT who ordered a CT that confirmed mass in one node. In July had surgery to scope throat area and tonsil was removed.…
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Olfactory Neuroblastoma
Hi my name is Jim...and you guessed it add another member to the OBN club. I just found out Monday that I have OBN. I have stage 2 pending my PET scan tomorrow or something like that. Right now my brain is swimming and not sure where to turn or what to do. Don’t know if I should stick with my current Dr., look for a second…
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I ducked, it missed
Thank you all so much for your words of encouragement and prayers. John aka skiffin your post made me laugh out loud when I was waiting for my CT scan. The person next to me saidso something funny? And I said, oh a funny email from a friend.....and that's how I feel about you all. After many tests, CT scan confirms 3…
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lump in tumor site again...ugh !
Hey everyone, I've been having issues w/lymphedema non-stop for over a year. I WILL NOT push the panic button on the new lump I found in my neck, as I recently had that biopsy in Dec., on this area. Feels like a swollen lymph node, but hard again. Dang it, does the fear of reoccurrance EVER disappear ? It does hurt. I go…
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Ultrasound is in...
Last weeks MRI, caused a few tests for me this week. The good news is I have one cyst on my kidney, it's small, something to watch, nothing I will worry about. However, my thyroid has a lot of nodules, not to uncommon. Although one of mine is rather large 31x21x20 mm; this one and one other have their own blood flow. The…
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On To Plan B,C,D............?
I'm lost in this alphabet. Went for first chemp appt. today, but committe has decided that lung cancer is growing way too fast and more likely to metastasize to non treatable areas than H&N. So, the new plan is 10 lung rads instead of 4, one week of rest, and then on to chemo. He seems to be getting weaker and weaker, so…
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Let the healing begin!
I have finished treatment! I know I have a few weeks, but ready to let the healing begin. This has been a long, hard road. I am exhausted, but finally beginning to eat a bit. I need to get my diabetes under control and learn to live with one eye. Bev aka KTeacher, soon to be retired
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Food...a few bites
Almost suddenly, my throat felt well enough to try some soft foods, ate chocolate pudding, scrambled eggs with country gravy, and oatmeal over the last two days. Not alot mind you, but the tastes are great and driving me to want more. I hope this is a turning point as I had gone from 225 lbs to 141lbs in the past year,…
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Planned CSN outage
Hello everyone, Between 3:00 and 4:00 Eastern Time this morning, CSN will be taken offline for about 2 hours. Exhaustive efforts were made to find a way to restore all private messaages. I'm not qualified to provide technical details but the bottom line is that all private messages that you sent from September 2009 forward…
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Question
I am a 15 year stage 3 IDC breast cancer with many lymphnodes affected. I am writing wondering how many of you might have had lumps that were benign before finding out you actually had cancer. I have had many lumps and they too have affected my health but were dx'd benign and some not removed because doctors felt not…
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I can sing!
Hey folks, Tomorrow is the benefit and silent auction planned and put together by my friend and singing partner. We've dubbed it Mark "T"'s Beat the Beast Benefit and Silent Auction. We're doing this to help offset my living expenses for the next few months until I can get back to work. There are dozens of donated items…
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white stuff on his end teeth
4th week of radiation and 2nd chemo therapy My husband is just done with his 2nd chemo therapy, and almost done with 4th week of radiation. He is doing fairly fine accept heavy mouth shore. He is eating everything by tube and drinking water by mouth. He was compiling white stuff on his end teeth and I am not sure what it…
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Fibula Free Flap Surgery
Hello all. I just found out that the HBO and/or debridement treatments were not successful. I now have a fracture to my left lower jaw that needs dealing with. I was diagnoised almost two years ago with tongue/tonsil cancer. I did two weeks of chemo and 37 radation treatments. Thought I was getting pretty much back to…
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Please help- Need advice
Hello everyone, I am sorry to bother you again but I really need some help and advice. I am sure you have read my post since the holidays about my dad and his decline. He started back in treatment for his third reoccurance two weeks ago, but things continue to be up and down with him. Since New Years he has had a major…
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Back in to the U
Hey everyone ! Finally getting in for that recheck on the lungs. Goodness, weather....flu....and more snow. But today is sunny and beautiful in the mid 30's. T-shirt weather almost ! I am thinking of requesting to return to the clinic closer to home in St. Cloud. I'm finding I'm getting lost in the mix of things with the…
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Prayers needed
Okay...take two.....my last one disappearEd. I am being referred to a urologis. To rule out bladder cancer. I have had a week....2 ER visits and gyn appt. Hopefully it will be today I get to see urologist. And I thought norovirus was rough. Try sleeping with the feeling that you have to pee knowing that when you go, the…
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Swallowing
Mhusband is 3 years out and still cannot swallow. He has had tests done and has had Pheumonia for a month now and it is due to As[irating everything he swallows. The Dr said Feeding Tube, Husband say's NO...I told him he NOT to try and drink, or blend soup or anything when I am at work. The Dr said it is from Radiation the…
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Peg tube
Hi- I'm just starting to make whole food for my husband. I need a very good food processor that will liquidity thin enough to go through his tube. Does anyone have a good suggestion? Thanks!
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Teeth extractions after radiation
My wife completed radiation and chemo 2 yrs ago for throat cancer. The cancer is gone but now her teeth are breaking off at the gum line. She has 2 front teeth on the bottom broke off and another tooth is about ready to break off. Her radiation Dr. said if the has her teeth extracted she should have Hyperbaric Oxygen…
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"T" Day
The results are in and the schedule is set. I went yesterday to have the mask made. I had a CAT scan and a MRI. The dry run will be Wednesday March 13th. Treatment starts March 14th. I meet with my Medical Oncologist Friday the 15th. Chemo starts Monday March 18th. This way I'll be at the hospital all week to help manage…
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Follow up to joint pain post & an interesting article
Hello all. As you all know I posted a thread recently about my worsening joint pain in my elbows and shoulder (in particular my right elbow, really quite painful). I mentioned it to my regular oncologist around the same time and he said to take vitamin B to see if that helped and to take Aleve for the pain. He also said on…
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My husband can't keep anything down. Very nauseated after first chemo
Hey everyone. My husband just had his first week of treatments. Cisplatin Chemo on Monday and radiation for five days a week. He has been diagnosed with head/neck cancer. Has tumor on base of tongue with metastisis on both sides of lymph nodes. He is only 56 years old. Since his chemo on monday, he is unable to eat…
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Anxiety - Seperation
Hi, After being cured from a tumor on my tonsil. I have a great amount of anxiety about going on a short trip. I have been told that this "normal" and that I am not alone. That my anxiey is the fear from separation from the people and places that helped cured me. I would appreciate any feedback. Much Thanks
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Chemo Arm Infusion
Apparently the chemo needle slipped and Taxol went into the arm tissue rather than the vein. I did not notice; I sleep thru must infusion sessions. (I'll have caregiver check on my arm next time.) Well, whole arm was swollen and at Level-8 Pain. Pain meds and ice packs brought the pain level down to a 5. So I spent the…
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Tube-less in Oklahoma
just back from a morning of doc appointments and got an unexpected bonus -- PEG tube is gone! Hubby has not used the tube since 2/10but gastro doc wanted to wait another week or two to take it out. Had appointment with ENT this morning and got a good report. Throat/tonsil area looks good. Weight up about 6 pounds (would…
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Post TORS surgery side effects?? Please help
Hello, my mother has just been diagnosed with SCC of the posterior pharyngeal wall. Her TORS surgery is scheduled for March 8 and would like to know what to expect after surgery. This is her second occurence, the first one was SCC of the epiglottis in 2004. She did rad/chemo so she still deals with post treatment side…