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ugh was told margins were not clear
It's me again, "first IDC now SCC" I had my follow up after surgery appt today. My surgeon told me my margins weren't clear on two place on my lip. One being close to surface, the other inside. She said she was going to talk to my team tonight at the tumor board meeting and is hopng my rad onc thinks he can kill the rest…
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One Year Ago
Tomorrow is the anniversary of when Hubby was first diagnosed with tonsil cancer. Seems like so long ago and seems like only yesterday at the same time. He has had one cancer free scan, that was in October. Next appointment is Friday and we expect more scans. Scanxiety set in early. Hubby noticed a knot in his neck about…
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appitite
sharon, does ur husband have an appitite? does food taste right to him? does food sometimes get stuck in his throat? can he eat anything he wants? i still have no appitite and food doesnt' taste right. it still gets stuck in my throat too. does any of this get back to normal? thank u 4 ur help w/my questions. God bless, dj
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New Here
Hello all. I have been coming to this board since February of this year after my husband was diagnosed with unk primary involving a lymph node in his neck. Since that time, he has had surgery to remove the node while taking out 23 extra for a sample. Those were all negative. I remember thinking at the time how wonderful…
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Kinda Personal (as in sex)
We were told by the Medical Oncology dept, that from time chemo is given and for 48 hours after infusion, we should not be kissing, sharing drinks, etc. because of the possible chemo being expelled through saliva, urine, etc. Now here is the question, should we use barrier type protection if we choose to get intimate? I…
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I HAVE A PLAN B
I spoke with my Nurse Coordinator earlier today, and it looks like I will have to come off the clinical trial I have been on since early September due to two of my lymph nodes in my Mediastynum have grown greater then 20%. I do not have any new growth, which I guess is good, but hearing that my 24 plus week of good luck…
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Asking for Prayers
Asking for prayers for tomorrows PET scan . I had a Ct scan a month ago and was told it was clear, then I found a lump on the top of my shoulder just above my colar bone last week so they took another look and there is "something " there so we are heading to San Antonio tomorrow for a PET scan . I will be having surgery no…
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Skype ~ FaceTime
I just wanted to throw this out there for those of you that are pretty up to speed communication and computer wise... With technology and data speeds pretty good these days, communication is pretty great. Shelley (living in Florida), and her cousin (Melissa, living in Massachusetts), have Skype Saturdays..., cooking,…
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Floride or not?
Please give an opinion if we should use the floride trays or not? Heard good and bad things. Radiation to the neck for 8 weeks. Thank you.
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Tired Still - Second Question Hope That's OK
I am 4 months and two weeks our from my last readitaion and checmo (unknown primary); I still get very tired easily. I can do about 4 hours works then have to rest or nap. Some days a little more work some a little less. I find it very hard to get up anything before 9. I know I have some depression, but also just phyical…
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Beyond Tired & Discouraged
Just a quick update to let you know my hubby is progressing very slowly. He still can't stand alone. He was given an Ambien for sleep last night and the effect was the same as before, semi-concious and hallucinating all day, but without the fever & infection. NO MORE Ambien. The Ascites is back, so he's getting an…
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Scan Coming Need Pryers
Jim has a CT scan scheduled for tomorrow, Monday. He had told the oncologist no more scans or treatment but we and the oncologist are curious as to why he has no symptoms of the matastis cancer to his lungs. The oncologist had given him less than a year to live last June because there were numerous nodes that tested…
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Hearing loss and speech changes
Hey Guys, I just want to ask, have any of you lost hearing from Cisplatin and/or rads? If so, did the quality of your voice change? I lost large portion of my hearing and understanding of certain letters in 2010, 10 yrs post cancer, it was probably going for sometime but did not require hearing aids till that point. I…
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Chief Daddy Mike
Mike is having a very hard time dealing with the death of his Son please continue to keep him in your thoughts and Prayer. We all go through a lot in dealing with cancer, but having to deal with your own cancer at the same time dealing with your only Son’s cancer it more then a person can bear. He is a wonderful guy and…
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New Member
Hi All, I am a new member based in Singapore introducing myself. I have however been through the discussions and am impressed with the wealth of information and also empathy and caring that shines though. My story in a nutshell was that I was diagnosed with a SCC on the left side of my tongue in early Jan this year. A…
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I wish
that this was the home for esophogeal cancer too. My friends father in law was just diagnosed and I told them all about CSN but then when I went to check out that forum it wasnt nearly as helpful, friendly and resourceful as ours. Billie
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Miracle Fruit Tablets to restore taste, stimulate saliva
Hi, everyone. "T" posted information about miracle fruit tablets at the end of a post on another topic so I thought I would re-post his information here so that others would become aware of it. Here is what T said (thanks, T): A tip/hint I'll confidently pass on as I've personally seen it's effectiveness. When I started to…
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Weekly Chemo Visit
Had my weekly trip to Seattle Cancer Care Alliance (SCCA), my home away from home. Two things: Creatinine: My creatinine level was high. Creatinine is a kidney tests and the docs thought I was dehydrated. So I got hours of fluids IV. (Will pee every hour all night.) I can't think that I drank that much less fluids.…
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13 days post-surgery - neck noose and increased pain swallowing
I am not too worried about this but I thought I would ask folks about it. I am 13 days post-surgery after receiving tonsillectomy and biopsies of tongue, plus selective neck dissection both sides. They found a small primary tumor at the base of the tongue. It was really tough after surgery, but I have been making steady…
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Hoarse Voice - How Long Does It Last? - Really Got Scared Today
I am four months and about two weeks out form my last radiation and chemo. My voice is hoarse and started getting that way about a month after treatment stopped. It is not really getting any better. Mouth is very dry I think like most of us. Had a check up with my oncologist and he said, almost in passing, it could be a…
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Hosting Vivian
People keep telling me I need to go on a trip and get away from all the drama and sadness I feel here in Kentucky. I have went through my list of potential companions and there is not one that fits this time in my life. My friends/family in general don't get me. They have never had this experience and they get very…
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Radiation next
I am 3 weeks out from my surgery and preparing to move ahead with radiation treatment. I met with my surgeon, a Mayo Clinic radiation oncologist, and a Minneapolis radiation oncologist this week to plan my radiation treatment. I will be fitted for the mask on Monday and most likely will start treatments a week from Monday…
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Redundant Tissue in Oral Cavity after TORS surgery of SCC-II of tonsil resulting in problems chewing
My wife had a successful removal of her cancerous tonsil with good negative margins and a clear follow-up Pet/CT Scan recently. She still cannot eat normally however due to a ridge of excess ("redundant tissue") that is on the inside of her mouth interferring with her bite (if she tries to chew she chews on the tissue).…
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A very hard night
I am having a very tough night. I got the death certificate for David today and just got our wedding pictures developed yesterday. I miss David so much. My heart hurts. Sometimes I feel like it is going to be ok, but tonight is not one of those nights. Please pray for me.
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Dan is NED!!!!
Dan just went to the Radiology Department and picked up a copy of the written results, the doctors office is still looking for it. But the results are NED! "NO EVIDENCE OF DISEASE!" We will be celebrating tonight! Love, A very happy couple, Kari & Dan
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First Chemo and Rad yesterday
Rob had his first chemo (carboplatin and taxol) followed by his first rad. So far so good, no side effects from the chemo and feels pretty good. They filled him up with about 5 different things before chemo (Emend, Aloxi, dexamethasone, benadryl and pepcid). Made him a little sleepy but good. Radiation okay, he broke out…
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everything is still stable !
Hey everyone, Contacted the Masonic, everything is fine. They got a bit excited with my tumor profile, hasn't changed anything. I had given the students (being a teaching hospital I attend) permission to use any and all info. about me to study. Somehow when they pulled my charts and info., it made it seem as if there was…
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Corn-Fused...~NED
OK, I'm totally cornfused... First, Jeff is NED (twice...a minute apart), then Mike says he is NED, and then to top it off..., Dan says he is NED.... Are you guys all related, is this NED, and my other two brothers, NED and NED.... You guys aren't related to George Foreman in any way are you, LOL... Either way...ummmm,…
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Dental work
I have seen a lot of threads about how dental work after Rads can cause problems such as slow healing or infections. Just wondering if anyone has had dental work done after treatment without going through hyperbaric(sp?) oxygen treatments. My dentist wants to do some minor work that will mostly involve gum, but could also…
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ChemoRadioTherapy battle begins
Made it through the three cycles of induction TPF fairly well. Lots of fatigue and chemo brain during first 7-10 days during start of each infusion. No nausea or vomit and just one trip to ER to get hydrated. Today, started first of standard 35x2gy daily radiation and weekly chemo load of carboplatin. Both went fine, chemo…