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Head and Neck Cancer

2 weeks to go-tonsil cancer
In a lot of pain from radiation and sick a lot! How much worse will it get and how long for recovery? 2 weeks left of radiation.
Finally got this show on the road
My husband has finally started his treatments! Wednesday was an all-day cisplatin affair followed by his first and second rads Thurday and Friday. Mostly, things are fine but he has a heavy duty case of the hiccups, two days in a row now. He's been a real sport but it is causing him to have some acid reflux. Fortunately,…
Three months since surgery, doing great. mucoepidermoid carcinoma of soft palate
I wish I had found this website BEFORE going through my surgery, but it's better late than never! My google searches really scared me, but I am glad I did, for it eventually led me here. (I also prefer to be scared and semi-informed than clueless.) I just turned 32 last week. For 5+ years (that is, I remember it being at…
Unknown primary to head and neck
Anyone out there with unknown primary? Just completed 40 radiation treatments with 3 chemo (cisplatin) treatments. Just had my first clean pet scan. Everything was going great. Out of the blue I get an ear infection and my ENT says we need to watch/look for a tumer. I think being that the pet scan was clean, maybe all the…
Update On Hubby
It has been determined that my hubby has Sepsis. Docs are still unsure where the infection is coming from. One theory is an infection in the chemo port, but not certain, so he's being treated with broad range antibiotics. He had 2 litres of fluid drained from his abdomen and is feeling a little better. At least he is…
Surgeon visit
Hi all, Just my thyroid nodule update... I have been patiently waiting for a month now. Got the biopsies done last week. They wanted to biopsy 2 of 6 nodules. They stuck 5 needles in the dominate one, and one needle pulled a few cells. The second nodule when I arrived was considered 'suspicious' and after the first biopsy,…
The Super Thread has swallowing exercise info.
Hi All, Just wanted to let you know where I found some great information on how to perform excercises for throat and neck stretching. Check out the Super Thread; Products and Tips; Stretching & Neck instructions. Hope this helps, and if anyone has anything to add, please do. Best wishes and big hugs friends. Jude
Long Term Disability Denied - Any Suggestions
Hi, I am the caregiver for my husband, Chuck. Have posted a few times in the past but nothing lately. We are currently in a situation and was hoping someone might have some insight on what if anything we can do. He had radiation and chemo for a tumor at the base of his tongue on the left side which ended in 1 year ago.…
Spice
My brother Bud passed away last week from prostate cancer, he would have been 65 today. I posted this on the Healing Well forum Bud frequented. Once again thank you all for the mutual support you show not just my brother but for each other. I'm not the type of guy who runs to the fad cure of the month or who is easily…
Stopping by for hugs
I have not forgot you my friends. It has been a hard week with visitation and funeral then getting used to being alone so much. I miss David and find I want to talk to him quite a bit. The other thing I do is call us we. I haven't been alone for a while and I really don't like it. I found someone to love who could actually…
The Countdown Begins
And here we go! I'm now "T" minus 9 for rads. Two more chemos to go! I can see the finish line! Unfortunately, I hit the wall pretty hard this week. Dehydration, despite my valient attempts to drink as much liquid as possible are not cutting it. I've been getting fluids (IV) every day. Solid foods went bye bye a couple of…
Help My Aunt...Repost for GYBOWMAN
gybowman Posts: 1 Joined: Apr 2013 Apr 09, 2013 - 5:43 pm Help my aunt My aunt had cancer and had half of her tongue removed. I suggested maybe I could give her some interesting soup recipes, since that might be easier. She said the radiation burned her tongue and ruined her tastebuds. She says I should imagine what it…
checking out of Phrannies pocket bc NED is here!!!!!
Met with onc MD and surgical MD yesterday who said that PET was clean and clear, nothing lit up, no cancer cells reared their ugly heads. He did say that the landscape has changed and that there was "junk" left over from the enlarged lymph node that had a large tumor. But he said it was not cancer...just junk. THe surgical…
Insurance denial
I have BCBS insurance. Not old enough yet for medicare. Even though most of my lower teeth were extracted to remove my jaw (cancer of the mandible) they are denying a claim for implants to replace them. They are even denying a denture. Wondering if anyone has had their medical insurance pay to replace the teeth taken as a…
Thank all of you and question about neck dissection
My husband and I are brand new to all of this. I want to thank you all for posting to this site (and for being brave survivors who are willing to share their stories). It has helped so much to read other's experiences. We feel like we have more questions to ask and more knowledge about what lies ahead. Can anyone share how…
Neck dissection pain
My husband had a radical neck dissection 15 months ago. He is cancer free and we are so thankful. He has been fighting head and neck cancer for 5 years. What I am wondering is, does the pain ever go away. We have asked numerous Doctors, Neurologist, Surgeons etc and never have gotten a straight answer. I have seen on the…
Completely Obstructed
Hello, my 82 year old mother was diagnosed with hypopharangeal cancer T3 N0 October 4, 2012. She was an alcoholic most of her life, she fought it and was not a bad mother but never overcame the disease. She has managible emphysema from smoking which she quit 10 years ago. She had a debulking of the cancer in early October…
Evoxac - Generic
I want to share some good news for those of you using Evoxac. I just had mine refilled and was plesantly surprised that it is now available in a Generic. It was costing me a $90.00 co-pay because it was not on my insurance company formulary. The co-pay is now $8.00 for the generic. The Gernic is Cevimeline. The next time…
Severe nausea, any suggestions
My husband is in the middle of week 5 of radiation treatment, 10 more treatments to go. Done with 2 big rounds of Cisplatin. He is so nauseated and everything gags him, that he isn't getting much nutrition in. Getting 1 liter of IV fluids 3 times/week. Compazine, Zofran and Ativan not a lot of help. No feeding tube and at…
Help!!!
I need help. Hubby took Ambien(5 mg) Monday night and has been asleep almost constantly since then. He is in and out of lucidity, no strength in arms or legs, can't hold onto anything and can't stand. I'm putting water and now Glucerna into the tube. Managed to help him urinate a tiny bit in a prone position. MDA navigator…
Update on Best Friends Husband and all
Hi all: Beki's husband Steve has finished treatment but did spend last Mon-Fri in hospital as he was very dehydrated and not eating or drinking much. Also want to ask y'all. They have given Steve morphine pills for throat pain and I have kinda wondered about that at this point. Now part of the idea I understand is to take…
Round 2 And Still Standing
Hello All, Hubby finished his second round of chemo today. I have learned that Erbitux is actually called Biotherapy, while Taxol & Carboplatin are Chemotherapy. The plan, as it stands now, is to get the Erbitux every week for 9 weeks and every third week to get all three. The doc agreed to no Benadryl, but did have some…
Anyone had a deep bone or muscle infection in the jaw??
Hi again, I have been randomly viewing the posts for the past few months and not really getting in the conversation fray. John (Skiffin) does a great job of keeping everyone informed and in a good mood. He and I speak the same language, so why duplicate!!!??? However, I woke up Saturday morning with my left cheek swollen…
spindle cell squamous (sarcomatoid) carcinoma
My sister 34 was just diagnosed with spindle cell squamous sarcomatoid carcinoma after a dentist apt for what we thought was an ulcer. If anyone has information on specialist please post.
Caringbridge
What is caringbridge and how do I get to the site ? Peggy
Dad coming home Friday
Wanted to update you guys with some good news. Dad is getting out of rehab on Friday. He still needs a wheelchair. But, his walking is getting better. He can stand really good with his cane. When he is getting out of the wheelchair he only needs me to guide him. He is still using the feeding tube, but doing good. Thanks…
Funeral went well
Thankfully the funeral went well. I am sure David was smiling down from heaven as we celebrated his life. Everyone consistently talked about his faith and acts of love. He did so much behind the scenes. It was all about loving people and letting them know they were not alone. He will be greatly missed. I am so glad it is…
spindle cell carcinoma
Last week my father in law was diagnosed with spindle cell carcinoma located on the top of his scalp. Today, he went to see a dermatological oncologist, who confirmed the diagnosis and said that she did not see anything in the lymph nodes. She did however say that she could not confirm anything until they had removed the…
Allergies
My throat has been acting up the last few days. Hard swallowing, sores on the roof of my mouth. I have always had allergy symptoms around this time of year but I can't really tell if its allergies or not. Foods with. Tomatoe sauce seem to be particulary hard to get down recently- even though it has been going down pretty…
spindle cell squamous (sarcomatoid) carcinoma
My sister 34 was just diagnosed with spindle cell squamous sarcomatoid carcinoma after a dentist apt for what we thought was an ulcer. If anyone has information on specialist please post.

Head and Neck Cancer

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