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Two Questions
Halfway thru week 5 of 7 weeks of chemo and rad. Lost 15 lbs even with peg. Neuropathy-told not getting worse so just finish out treatement. Huge nausea issues. swallowing is nearly non existance. Majic mouthwasher causes me to vomit-mouthsores. First, any "supplements" to help with the neuropathy. I ask and was told none…
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Need some more prayers and opinions
Dad is home from rehab and doing pretty good. He needs 24/7 care so it is hard since it is only mom and I. Home health has yet to be useful. Dad will see his oncologist on the 30th, when he was in rehab they found two spots on his lung. Can not remember where. They said his lungs sound terrible. Do you think the oncologist…
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Side Effect Strange Chill or Ripple Feeling side of Head and Back of Thigh
I am 4 months from last chemo and radiation. Neck cancer unknown primary, full treatment. I have a strange chill like effect that is mostly in the morning at the right side of my head and face. At times it also is in the back of my thighs. It is not pain, but more a ripple or as when you have a chill that radiates, but not…
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New Clinical Trial Finder - a new website to bookmark and use if needed
This article (published today) has links to a new website set up to help those seeking the latest clinical trials more easily find and make contact with the trials that are a match for a patient's specific cancer. You will have to copy/paste the url since I do not know how to embed it (perhaps a forum member can make it…
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Jeff is NED!!
Had PET scan Monday and saw Rad doc yesterday got the all "CLEAR" Thank God. We go back in 4 months. We see ENT tomorrow and chemo doc next week. I think it's overkill to see everyone (copays stink) but i guess better be safe than sorry. Thank you everyone for helping us through this. I will definity pay it fowards. Sue
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Skiffin16...... A Pic of my fishing boat!
With gas prices like they are I have to find ways to cut corners and save. So, I will be heading to Florida to do some fishing with ya....sorry there won't be room for both of us in my boat. Could I just troll along beside you?
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Jeff is NED!!
Had PET scan Monday and saw Rad doc yesterday got the all "CLEAR" Thank God. We go back in 4 months. We see ENT tomorrow and chemo doc next week. I think it's overkill to see everyone (copays stink) but i guess better be safe than sorry. Thank you everyone for helping us through this. I will definity pay it fowards. Sue
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Pet Scan Tomorrow
Dan gets his PET scan tomorrow. He's cool as a cucumber, at least on the out side.. However, his paperwork is already in the car, hot food on the table and moving the paper work to the car was more important than eating. Then the wait... this place normally reads within 24 hours.. And the doctor promised he would call the…
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DId i say scrambled EGGS?
You bet I did with a side of custard! Don't forget 16oz of water! I just couldn't wait to share with my CSN my Great news. I feel like I just went out to breakfast with my speech therapist. This is just one of those things we say are different after cancer...who woulda thought I would smile from ear to ear over eating a…
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Dad's needle biopsy of post tx enlarged lymph node results
Hey everybody! Last week my dad had and ultrasound of the neck and the fine needle biopsy of one enlarged lymph node and here are the results. But first a reminder: Dad finished tx (chemo/rads) for oropharingeal (BOT) cancer in September 2012. First CT in January showed that the cancer is gone, but one lymph node (2 x 1cm)…
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Just when you thought it was safe to walk in the woods
Thrush! Went in for my weekly checkup today and was complaining that my throat was sore and that my mouth felt really like cotton. Not much of a white tongue but when he looked down my throat, there it was lurking. Never crossed my mind that it would come up again this far post treatment (I'm 10 weeks). He told me it could…
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Second Radiation Treatment Decision
Ten years ago I had chemo & radiation in the head and neck area. I have just been rediagnosed, and had surgery for the base of tongue, and removal of 20 lymph nodes in neck. I suppose, due to the prior radiation, my neck is very stiff and limited. I am concerned about the side effects of the proposed second radiation and…
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hick-up w/pathology 3 mo's out
Some things that make you go hunh ? Received an e-mail from my ENT office today for results on labs. I thought what ? As I haven't had anything done since last Dec. So I opened it up, and found out they had re-done my path on that beniegn tumor that was removed in the right lung. They had received that tumor profile I had…
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thyroid cancer
My husband had his first post treatment CT scan and the ENT surgeon (radiologist missed it) spotted a nodule on the thyroid. He had a biopsy and results can back as thyroid cancer. What a huge shock and more surgery is needed. He will be having surgery in about 3 weeks. So worried because we couldn't even get through one…
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A Bit Better
I've been waiting for a definitive answer concerning hubby's infection. It appears that there isn't one. On blood cultures from the ER, either Staph or Strep showed up. Can't remember which one as my poor ol' brain is muddled right now. Nothing else has showed up and infection seems to be gone with the broad spectrum…
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PET Scan 3 Months Then? Opps Meant CT and Contrast CT
(Sorry - your right PET scans are hard to come by I mean CT contrast scan then anther CT with contrast in September - 6 months) I had my 3 month PET scan, the end of middle of March, NED thank God and the doctors and you all. My doctor then scheduled me for the next one in the middle of September. That is also my next…
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Vivian
Hello Vivian...sending you great big hugs and praying for your peace. Been thinking about you all day and the coolest thing happened. I went to lunch today with my husband and son and the lady who put her name in for a table right before me was Vivian. Then I went to the grocery store and the lady(again right in front of…
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CT Scans
I know "it's not Cancer until they say it's Cancer " but does anyone know how far down does a CT , Head and Neck Scan , scan ? I just had a clean CT scan about two weeks ago and last week I found a lump on the same side (right) as my SCC cancer was on !!!! It's just a little ways down from my neck right above my Colar sp?…
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Radiation Consultations?
ABout ready to start radiation. Mask is made and they ran the sim verification yesterday so cleared to start radiation on Monday. I told them I am delaying a week to get more recovered from the remaining chemo mouth sores. My MO felt I was good to go on Monday but was fine with my request to delay so I called the rad techs…
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What would you do?
Talked to the oncologist for the first time. I pressed the doc on killing the cancer and keeping it away. He said killing it was pretty sure. Said i'm a dream parient because I'm in shape, no other illness, good nutrition, ... But he said this bugger is "level 3", in his words "potent". So I asked him if low dose chemo and…
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Chemo Normal?
I must continue to ask: Is this normal for chemo. I sleep 10 to 12 hours a day. Every little activity tires me, even watching an hour TV show. I pay a few bills on line and then must lie down to rest for half an hour. Is this fatigue normal? Is it the Taxol? Is it the Erbitux? Is it the anti-nausea pills? Is it the pain…
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Long Term Disability Denied - Any Suggestions???
Hi, I am caregiver to my husband who was diagnosed with Stage IV Base of Tongue Cancer. He was treated with 8 Erbitux treatments and 40 radiation treatments. Treatment ended in April of 2012. Docs thought they had it taken care of but unfortunately cancer continued to grow from the center of his tongue to the right side.…
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U of M says only Chest XRAYS once a year after tx???!!!
Ok....I'm floored with this news today and I need advice and I need to know your scan schedule. After what I've known from all of you folks on your scan schedules, this is bothering me. My loved one says his ENT/Oncologist is telling him that they do not like doing CT's and PET's regularly as they contain radiation and can…
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NPC scan types and frequency
I have been reading alot of folks here typically get six month PET/CT scans after treatment but never heard anyone who had PET/CT/MRI scans. I have been out of treatment since December of 2011 and have had 5 PET/CT/MRI scans so far. I am having my 6th PET/CT/MRI scan in June. Besides the cost associated with the scans,…
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Just beginning this journey.
My husband was diagnosed with tonsilar cancer (post tonsilectomy two weeks ago), with one lymph node involved on the left side of his neck. This was all after discovering a lump on the left side of his neck in late November, early December. We are fortunate we have the VA, as he is a disabled Veteran, and that's all we…
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Sorry for all the question?????
My mom started her first round of chemo on Monday morning! It is the Cisplastin(sp) taxol and 5fu. She is extremely nauseated with vomiting and all she has done is sleep if she's not vomiting. Is this normal? Also about how long will this last. We go to doctor tomorrow to get taken off the 5fu's. She has two nausea meds…
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climbing that mountain
Hey everyone, Just wanted to update you all, speech therapy is going really well. I go 3 times a week now and starting tomorrow(just in therapy) I am moving up to oatmeal! I'll tell you the stuff we realize during the fight and the after math from the fight is endless. I would never have guessed how many parts of your…
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Swallowing exercises
Hey everyone just needed to remind again about SWALLOWING! Newbies to dx and tx, poor T, Wolfen's Hubby, newly NEDS Phrannie, Bille, our NJShore, Duggie, matt,Skiffin,Donfoo,Roar and anyone I may have forgotten: SWALLOW EXERCISES EVERYDAY! Even if eating, get it, got it, GOOD! Never stop, eating and swallowing isn't enough…
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Where I am today - 21 months out
Greetings All Here I am, 21 months out since my last treatment. Things have gone well for me, my taste has returned although I still don't care for ice cream or oreo cookies - a small price to pay. My saliva has returned to nearly normal, swallowing doesn't hurt at all and hasn't for quite some time. My beard started…
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chefdaddy & dawn
has anyone checked on chefdaddy, his daughter and dawn? they've all been heavy on my mind and was wondering how they're doing. if someone could give an update, i'd appreciate it. thanks in advance. God bless, debbiejeanne