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Johnnybegood Doing A Little Better
The bleeding has finally stopped, but still no answer as to the cause. She is still having severe diarrhea & abdominal cramps. Crazy doc asked her if she felt comfortable going home tomorrow with the dairrhea & cramps & no answer. She told him "NO". She lives 100 miles from the hospital. Makes me angry that hospitals just…
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Hi guys update on mom
Sorry it has been so lond since I have posted. My life has been anything but peaceful. Mom got sick and started throwing up blood the first week in September. After doing a chest xray they told her she had a mass in her lung that had been there for 2 1/2 years and after futher test the found spots in her liver. The blood…
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PEG for LIFE
I was just wondering if there were any others here who will have to keep a PEG tube in for life. I am right at 15 months now with my first PEG tube and it’s due to be changed next month. It has been a lifesaver to me but it has its times of just getting in the way and I want to just pull it out but then think, how will I…
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Hi friends...
Well, here we are, nine days left. I sure am happy that Matt told me to leave 'my big girl pants on' for a little bit after my last post. I may have been a bit too 'upbeat' that early in the game. LOL! I have been reading up on most of the new posts, and want to be around to help; especially the 'newbies' who are here, and…
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Major worries about my taste returning to normal
I'm 4 weeks post treatment from SCC right tonsil cancer with two right neck lymph nodes affected. I've had 35 rad treatments and 2 high dose cisplatin chemo treatments. None of my surgeries were to actually remove the cancer, so it’s being treated completely by the rad and chemo. 3 DEC is my next visit for results of this…
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Check up with the surgeon yesterday...
and he said that everything looked GREAT! I can open my mouth in the "normal range" again....the very lowest reading, but still just barely in the range. He said that I was good for another 3 months but to continue to see my rad onc a couple of more times. Boo!! haha I will see him later this month. He is not recommending…
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What is worse then not having Saliva.
After both my radiation treatments were over and having too drink water with all my food I thought that there was nothing worse then loosing my Saliva glands; well I found out that there is. As many of you know I am unable to swallow due to nerve damage from all the treatments. Not being able to swallow is something I…
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Questions concerning tips for XRT
Hello again, I think I have most of what I need from reading the thread on RT, but still have a few questions to ask the group. My nurse gave me some ALRA therapy lotion to use but not less than 4 hours before treatments. I started the L-Glutamine powder from Vitacost. It has a small scoop that has 5G in it and I am not…
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Nose bleeding (spotting)
I've done two chemotherapy and 20/33 radiation treatments. I've noticed lately that after radiation treatment, my body, mouth, and throat feel hot. I can feel each time my heart beats. When I rinse my nasal with a nedipot then blow my nose, blood comes out but not continous bleeding. Along with that is a big snot with what…
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Juicing
My husband is in his first week of radiation and is doing well so far. He is using Mugard and Magic Mouthwash daily along with Biotene. He hasn't had any problems with swallowing, saliva or eating yet but we both know it's matter of time. I am wondering if anyone has any experience with juicing and if there are certain…
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A rare moment
I've never been even a lousy cheerleader here but I came across this a few days ago and feel like it will put a smile on your face and warm your heart. I'm certain you will set aside and forget all about any illness, pain, or malady of your body and mind, if only for a few minutes.…
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Anemia
Has anyone suffered with anemia post treatment. I,m at the start off second week after radiotherpy. I,ve been getting more breathless and tired by the day. At clinic this morning I had to do blood tests for anemia, I only have to stand up for a short time before I feel weak and out of breathe. on a trip to the shop I had…
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Developed mild spondylosis-From Radiation tx?
Kreg recently had an MRI of spine and shoulders due to some pain radiating from the neck down the arms and shoulders. We have the report, but have not yet spoken to the doctor, but it indicates mild spondylosis(compression of the nerve roots), as well as disc bulges mildly compressing the thecal sac (matter surrounds the…
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I Am Scared....
I finished treatments for left side tonsil cancer 11 months ago. I have been recovering nicely and all scans have been good. All of a sudden, I feel like my throat is swollen, throat feels tight, and swallowing seems a little difficult. It feels so much like it did when I was diagnosed. It feels swollen on the left side…
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Anyone else starting XRT this week?
Just wondering if anyone else is starting radiation therapy IMRT this week? I start tomorrow and would like to coMISERYate with you if that is ok. PJ
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falling apart, stage 4/ aggressive treatment radiation and chemo for 6 weeks
Hello, we went to our first appointment yesterday at the cancer center. The cancer started in his tonsil, than spread to his throat, tongue, and a lymp knod, He has been seeing his primary doctor off and on with complaints of sore throat and ear pain, between dr. Cancelling his appointments, seeing different ones in his…
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Really ambivalent about the gastrostomy tube tomorrow
Hello survivors, I am getting ready to go for a bike ride on this beautiful day before yet another surgery (3rd in 3 mos). I am scheduled to have a gastrostomy tube inserted via laproscope tomorrow afternoon and would love some insights/encouragement. I had TORS surgery 9-4-13 and Left neck dissection also. My margins on…
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Prayers Needed Please For Johnnybegood--UPDATE
I posted this on the Colon Board, but am also asking all my friends here for prayers & good vibes for my daughter, Johnnybegood. She was taken by ambulance to Louisille with uncontrolled rectal bleeding. My son-in-law will call me as soon as they figure it out. We are all so very scared. Luv, Wolfen The bleeding has slowed…
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Hello to my H&N Family!!!!
Hello All. I just wanted to stop by and say hi, let everyone know you are thought of often and to update you on my progress. To date I am doing well. My two year mark is this January. I've lost another 20lbs but I will attribute that to hunting and cutting wood. :) For all the new folks on here, I'm sorry you have to be…
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hoarseness
So anyone out there who has had Larynax cancer and radiation treatment....My voice still struggles with hoarseness ...is this something that gets better or will it come and go from now on....i know I am only five weeks out of treatment but I was hoping it would start to get more consistant...... Thanks, Benjamin
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New Insurance
I am tying to figure this new insurance out,I am six months and a few days post,Still having little or no saliva,taste comes and goes,Found out the reason why my Doctors are not giving me anymore pet scans is because my insurance will only pay for 3 of them in my lifetime.Am looking at this new insurance and am wondering…
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Getting back to my pre-cancer life.
October 9th I got the offical N.E.D from my doctors. I have had thrush a couple of times, and I have to take Synthroid now, still have a slight phlegm situation and can only taste Teriakyi chicken all the way through a meal, but compared to the alternative, life is great! Will be competing in my first bicycle race in a…
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plan moving forward
As many of you have coached me, my plan is moving forward - had a salivary gland moved on Halloween and the port put in, saw the dentist yesterday - have to get root canal on one upper only - was due for this anyway - and had fluorine molds made - any of you doing fluorine on a daily basis for the rest of your life? Also…
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Advice
Hi, I have written once before concerning my mother. I do research through this wonderful supporitve board frequently, and would like to ask advice from you all again. My mother is 82 years old, she completed 35 rounds of radiation follwoing a debulking of hypopharyngeal(very close to voice box) cancer tumor in January…
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Baking soda/salt...
Hi everyone! Today, and for the past few days, Pat is starting to deal with the 'thick' saliva. I know I read somewhere the combination of baking soda and salt solution...BUT, can't find the 'recipe' anywhere. I checked the Superthread, and it doesn't seem to want to load for me...Would someone be so kind as to tell me the…
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Medicaid Update. Good news!!
After fighting for months...Medicaid in NC has decided that H&N Cancer is a "serious" cancer and has granted me my one year of coverage. They immediatley grant one year for those with lung, breast, brain or lymphoma (they call those the 'serious' cancers). I've made/received over 30 phone calls, provided more paperwork…
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coughing more...especially at night
I am 5 weeks after treatment and I have started coughing more especially at night when i am laying down...is this "normal" or have some or most of you experienced something similar? As i wait to go back to my first post pet....all and any new changes are making me anxious, Thanks, B
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Hearing problems?
So, I had a question. As some of you know, others do not... my dad had 35 radiation treatments from sinus area to throat due to sinus cancer/one lymph node affected. While watching a movie with him the other night, he had the tv turned up quite loud...there were times I would have to tell him what ppl said in the movie. I…
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Dad is 100% cancer free
We got the results of my dad's petscan last week, he is 100% cancer free! I'm so glad to announce that! Thanks to the James Center at OSU he received some of the best treatment and thanks to docs for catching it early enough that it could be treated. He still has his peg tube, but is eating much more each day! Had dinner…
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Has anyone heard from Candi?
I was reading through some recent posts and haven;t seen anything recent from Candi. Does anyone know how she is doing? Thanks! Thinking of you all!