Hi & thank you!

Options
Meegs
Meegs Member Posts: 14

Hi all

i am 28 y/o female who has undergone treatment for esthesioneuroblastoma. I have been a (quiet) member on here since last year during treatment. I wasn't really In the right head space for posting but reading everyone's posts helped me sooo much.

all the tips etc and just knowing so many others are going through similar things.

you are all amazing and strong, and I just wanted to say thanks :)

 

Comments

  • wmc
    wmc Member Posts: 1,804
    Options
    Welcome to the H&N group

    Welcome to the group and thanks for posting. Sorry the beast has attacked someone so young, I hope you're doing better now that you have finished your treatment. Be well and i'll keep you in my prayers.

    Bill

  • Goyca
    Goyca Member Posts: 220
    Options
    Meegs helloooo. So sorry u

    Meegs helloooo. So sorry u had to go through this. Thank u for the earlier post. As u know I have esthesioneuroblastoma too but low grade. How are u now? I hope u r done with treatments and everything.

     

    Goyca :) 

  • debbiejeanne
    debbiejeanne Member Posts: 3,102 Member
    Options
    hi and welcome to the

    hi and welcome to the family.  i hope you will not be so quiet in the future.  everyone has something to offer.  i'm so glad you are done with tx and I pray you are doing well. 

    God bless you,

    dj

  • CivilMatt
    CivilMatt Member Posts: 4,723 Member
    Options
    sweet to meet

    Meegs,

    Very nice to meet you, I am glad the H&N forum helped you (it helped me too)!

    For me the #1 thing I learned was to drink lots of water and swallow often, #2 was and #3 was and so on and so on, there are so many things they started a Superthread (Sweetblood22).

    Some of our best members are quiet and we don’t even know them.

    Good luck,

    Matt

  • Meegs
    Meegs Member Posts: 14
    Options
    CivilMatt said:

    sweet to meet

    Meegs,

    Very nice to meet you, I am glad the H&N forum helped you (it helped me too)!

    For me the #1 thing I learned was to drink lots of water and swallow often, #2 was and #3 was and so on and so on, there are so many things they started a Superthread (Sweetblood22).

    Some of our best members are quiet and we don’t even know them.

    Good luck,

    Matt

    Thanks everyone :)

     

    yeah it's fab for all the little things that the docs don't tell you.. I basically got all warned side effects and then some surprise ones haha but it's so good to come here and find others experiencing the same and that they are "normal"

    hope you are all doing well 

    Meg

  • Hondo
    Hondo Member Posts: 6,636 Member
    Options
    CivilMatt said:

    sweet to meet

    Meegs,

    Very nice to meet you, I am glad the H&N forum helped you (it helped me too)!

    For me the #1 thing I learned was to drink lots of water and swallow often, #2 was and #3 was and so on and so on, there are so many things they started a Superthread (Sweetblood22).

    Some of our best members are quiet and we don’t even know them.

    Good luck,

    Matt

    Hi Meegs

    Like everyone else, Hi and welcome to our family here on CSN H&N

     

    Hondo

  • patricke
    patricke Member Posts: 570
    Options
    YOU'RE WELCOME

    Hey Meegs, 

    I'm sorry that you are a beast battle warrior, but I am glad that you are on the board and finding it helpful.  I hope that you have parted ways with PEGGY by now, but if not I hope that you are making the best of it with blended foods, if okey dokeyed by you GI doc.  And also, if you still don't leave home without PEGGY, I do hope that you are carrying on with your going to restaurant and other out and about activities with family and friends anyway.  I hope and trust that you are doing alright in your challenging recovery journey, as your new normal evolves.  Keep It Mov'in Forward Meegs!  

    PATRICK 

  • Meegs
    Meegs Member Posts: 14
    Options
    patricke said:

    YOU'RE WELCOME

    Hey Meegs, 

    I'm sorry that you are a beast battle warrior, but I am glad that you are on the board and finding it helpful.  I hope that you have parted ways with PEGGY by now, but if not I hope that you are making the best of it with blended foods, if okey dokeyed by you GI doc.  And also, if you still don't leave home without PEGGY, I do hope that you are carrying on with your going to restaurant and other out and about activities with family and friends anyway.  I hope and trust that you are doing alright in your challenging recovery journey, as your new normal evolves.  Keep It Mov'in Forward Meegs!  

    PATRICK 

    Thanks Patrick!

    Yup I got rid of the lovely peg... i did still go out with it, once I was up and about :) but nice to be free Of it. You are amazing for how long u have had yours and everything you still do with it in! 

    Its amazing what we and our bodies just adapt to and accept as the new normal isnt it