-
Taking back 3 weeks
I got a call this morning from the scheduler to set up my next CT scan for late August. I had already spoken to my oncologist and told her I wanted to wait until after the 15th of September. She said 3 weeks wouldn't be life or death. This isn't a treatment scan. It is my 4 month "is everythig still ok" scan. So when they…
-
Rolled a 3
I got the official word today. The endoscopic ultrasound was done and it's stage 3 and sits right at the border of the rectum and colon. 30 mm long and 23mm wide. The doctor said since it penetrated a level of tissue in the colon that it got upgraded (As though it's a good thing). Pictures were included, as if I really…
-
Been a while
I haven't been on here in forever. I was diagnosed in 2008, and have been cancer free for about 8 yrs now. I do have significant damage to my nerves systemically. I now have been diagnosed with Parkinsonism which they believe is induced by oxaliplatium.
-
Infusion was cancelled
Yep, my Folfox infusion has been cancelled yesterday due to the gout on my right foot! My oncologist prescribed the prednisone 20mg. Then infusion will follow on next Friday. Oh gosh!!
-
Chemo Sux
After 11 years battling this mess, you would think that my body would be accustomed to the chemo by now but nope. It seems like each new episode with chemo is affecting my body more and more. I wonder how long it will be before I cannot tolerate it at all. I had almost forgot how crappy this stuff makes me feel but…
-
Stage IV still in treatment
Hi all, I'm curious to find hear about stage IV survivors---still in treatment--- and how long you have been fighting the beast? Have you been doing treatment the whole time? Have you had breaks?
-
If your port stopped drawing...what were you told???? UPDATE!!!!!!
Hey Family! I have been told by many nurses that my port has one of the smallest work areas they have ever come across. About the size of a pencil eraser. It has worked well for over 2 years but as of about 3 months ago it quit drawing blood. No problems getting chemo put IN but nothing is coming OUT. From all comments…
-
Shivers
hey I hope this is not redundant but after my husband had his chemo treatment today he has a very shaky feeling, he said its like a chihuahua but hes not cold, infact he's sweating like crazy. I'm just curious if anyone else has felt this?
-
Missing Digestive Enzyme????
Hey All....... I had appt with Onc today. He said he has all test results in from when I was in hospital for extreme diarrhea. He said I am missing a digestive enzyme that is responsible for fatty stuff in the body???? Is this ringing a bell to anyone? He said they can give me a pill to supplement the loss of this enzyme…
-
Constipation
Hi there, know some of you might suffer from constipation after rectal surgery and I think I have found what helps for me: 1 large tablespoonful of olive oil mixed with one teaspoonful of lemon juice before you eat in the morning. I used to have this again about 3.30 in the afternoon but don't find it necessary now. I also…
-
Is it still normal to have blood stools?
I have an ileostomy. Last night my stoma was very painful and I saw blood when I drained my bag. I told myself maybe because it was because of the red velvet cake that I ate, but would it cause pain??? I'm thinking of telling my onco about it. I was also thinking if it was because I was carrying my toddler and some bags…
-
Out of breath
Hi all - My treatment is folfiri + avastin. When 5 Fu bottle comes off, have 5 days of white blood cell shots. This is day 7 after the clinic chemo and day 5 from 5Fu off. Have been out of breath and wondering if anyone else has been out of breath after chemo and/or WBC shots - feeling like crap - home all week. Plus…
-
Bowel cancer? Pancreatic?
Hi guys bit of a complex story. Basically my mum was admitted into hospital due to ascities (fluid on the tummy) after a month of investigations it was found she has extensive bone mets doctors are unable to locate her primary they say. Although a pet scan showed a mass in her bowel (caecum) but colonoscopy biopsy of polyp…
-
My foot has swelled up!!!
Now what? Tomorrow is infusion day but my foot swelled up due to a gout!! Never had a gout in my entire life!! Went to see my family doctor today due to severe pain of my foot! He asked me if I happened to twist it accidentally. No, I said. I told him about the neulasta shot. He said neulasta had a bad side effect on me.…
-
Stage IV QUESTIONS
im stage IV have had chemo then surgeryRobotic LAR with no ostomy, liver resection and abalation and another month later another liver abalation. Liver biopsies all came back negative for ca. Colon resection had clean margins. I had 7/ 19 positive lymph nodes. Currently on a 4 treatment course of Flofiri with avastin as…
-
See if your doctor takes drug company money
Dollars for docs website: https://projects.propublica.org/docdollars/
-
Clear colonoscopy but still have blood and mucus in stool - very concerned.
Hi all I am 44 and have some concerning symptoms. Last year I had blood when I wiped but didn't think too much of it because I had a clear colonoscopy in 2011 for pelvic pain. Well now for the past few months I noticed blood and mucus in the stool. So then I became a bit freaked out . I had a colonoscopy in May but nothing…
-
Alpha Mangostin or Mangosteen
Does anyone have any thoughts or experience with alpha mangostin or mangosteen as a dietary supplement? It is supposed to help make 5FU more effective, at least in test-tube experiments. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5083978/ Thanks.
-
New Chemical
My nurse just emailed me to tell me the name of the new chemical I will begin Wednesday in addition to the Folfox. The new chemical name is Cyramza (Ramucirumab). Has anyone had any experience with this target chemo and if so, what side effects did you experience?
-
Been so sick since I got Neulasta shot
I am not feeling well since the day I got the Neulasta shot on Sunday!! Got nauseated, stomach upset, fatigued, and everything I ate taste bitter!! Water tastes different too. This neulasta shot isn't good at all. Although everything tastes terrible I have to eat otherwise I won't have any energy left in me!! Oh did I…
-
Last Week was Hell
I'm sharing this in case there's something in here that's of some help to someone. I've just had the crappiest week. Warning, I'm crabby and upset and probably not going to type in as nice of a way as I susually do, but more like how I really talk. Last Saturday I got up and was so sick. Stomach cramps, noises like the…
-
Xelox for stage 3
Hi, I start chemo next week, xelox- iv oxaliplatin (3 hour infusion 1st day of cycle and xeloda oral pills 2 weeks then 1 week break-3 week cycle. Can you share your experience on this regimen? How did your body react to the oxaliplatin and xeloda? For oxaliplatin, were your side effects immediate? How long before you were…
-
5 Years
Tomorrow (June 28) marks my official 5 years from when I had my liver resection done. As I have been told by the liver specialists, oncologist, and other doctors that 5 years is a big deal. Plus the fact that I was stage 4. I had my lab, CT, and oncologist visit last Tuesday and everything looked great. My oncologist said…
-
Do you get port draw/flush on your infusion day?
I don't understand why do I get port draw/flush on my infusion day? Why it has to be on the port every time now? I thought port draw is done every month not twice a month? I know I should make a list of questions for my onc. She might have all the answers. She seems nice and understandable and kind doctor. She's from…
-
Chemo but no radiation?
For Stage 4, does Chemo and radiation go hand in hand? Reading some of the posts it seems like chemo is used regularly for treatment but not too many mentions of radiation. Is Chemo without radiation an option some oncologists go with? Obviously it depends on the person but just trying to get any overall idea. Thanks!
-
Surgery Questions
I've read on here a number of times where someone said their doctor didn't want to do surgery but they found someone who would and they're now doing well. What I'd like to know is why the first doctor didn't want to do it? What are the different reasons? I got my ct scan results today and they're not good and now I'm…
-
Are fruits rich in Vit C ok to eat? Curious...
I am kind of curious about eating fruits rich in Vit C as in oranges, pineapple and so on, since we can't take Vit C supplement. Is this possible?
-
I just read this article about colon cleansing
I just read this article, and sounds interesting!! https://jerseydemic.com/remove-20-pounds-toxins-colon-2-ingredients-2/
-
And back on the topic of Neuropathy...
I've never fully recovered, and now know I won't (chemo ended 9 years ago.) However, the part that is bothering me more now is that my heels feel as if there is absolutely no padding. Thus everything I do without properly padded/insoled shoes is quite painful. When I get out of bed in the morning, I'm unsteady because my…
-
Surgeon explained about cancer
I am a bit on a downside today, all day long. It's all about this chemo thingy and stuff!! I hated everything about this chemo!! It is toxic to our body...and the side effect & other stuff sucks!! I remembered what my surgeon explained to me when I get so down and upset..that after my surgery, the cancer were gone. The…