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A Change in Side Effects?
I've done 60 chemos since March 04. I did 12 FOLFOX, had surgery and a hepatic pump installed. I did 12 more with CPT 11 and FUDR. Liver was clear. Then in June 05, I found I had some lung mets. I started on Erbitux taking it every week and CPT 11 every other week. Up until chemo #55, I had problems with constipation only.…
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What can I eat?
I posted this in another topic, but wanted to make sure that people have a chance to see my question. I have read several different opinions in several different places on what you should eat to prevent cancer. The trouble is, I haven't seen anything that translates into what I should be buying at the store. For example, I…
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depressed to the max!!
1)Just finished round 2 of Oxiliplatin (folfox) round 1 was a breeze however round 2 I spiked a very high temperature 38.8C. Oncologist now says that I may not be able to continue this treatment. I'm really upset because I wanted to go for the most aggressive-progressive treatment available. 2) I was supposed to start my…
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Pre-Austin Humor
A Texan is drinking in a New York bar when he gets a call on his cell phone. He hangs up, grinning from ear to ear, and orders a round of drinks for everybody in the bar announcing his wife has produced a typical Texas baby boy weighing 25 pounds. Nobody can believe that any new baby can weigh in at 25 pounds, but the…
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questions???
hi all, i have yet to start chemo-rad or surgery for rectal cancer.will find out results of cat bone scan hopefully tommorrow. will also decide between 2 docs by thursday. 1 says chemo then surgery other says surgery then chemo. any thoughts on this, not medical advice just your thoughts. also has anyone had severe cramps.…
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Good News - 4 Years NED!
Hello everyone, I haven't been able to get on here for a while. I couldn't log in! I have been battling every cold, stomach flu and sinus infection that I could get my hands on this winter, so I bet I have missed a lot. I want to tell you guys that I had my bi-yearly check-up and I am 4 years NED!!!!!!!WooHoooooooooo! I…
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Not a Good Day
Hi all, after reading Erika & Gabor's posts, I am even more down today. Things have not been so great for me lately. I thought I was doing so well, but this past week has just proven that I'm not. I went to my PCP Wed. and he diagnosed me with depression. He is starting me on Lexapro. I will start taking it this weekend…
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Deciding to stop the Avastin
I have been on a one year clinical trial of Avastin for my State IIIcc. During the 6 months of chemo, I had no side effects that they could specifically point to the Avastin BUT, since I have finished the chemo and been on the Avastin only, I have experienced a great amount of pain in my joints/bones. My wrists, arms,…
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Decision Guide
Although I found this on CT of A's website, it is not in any way an endorsement of their clinics..I know nothing about them. The guide is a nice tool tho; for newbies or others just wanting to organize their thoughts about treatment options, questions to ask your doctor, Selecting a treatment center, or just organizing…
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More Good News
Whoops, I forgot to tell you in the other message, I got into Graduate School!!!! I start in June. I can't tell you how excited I am. Sorry about the two posts. Love, Taunya
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veins turning brown?
Hi, My husband is receiving 5fu for 4 cycles..1 week on, 3 off. Since his first treatment, his veins have turned brown. The nurses do not seem to know if this will be permanent or not........some say yes, others no! So, has anyone else had this happen, and if so did it eventually fade away? Thank you once again for your…
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some good news for my daughters!
hi everyone. i haven't posted too often but i read everyday and you have all helped educate me about so many aspects of this disease. i don't think there's a more intelligent and caring group out there. so thank you all for being my teachers. (never wanted to be in this school!) anyway, long story short, my daughter was 22…
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thanks!!!
thank you to all those who replyed. it feels so good to get info from those who have been there.one more of probaly many questions, has any one ever had severe leg cramps with burning and tingling sensation.doc says caused by the cancer but it has worsened over the weekend.know of any relief for this besides the pain meds?…
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hair loss
I will be starting chemotherapy in 2 weeks. A combination of 5FU, Leucovorin, and Oxaliplatin once a week. Has anyone had this combination, and did you lose your hair??
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rectal cancer diagnosis
hi all, just have been diagnosed.one says a colostomy is a must.i go for my cat and bone scan on monday.get my port put in for chemo right after.im going for a second opion today.i would appreciate any input on what to expect from the chemo and rad, also colostomy
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just a note to say hello
Hi This is Amy, aka slammer, and I hadn't been here for awhile. Just a check in, I go in April to oncologist, so hope all is ok, feeling good. Remember, I was stage 4 colon ca and so far I am beating this!! Hope the best to all, Love Amy
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Avastin/Erbitux-(see Susanbm post 3/26)
Reply to a Message Subject: Re: Deciding to stop the Avastin(see Susanbm post 03/25) Message: This is interesting: I have been on Avastin/Erbitux, bi-weekly, 450mg IV/840mg IV respectively, for about 6 weeks.(stage IV,mets to Lungs) The past week I've experienced extreme joint/muscle pain in legs, knees & back. Labs are…
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hair loss
Thank you very much to all the people who answered my post about hair loss. Janet
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Infected Port?
I have been reading here for several months and have found answers to all my other questions - but now I have one I couldn't find an answer - so I worked up my nerve to ask it myself... My husband is stage IV and is currently on a chemo break. His last scan showed that the chemo seemed to have lost its effectivness so the…
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Thank You
Hi all. Thanks for your words of encouragement. I am feeling better today. I haven't gotten the results of the x-ray yet. But this morning I'm not feeling as anxious as I was yesterday. Wanted to tell you a funny story. The wonderful people I work with have been with me through all of this, so they all know my problems.…
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Chemo Humor :)
Hi guys: I found a funny piece of trivia which gave me a good chuckle, so I thought I'd share it with you guys :) We all know that 5FU has been the chemo mainstay for colon cancer since the 1950s. Over the years, doctors have been mixing it with several other drugs with the hope to increase its efficacy. In the late 80s,…
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JADot
Hi Dot...in answer to your question about our stop-over in San Fran. We "return" via SF on 2nd May(that is if we don't extend...that is a possibility) We have a 13 hour stop-over in SF. As for doing any sightseeing etc., well, I guess it depends on if things are running to schedule. I have been told that airline holdups,…
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Hello again!
Hi everyone, I am back from the colonoscopy and thank god..all clear. Doctor said I can cut back on my going for sigmoids every 3-4 months also. So all I have to do is go once a year for the colonoscopy and every 6 for the sigmoids. I guess I will still have to go for the ct scan and chest xray every 6 moths also. I will…
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ct scan
Hi all you may remember us from previous postings-my husband steve d was diagnosed stage 3 rectal cancer in mar 04. He had chemoradiotherapy pre op and chemo post op. He last had a CT scan in July 05 which thankfully clear. we haven't posted for a while as we have been trying to get on with our lives and have been busy…
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smile.....
My initals are B M. :) Barb
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scan results
I got basic scan results y'day. Shrinkage of liver mets and increased lung nodule activity, will get more accurate info next week from Onc. Just recd patrick quillans book. Question for stage 4 survivors. I know that some of you were able to have surgery for mets, some of you achievedNED through Chemo and or Radiation and…
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Wrong treatment?
I was treated with Cisplatin and 5FU mix, 4 days in a row, three weeks apart, 2 times. Radiation during whole time. Then surgery. Nothing else. Stage II squamous cell carcinoma of rectum. After reading alot of you guy's experiences, I worry I was not treated enough. I feel great (except for the breast cancer I'm now…
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Looking for Guidance
My partner of 2 years has colon cancer. He has had it for approx. 5 years now. He was very upfront about his illness at the start of our relationship. We talked about it openly & frequently and I was prepared for anything. To be by his side whenever and where ever ,however in Jan 2006 he stopped calling me. The…
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got my hepatic pump
I had my hepatic pump put in 2 and a half weeks ago. It was a bigger surgery than I expected and it really took all of this time to recuperate. As of this week, I had my first infusion of FUDR which will pump into me for 14 days. I will also continue with Erbitux. They will add avastin in a few weeks. I'm hoping that the…
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just want to introduce myself
I'm new here. Diagnosed in October 05 with rectal cancer after routine colonoscopy at age 51. I had 30 days of radiation therapy which was intended to be combined with a 5FU infusion. Unfortunately I had a cardiac reaction to the 5FU which landed me in the hospital for 2 days, so most of the radiation was given without the…