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Site has been a real blessing!
I want to thank you all for your very kind and encouraging responses to my post about my PET results. Your thoughts and prayers mean the world to me. I have only known about this site for a couple of weeks but it has already been such a blessing! I don't yet know what I am facing, but I feel more positive about my…
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Another Angel in Heaven
First let me say THANK YOU to all of the many folks in this group that has been support for me during the past 2 1/2 years. This is the first place I turned and found mountains of love during our fight. As some of you will remember I was a caregiver for my husband who had stage iv colon cancer. Ken lost his battle with the…
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To Emily-end of life
this is the only way I can reply-I'm having all kinds of problems with this site.. I refuse to believe that we are "gone" when we die; somehow she is still with you, watching over you, giving you direction, protecting you.. thank you for talking about her death up front and real. It needs to be said. I just wish she had…
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FREE cancer survival cooking classes
There are some excellent classes going on around the country that are FREE and geared towards cancer prevention and treatment/survival. I first read about these classes on the Lance Armstong Foundation site. They are put on by the Physicians Committee for Responsible Medicine (PCRM), a group of medical doctors that have…
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Happy Birthday Jana
Hi Everyone, Birthday greetings going out to Jana11 who will be celebrating her 36th Birthday on June 3rd. So let's all join in and wish this wonderful lady a very Happy Birthday and many, many more.. . . Also we would like to wish Jana & Peter all the best as they move to their new home. Have A Great Birthday, Lisa & Andy
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Friday giggles
Here's some giggles to brighten your Friday! - - - Men are just simply happier people, and here is why... Your last name stays put. The garage is all yours. Wedding plans take care of themselves. Chocolate is just another snack. You can be President. You can never be pregnant. You can wear a white T-shirt to a water park.…
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CT results
Hi all. I had a long talk with my doc. today and the good news is that I am still NED!!!! My scans came out fine as did my bloods although he slapped me over the wrist for high cholesterol. Jen got a slap too. Her results for her colonoscopy as you know were also good although we are still waiting for 2 biopsies to come…
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National Cancer Survivor Day
Is June 4th (Sunday) or so it says in our monthly newsletter. I plan on celebrating and hope you all do too!!!!!!!!! Congradulations to each and every one of you!!!!!! AND MANY MANY MORE!!!!!!!!!!!! Lisa P.
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Trip to the ER
I had a big day yesterday. I was diagnosed with Stage II colon cancer at 39, as a lucky winner of the HNPCC lottery. Had surgery in Dec and have been on 5FU/Oxaliplatin/Leucovorin since Feb. Yesterday I went in for my oxaliplatin , as I have done 7 times before. Half way through the infusion I got a horrible abdominal…
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after affects of colon surgery
my mom recently had colon surgery in which most of her colon was removed inorder to get the cancer. she is doing fine except that now when she eats, she has to get to the bathroom right away as most things dont stay with her. this is getting her very discouraged not wanting to eat or even leave the house. will this subside…
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PET--results not what I wanted
Got the results from my first PET today. There is some "activity" in the rectal area. Could be scar tissue or polyps. I have familial polyposis so polyps can always a problem in the tiny amount of large bowel I have left. Oncologist called GI while I was there and I will see him Monday to schedule flex-sig. I have one…
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make some $$$$$
Well it sucks to have had colon cancer, but you do get to qualify for certain surveys and make some extra cash. There is always a silver lining somewhere. Why not? I have participated with the company "Research to Practice" before and made $100 for answering a few questions. They called me last night, but I don't qualify…
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hiccups again
ok- help is needed...my husand has just started second line therapy for crc with mets to liver and lungs and is currently on oxaliplatin and xeloda...starting the day after his infusion and while taking xeloda he has wicked hiccups...so much so that at times it takes his breath away like he is winded...in fact he hiccups…
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Avemar
Hi Has anybody here used avemar? If you google it, there is some information alright. It is unavailable iin Ireland, but my sister, who lives in Austria has sent me a months supply. Just wondered if anybody had used it. Thanks Margo
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Body image and a colostomy
I would be interested to hear from people who have had a colostomy bag and how they dealt with any body image issues. I am worried about how I will be able to adjust to the way I am going to look after surgery. I dont mean to be superficial, the most important thing is to be alive but there is a part of me that really…
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SO....Let's Talk Celebrations...
Before I jump into what this message is about, I realize that many have gone through some very rough times lately, and my intention is NOT to make light of it, but to swing the mood around here to a happier side... October, 2001, I was diagnosed at age 33 with stage 4 colon cancer. (No, that is NOT the happy, cheery part!…
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To pink05 re: Dad's diet
Most doctors know next to nothing about nutrition and I just want to scream everytime I hear the word "Ensure." It is nothing but oil and sugar. Eating more fat is just going to feed the cancer. I have giant respect for so many doctors who do the incredible surgeries, the ridiculous hours they keep, etc. I'm just stating a…
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naturopathic doctor ?
Well, I went for my first visit yesterday. Although she asked me a lot of questions about my diet she really gave no suggestions about it other than to make sure I get enough protein. She has given me some supplements, some to take all week, some to take only 4 days after chemo. They include glutamine (supposed to support…
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How Do You Die From Cancer
Hi everyone, I am having these thoughts alot lately because my dad is getting worse. I wonder how the cancer eventually gets you. Does it shut down your organs and thats how you pass. My biggest fear is my dad has a large tumor in his lung. I have this fear he will eventually suffercate as it gets bigger. I want him to be…
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TODAY'S INSPIRATIONAL THOUGHT
Some people are like Slinkies ... Not really good for anything, but they will bring a smile to your face when you push them down a flight of stairs.
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maybe someone with an ostomy can help
My surgery in Feb included removal of my rectum and sigmoid colon and a temporary ileostomy. Nearly 8 weeks later the only pain I still have is in the (former) rectum area where they attached the colon to the anal sphincter. I still need to take pain meds (oxycodone) daily. Everything else has healed with no lasting pain.…
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Power of Prayer
Hey all, about a month ago, I posted a question regarding an elevated CEA and if it could ever be mis-read or not a sign or reoccurance. Graciously, many told me that an elevated CEA was a definite sign of cancer and that possibly the tumor was simply too small to be seen on CT scans or PET scans. Being a youth pastor, I…
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THANK YOU
It's been just over 6 weeks since my hemicolectomy. I found this site the day I returned from the hospital. I cannot begin to tell you all how much you have helped me. I'm a nurse, but when I was diagnosed, I felt helpless and frightened. The posts have given me so much encouragement and excellent advice. All of you have…
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decision to make
hi all, today i went and seen my surgeon. not great news but kinda expected. anyways he can try and remove the tumor but doesnt think i will be able to gain bowel control because the tumor still involves the spchinter muscle but there is a chance i could. the other downfall of that is the higher chance that the cancer will…
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Even more depressed...
Hi everyone. Thank you so much for your words of support this weekend. You guys are great. I really don't know what I would do without you. Well, now I'm even more depressed. I talked to my dad's onc today and he told me that my dad won't be able to have the radio frequency procedure done because the tumor is resting on a…
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How To Stop His Fear
Hi everyone, hope all is doing well. Went to see my dad this weekend and he is so scared. I feel he says he is in pain when he is not to get attention and to have someone sit with him at all times. He does not sleep at all at night. I was up all night with him and I believe he is afraid to sleep. At least with the pain you…
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blood clot in catheter
I have a blood clot in my carotid artery that is causing facial, neck, shoulder, and chest swelling. Has anyone experienced that? I have been following your discusssions lately but have not seen anything pertaining to a blood clot in cath. I have just finished my chemo for stage IV colon cancer and am now NED. Yeah! But…
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Need guidance
My name is Liz - I am 23 years old, and I have watched my father suffer with colon cancer for the past four years. The cancer had burst through the intestinal wall when they discovered it, and he was given a colostomy bag for about a year after they removed the blockage and as much of the cancer as they could see. After he…
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Xeloda side effects
I was Dx stage 3 in Oct.2005, also had my resection that month. Started chemo in Dec. with oxaliplatin and xeloda (oral 5FU). In March I had a severe allergic reaction to the oxy so my onc just kept me on xeloda for the 2 remaining cycles. She triple dosed me to 4500 mg/day and I had terrible side effects-everything and I…
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Stopping Chemo Early?
Hi, I've done 11 treatments of 5-FU, leucovorin and oxaliplatin for stage IIIA colon cancer. I'm scheduled to do my last treatment this coming Friday. I've been doing pretty well with my treatments, but I've been exhausted and during my last couple of treatments I've had pain and nausea that I haven't been able to get…