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Considering HNPCC testing
I have researched the criteria for HNPCC and my family seems to fit the profile. I am considering genetic testing to confirm if I carry the gene mutation. I don't have any children so don't have to worry about passing it on to the next generation. I would like input from anyone else that has either had the testing or…
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another update
Just recently diagnosed stage IV colon cancer, they thought originally ovarian, but there you have it. I've got my web page up, for those that are interested. Thanks for the gentle reminder to do that. Anyway, finished my first round of chemo and head off for round 2 tomorrow. So far the biggest side effect has been…
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stage IV colon cancer
My Doctor told me that the side effects of chemo would resolve when the chemo was discontinued. Little did I know then that stage IV cancer, progressing, means staying on chemo until the end or hospice care and the side effects will continue. The Oncology Nurses are the ones that address your comfort that the MDs don't…
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webpages
What is the best way to get to a particular person's webpage? Jo Ann
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to Lisa Rose ET AL;
I just happened to check in the day after my birthday and found over 18 greetings..thank you everyone; My love to all. I had a first experience-(Birthday Present) in an open cockpit bi-plane..wow, what a ride!
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PET scan
My mom is having a PET scan today. Have you any words of wisdom on this subject? I've heard about possible false positives and false negatives... what are your experiences?
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Happy Birthday Bud
Bud our very own Fred Astaire is celebrating his Birthday today so let's all join together and wish this wonderful man a wonderful birthday. Happy Birthday to you Happy Birthday to you Happy Birthday, dear Bud ..... Happy Birthday to you ! And many more. Have a great Birthday Bud With Love From, Lisa and Andy
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YOU ROCK!
Ok. I knew it would happen with a little help from my friends. My fighting spirit is back. One more day of work, then out on disability while I finish treating the brain mets and then find something we haven't tried yet for the lung mets that WILL work this time. I'm ready again! Mary
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Hi friends
Hi friends. I haven't posted or read in months! Things have been sort of sliding downhill for us. Jim is hardly eating. He's in excruciating pain, and they think it's coming from his liver. So right now he's getting down a couple of Ensure shakes a day, and that's it. Needless to say, he needs to keep his weight on in…
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To Goldfinch
Just wondering what you are going to try for the lung mets..there is a study (PH 1) at M.D.Anderson for an oral form of Anvirzel. If you have found something else, I'd like to know. Bud
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Nervous
Hi folks, Going along nicely but then hit a bump in the road that raises doubts. Recap: Stage 2 rectal cancer diagnosed 4/05 treated with chemoradiation and local excision. Recurrance locally 4/06 treated with abdominoperineal resection, permanent colostomy and followed by 9 cycles of Folfox/Avastin. Have been doing well…
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Colorectal Cancer
Greetings Family and Friends, Today, July 19th 2007, is my one year anniversary of the procedure that has changed my life for the better. It was on this date last year that I had major surgery for Stage 4 Cancer. Although my team of doctors were optimistic, the reality was that very few people advance beyond that Stage…
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The Point of Cancer
On Wednesday our beloved Kathi started an interesting thread about the point of cancer, but unfortunately not many folks replied. It was a very thought provoking idea - the point of cancer. Thank you Kathi, for inspiring an opportunity for some deep thinking. I grew up in Southern California, spending my summers as a kid…
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Update
Hello everyone - recap dx Stage IV with mets to liver and lungs. I am currently in Buenos Aires doing alternative and conventional treatments to beat the beast because I was told in Canada that there was little else that could be done for me. After seven weeks of treatment, I am now scheduled for a liver resection on July…
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Whitehouse Colonoscopy
CNN has a good clip with press secretary Tony Snow (stage 4 colon cancer) talking about president Bush's colonoscopy and his own chemo treatment. A good message for screening. http://www.cnn.com/2007/POLITICS/07/21/bush.colonoscopy/index.html#cnnSTCVideo Rob; in Vancouver
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The Evolution of Dance
Now I'm sure that many of you have seen this clip, but if not, it's worth a peak. Especially if one wants to brush up their dance moves before a trip to Holland or some other exotic place. Enjoy... "The Evolution of Dance" www.rob-pollock.blogspot.com Rob... (_*_) in (rainy) Vancouver "And we should consider every day lost…
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relay for life
I walked last night in the Monroe County's Relay For Life for the first time as a survivor, it was a real emotional time. I have always walked on a team in the past. They are hoping to raise about 55,000 dollars, this year for cancer research. julie
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When did your side effects from chemo started?
Hi folk! Me again, I would like to know how side effects differ from one person to another. My dad started his chemo just 2 days ago but he seems reacting very well to Folfox 6 and had only hiccups as side effects so far. I was wondering if that means it would be the same for the next rounds or is it going to get worse…
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Question about Camptosar
Just went to the ONc and he change my IV treatment from Oxaliplatin to Camptosar/irinotecan HCI injections. (he did this because of my side effects from Oxaliplatin). Will have my first dose next week. Has anyone, outthere, been on this med and can you tell me your experience with it? The first thing they said was diaherra…
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Questions about 5FU and Side effects
Hello group, I've posted a couple of times about my Dad. Brief history. He had tongue/floor of mouth cancer last year and then 8 months later diagnosed with colon cancer (stage III). When he got out of hospital from colon surgery, he had a stroke 3 days later. (the stroke only affected his speech and miraculously wasn't…
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My granddaughter sees my Dad
I recently posted that my dad had passed away on July 14th. Well my granddaughter (2 1/2 yrs old) was with her father all weekend and did not know about my father. When she came home on Sunday she didn't ask where "Papa" was and we were all disappointed because she was so close to him and he was so sad that he was not…
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Day after tomorrow
Hi All. I go in for surgery day after tomorrow for the endometrial cancer I was diagnosed with last month. It was exciting to think that it would be a "clean" surgery - you know, open up, take out the offending organs and close it all up again. Unfortunately, that is not how it's going to be. Since my surgeon is going to…
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The point of the beast...my thoughts
You know I refer to the beast cancer as a terrorist, well, Hum, just read part of Dan Brown's 'Angels and Demons'. There was a discussion about what terrorism hopes to accomplish: A loss of faith. In whatever it is attacking. With cancer, Faith in your body. Faith in your treatment. Faith in whatever higher power you…
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One week till Holland....WHEEE!
So, one week from tomorrow I'm on a plane to Holland. This is the first summer trip I've made since being diagnosed!!! Yea!!! Hugs, Kathi
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Thanks to ?
Hi folks, Someone replied to my message about my "too many to count" liver tumors with info about Sir-speres (SIRT...Selective Internal Radiation Therapy) and I just want to thank them. I will be discussing with my onc after next CT as this is something I would be willing to try if I am a candidate. MDAnderson is only two…
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HICCUPS AS CHEMO SIDE EFFECTS
Hi All! Strangely, my dad has non stop, chronic hiccups since he started chemo! Has anyone experienced hiccups as a side effect from chemo? Other than that, my dad has been reacting very well to the chemo drugs. Hopefully it stays like that for the rest of the 11 rounds to go. Thanks All!
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Large hospital or small town hospital?
Hi. My father has just been diagnosed with rectal cancer. He will need to have surgery and a permanent colostomy. He is 64 years old. We live in Wisconsin and he is wondering if he should have the surgery at "Marshfield," a larger hospital or at our hometown hospital. Any thoughts on this? Would his outcome be better at a…
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PLEASE sign this petition
go to: www.gopetition.com enter search: ns avastin and sign this if you are able and pass it on....
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Is rectal colon cancer worse?
Thank you for all your replies regarding my husbands pain after his illiostemy reversal, it is so good to have the support from you. He went to his G.P. today - his surgeon is away and he said basically everything that you have all said. He does have fissures and he prescribed a cream. One starts reading things on the…
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Naked Happy Dance with NED
Well, I had a CT scan, blood work, and colonoscopy last week and all came back negative. My surgeon did my colonoscopy and she said she wouldn't have been able to find my surgery site if there wasn't a staple in there denoting the spot!!! Yeeehaa! My CEA remains below 1. So cool. The only downside is that I might have…