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One year down, 40 to go!!!
Greetings all...It's been over 1 year since I heard my doc say "remission". For those of you who are new,here's my story. In Dec 04, I was diagnosed w/ crc and liver mets. Started my chemo (folfox) in January 2005. After 3 doses, the 3 spots on my liver seemingly disappeared and the primary tumor shrank about 15%. In May…
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Life DOES go on...got a new ride!!!
Well, now I must survive...I have car payments for 5 years...lol! I got a new Saturn Aura today...6Cyl, all the trimmings!! I must say, during my treatment, I was very hesitant about making any long term commitments (except for my beau...it's 16 years, lol!). This is my first...YEA! It feels soooooo good!! Hugs, Kathi
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Blood Thinners & Cancer
Hey all, I am hoping everyone is doing GREAT!!! Haven't posted in a while but wanted to get some opinions. Had a PE during my last surgery of 27 Feb 07 which made the surgeon and doctors agree I should go on blood thinners for about 9-12 months per industry standard, but now the doctor I am seeing for my blood thinning…
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The Bowels of Compassion
This may be more than you ever wanted to know about your colon and rectum! Ever wonder why there is so much compassion on this board? Well... did you know that in ancient days the bowels were considered to be the seat of compassion and love. Before they were usurped by the heart! The bowels have fallen out of favor of…
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I found a clinical trial
Hi all, I found a Clinical Trial at the Univ of PA that I think is the next logical step for me to take. Its a Phase I Trial of a new drug KOS-1022. Its a protein inhibitor. It comes in pill form which I will take every other day. Most of my time will be spent getting bloodtests and ECGs. I will be monitored very closely…
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what is the cost for AVASTIN
Well avastin is given $412 towards each prescription (300ml of avastin),towards the drug, when ever my mom starts it, how often do they give the Avastin? she gets chemo folfox and Oxaliplatin every second week, does that mean she gets 2 prescriptions of it ? how much is Avastin ?I heard around $3000 a month Canadian? is…
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OH WHERE OH WHERE IS JADOT?
Has anyone heard from JADot?
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Canadians help find colon cancer gene mutation
Canadians help find colon cancer gene mutation Updated Sun. Jul. 8 2007 1:39 PM ET CTV.ca News Staff Canadian researchers are announcing a new genetic find that may help them in the hunt for early signs of colon cancer. Researchers at the Ontario Institute for Cancer Research, Cancer Care Ontario and Genome Quebec joined…
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FOLFOX or FOLFIRI
what is the difference between the two, my moms oncologist is changing her to folfox/ox , she was on folfiri for 6 months and it didnt work..any advice
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Thoughts, Feelings, etc
After reading so many posts on feelings, thoughts, sensations, side effects, attitude, partners, etc I thought I would provide my experience and insight to all those interested: BACKGROUND for newbies: DX in July 06 with Stage II colon cancer in sigmond. Had emergency surgery to remove tumor. Pathology report stated no…
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stage IV
disease progression after surgery and chemo and having severe neuropathy after oxaliplatin. Anyone having experience with Erbitux or post chemo treatment for the neuropathy?
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Bowel Blockage Yikes!!!
Hi all, Just when I thought it was safe to back into the water...... I end up at the ER. On Sunday July 1st I got up ate a bowl of cerel and an hour later had the worst upper abdominal pains. I of course blew them off all day. I kept telling my husband something was wrong. We finally went to the ER when I started throwing…
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TPN Feeding Tube for Stage IV CC
My sister is inpatient due to being unable to eat for such a long time. The docs are preparing to feed her through her port in order to nourish her to allow for more chemo. Can anyone give me any info re: this way of feeding. Thank you so much.
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CTCA?
Anyone have experience with Cancer Treatment Centers of America? Their approach of combining naturopath and conventional is appealing to me. I have a feeling that I'll be going for a 3rd opinion after my appt with onc on wed. Just trying to decide between conventional, ie Sloan Memorial or MD aANderson vs this place. I've…
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info about spinal mets
Treatment of Vertebral Metastasis By Charles H. Weaver, MD July 06, 2007 The United States Food and Drug Administration (FDA) has just approved the Cavity Spinewand for treatment of cancer that has spread to the spine, referred to as metastasis to the spine or spinal metastasis. A large proportion of patients diagnosed…
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ANYONE NEVER HAD COLON SURGERY for stage 4
Just curious? for what reason if you didn't? or is my mom the only one?
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Reply to Foxy.
Hi Virginia, I'm sorry to hear that you are not well, the flu is bad enough but to have asthma on top of it is seriously scary. I hate prednisone ,in some ways it is as scary as chemo,I hope you only need a short burst of it. I have been waking of a night gasping for air to. Unfortunately it is neither asthma or flu. I saw…
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I need some advice just diagnosed
I just had a colonoscopy on Friday and I am in need of some info. I have had back and some abdomonal pain for awhile. I had colonoscopies in 2000 and 2003 polups removed both times. On friday they found cancer. CT Scan Clear and all blood work ok, no anemia. I go in Monday for a meeting with the doc, but this weekend is…
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Interesting News from Hopkins
http://www.johnshopkinshealthalerts.com/alerts/colon_cancer/JohnsHopkinsColonCancerHealthAlert_1176-1.html?st=email&s=W1R_070707_005COLON CANCER -- Colon Cancer Proteins Show Promise For Blood Test -- This article on new colon cancer biomarkers comes from a recent Johns Hopkins Medicine Press Release. Searching for less…
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To Sam725...
Hi Sandy, If you want to share...any word on your husband's CT scan results? I've been thinking of you and your husband and hoping for the best...
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Joint Pain Question
Hi all. Summary : Female, 45, Diagnoses stage 3 Rectal CA at 42. Chemoradiation ( 6 weeks ), surgery, (1 foot of colon, 95% rectum, ovaries and tubes), then 6 months of chemo ( 3 cycles of Folfox then stopped, finished up with 5fU) Question: I am having some nasty knee pain as a result of trying to walk/run myslef back…
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FUND RAISING where do I start
I am currently tring to fund raise for my mom to get/start AVASTIN (very expensive)in my area (Canada) Nova Scotia, we did a couple of benefits... any other ideas on how to fund raise? what to do? to put on?
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New Semi-Colon here!
I've actually been reading alot on here for the past week and have even given my "2 cents" but haven't introduced myself! Was diaganosed last November. Had surgery (in February to remove about 12 inches of colon. That all went well..bowels back to normal. Stage 3 (2 lymph nodes out of 28). I feel lucky about that. Will…
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The Colonoscopy
Okay... I've posted a blurb on "The Colonoscopy" in my journal. I've even used the words rectum AND anus!! I've also included a clip of Lou Rawls administering a colonoscopy. Too funny!! I hope your weekend is as good as can be! Rob; In Vancouver "A Cancer Journal" www.rob-pollock.blogspot.com
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surgery tomorrow
Hi everyone, I hope you all had a great 4th of July. I celebrated mine with good friends, good music and an awesome fireworks display. Thanks to all who posted good wishes. Although I'm not looking forward to surgery, I am ready to meet NED again! Take care, Jamie
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Hello Everyone
I have been absent for a long time, but I have been thinking of you. I finally finished my Masters degree!!!!!!! It was a terribly rough year for my family because I was so busy. I even missed my 5 YEAR NED anniversary with you guys (it was February 24th 2007) I hope that this silly note finds everyone well and happy. Now…
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sick and nervous
I finished my chemo about 1.5 wks ago and have been running around, joyously. Developed a sore throat, which then deteriorated. Went to see dr. yesterday. He said prob a virus but is putting me on antibiotics just in case. They did a blood test and my WBC count is very low -- neutrophils are 0.8! I'm going to do three days…
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fresh PORT A CATH blood clots
We had to rush my mom to the hospital yesterday morning due to the port a cath, blood started gushing out, soooo much I thought she was going to bleed to death, she just got it done a week ago, the doctors said it might of been a blot clot, they were not really sure they took a chest xray and it showed the port a cath was…
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Of flinches and words...can we say 'rectum'????
Ok, now that I said it...not so bad, right? I am so happy that this word, along with it's cousin, "colon", is getting more play in the outside world. And it's all the semi-colons that refuse to remain part of a 'silent' group!!! If I ever questioned the advancement of cancer treatment...well, all I have to do is look at…
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Amifostine? Ethyol? Anyone know?
I have my 'researcher' hat on. My sister's rad/onc has listed this as a daily pre-treat to radiation. It is an infusion that is given before rads to protect the dry mouth/sores. Some pretty hefty sides... The only usage I could find was for head and neck cancer...I'm wondering if this guy is going a bit over on patient…