-
Update
Had my last (I hope) radiation treatment to the brain today. Will do a head CT in a month. Radiation onc says the radiation will keep working for a month or 2, so doesn't make sense to get one now. Saw Onc yesterday. Will be doing camptosar and vectibix. Have done camptosar and erbitux without much success, but he thinks…
-
has cancer really changed
Hi all, I was thinking about a comment that Kat made in a post about how cancer has changed. I wonder if more of us are surviving now or is it because of the net that we hear more about it. I had a form of chemo that was developed when chemo was first used,as did some others like Virginia(Foxy). Perhaps it is not modern…
-
Feel like giving up
Hi everyone. I started radiation to the skull. I ahd 5 treatments and 10 more to go. I meet with my oncoligist tomorrow to get blood work and talk about treatment. I am so tired between my chronic back pain and the tumor in the skull which throbs 24/7 I don't think I will be taking this chemo once radiation is completed.…
-
Surgery tommorrow
Hi all, My husband's surgery is tomorrow at 4:15, we are both antsy. The doc said he would do it laposcopic and hopes for the best that he can find it without opening him up. He is looking for a spot in the mesentary that lit up on the PET scan.Please keep us in your prayers that all goes well. Still worried about the lung…
-
Something I found
I was cleaning out my den and came across a card my fantastic sister sent to me during my treatments. I thought it quite appropriate for many of us. Here it is: "I'll bet you've had about enough of people telling you how strong you are and how great you're doing during this awful, difficult period in your life. Maybe you'd…
-
squamous cell rectal cancer??
I've just joined this group and am wondering if there is anyone out there who has also been diagnosed with squamous cell rectal cancer? I'm in treatment now but this type of cancer is rare enough that there are no exact protocols to go by and I am, as I am sure many of you are, wondering how to make sure I get the best…
-
60+
How many of us are over 60 and using the internet. I think there are a lot of retired people who have a lot of computer skills and who just happen to also have colon cancer. Age 62 Jo Ann
-
Depression setting in
I'm feeling a little down and I can't figure out why. I only have 2 treatments left and I'm feeling so depress. I start out so gun ho and ready to beat this thing now I'm sleeping a ton and wonder how much time do I have left in this world. I cry all the time. Wondering how much of my children lives will I see. This chemo…
-
Welcome KPSeattle
Hi all CSN "semi-colons", I'd like to welcome KP to our club; earlier I posted about the NYTimes article and the woman featured in the "young mother diagnosed with colon cancer story" has responded to that thread...just drop down a few topics find it. Glad you found us, KP, your story was inspirational and brought tears to…
-
Steriods & weight gain
Does anyone else here have the weight gain from the steriods, mainly Decadron given at infusion time? I've put on a lot of weight since I started chemo. I have lots of bloating in my upper abdomen, does anyone know if this is typical of steriod usage? I'm so disgusted, I look fat, feel fat and it depresses me. I've never…
-
abdominal pain
I have had 20 treatments of radiation and xeloda, I have experienced the worst abdominal pain in my life. I was hospitalized due to dehydration and pain. I dont know if I am going to be able to finish the last 8 treatments. It really bums me up because I feel like a wimp. My onc said all my stomach lining was gone and…
-
Thanks to all that are here!
HI I am Beth, Stage 3 colorectal cancer, dx may07, had surgery to remove the tumor, now just finished my second round of chemo. I have posted a few times and I read alot of those who post here. I did do a web page that was fun. I just really want to say thank you to all those out there that post such wonderful support,…
-
Home again, home again....
Hi All, Just popped in to say HI after the latest surgery. The hysterectomy went well, and it IS Stage I. Had a few complications so I'm just getting home, and how wonderful that is! Thanks to all of you for helping me get past all my irrational fears and giving me courage. I thought about all of you while hitting the…
-
Never, Never Give Up...
Many of you will be familiar with the story of Terry Fox, the one-legged young man who set out to run across Canada to raise money for cancer research in 1980. He suffered a recurrence half way through his run and died about a year later. But his dream and legacy live on. To date over $400 million have been raised for…
-
Healing Meditation CD's or MP3's
Does anyone have one that they would recommend? I am looking for something to listen to that will help my body repair itself. Thanks Marianthy
-
new to site/clinical trial decision
Hi, I was referred to this site by a member on ostomyland. I was diagnosed with stage II rectal cancer on 7/3/07 and will be starting chemo and radiation next Tuesday. They called me today to see if I wanted to join a clinical trial which would add drugs in week and four to the 5FU that they were already going to use. Week…
-
Had first post-chemo CT scan
I had my first CT scan yesterday after finishing chemo earlier this month. They are making me wait a whole week for the results! I am ticked off, because I finished chemo, by golly, and why do I still have the lingering side effects!? I know, I know. It takes time. It's funny how your brain knows something but just doesn't…
-
Barbs results Skewed?
I was looking at Barb's survey results and that while it looks like a vast majority are under 50 at diagnosis (like myself), I think it might be that people under 50 are more likely to network on the internet. We see very few folks in their 60s here, and I think that is because many folks of that age do not use the…
-
wide awake
Hi Everyone, It's the middle of the night and I'm wide awake. For some reason every time I have surgery I end up backwards, awake at night and wanting to sleep all day! Does anyone have any idea as to why this happens and does it happen to any one else? I'm trying to make myself go to bad at the same time every night and…
-
Scoped @ 40, not 50
In looking at Barb's post, it seems that 40 is the new 50... A colonoscopy should be performed @ 40 based on the data from those that replied to the "survey"." Seems to me that insurance companies would benefit from paying preventative (screening, scoping, prodding, etc) costs than combative (chemo, surgery, etc) costs. I…
-
how do i get pass this
Hello all! I read here daily adn have posted every now and then. First of all A BIG CONGRATS Spongebob ;) A breif history........ My great grandmother died of colon cancer My grandmother had it but it was caught in time My mom died at age 46 5 years ago :( I had a scope done last September, only problem was that when they…
-
Juice Plus+
Anybody use it or know anything about it? I have a friend (of a friend) who just started selling it after using it herself for 2 years. She is also a RN BSN and is sold on the nutritional value. Friend just started taking it and noticed an increase in energy already.
-
Semi-Naked Happy Dance :)
Hello all. My PET/CT was negative!!! Yea!!!! I will dance the full happy naked dance next week after my colonoscopy!! 3 years cancer free - stage 3 rectal cancer. Never give up! Believe! Pray! Laugh and Dance! Can you tell I'm relieved? Barb
-
Starting treatment for rectal cancer
Hi everyone, On June 7th I was told that there was a tumor in my rectum. After over a month of various testing I finally started treatment today. I will be on chemo 24/7 for the next 6 weeks and will have 25 rounds of radiation. Other than extreme shock and sadness the first two weeks after my diagnosis i can honestly say…
-
Chemo side effects
Dear friends, i will be doing my 5th round of chemo next week (folfox and avastin) and I have so far experienced the following side effects: -Diarrhea -abdominal gas -Hair thining -Sensitivity to cold on tip of fingers and when drinking cold drink. I'm wondering if you experience the side effects above how do you cope with…
-
Abdominal Gas
Sorry for the indelicate post. My husband has been taking camptosar and avastin and is now off the drugs (for three weeks). He is having a real problem with abdominal gas. Has anyone else had this problem. He had a colon resection operation in May of 2006. We have followed a low-fat vegetarian diet for more than a year…
-
Newly diagnosed with rectal cancer/wait until November to have surgery?? Need advice, Please.
Hi. My father was recently diagnosed with rectal cancer. He has been told that he would have to have surgery and a permanent colostomy. We don't know the stage of the cancer, but the grade is a "2," neither fast growing or slow, it is in between. The insurance company sent him a 2 page letter explaining what they would…
-
OKAY SPONGEBOB
Haven't heard or read anything on SpongeBob lately. Is he security our waters again or just still enjoying his honeymoon (ha, ha)?
-
stage IV progressing
Is becoming vegetarian the key to NED? Has anyone heard or experienced Graviola herbal treatment?
-
CSN Semicolon Milestone!!
WOW!! Sometime today (or tomorrow) someone will post the 50,000th note to this board!! We should have some kind of prize! 50,000... that is one heck of a lot of conversation on colon and rectal cancer. Glad to be a part of it... Rob; in Vancouver (_*_)