Please need some inspiration today
Comments
-
Inspiration
Patti,
I'm not really a inspiration and I'm not NED. I am stage iv and I'm NEAD. Close? You will get responses from stage iv's that are much further out than I am and that are NED. They may not be on today, though. NED is great, but HERE is what I strive for. I have a very good life, living with canzer. It isn't perfect but it wasn't before canzer, either.
This disease takes so much from us, but for everything it's taken from me, something of greater VALUE has taken its place. I like myself more. I have more moments of true joy. I appreciate and recognise the human blessings in my life. Treatment sucks. This disease sucks. It's a Wonderful Life. LOL
Go do something to make yourself smile. You need to have fun every.single.day. Laugh. Go see a funny movie, watch Comedy Central, call a friend to tell you jokes....dance to the Village People. Go read Janet Evanovich's Stephanie Plum series. She just released #15 so the library will have the other 14 available. #1 is "One for the Money". You'll laugh yourself silly. Fun, easy read.
Be kind to yourself today,
Kimby0 -
Patti
Hi, Patti
Kimby has so many of the same feelings that I have and I like what she is saying. Cancer has been both a curse and a blessing. The irony of the disease is that what has tried to kill me has actually made me stronger and a better person as a result. I like myself more and I try to help people more and I try to find "moments" of happiness that Kimby spoke about. With or without cancer, I think that is true. The older we get the more responsibility we have and so the "slices" of fun are out there but not like we were when we were young and carefree. Once you find them, you just have to enjoy. Cancer has opened our "awareness" of those things and we now react much quicker with much more appreciation.
Patti, I'm looking at your picture and it seems to me that you have a chihuahua dog. I just watched "Beverly Hills Chihuahua" last week and it was a very funny movie and it was a little bit of tear jerker in spots...I love dogs and am a sentimental sap these days, but I found it most enjoyable. Please rent it and watch it if you have not already.
Patti, I'm a Stage IV myself, had a huge tumor on the liver that we wiped out with RFA and CyberKnife. I've recently been diagnosed with 2 spots on the pleura of my lung, and I've waited awhile for the results and then I found this board, quite by accident actually, and I've turned my voice outwards to speak to people like yourself and others who I may can provide some information that could be of some help. That's been a big help to me while I'm waiting for my situation.
I like what you said, that you are so far "asking" for things on the site, instead of contributing. I've been trying to contribute, but may find myself shortly "asking" for support or something. But that must be the beauty of this board and all the wonderful people that I've spoken too and have yet to speak to. I just joined on June 9th a few weeks ago and it's been a blessing seeing that others have a situation different or similiar to what I have.
Kimby, I've not had the opportunity to meet you yet, but I read your posts and I must say that today is the best one you've posted. I identified with that one. You have a positive attitude and a sweet spirit and I believe that you are sincere in your words. It was nice to meet you today.
Ok, Patti, I'm like Kimby, don't know about being an inspiration, but I hope I was able to lighten your load a little bit this afternoon.
Go rent Beverly Hills Chihuahua......I've got pictures of my dog, Sundance, out on My Expressions of my webpage.
Take care
-Craig0 -
Inspirationkimby said:Inspiration
Patti,
I'm not really a inspiration and I'm not NED. I am stage iv and I'm NEAD. Close? You will get responses from stage iv's that are much further out than I am and that are NED. They may not be on today, though. NED is great, but HERE is what I strive for. I have a very good life, living with canzer. It isn't perfect but it wasn't before canzer, either.
This disease takes so much from us, but for everything it's taken from me, something of greater VALUE has taken its place. I like myself more. I have more moments of true joy. I appreciate and recognise the human blessings in my life. Treatment sucks. This disease sucks. It's a Wonderful Life. LOL
Go do something to make yourself smile. You need to have fun every.single.day. Laugh. Go see a funny movie, watch Comedy Central, call a friend to tell you jokes....dance to the Village People. Go read Janet Evanovich's Stephanie Plum series. She just released #15 so the library will have the other 14 available. #1 is "One for the Money". You'll laugh yourself silly. Fun, easy read.
Be kind to yourself today,
Kimby
Thanks Kimby and Sundance, I read alot of what you post. I feel like I know both of you already. I am new to this site and find myself looking and or posting everyday. Kimby what is NEAD? Sundance my baby girl dog is a Yorkie and is cute as a button, I have two kids ages Ally 10 and Austin 13 and 2dogs yourkie and Portugese pedengo and a beautiful cat. They along with my loving husband since highschool keep me so busy and they are what I live for. I just have days when I feel so low and I am having to go soooo deep to keep up my spirits. I must say that finding that place inside of me that I can go to to keep positive is something I could not do before. I will try and use some of your suggestions on keeping positive and appreciate so much you taking time out of your Sunday to right back to me. It means so much to me that I get response back so quickly, this board is everything to me right now so, I thank you from the bottom of my heart!0 -
Ask, ask!
This is why we are all here. Sometimes we ask, and sometimes we offer. At various points we do more of one than another. This is normal. This is fine. This is why we are here. There ARE stage 4 NED's here--they may just not be on right now. You are contributing by asking, because everything that is posted here makes us think, appreciate, pray and take us places we might not have gone otherwise. God bless and I'm praying that NED is in your very near future.
Hugs,
Kirsten0 -
Hi Patti
Hi Patti,
I feel like I need to contribute to your post. My husband has stage 4 colon cancer that has spread to both his liver and lungs. After a year of treatment and one surgery to remove tumor in his colon, he is now NED. It can be done, you have to be positive all the time and you need a good support system. You have to find a oncologist that you like and trust and do what they tell you to do. My husband, has done everything they told him to do - he also just recently confided in me that he pretended like there was nothing wrong with him and continued on with his daily life. Positive thinking goes a long way - you need to fight, because it's worth the fight. As I said to my husband way back at the beginning of this journey - you need to Fight the good Fight.
If you have any questions or just need to vent please do not hesitate to come on here or you can send me a private message.
Good Luck to you
Sandi
(Caregiver)0 -
Lots of folks
have already talked well about inspiration. I'll just send along the following from a favorite poet of mine, Mary Oliver, who I was reading earlier today. She speaks a lot to all the little marvels of each day, and of life.
At Blackwater Pond the tossed waters have settled
after a night of rain.
I dip my cupped hands. I drink
a long time. It tastes
like stone, leaves, fire. It falls cold
into my body, waking the bones. I hear them
deep inside me, whispering
oh what is that beautiful thing
that just happened?
all the best, Leslie0 -
NEAD and NED
Hi Patti,
I'm not Kimby, but I can answer your question of what NEAD is. NED, as you probably know, is No Evidence of Disease. NEAD is No Evidence of Active Disease. This is what I currently am (I think), at least going by my last set of CT and PET scans in April. My CT showed several subcentimeter nodules, which haven't ever totally gone away. Nothing else showed up anywhere. My PET scan, however, showed absolutely nothing. What this meant at the time of my scans was that although I do have something in my lungs, it was not showing up on the PET as metabolically active disease. My oncologist doesn't know if that means what's in my lungs is just scar tissue or if it's just the cancer in its dormant state which may grow back again if left to its own (I'm on maintenane chemo to keep it from growing back). So, NEAD means nothing is showing up on the PET, but something may still have shown up on a CT or MRI.
Kimby definitely had a great post and I always appreciate what Craig writes as well. I guess I would just echo what they've said- there's a lot of living still to do. I've found laughing at stupid little things that I might have not even found that funny before, can make me giggle or even sometimes laugh hysterically. Find a funny book. Even the joke sections in Reader's Digest make me smile and laugh. Laughing is good for the soul!!
I'm pretty sure you could even find joke websites that could have you in stiches before long!
Everyone is allowed to have some down days- our sad and depressed emotions are certainly are certainly understandable with all we go through with this lousy disease, but you've got to take care of your spirit and keep that chin up! Find ways to forget the illness for a while- go out and have fun, watch stupidly funny movies (anything with Chevy Chase in it does it for me everytime).
God bless-
Lisa0 -
new on herelisa42 said:NEAD and NED
Hi Patti,
I'm not Kimby, but I can answer your question of what NEAD is. NED, as you probably know, is No Evidence of Disease. NEAD is No Evidence of Active Disease. This is what I currently am (I think), at least going by my last set of CT and PET scans in April. My CT showed several subcentimeter nodules, which haven't ever totally gone away. Nothing else showed up anywhere. My PET scan, however, showed absolutely nothing. What this meant at the time of my scans was that although I do have something in my lungs, it was not showing up on the PET as metabolically active disease. My oncologist doesn't know if that means what's in my lungs is just scar tissue or if it's just the cancer in its dormant state which may grow back again if left to its own (I'm on maintenane chemo to keep it from growing back). So, NEAD means nothing is showing up on the PET, but something may still have shown up on a CT or MRI.
Kimby definitely had a great post and I always appreciate what Craig writes as well. I guess I would just echo what they've said- there's a lot of living still to do. I've found laughing at stupid little things that I might have not even found that funny before, can make me giggle or even sometimes laugh hysterically. Find a funny book. Even the joke sections in Reader's Digest make me smile and laugh. Laughing is good for the soul!!
I'm pretty sure you could even find joke websites that could have you in stiches before long!
Everyone is allowed to have some down days- our sad and depressed emotions are certainly are certainly understandable with all we go through with this lousy disease, but you've got to take care of your spirit and keep that chin up! Find ways to forget the illness for a while- go out and have fun, watch stupidly funny movies (anything with Chevy Chase in it does it for me everytime).
God bless-
Lisa
I have just been diagnosed with colon cancer at the Mayo Clinic and will be having surgery for the cancer as well as a temporary colostomy in a week. I am very concerned about life changes with the colostomy and wonder how those of you who have had one have coped.0 -
Hello from Germany
FAITH AND OBEDIENCE IN GOD
I was diagnosed in 2006 with Met to the liver. Initially this was very, very strange to adjust to especially since I had other medical issues. But I know without a doubt that all of my inspiration, Peace of Mind, Patience and Perseverance is from my Faith in God. I know that no matter what happens he will never leave nor forsake me even in death...All healing comes from God...The Peace he gives is not as the world gives so there is no need to worry or be afraid. Jesus is The Way, The Truth and The Life.
God is my motivation or inspiration regardless of the circumstance. No one can provide more inspiration than God...he is our CREATOR...STAY IN THE WORD...EAT THE WORD DAILY.
Charles0
Discussion Boards
- All Discussion Boards
- 6 CSN Information
- 6 Welcome to CSN
- 121.9K Cancer specific
- 2.8K Anal Cancer
- 446 Bladder Cancer
- 309 Bone Cancers
- 1.6K Brain Cancer
- 28.5K Breast Cancer
- 398 Childhood Cancers
- 27.9K Colorectal Cancer
- 4.6K Esophageal Cancer
- 1.2K Gynecological Cancers (other than ovarian and uterine)
- 13K Head and Neck Cancer
- 6.4K Kidney Cancer
- 671 Leukemia
- 793 Liver Cancer
- 4.1K Lung Cancer
- 5.1K Lymphoma (Hodgkin and Non-Hodgkin)
- 237 Multiple Myeloma
- 7.1K Ovarian Cancer
- 63 Pancreatic Cancer
- 487 Peritoneal Cancer
- 5.5K Prostate Cancer
- 1.2K Rare and Other Cancers
- 540 Sarcoma
- 732 Skin Cancer
- 653 Stomach Cancer
- 191 Testicular Cancer
- 1.5K Thyroid Cancer
- 5.8K Uterine/Endometrial Cancer
- 6.3K Lifestyle Discussion Boards