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Colorectal Cancer

Still has pain
Well Jim is still in a lot of pain. Tomorrow he is having an EDG done to check for an ulcer. I have begun to lose faith in the doctor that did his Y-90. He told us only 2% of patients could develop an ulcer, but I am reading 26% in studies....Which is it? Not that it matters really, the damage has been done, but I think he…
Steroid Receptor
So as a result of my chemo, I developed dry eye syndrome. I tried many OTC eye drops and nothing helped. I finally went to the optometrist and they prescribed steroid eye drops and anti-bacterial gel. I did that for a week and went back for a follow up. when you go to the optometrist, the first thing they do is an eye…
Visit to Surgeon - Another 4 Months
We went to see surgeon yesterday in hopes of obtaining date to have reversal surgery done on ileostomy. Should of known it would be something else that doctors neglect to inform their patients about. We now have to wait until mop up chemo is complete which will be middle of July as surgeon cannot perform surgery while…
How to Motivate Someone to Get Better?
My husband has been fantastic through all of this cancer crap I've gone through. He's taken care of me like a parent does when I've been bedridden or unable to leave the house. He's never been good about making meals because he and I eat very differently. There are some things we agree on but he likes spicy and fattening…
Surgery vs Cyber knife liver and lung
My sister has multiple smallish metastasis lighting up and liver and lungs. Her oncologist went to the tumor board and his thoughts were surgery on the liver and cyber knife on the lung with another round of big chemo afterwards. Yesterday my sister and I went to see the liver surgeon and had our first appointment with a…
Some sort of PTSD
Is this just me? No matter what I am going in for, chemo, scan results, whatever, I always have this fear in the back of my mind that he is going to tell me something is horribly wrong, and I must be hospitalized immediately, or that I have 2 weeks to live, or something along those lines. I am wondering if it is just me,…
CA19-9
has anyone had this tumor marker test done? For some reason my husband’s oncologist ran it, came back fine at 20 under 34 or maybe it was 37 is normal. it has not been tested before so I have nothing to gauge it against. He doesn’t see her for a month so he won’t ask her until then, maybe it’s because the bile duct tumor…
Anti-inlfammatory?
I have been having quite a bit of leg pain lately, possibly sciatica, or a different pinched nerve. I used to take aspirin liberally, but I have been warned to limit my use because of the risk of bleeding post-surgery. I tried iburprofen, but post-chemo, it caused some weird symptoms, so that is out. Prednisone is…
In remission or false hope
My wife is stage IV colon cancer with 2 suspected metastasize lymph nodes by the aorta. After 8 chemo cycle with 1 additional cycle thrown in, her 4th Pet scan last Wednesday (in 10 months) finally showed no convincing evidence of FDG-avid malignancy or metastatic disease. She was praying and hoping for this. Her…
Percentage question
I have a friend that had breast cancer about 7 years ago. She hasn't had a recurrance. She told me she's scared because her oncologist said there's a 50% chance it will come back. Here's my question. We all have an almost 50% chance of getting cancer including people that don't have it now. So doesn't that mean that she no…
The Big Talk Is Tomorrow
I am headed to SC tomorrow to meet with my oncologist to discuss mopup chemo and where I go from here. What a ride this has been. It has definitely made me think twice about how quick life can change on the spin of a dime. I was going to leave on Saturday but woke up having horrible pain and knew I could never make the…
Two Years
Two years ago I faced surgery for an obstructive tumor in my colon. I did not know if I would live to see another Spring (my favorite season, despite the allergies). After surgery, the results came back stage IIIb, and I did a single treatment with oxaliplatin, which I discontinued, and four months of capecitabine…
Therapist strongly suggested Hospice
Needless to say, I'm blown away and it's not helping me to climb out of the black hole that my Oncologist put me in with his harsh portrayal of my situation. No one can tell me that he could not have sounded so negative and dire. He crushed my spirit. I have felt like giving up and just way more physically sick since I saw…
Ostomy bag covers
Has anyone made their own? I'm going to try it. I got a pattern off of the internet and I'll see if it works or is not worth it. If anyone has any tips for making these I'd really appreciate it! Maybe I'm better off just buying a few that are premade, I'll see. Thanks! Jan
Lonsurf or Time to look for a Trial?
Hi, This is the first time I have been on this forum. My husband was diagnosed with Stage IV Colon Cancer with Mets to the liver in December of 2015. He is amazing! He has never given up because he wants to be here for our family, and he continues to work full-time because he loves his job. He has had over seventy chemo…
CT Scan results, 2 months after last Y90 very bad
Saw my Oncologist yesterday, he brought the hammer down! He was grim and tried to take every last bit of my hope. My scan results were bad indeed. I have spots all in my lungs now, I only had a couple of tiny ones before. There was a lot of new dark areas in my liver. The doctor actually told me that the two Y90 treatments…
Chronic diaherra
I am six years out from surgery for colo rectal cancer. Have had chronic diaherra every since. Some days are worse than others. I have a kidney nephrostomy tube in my right kidney as my right urerter has a large stricture in it from radiation. This keeps me from swimming which is what I was doing before the tube. Now I…
Still waiting
So my initial diagnosis was over a month ago, and I'm still waiting for the staging to be done. Colonoscopy was 2/12, 0.9cm polyp removed from rectum near sigmoid. "The talk" with my GI was 2/19. CT scan (good news there) was 2/20. Initial consult with surgeon was scheduled for 2/27 but went completely sideways when I got…
APR Bladder question
Richard had the APR last Tuesday. He the catheter was removed Saturda. He was unable to go after 6 hours so the cathed him again. They also started flomax. the catheter was removed this morning at midnight. He was able to go little around 10:30am. an ultrasound showed he still had a lot of urine in the bladder. So he is…
Ostomy Bag and Gas
I've had my illeostomy for just over 5 years now. I've never had a problem with gas or noises. I've had the odd time where it's made a noise or filled with gas but it's been few and far between. Suddenly, in the past two weeks it's really noisy and makes some very clear fart noises several times a day. And gurgling noises…
Back in the ER
wrll, my troublesome back pain that was a symptom of my last liver abscess is back. Since it’s gotten worse over the last two weeks and now it hurts to take a deep breath and I’m not getting as deep a breath, my oncologist suggested heading to the ER to get checked out. So I’m now comfortable in the ER after a dose of…
Some good news
I figured I would share some good news. Today is the start of my last chemo round! It’s been a long 8 months for sure. Next up is new scans and blood work in mid March for a new baseline. If they’re clear, we’ll meet with surgery a few weeks later to start planning my total colectomy and my hysterectomy. My oncologist is…
Knee Replacement and Mop Up Chemo
Husband had knee replacement 9 years ago and is now going through mop up chemo. Currently 3 days on chemo with 11 day grace period. Just completed second treatment yesterday and he tells me today leg that had knee replacement is bothering him. Wondering if anyone out there has had similar issues. Thanks, Kate
High Bilirubin
Hello Friends, My total bilirubin came out 2.0 and Indirect Bilirubin is 1.0(normal is less tha 0.9), direct bilirubin is also high little bit. I wonder anybody has similar or almost the same bilirubin level. Would you suggest any suplement or food to lower the numbers. My sclera on eyes little bit yellowish now but skin…
Specifically mucinous adenocarcinoma
Hi Everyone, **** just finished his 28th treatment. He unhooked yesterday and helped me set up my classroom all day today. He is a wonderful man. He wants to know who out there also has mucinous adenocarcinoma and what your story is. In other words is there a pattern with this cancer? Did you find a treatment that worked?…
Try to read the tech
Am I the only one who tries to "read" the tech when they help you out of the scan machine. I know they can't read the results like a radiologist or doctor, but still, every time, I am looking for every look of pity or smile as if they saw or didn't see something on my scan. Yesterday was another pet scan to see if those…
17 Years Later!
17 Years Later! Hello CSN Family, Just wanted to share hope and inspiration to anyone starting this journey. Brief History: March 20, 2002 I had my surgery for Rectal Cancer at age 40. Stage 3C with 10 positive Lymph Nodes Had follow up Chemo and Chemo/ Radiation Combo No Recurrences So on this beautiful sunny day and the…
Extramural Venous Invasion
Hello everyone. I had my first colonoscopy since turning 50 and the doctor found what he suspected was a very early cancer (he did not remove it at the time but a biopsy confirmed cancer cells). I recently had surgery to remove my sigmoid colon. The pathology report came back as Stage 1. Seventeen lymph nodes were all…
Scan today
so yea, having the ole scanxiety! I finished treatment last December. The first scan at the end of 2018 was NED. It’s been 3 months and time for the next one and of course I can’t sleep. I wish I could turn off my brain. My sister, who I dearly love, tells me I must meditate and ”see” myself as healed. I really want to...…
Happy Birthday JanJan
- I know you got allot of Birthday wishes on my Birthday thread, but you get a thread all of your own - Thinking of you today, and hoping it is filled with all of the good things in life. Family, friends, Food and life. Tru

Colorectal Cancer

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