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colon cancer blue ribbons
I looked online for cancer ribons and found the one I displayed it is a magnet and is on my car...I paid 6.95 plus shipping for it . I hope everyone here will buy one and display it proudly...
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count down to husbands surgery
Well we go monday for his bladder cancer surgery and I got to tell you I am gettin worried. I think because of what I have been throught and I know what the out come could be I am more aware of all the what if's and what not's...I am very positive about all this but it is the VA and they never talk to me only him. The only…
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pain management: hypnosis, biofeedback, intrathecal pump
Dear Friends, As many of you know, I've been having severe pain caused by a tumor at the sacrum.(Originally diagnosed in February 2009; further spread seen in August and in January.) I've had chemo and two courses of radiation therapy to slow the growth of the cancer and reduce the pain. All of that worked temporarily, but…
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Another long-term Stage IV survivor
An acquintance sent me this link to a story about a short opera co-written by and performed by a colon cancer survivor. Our acquaintance is a family member of the other co-writer and told me that although the story doesn't say so, Rickard was a Stage IV patient. I hope you enjoy this short article. I did.…
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Thank You and Update
I just wanted to reach out and say thank you to those who have continued to post encouraging messages for me on my husband's blog. I just went there this morning to read the guestbook and had two messages I hadn't seen yet from CSN members. It amazes me the support that is still being sent my way from this community after…
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Eleven years and counting!
Just celebrated my eleven year anniversary of my diagnosis of stage 3 rectal cancer. Completed my colonoscopy recently and am ALL GOOD to go for another 3 years. Sorry I have not been here to post in ages-but life is so busy and beautiful at the same time. Oldest is a senior in high school, number one in her class and…
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prayers answered-I am Stage 1
Hello all, I had my lumpectomy and sentinel node biopsy on Tuesday and my pathology report just came in --I am officially Stage 1 !! All 5 lymph nodes removed were negative and my margins were clear...I am feeling blessed and very grateful. I know I will still have radiation and not sure yet about chemo, but enjoying the…
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Opinions Requested
I have been considering and thinking about getting a blue ribbon tatoo with the word survivor on it for awhile, but I have never had one and would like to know the pros and cons if anyone can provide. Thanks :)
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Update on my second clinical trial
After 5 weeks of treatment with Erbitux, Sorafenib and Irinotecan, today I went to hospital to have CT scan. The preliminary result shows "significant decrease" of the size of nodules in my lung and the lymph nodes in my chest area. Liver lesions have not changed much in size, but the "activities" are lower. It could mean…
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Anyone else have Facebook?
Just wondering who else has Facebook. We all should add each other as friends. If you do Facebook and want to add me please PM me your name and I'll add you. Life is funny sometimes Brooks
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Woo Hoo
Today is my 3 year cancer free date. I had my resection 3 years ago, woke up with a temporary ileostomy, unerwent chemo and radiation, then 6 more months of chemo. Had my reversal, endured a difficult 2 years dealing with bathroom issues, finally things are alot more manageable. Soon will be celebrating 20 years of…
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Question about Avastin
I have been on Xeloda since September. One week on 3600 mg a day and one week off. My doctor just added Avastin last Friday. I had a lung biopsy 3 weeks before that and he wanted to wait 3 weeks to start the Avastin. They day that I ended up getting the Avastin was not when I was taking the Xeloda. It fell in my off week.…
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Sparks
Hey Folks, I wanted everyone to know that I posted a poem on my “about me” page. I’m not a poet, or any other kind of writer; just a scribbler. I’ve never shared anything I’ve ever written, but snommintj’s post yesterday compelled my to put it out there. During The Great Religious War of Jan ’10, I remained on the…
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chemo pump
I have newly found out I have colon cancer. Monday I am to be fitted with a port. My question is: will I be happy withe pump or the old fashioned way, whatever that is,to get chemotherapy?
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GREAT NEWS FROM ONC
I am so excited just came from visit w/onc and he said blood work still good and I start my Xeloda today and go back March 12th right before I start my next round and the good news is it will be my last round I will finish up March 25th....I am happy to be getting off chemo and still being cancer free and all in the colon…
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my breast cancer update...
Hello all, Some of you are probably thinking I am on the wrong discussion board... I am an oldie here as a caregiver for my husband who recently passed away on 9/25/09 and now newly diagnosed myself with breast cancer. When I posted 2 weeks ago, I was overwhelmed and touched by all of your words of encouragement, faith,…
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Radiation Side Effects ~ anyone have any advice on unbearable pain?
I am new to this discussion board, posting this hoping to find some insight for my Best Friends Husband, he was recently diagnosed with rectal cancer and is undergoing radiation 5 times per week and taking chemo pills (8 per day ) he is a little over two weeks in and has around 3 weeks to go i believe. It started off him…
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SMILEEEEEEEEEEEEEEEEEEEE...and SINGGGGGGGGGGGGGGG...and WALKKKKKKKKKKKKKKK
C'mon Semi Colons.......I think we need a "We Are The World" sing along also...We all have or are fighting a battle all over this world..We should start finding a way to make us heard louder than ever before...Colonpalooza is great, how about a rendevous at a state capital bldg. or in front of a National Prime Time…
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Friday Riddle
Remember NO googling or searching the internet allowed, and good luck ! RIDDLE: A firefighter stood on the middle rung of a ladder, spraying water on a burning house. He then climbed up 6 rungs before the heat of the flames caused him to come down 10 rungs. After some minutes he was able to climb 18 rungs to the very top…
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Scan results
Hi everyone, I got a call from the Onc today with my results from Tues. scans. It seems the spots that have been on my lungs all year are still there, despite increasing the iriontecan dose. I am so disappointed, I guess I was really expecting at least some shrinkage. But, I should know better than to "expect" any certain…
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CLEAR colonoscopy!
Hello all update on February medical stuff Yesterday my colonoscopy was CLEAR! This is my first colonoscopy after the GI surgery 9/08. Last week had a good gynecological exam too, especially after dealing with very dry vaginal tissue for months (thanks goes to my naturopath). Doc said tissue was "better than most folks in…
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REMINDER CC BLUE DAY 3/5/2010
This is just a reminder to wear blue on march 5th it is our day to let the world see our blue stuff....
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Friday Thought of the Day
“You have to have confidence in your ability, and then be tough enough to follow through.” ~ Rosalynn Carter
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How many of you out there have copies of their PET scans on their home computers?????
How many of you out there have copies of their PET scans on their home computers????? Call me a nut, but I have every PET scan I’ve had with the reading doctor’s report on CD. I have even gotten them before my doc gets them. They have really helped me in the decision process involved with this %^&$ cancer. Kerry
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Prayers, Chants, and Incantations!
Ok, listen up! I need all you guy's help. I need you to go to your Deity and get me some favor. I have never prayed nor asked for healing, and I won't start now. All I've ever asked for is the strength to endure treatment. But now I need you guys to gather your forces and ask for my cancer to have not advanced since…
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Scan Anxiety so soon?
Yikes! I have blood work on March 16th and then will be scheduled for a CT scan. My follow up with the onc for results is April 6th. I'm a month late getting a yearly colonoscopy because I have to schedule that around a day hubby can have off to take me. I'm scared, Freaking out! I cannot imagine being like this for 7…
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Informational Post: Internet Privacy
I just wanted to bring attention about privacy on the internet. If you put your name pretty much ANYWHERE on ANY page on a website or if you are part of a group that publishes online PDFs or documents of meetings, the chances are very good that some info about you will show up in a search. I'm sure that many of you already…
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Metastasis, only 21, and desperate
Hi everyone. In January of this year I was diagnosed with stage 3 rectal cancer. I did 6 weeks of radiation and chemo (5FU) followed by a surgery which included a colostomy and partial vaginectomy. I finished up with four rounds of chemo. Two weeks after my last chemo a CT scan was done and it came back positive. Further…
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Kate58
I have not seen Kate posting lately. Anyone heard from her. Sure hope she is ok. Tina
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posted on cancer forums about the million suvivors march
I posted info on this site hoping to get more members and also where to go to buy the blue ribbons. Hope to help spread the word on colon cancer.I am trying to help our cause... Louann