SMILEEEEEEEEEEEEEEEEEEEE...and SINGGGGGGGGGGGGGGG...and WALKKKKKKKKKKKKKKK
Comments
-
I want to enlist!SandyL said:Sounds great
to me too. Would love to be a part of it.
Sandy
I had just decided this week that I am going to have my dear friend that makes blingy T-shirts create one for me that says:
CURE: My Favorite 4-letter Word!!!
I plan to wear it proudly with intentions of it initiating dialogue that will allow me to spread my story and the word about the importance of early detection of all colon related cancers.
There is power in numbers and we are an awesome sum of survivors and fighters. Consider me recruited!!!
Joanne0 -
I got 4 Cancer shirts
Let me know what I can do to help. You can always count me in Buzz!!
1) I have one PINK shirt that says "I support the girls" "Breast Cancer"
2) "I hate Cancer"
3) "Kill VAL" my brother had 10 of them made after I named my cancer Val
4) "Colorectal Cancer" "It's a pain in the butt"
5) "Hug your Cancer Nurse"
Brooks0 -
" I named my cancer Val"just4Brooks said:I got 4 Cancer shirts
Let me know what I can do to help. You can always count me in Buzz!!
1) I have one PINK shirt that says "I support the girls" "Breast Cancer"
2) "I hate Cancer"
3) "Kill VAL" my brother had 10 of them made after I named my cancer Val
4) "Colorectal Cancer" "It's a pain in the butt"
5) "Hug your Cancer Nurse"
Brooks
So funny because I named my newly resected colon Larry after one of the three stooges. Larry was a total mess for awhile until he got the hang of things.
-Pat0 -
I agreeJaylo969 said:" I named my cancer Val"
So funny because I named my newly resected colon Larry after one of the three stooges. Larry was a total mess for awhile until he got the hang of things.
-Pat
this cancer needs to come out of the bathroom, the other day i got some new ostomy supplies and i retreated my bedroom, my heart raced would these be the fix i needed i told my family not to bother me for atleast 40 mins and i meant it ( with the knock on my door and die voice) i opened all my supplies, beathed deep, cleaned the area, prepped got angry cause there was no good place to stick it, prepared more and then when i finally got the fix all i wanted to do way lay in the dark and enjoy the temp high, i felt like a drug addict, hiding my fix, like a heriun addict, thiss cancer has consumed me and changed me in ways i do not like. i feel trapped and scared people i don't know will see me and know i have a pooh bag, it is not how i want to feel but i do.
i know if this cancer was not so taboo too talk about i would have been DX alot sooner cause i would have been more aware that my symptoms were pointing towards cancer.
awareness of the signs will help so many people we have to get the word out.
i talk to everyone about this cancer i can,
any i have educated my kids on what to look for something i was not made aware of.
early signs are any change in bowel movements that last more than a week and seem to reoccure often.
IBC, Crones, UC, Diarrea, Constapation, Blood in stools, this needs to be on a billboard some where, and check up way before 40 for anyone with a family history of any of these sysptms and colon/rectal cancer
listen to people and pay attention if some one you know has bathroom issues insist they get checked. take them if you have to
we can't loose this battle
Live laugh play
winney
by they way my ile is monsterileo0 -
Never ever be ashamed Winney.......WinneyPooh said:I agree
this cancer needs to come out of the bathroom, the other day i got some new ostomy supplies and i retreated my bedroom, my heart raced would these be the fix i needed i told my family not to bother me for atleast 40 mins and i meant it ( with the knock on my door and die voice) i opened all my supplies, beathed deep, cleaned the area, prepped got angry cause there was no good place to stick it, prepared more and then when i finally got the fix all i wanted to do way lay in the dark and enjoy the temp high, i felt like a drug addict, hiding my fix, like a heriun addict, thiss cancer has consumed me and changed me in ways i do not like. i feel trapped and scared people i don't know will see me and know i have a pooh bag, it is not how i want to feel but i do.
i know if this cancer was not so taboo too talk about i would have been DX alot sooner cause i would have been more aware that my symptoms were pointing towards cancer.
awareness of the signs will help so many people we have to get the word out.
i talk to everyone about this cancer i can,
any i have educated my kids on what to look for something i was not made aware of.
early signs are any change in bowel movements that last more than a week and seem to reoccure often.
IBC, Crones, UC, Diarrea, Constapation, Blood in stools, this needs to be on a billboard some where, and check up way before 40 for anyone with a family history of any of these sysptms and colon/rectal cancer
listen to people and pay attention if some one you know has bathroom issues insist they get checked. take them if you have to
we can't loose this battle
Live laugh play
winney
by they way my ile is monsterileo
0 -
I named mine Henry. Henryjust4Brooks said:I got 4 Cancer shirts
Let me know what I can do to help. You can always count me in Buzz!!
1) I have one PINK shirt that says "I support the girls" "Breast Cancer"
2) "I hate Cancer"
3) "Kill VAL" my brother had 10 of them made after I named my cancer Val
4) "Colorectal Cancer" "It's a pain in the butt"
5) "Hug your Cancer Nurse"
Brooks
I named mine Henry. Henry got cremated with my colon. Not sure he deserved so much attention.0 -
Pat...Jaylo969 said:" I named my cancer Val"
So funny because I named my newly resected colon Larry after one of the three stooges. Larry was a total mess for awhile until he got the hang of things.
-Pat
Maybe that's what I should name my semi-colon. It's a mess too and hasn't gotten the hang of things. LOL0 -
ACS CAN
Is anyone else a member of ACS CAN? It stands for American Cancer Society Cancer Action Network. This is the advocacy (lobbying) arm of ACS. Membership dues are NOT tax deductible (I'm retired from IRS - sorry, can't help doling out tax advice). The dues are a minimum of $10 per year, but you can donate any amount above that. Their web site is www.acscan.org.
This sounds like what Buzzard is talking about. Last year I participated in ACS CAN's state lobbying day. We met with our state senators and representatives to urge their support of legislation that ACS was supporting.
Here is an excerpt from the renewal notice that I just received from ACS CAN:
"Your membership in the American Cancer Society Cancer Action Network (ACS CAN) is about to lapse. Please renew your membership so that you can continue to be part of the growing movement that is putting cancer at the top of the nation's agenda. With your help, laws that further the fight against cancer can be passed. Renew your membership today so that we CAN build on the achievements of the past year, such as
Increasing cancer research funding
Regulating tobacco
Fighting for health care reform
Building a smoke-free nation
If one American can battle cancer, a nation CAN defeat it. With your help we can build upon our successes and accomplish more than ever. In the year to come, ACS CAN will pursue its goal of increasing federal cancer research funding that can save hundreds of thousands of lives. We will continue to support state-level campaigns to enact more smoke-free laws and put America on track to be a smoke-free nation by 2015. Finally, ACS CAN will conduct a comprehensive electoral program for 2010 elections, alerting voters like you to their elected officials' and candidates' positions on cancer-related issues.
When you renew your ACS CAN membership, we'll send you a new membership card and a legislative toolkit, your guide to being heard in Congress. The toolkit includes a personal legislator profile, a guide to taking action, and refrigerator magnet. In addition you will receive email actin alerts when Congress or state legislatures debate critical cancer legislation.
Your membership is vital to fund issue campaigns and voter education; it can help us to reach out to lawmakers and candidates as we seek their support for the laws and funding that help people fight cancer."
Since I've been a member, I have sent emails to my senators and representatives on both the state and federal level. I even received a survey from Senator McCaskill's office the other day. ACS CAN sends out a monthly e-newsletter with items of interest on both the federal and state levels.
Because ACS CAN is a part of ACS, I wanted to make sure that each of you was aware of this organization and what it does. For those who want to take an active role in advocating for cancer survivors, this may be something you want to check out.
Joy0 -
let's keep the momentum and ideas flowing....
great one Buzzard...
When I had me ileostomy, I called myself Peggy adn the Magical Poo Pouch and my Stoma was called "Stumpy; We'll do relay for life this spring and my team will be Peggy's Pooper Troopers!
winney - never ever be ashamed...EVER...repeat...
See my blog, there is a great Cancer Awareness Logo I found at another site....wonder if we can import it here.....i'll try and change my profile pic to that so you all can see it
One of the big things we should push is colonoscopies BEFORE age 50, there are too many of us her that were DX'd earlier than 50 (me, at 46)
Peggy
http://www.peggyluckey.blogspot.com0 -
I just turned 50 a few weekspluckey said:let's keep the momentum and ideas flowing....
great one Buzzard...
When I had me ileostomy, I called myself Peggy adn the Magical Poo Pouch and my Stoma was called "Stumpy; We'll do relay for life this spring and my team will be Peggy's Pooper Troopers!
winney - never ever be ashamed...EVER...repeat...
See my blog, there is a great Cancer Awareness Logo I found at another site....wonder if we can import it here.....i'll try and change my profile pic to that so you all can see it
One of the big things we should push is colonoscopies BEFORE age 50, there are too many of us her that were DX'd earlier than 50 (me, at 46)
Peggy
http://www.peggyluckey.blogspot.com
I just turned 50 a few weeks ago, almost a year after finding out I had cancer. BUT almost my entire family over the age of 30 had colonoscopies because of it.0 -
Colonoscopies are the key...We just need ......RickMurtagh said:I just turned 50 a few weeks
I just turned 50 a few weeks ago, almost a year after finding out I had cancer. BUT almost my entire family over the age of 30 had colonoscopies because of it.
to really brainstorm this......We need to get the word out to the unknowing that early detection is the key to survival....Period...We need a logo and I really liked the "Colon Cancer is a Pain in the Butt" on the back and either SURVIVOR or CAREGIVER on the front....I really like that, it gets the word across and causes people to notice, then maybe they will either ask or know someone that has been diagnosed with it and just maybe it will sink in...either way its public advertisement in the free market. ACS-CAN sounds like another route to advocate for cancer...I still like the "Million Person March" idea I am gonna pursue it more......
If anyone knows a screen painter that does shirts and can give us a great price on specific logo and shirt on a volume of shirts, pm me please and maybe we can get some made to order. I have one down the road here and I will contact him to check out a price.....
Love to all of you.......Buzz0 -
I want oneJDuke said:I want to enlist!
I had just decided this week that I am going to have my dear friend that makes blingy T-shirts create one for me that says:
CURE: My Favorite 4-letter Word!!!
I plan to wear it proudly with intentions of it initiating dialogue that will allow me to spread my story and the word about the importance of early detection of all colon related cancers.
There is power in numbers and we are an awesome sum of survivors and fighters. Consider me recruited!!!
Joanne
Can I order one too? IF I can please PM me with the details...
Thanks0 -
symptomsWinneyPooh said:I agree
this cancer needs to come out of the bathroom, the other day i got some new ostomy supplies and i retreated my bedroom, my heart raced would these be the fix i needed i told my family not to bother me for atleast 40 mins and i meant it ( with the knock on my door and die voice) i opened all my supplies, beathed deep, cleaned the area, prepped got angry cause there was no good place to stick it, prepared more and then when i finally got the fix all i wanted to do way lay in the dark and enjoy the temp high, i felt like a drug addict, hiding my fix, like a heriun addict, thiss cancer has consumed me and changed me in ways i do not like. i feel trapped and scared people i don't know will see me and know i have a pooh bag, it is not how i want to feel but i do.
i know if this cancer was not so taboo too talk about i would have been DX alot sooner cause i would have been more aware that my symptoms were pointing towards cancer.
awareness of the signs will help so many people we have to get the word out.
i talk to everyone about this cancer i can,
any i have educated my kids on what to look for something i was not made aware of.
early signs are any change in bowel movements that last more than a week and seem to reoccure often.
IBC, Crones, UC, Diarrea, Constapation, Blood in stools, this needs to be on a billboard some where, and check up way before 40 for anyone with a family history of any of these sysptms and colon/rectal cancer
listen to people and pay attention if some one you know has bathroom issues insist they get checked. take them if you have to
we can't loose this battle
Live laugh play
winney
by they way my ile is monsterileo
The only symptom I had for stage iv was weight loss for no reason.0
Discussion Boards
- All Discussion Boards
- 6 CSN Information
- 6 Welcome to CSN
- 122K Cancer specific
- 2.8K Anal Cancer
- 446 Bladder Cancer
- 309 Bone Cancers
- 1.6K Brain Cancer
- 28.5K Breast Cancer
- 398 Childhood Cancers
- 27.9K Colorectal Cancer
- 4.6K Esophageal Cancer
- 1.2K Gynecological Cancers (other than ovarian and uterine)
- 13K Head and Neck Cancer
- 6.4K Kidney Cancer
- 673 Leukemia
- 794 Liver Cancer
- 4.1K Lung Cancer
- 5.1K Lymphoma (Hodgkin and Non-Hodgkin)
- 238 Multiple Myeloma
- 7.2K Ovarian Cancer
- 63 Pancreatic Cancer
- 487 Peritoneal Cancer
- 5.5K Prostate Cancer
- 1.2K Rare and Other Cancers
- 542 Sarcoma
- 736 Skin Cancer
- 655 Stomach Cancer
- 192 Testicular Cancer
- 1.5K Thyroid Cancer
- 5.9K Uterine/Endometrial Cancer
- 6.3K Lifestyle Discussion Boards