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Patti's children
Patti's children and HER dog Patti and her husband have these photos open on Facebook for anyone to see so I felt it would be okay to share. The pictures of her children haunt me.... keep me awake at night thinking of them without their precious mother. Get well soon Patti!
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pattis brother Jeff here
Hi everyone, I just wanted to let everyone know that Patti has had a stroke, ..she has movement in her left leg and left arm.she is responding to us, shes just sleeping a whole lot right now ..please keep the prayers coming she needs all of you ....shes 42 years old diagnosed with stage 4 colon cancer almost a year now…
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Thought of the Day
“Nobody cares how much you know, until they know how much you care.” ~ Theodore Roosevelt
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Signet Ring Tumor
Does anyone have or had a primary tumor that presented as the rare signet ring type? Catherine
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Allergy to CT dye
Hi everyone, We went to Loyola today for a second opinion on my husband who has stage IV with mets to the liver. He had surgery three weeks ago and was told liver surgery was off the table because of the location of the lesions. Unfortunately because he has a reaction to the dye used in the scans, they did the last few…
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body odor
I stink. 22+ months NED and I can't get a handle on my BO I take a shower every morning- I use a anti-bacterial soap and MITCHIUM deodorant I wash my hair every morning I put on clean clothes and by noon I stink. Like I have been at the gym sweating up a storm, underarm reeking stinking- but I haven't just at work,…
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1st onc. appointment since Nove.
My husband sees his oncologist for the first time since November after he received his last chemo treatment. Not sure what testing will be done, I hope a CEA blood work, but if his onc doesn't schedule a CT scan, would it be wrong to ask for one? Just getting very nervous now. Any help with questions or suggestions would…
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Mammogram
Well, I don't know how I missed realizing this is going to be such a big week for me. I had my mammogram today, and I'm anxious for those results. Ever since the scare a couple of years ago, I fear the dreaded call. And then I came home and checked the calendar and realized I have bloodwork on Friday and an appointment…
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Goodbye to my old friend Leaky
Goodbye to my old friend Leaky As they say… All good things must come to a end. I know that over the last 8 months we have became close friends but it is truly time to say our goodbyes. But before you go I wanted to say thank you for being there for me when I really needed you. You did a wonderful job and I would have…
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From Folfox to Folfiri - Need Advice Please
I need some advice please. I was just switched from Folfox to Folfiri. Has anyone else been switched this way? I have had 8 treatments of Folfox, and just when I was feeling good about how I was handling all of the side effects, BOOM, they are switching me. (thanks again Craig for the tip about magnesium sulphate, but…
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EMERGENGY prayers needed for ittapp!! Stroke!!
Patti had a stroke on Monday. I'll add more info as soon as I know more. Her best friend said to please pray for Patti, the family and her friends.
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Probiotic fad
The after the colonoscopy I had last week my bowels were just not working like normal. My wife decided that I needed some Probiotic help. When you have been married forever, you learn to throw them a bone every now and then just to keep peace in the home. Her logic was I had flushed all my bacteria out with the colonoscopy…
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newly diagnosed recurrent colon cancer with liver and lung mets
Recently diagnosed(at larger teaching university) with mets to liver and lung. Onc suggests chemo with no further treatment options at this time. Less than 25% of liver involved with 4 small nodules to lungs. Has anyone else been given this treatment option and had success with keeping their cancer under control? We have…
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RECENT CANCER SURGERY
Since this is my 5th cancer surgery, I didn't know which subject to start with. I am a survivor and am still working way past retirement....I have been diagnosed with the genetic mutation gene. Finaly after 20 years, because of our family history the last hospital said .. you need to be tested for the mutation. Had I known…
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Just saying
O.K. it is 2:44 am here and I am awake. I got a call from my Dad yesterday, he is 83. His wife was diagnosed with severe dementia about a week ago and my Dad called yesterday because he does not know if he can take care of her anymore. She was washing her hair blow dryer with the spray nozzle and the hair dyer was plugged…
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Riddle Me This- Oncologist Not sure of treatment plan after my resection???!!! WTF???
So, my Onc calls me back - I left her a message about re-starting chemo as per Dr. Fong, who did my liver resection a few weeks ago. He suggested 3-6 months, same chemo as I was on. Onc states (once again) that I hae her stumped - that there is NO STANDARD OF CARE after a liver resection. Can that be true??? the oncology…
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Patti's update
Hello all, looks like I have a recurrance in the plueral effusion area, It is from the same colon cancer, I guess all of that waiting with no chemo to have the sir spheres left me out there with no protection and this is what has happened. I was in the hospital for 5 days draining that area and they packed it with talc.…
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PET Wednesday
Hello Friends, I know most of you are asleep now so you will get this Wednesday. If you could please say a prayer or send out a positive thought for **** today that would be great. He has his PET today and we should know results on Thursday. To recap, his last scan in December 2009 showed 1 lymph node still lighting up but…
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Scan Update
Well, what a day!! I go in for scan results and chemo and end up in hospital having fluid drained from the base of right lung ( between the lung and liver) pleura area I think. The scan report read that my tumors looked larger and I had fluid. Onc. did not know why the tumors looked larger, wanted the IR to look at it…
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a letter in the wall (not cancer )
On Easter Sunday at the dinner table my brother presented me with a letter that I had written in 1959 age 12. We lived in a big old house and there was a closet being renovated so I put the letter in the wall just before it was plastered over. the new owners were doing some renos and found the letter....the owner swears it…
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Over two years into treatment and it finally happened
Some of you may find this disturbing so don't read it. I haven't had a complete evacuation bowel movement since my colectomy 22 months ago. I've come close, but a complete bowel movement for me usually occurs in 2-3 stages. I'm pretty sure this was caused by the primary tumor being located half in the sigmoid and half in…
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Check in for Surgery 5:30am Friday Morning….
Goodbye Leaky Sac-a Sheet. Hello to pooping again!! Brooks
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can you tell me why I did this???
so this morning was my ct scan....we skipped the Dec one because surgeon is starting to worry about radiation but i had CEA's in Dec and they were low. So today my best friend's son is the radiologist and I know he's there a hall away from the ct room and I could walk over and say....please read this for me. but I didn't I…
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What size was your tumor?
In another topic, a couple of posts discussed tumor size, and that got me wondering what size tumors the rest of the people in the group had, and how much colon was removed. I’m stage IIA and the size of my tumor was 8.5 x 7.5 x 2.5 cm. The surgeon said it was the size of an orange. They took 20 cm of the ascending colon.…
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PET CT Scan Tomorrow...Questions?
Hey everyone! My mom has her PET CT scan tomorrow morning and we meet with the oncologist in the afternoon. As a quick recap, she has a tumor in her rectum (diagnosed through colonoscopy) and 3 spots that showed up on her liver (seen on a CT scan) that they suspect are cancer. She is newly diagnosed and has had no…
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Are there any new colon cancer drugs actually ready for FDA approval?
I keep reading that there are all these promising colon cancer drugs "in the pipeline." I confess that I find that very hopeful. My husband's recent diagnosis of a serious recurrence and the oncologist's statement that the chemotherapy mixture of oxaliplatin, vectribix, and xeloda represents the last drugs he (the…
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"pimple" like bumps..anyone ever have them?
DX April 2008 stae 3b. Surgery + 6 months chemo 5FU. April 2009 1 yr colonoscopy. 1 tiny polyp that they blasted but thousands of little bumps that look like "pimples". BX came back negative. August 2009 "bumps" are still there, again BX is negative. Surgeon has never seen this before. Finally in November 2009 they lasered…
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Incurable
I turned sixty today and there is nothing they can do about it.....sssiiiiggggghhhh. Ron.
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Juicing questions....
I am thinking about trying Carrot Ginger juice, do you peel the ginger root 1st? Also for cantaloupes do you have to cut the fruit off the rind or just send it through with it on?
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Back from Onc.-Xeloda feet - part 2
As I figured would happen my doctor didn't like the foot & hand problems. Decrease in chemo meds....again. I am starting my 3rd cycle of Xeloda tomorrow...(after flunking out on the Folfox...5 infusions)On the 1st cycle of Xeloda I was on 3,300 mg.2nd cycle lowered to 3,000 mg now lowered to 2,000 mg for 3rd cycle with the…