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Colorectal Cancer

No More Oxy
Husband went to see oncologist this morning and told him to stop the Oxy due to the neuropathy in fingers. The doctor said alot of folks can't handle the oxy then he went on to say he was givig him to much because he did not realize how much weight he had lost. WTF. Thought doctors read your entire chart before your visit.…
Rectal discharge
When i had my Colostomy bag. I was advised that even though I can no longer poop on the anus there are still mucus discharge. Ifind it very hassle because u need to go back to the cr for several times. I tried to stop it but when i decided to let it go i saw blood in bowl. Is this another problem?
Celebrating
Today I celebrate FIVE years NED. I am sitting in a hotel bed looking out over the Pacific ocean with one of my best friends My little avatar says Exactly how I feel - Alive Blessed Grateful - Tru
cancer stage & cea level --any correlation? (newbie question)
Hey all, I just had a colonoscopy on Thursday... which found a "rather large" tumor. My GI said right away he was sure it was cancer. Only trouble is... now its the weekend, doctors are out, but lab results are coming in (through MyChart). I saw my CEA level was 18.2.... Is there any correlation to what stage cancer that…
Severe burning
My husband was diagnosed with colorectal cancer. He was border line between late stage two and early stage 3, so they treated it as stage 3. He had a chemo, radiation, surgery and a temporary colostomy bag, then surgery to reverse it, and was hospitalized 3 times between the two surgeries for blockages due to scar tissue.…
Neuropathy issues
Since finishing FOLFOX, I’ve had some mostly annoying neuropathy symptoms. My fingers and toes tingle if they touch anything and sometimes the skin feels tight, like when you have a healing sunburn. It’s not truly painful and it doesn’t wake me up at night. However, it does make doing things with my hands difficult, as the…
Port Pain
Hey guys, A little about me. I'm 25 and I was Diagnosed with Stage 4 rectal cancer with a mets to both lungs in July of 2018. I had my port placed (upper right quadrent of my chest) in August 2018 and began treatment a few weeks later. I completed 8 rounds of treatment underwent CT Scans and another Flex Sig to determine…
Devastated
I just received the results of my latest PETscan and they're not good. My cancer has recurred. Between my CT in November and this scan the cancer has returned with a vengeance. 2 masses, one slightly right of the midline and the other left. Ive had over 2200 hours of chemo, and am currently on xeloda. Waiting to see what's…
Bowel obstruction think we are at the end of the road
So my husband was diagnosed about 19 months ago stage iv Mets to liver lung peritoneal lining. Handled fulfox,fulfuri, tace procedure x2, an unsuccessful couple of months in a clinical trial, an oral chemo capcitamine(?) then lonsurf with avastin and most recentlynback to avastin, oxcal(?) and irennican. My spelling on…
Mop-Up Chemo Started
Happy Tuesday everybody! I am sitting in the chair, hooked up and listening to the IV pump do its' thing. I hate this beyond any words I have to describe but I am going to give this all I've got. I drove in from the mountains yesterday to my daughter's and got settled in. My four rambunctious grandsons kept me occupied…
Post Y-90 scans are in!
Well, we can now breath a little. The Y-90 really did help! Several tumors in his liver are dead and the rest have all shrunk by over half. He will have another scan in July and that will determine if the colon tumor should be removed or not. The colon tumor is stable for now, the chemo pills are not shrinking it, but at…
Mother newly diagnosed. Don't know stage..yet...
My mother has been going through her bit of health issues, which we thought were just hemorrhoids. This all started last summer. She had a colonoscopy done in August 2018 and it just noted she had hemorrhoids and nothing else. Well, mid-February 2019 she gets her annual physical done. Bloodwork notes she's anemic and she…
Help With Questions for Doctor pre Chemo Treatment
Seeking your guidance please. My partner was recently diagnosed with Stage IIIB Colorectal Cancer. He had a total colectomy after a routine colonoscopy showed displasia, and pathology confirmed it was in fact cancer with 6 positive lymph nodes. He has now been told to begin chemotherapy within 4 weeks of surgery for 6…
Time For A Chuckle
Laughing is so good for the soul. I saw a post on another site that made me roll. It is my new motto, lol. I wanted to share it with you guys in hopes it gives someone else a much needed chuckle and some inspiration. It read: When it's time to fight, you fight like you're the third monkey on the ramp to Noah's ark....and…
What's your favorite Colostomy Bag?
My partner recently had a total colectomy and is now trying to find the best colostomy bag. He is mid thirties and thin, and found the Coloplast Sensura Mio 2-piece system to be too bulky and not sticking very well. He did like the velcro-fold up at the bottom though. Opinions welcome to help us find the best bag for…
Targeted Therapy at MD Anderson
I traveled to MD Anderson the begining of April and just got home in time to spend Easter Day with my family. This is the 4th time I have tried typing this post, it gets messed up and then disappears when I'm trying to edit. So this is the short version. I met with Doctor Tsimberideau in the Targeted Therapy Center, she…
Newly diagnosed
Hello all, I am a 42 year old female who was diagnosed a month ago with colorectal cancer. I had been having rectal bleeding for quite some time, but I chalked it up to hemerrhoids since I had other symptoms (itching, burning) and I'm overweight and my diet isn't the best. When I finaly went in to see my primary care…
That time of year again.....
So I just went through the frantic mess that is the blood work/CT scans required for the routine check ups. The complication I have now with doing my CT scans is having to have blood work done first because of the high blood pressure medication I'm on now. So I go into my doc's office yesterday morning to get my blood…
Time For A Chuckle
Laughing is so good for the soul. I saw a post on another site that made me roll. It is my new motto, lol. I wanted to share it with you guys in hopes it gives someone else a much needed chuckle and some inspiration. It read: When it's time to fight, you fight like you're the third monkey on the ramp to Noah's ark....and…
Magnesium Citrate
For my surgery next month, my surgeon has me drinking three bottles of magnesium citrate starting at 3pm the day before. I’ve only ever had golytely for bowel prep before and it was a nightmare (not helped by a blockage). I also have a pretty strong gag reflex. I am allowed (and encouraged) to drink Gatorade through the…
Away from forum since Oncologist crushed my hopes and spirit
I posted about this a while back, it's taken me since March 19 when I visited him last to be able to function, I was a zombie 2 days. Felt totally like giving up. People I talk to say it seems like I've given up. It hit me so hard the way he spoke to me, his demeanor and everything that day. My scan looked worse and he…
Curiosity Question
My oncologist has said that the highest chance of recurrence for me as a stage iv colon cancer patient is highest in the first two years following diagnosis and then goes down through five years and then sharply goes down after that. I can’t seem to find it anywhere so I thought I would ask here. Does anyone know what that…
Happy Passover and Easter
This is a true story, that happened at our house. The premise for those who don't know: Matzo is known to be constipating, and we're facing a week of it! Enjoy Happy Passover and Easter to all! Alice April 11, 2013: The truth about matzo: I went to our bread drawer today, looking for a simple cracker (or yes, even a…
Feeling down and slightly depressed
Good Evening All, I finally finished my about me page so if anyone wants to see my story, its there. Today though I just need a space to rant and ramble about my current mental and physical state. I have noticed the past few Chemo Treatments I have had what seems to be intensifying side effects. For the past 3 treatments,…
Ostomy Supplies
I'm sure this has been brought up before but here I go. I've used the same ostomy supplies and brand for the over five years I've had the illeostomy. I've had very few problems with just the occasional accident or blowout. I'd go almost a year beteween these incidents. Lately, for the last couple of months it's hit or…
Oxaliplatin Use
I am no expert when it comes to cancer but I have read alot of history on this website and I try and stay away from the internet. I have a question which I am sure some of you may have the answer to from you personal experiences. My husband was diagnosed with MR Stage: T4 N3 which began our journey in August last year. He…
Off Topic - Your Screen Name
Just to lighten things up and not talk about anything cancer, how did you get your screen name. Some are your names and others have a meaning. Mine was my Grandmother's name and joining on another site (game site) it told me that name Annabelle was taken so my age was 41 at the time so figured I'd add the 41 to it but…
Partial Colostomy
Hi. Been wondering why i haven't visited the page for quite sometime. We'll guess what local recurrence is back. They found new tumor or mas in my rectum. And walla i am at the hospital right now. I had my surgery last april 8 and i am still at the hospital recovering. I have difficult coping up with the bag. I don't know…
Blacking Out from Follow Up Chemo
My husband is in his 4th treatment of mop up chemo. On April 4th which was last day for 3rd treatment he blacked out in bathroom hitting his rib cage either on porcelain sink or shoving his device which holds chemo bag for his port into his rib cage then falling to floor hitting his head which ended him up in emergency…
5 Years ++ Stage IV Survivors
Last night when I got ready for bed, I noticed the upper part of my left foot and toes seemed numb or asleep. I have never felt this or noticed it until last night. I have had surgery on my right foot and toes and deal with slight numbness in the right foot. The left foot was a different story. I guess good ole' neuropathy…

Colorectal Cancer

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