-
Jaw pain
Has anyone experienced jaw pain with the first few bites of food when on folfox 6, 5fu oxaliplatin and leuc. ? goes away after a few bites. thanks all Tim
-
practical advise before surgery
I'm the caregiver to my husband who was diagnosed last June with rectal cancer. Over the past year we've completed chemo and radiation. Just yesterday we finally received the surgery date. June 13th. I'd love some practical advise/suggestions on how to prepare. He will have a temporary bag. We live in a three story house,…
-
Crooked Drug Companies
I recently posted about pharmecutical companies being concerned with profit only and doing anything to control the market. The link below is an article that made headlines this morning..need I say more. https://news.yahoo.com/u-states-sue-teva-19-other-drug-companies-135226843--finance.html
-
My horse, my support animal
I just wanted to post something nice because things seem to be a little bit negative right now. On Saturday I went out to see my horse and give him his pill. I haven't been feeling well because in all the chemo and IVs for magnesium I managed to somehow totally forget that I need to have an IV for my parathyroid issue so…
-
Descending Colon thickened and Free Fluid at the Pelvic (Mild Ascites)
HI! Everyone. I'm actually from another disussion boards on kidney cancer. I had my surgical in 2017 and pathology is T1a Nx Mx, with 4 cm tumor Clear Cell RCC. Yesterday, i was having my normal 6 months MRI scan. Everything was Ok on my abdomen and chest. (X ray) But they accidentally found my descending colon thickened…
-
I'm ready to fight for my family.
I'm new to this site. Found out I had a problem on Valentine's Day of this year. Sigmoid colon cancer. What a slap in the face. Had resection surgery. That went well. My surgeon was amazed how quickly I recovered. 2 of 20 lymph nodes were positive. Mets to my liver. Everything else in there looks clean according to scan.…
-
In Hopes It May Help Someone Else During Chemo
I am posting this in hopes that it may offer some relief to someone going thru treatment. I make no apologies for not being a supporter of chemo. Before I could have surgery, I had to do at least four rounds with Avastin to even be considered. I actually did five before surgery. I took several things that kept my blood…
-
"Mr. Bubbles" Is OUT
My grandson gifted my port with that name when it was put in, lol. Again, a much better name than what I had in mind. I had surgery to have it removed yesterday and I drove home to the mountains today. They knocked me out in the OR and used surgical glue so I wouldn't have to make an extra trip back to SC. I couldn't…
-
Just read this news
https://advancingthescience.mayo.edu/2016/12/29/drug-combo-stems-tumor-growth-in-lung-cancer/
-
Stage 2A to Stage 4
Hello all, Long story short, I had rectal cancer in 2016 received oxliplatin and radiation along with surgery to remove the mass. I am now 33 and my cancer has returned with a two inch met to my liver. My doctor initially decided to start me on the same oxliplatin and xeloda which was the regimen I was previously on. I…
-
Neuropathy?
I have seen neuropathy discussed quite a bit, particularly as it relates to hands and feet. I am 9 days out from my last infusion. For the last 6 days I have struggled with numb lips and my tongue feels like it's burned. I am, of course, avoiding cold, but even room temperature water can be uncomfortable at times. Has any…
-
Why A Good Doctor Is Important -MSK Giving Me Three Weeks Cycle
One of the things I consider myself very luck is that the staff - doctors, nurses, receptionists up and down the board, with one exception - have been absolutely great. More so when I see some of the things people go through here. Ditto for being lucky that I think I have avoided many of the major side issues. I mean other…
-
Natural remedies to fight colorectal cancer
I recently had surgery to remove an ovarian mass only to find out during surgery that cancer had started in the colon and had spread to my ovaries. Everything was removed (hopefully), so I am very keen on building up my immune system and hopefully preventing anything from coming back in the colon. I have started taking…
-
removing colon tumor before chemo or after
My husband was diagnosed with colorectal cancer and liver mets in October last year. He received Folfox for 6 rounds and then folfox, oxi and avastin for 6 rounds. At first his pain was severe but he had a pain block done and was great for 3 months. Last week he had a ct scan and the liver is doing well but the colon tumor…
-
burning lungs????
My Husband is being treated for Colon Cancer with Capcetabine and Oxaliplatin. He is 110 days in to the treatment and has been experiencing his lungs burning. It feel to him like you are going for a hard run and your lungs start burning. The difference is he is maybe only walking or sometimes just sitting. He covers his…
-
Major open surgery soon... Desperately need help
Im visiting my surgeon oncologist for the last time Monday before my surgery on May 9th. Im a bit worse for wear atm mentally and physically. I dont think I have been this psychologically depressed ever, and im having numerous panic attacks daily. I scheduled this appointment Monday due to them wanting to talk to me again…
-
new to the colon Cancer/Colectomy
My husband has been in the hospial since May 1st. We thought it was a bad case of food posioning. Surprise as the doctors recommended an extended Colectomy. Adenocarcinoma and awaiting comfermation on Lynch syndrome 2. We are awaiting pathology results. A Colectomy seems pretty radical. I was told about a J pouch. any…
-
ileus after open abdominal surgery
Since my oncologist nurse blocked my cell phone and email from asking any further questions about my surgery thursday morning, I guess ill pose the question here about ileus. How long does it take for your digestive system to function normally. Its kind of unpredictable in my case since I have gastroparesis, so it doesnt…
-
Swimming with Ostomy bag
Hi Friends, I will have a little vacation in Cancun in May. I wonder if anybody has suggestions that had a good swim suits to cover Ostomy bag. I am nervous and cover Ostomy bag completely. Thank you for sharing your experience. Thanks Kadir
-
Near the end
My wife, and best friend, of 49 years is nearing the end of colon cancer. We are in the “weeks” left stage. She is not in pain and sleeps most of the time. I am the primary caregiver and am going through treatment for Acute Myeloid Leukemia. I am pretty much on the backside, but still need chemo every 5 weeks to keep the…
-
Retired!
i finally did it! Starting My official retirement today! I think I had more sleepless nights over this than actual work. LOL. I have worked for 50 years! Now time to relax. I worked through the last 3 Years of treatment and now that I’m NED, I will relax. Lots of home projects to keep me busy and lots of walking to keep me…
-
WAR
"Flags, medals, wigs, and prosthetics are not enough to convey the truth or mobolize human beings to dessent, resist, and demand the end of war, the cure for cancer, AIDS, and so many other mutant offspring of capatalism.The devil is not in the details, but in the abscence of details that would activate the people to…
-
Dizziness & Dehydration
Let me preface this by saying I will eventually call the on call nurse and see what she says, but I want opinions here first. I’ve had excessive thirst now for 36+ hours. It’s not been hot where I live, not have I participated in any even moderate activities. I’ve also had some insomnia issues for several days, likely…
-
Having a panic attack
I am sitting here waiting to meet my new oncologist. I should be happy that I am now at MSK where there might be more treatments to choose from but instead of being happy I am all of a sudden terrified.
-
Round One And It SUCKS
I made the two hour drive to the mountains after disconnecting from the pump yesterday. I was noticeably fatigued yesterday and I had to talk myself thru the drive, picking up a few groceries and never thought I would make it into the house. But, I did. I have to turn around and head back on Monday but these few days at my…
-
Really good news
which I am happy about for now, because I know it can all change in an instant. After 2 years of being really sick, 5 years at stage 4 right now my husband is showing NED and all his blood work is normal, except one liver enzyme due to his stent in his liver. The narrowing in his ducts are just narrowing and it looks like…
-
Port Coming OUT Wednesday...Yipeeeeeee!!!!!
I saw my surgeon yesterday and I will have my port removed Wednesday. He told me he would seal it with glue instead of stitches so I don't have to hang around another few days to get stitches out. I can hit the road Thursday morning and wont' be back until July. I can't find words to describe how it feels knowing the port…
-
Sun Shining A Little Brighter
I had my appointment this morning.When I went to have my blood drawn for labs, the nurse and I had our normal chat. I told her my decision to stop chemo and remove my port. She told me her husband made her promise if he ever was diagnosed, (she's older) that she would not try to push chemo on him. She said she wonders some…
-
Checking In
Hello all! It looks like I'm cancer free for now. I had a colonoscopy last week which had to be done twice. If you already had cancer they want to get a real good look around on follow up exams. On the first try they stopped and said I wasn't clean enough even though I drank the Galvylite and followed the instructions.…
-
New Pump Design and Smaller Needle
When I got my infusion yesterday, they had switched to a new set up. The pack they sent me home with looks like a little lemon juice container and it goes into a much smaller carry bag. Also the needle into the port was smaller in size and it fit so much closer so it wasn't so bulky. I have never had any pain with…