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Ritalin?!
I had three rounds of Avastin, oxalyplatin & 2 day pack of 5-FU. I could not handle the extreme neuropathy symptoms I was having. Once said only thing to do was to take me off it. So then they changed the protocol to Avastin & Xeloda. I don’t know if it’s the xeloda, particularly, or the cumulative effect of what is now…
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ran across this does anyone know of trials
https://www.cms.gov/medicare-coverage-database/details/nca-proposed-decision-memo.aspx?NCAId=291 it goes along with this article https://www.medicalnewstoday.com/articles/321716.php these are two articles on CAR t-cell therapy and how quickly the cms has proposed payment of trails.
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Smart Mosquitoes..lol
Hello to all of you beautiful souls. Hoping life is catching you all with gentl hands. I had to share this. I worked in my flower beds and yards all day today. This evening, my neighbor walked over and we were chatting. I didn't even pay attention to her swatting and hitting her arms and legs until it finally got the best…
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Folfox, why do so many people get it?
I'm so sick of hearing how people are put on this chemo. It's the worst for side effects and is just a miserable chemo to be on. Yet it sounds like almost every onc has it as their main go to chemo. Some people mention that their onc says they'll be on it for months. Months! I was ready to cut my wrists after a month and a…
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Really scared I might have something..
25 year old male here. I'm going to get checked I think, but I wanna share my story and get opinions of others here. Around Christmas I started having loose or mushy stools every morning. It started after a few months of really bad eating, late work night and stress. I was working my normal job 10-7 finishing up a big…
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Sigh...I think I have made my decision.
Hi gang! Been a while since I have checked in. I think I have made the decision to stop aggressive therapies, and switch to palliative care. My Onc wants to start chemo again in a few weeks. I do not want chemo again. We tried Cyberknife on one of the liver mets, doesn't seem to have worked. The other, larger met, is in a…
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No beer during chemo?!?
Here is a heartbreaking article for beer drinkers suggesting you abstain during chemo: https://www.mdpi.com/2072-6643/11/4/879/htm (Actually, my tastes changed and I could not drink beer during chemo even if I tried. Fortunately, I have returned to normal and enjoy a glass or two regulalry) Beer, the most popular beverage…
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New to this forum advice needed
I have stage 3c colon cancer. I had large tumor removed (colectomy) and gallbladder removed on the 24th of April I will be starting chemo in 2 weeks FOLFOX for 6 months not sure of radiaton yet meeting with radiologist in 1 week 12 of 38 lymphnodes were positive for Cancer cells. Getting nervous port will be put in next…
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Fatigue
Okay, I'm having a bad day and I'm so sick of the fatigue. Most days I push through it but today it's so hard although I'm still trying. I'm low on megnesium again so that doesn't help. I take 4 tablets a day but it doesn't absorb well so that affects my energy level. The food that have it in are mostly things I'm unable…
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Dandelions (More Than A Weed)
I have always been a supporter of natural supplements and nutrition..even more so now. All of us are different and at different stages of dealing with our cancer diagnosis. For me, my liver was the first place the cancer traveled. Dandelion leaves and tea are part of my diet. A simple weed that you can consume from flower…
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POST COLORECTAL TREATMENT
Hello to all CSN Members, I am in search of recommendations/suggestions that the community may be aware of with regard to discomfort from bowel movements as detailed below: Background: * Diagnosed with CR Cancer Stage III on Jan 4th 2018. CT Scan and follow-up biopsies taken during Colonscopy confirmed Low Grade…
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New here
Hi All Ive been lurking for a couple days and am so glad to have found you guys. I was diagnosed in July 2018with colon cancer.. Started chemo in August with the plan to have the 6 months of folfax oxiplatin etc. 6 mos came and went and I’m still getting the chemo every two weeks. My doctor has not discussed an end date…
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Kayak On The Water
The profile pic I uploaded was from my first kayak trip today. Boy, can I tell my energy level has changed.. lol Muscle tone wasted away over the past few months but I paddled thru.. lol.. The pic shows a momma duck and her babies. They came right up to me.. such a beautiful day. I am so grateful for this “moment”...Hope…
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Post takedown
My husband is recovering from an ileostomy takedown he had 1 week ago. So many questions...! We didn’t realize it would be this hard. Do the nearly constant trips to the bathroom ease up soon? It’s very painful for him and we’re wanting to know if this is normal from people that have experienced this. Thank you. Mary
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Recurrence after almost 10 years NED - came back with a vengeance!
Hi, Well been a while since I have been on this board. My husband was diagnosed with stage II colon cancer back in Sept 2009. Had surgery and was NED ever since. Well during just a routine annual Xray guess its back in full force. They found liver mets and mets in the periitneal and also he has some ascites. He was felling…
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Cancer nerds/Vitamin D calculator
This information is probably only interesting to "cancer nerds," or those who believe Vitamin D levels are important. This is a calculator created by the authors of an article with a fairly small sample to to use Vitamin D levels to calculate a five-year colorectal cancer survival rate. Please note you will need to convert…
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Optimizing the odds of avoiding cancer recurrence: Go jogging in your Speedo or bikini!
Optimizing the odds of avoiding cancer recurrence: Go jogging in your Speedo or bikini! I have been looking around, mostly on pubmed ( https://www.ncbi.nlm.nih.gov/pubmed/ ), for non-chemotherapy strategies to reduce cancer recurrence and mortality. To avoid an overlong post, I will summarize very briefly the information I…
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Have you guys heard of sulforaphane?
I was just poking around on the PubMed site (as I often do, I know, I should get a life) I happened across an article where they were testing how you could increase the anticancer activity of 5-FU by adding in sulforaphane, which is a naturally occurring compound in broccoli and other members of that family (but found up…
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Been lurking for 4 years....
I was diagnosed in June of 2015 (3 weeks before my son's wedding!) at Stage 4B with mets to lymph nodes, both lungs and one adrenal. Didn't tell my family until after the kids got back from their honeymoon. By that time, surgery was only a few days away. Had 12 rounds of Folfox with 5FU followed by 12 rounds of Avastin…
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CEA is up again, so frustrated
I just got a call from my doctor's office. They have all the results now from my last bloood test. My creatine is up which means my kidneys are getting worse, as I mentioned previously, my magnesium is low again, and my CEA has gone back up tp 55. It was 5.6 in March when I stopped chemo. I feel so defeated. It's so…
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Happy Birthday Alice514
I hope you are having the best of days, and that this year will bring your nothing but good news, good times and lots and lots of love. Tru
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Vinegar
I've heard so much about taking a tablespoon or two everyday for health benefits and wondered if anyone here has done it. I've been doing it for about a week but wondered if anyone else has done this. Kim
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Jaw pain
Has anyone experienced jaw pain with the first few bites of food when on folfox 6, 5fu oxaliplatin and leuc. ? goes away after a few bites. thanks all Tim
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practical advise before surgery
I'm the caregiver to my husband who was diagnosed last June with rectal cancer. Over the past year we've completed chemo and radiation. Just yesterday we finally received the surgery date. June 13th. I'd love some practical advise/suggestions on how to prepare. He will have a temporary bag. We live in a three story house,…
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Crooked Drug Companies
I recently posted about pharmecutical companies being concerned with profit only and doing anything to control the market. The link below is an article that made headlines this morning..need I say more. https://news.yahoo.com/u-states-sue-teva-19-other-drug-companies-135226843--finance.html
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My horse, my support animal
I just wanted to post something nice because things seem to be a little bit negative right now. On Saturday I went out to see my horse and give him his pill. I haven't been feeling well because in all the chemo and IVs for magnesium I managed to somehow totally forget that I need to have an IV for my parathyroid issue so…
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Descending Colon thickened and Free Fluid at the Pelvic (Mild Ascites)
HI! Everyone. I'm actually from another disussion boards on kidney cancer. I had my surgical in 2017 and pathology is T1a Nx Mx, with 4 cm tumor Clear Cell RCC. Yesterday, i was having my normal 6 months MRI scan. Everything was Ok on my abdomen and chest. (X ray) But they accidentally found my descending colon thickened…
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I'm ready to fight for my family.
I'm new to this site. Found out I had a problem on Valentine's Day of this year. Sigmoid colon cancer. What a slap in the face. Had resection surgery. That went well. My surgeon was amazed how quickly I recovered. 2 of 20 lymph nodes were positive. Mets to my liver. Everything else in there looks clean according to scan.…
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In Hopes It May Help Someone Else During Chemo
I am posting this in hopes that it may offer some relief to someone going thru treatment. I make no apologies for not being a supporter of chemo. Before I could have surgery, I had to do at least four rounds with Avastin to even be considered. I actually did five before surgery. I took several things that kept my blood…
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"Mr. Bubbles" Is OUT
My grandson gifted my port with that name when it was put in, lol. Again, a much better name than what I had in mind. I had surgery to have it removed yesterday and I drove home to the mountains today. They knocked me out in the OR and used surgical glue so I wouldn't have to make an extra trip back to SC. I couldn't…