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Oxaliplatin Use
I am no expert when it comes to cancer but I have read alot of history on this website and I try and stay away from the internet. I have a question which I am sure some of you may have the answer to from you personal experiences. My husband was diagnosed with MR Stage: T4 N3 which began our journey in August last year. He…
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Off Topic - Your Screen Name
Just to lighten things up and not talk about anything cancer, how did you get your screen name. Some are your names and others have a meaning. Mine was my Grandmother's name and joining on another site (game site) it told me that name Annabelle was taken so my age was 41 at the time so figured I'd add the 41 to it but…
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Partial Colostomy
Hi. Been wondering why i haven't visited the page for quite sometime. We'll guess what local recurrence is back. They found new tumor or mas in my rectum. And walla i am at the hospital right now. I had my surgery last april 8 and i am still at the hospital recovering. I have difficult coping up with the bag. I don't know…
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Blacking Out from Follow Up Chemo
My husband is in his 4th treatment of mop up chemo. On April 4th which was last day for 3rd treatment he blacked out in bathroom hitting his rib cage either on porcelain sink or shoving his device which holds chemo bag for his port into his rib cage then falling to floor hitting his head which ended him up in emergency…
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5 Years ++ Stage IV Survivors
Last night when I got ready for bed, I noticed the upper part of my left foot and toes seemed numb or asleep. I have never felt this or noticed it until last night. I have had surgery on my right foot and toes and deal with slight numbness in the right foot. The left foot was a different story. I guess good ole' neuropathy…
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Have you wanted to end treatment?
I am growing concerned with comments Jim has been making lately. He said he is getting tired of all of this and see's why people end treatment. I am beginning to wonder if he is thinking of stopping treatment. I don't know if it is his birthday blues (he turned 56 today) or he if he is genuinely has had enough. This ulcer…
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Saw my onc yesterday
I had the follow up to my last round of chemo that I didn't complete (again) due to my magnesium levels. The magnesium is low normal not and incresing so that should be good. My CEA is up by .2 so he's not worried about that at all. And my kidneys are still maintaining themselves. They're not great but not terrible and…
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One More "Free" Week
I drove down to SC yestereday and was geared up and ready to knock out my chemo session this morning. Once there, they drew blood for labs and took my back to my chair. I was unde my favorite furry blanket and ready for a good nap but it was a "no-go". My "baby" blood cell count was right on the borderline. My oncologist…
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The Meaning of Suffering
I'll try to reign in the philosophical babble that I do. Understanding I can't really be helped right now. Mental illness and cancer is a wicked cocktail. Along with gastroparesis and tinnitus among other things. I'm scheduled to have surgery on May 9th. Having all of or parts of my pancreas, spleen, small intestines,…
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There's always something new on the horizon
I came accross this article about the potential of ultrasound to treat colorectal metastises. I post not suggesting this is a viable treatment, but just to suggest that there are hundreds of treatments under examination and perhaps buying a few extra years of survival will help us to see new and hopefully better…
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Severe back pain —on chemo?
Hello Crew, I developed severe upper back pain after the 3rd cycle of Folfiri of avastin. MRI is fine and I suspect it is related. They feel that my muscles can get very tighT, produce an occasional spam, enter a contraction but can deconstruct tgemselves. The pain can hit 8 and as soon as it goes above 6 or 7 Percocet is…
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Immunity Therapy Clinic, Lonsurf, whats next?
My husband is trying to decide the next plan for Stage IV colon cancer. The doctors next treatment plan is Lonsurf. There wasn't too many recent discussions about Lonsurf. Among other treatments he is looking into Immunity Therapy Clinic in Mexico. It all sounds good, looks good, but it is also probably too good to be…
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Blood on surface of stool and very weird stool shape (help!)
Hi everyone, I am Robert. In the past year, I found several times bright red blood stripe the one side surface of my stool. I went to see a doctor for this. The doctor did sigmoidoscopy and found nothing. As bleeding continued (not so often, about two to three continuous days per month), I went to see doctor again. This…
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Cancer has taken almost everything now
Sorry, this is just a whine but this is the only place where people really understand about cancer and what it does. I just found out an hour ago that I owe over $10,000 for business taxes from the business I had to sell because I got cancer. We do not have that kind of money and just get by every month due to me not…
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Am I Doing The Right Thing?
I am still in such deep thought at times about this mop-up chemo. I am not quite 8 weeks out from my liver and colon resection. I am scheduled to start the first of 7 Folfox cycles left in my treatment on Tuesday. I keep telling myself "you got this", but there are times, I'm not so sure. When the path came back on the…
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Manapart
I've been thinking about you and wondered how you were doing. Is surgery still scheduled for May 9th? Kim
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HAI pump
To all those who have had metastasis to the liver and had the HAI pump installed, I would love to hear your stories. I am now a candidate for a HAI pump. I will be visiting Sloan Kettering to review this option in the coming weeks. I am eager to learn much about this option so that I can make my appointment the most…
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8 years and counting!
Hey all you awesome Semi-colons! August 6 was my 8 years anniversary of my dx. I just wanted to come on here and share the relative longevity of life after cancer! For those who don't know my story, I was dx'ed with Stage III sigmoid colon cancer, lymph positive (2/19), zero mets, and did NOT do a lick of chemo. I opted…
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Any chemo for life people here?
Yep, I heard it from my local oncologist and an MD Anderson doctor. They think it will be either FU5 plus Avastin or Zeloda plus Avastion that is basically the same s&&&. Trying to comfort me that there may be breaks. If you’d some how long they usually last? Hard to smallow those news.........Butt.
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Elevated Chromogranin A, brand new diagnosis
Input requested. My spouse had a recent colonoscopy and biopsy results came back, "neuroendocrine cancer. " After Chromogranin A level came back 195, his (new) Oncologist repeated lab and it came back LOW. Today, Oncologists repeated blood work. Husband has family history of prostate cancer (father) and pancreatic cancer…
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I read an interesting article today.
I often come to this site when I am really down and depressed. I need to see something positive from those who are going through what I am going through. I am stage IV. And I wanted to share infromation about an interesting article that I read today on medicalnewstoday.com. "Cancer: 'Off-the-shelf' stem cell treatment…
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I had a bit of a crazy week
I'm not sure if anyone else has had an experience like this, so I thought I would share. This past Monday I had about 20 minutes of what felt like something crawling around in my chest. I've had PVCs before (your heart beats a little out of sequence or something, feels like it skips a beat) and I thought it was probably…
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First Available appt in May
I was accepted as a patient at MSK. My appt is in May. Does anyone know if that "your on the call if appt becomes available" list actually happens? That seems so long. I know that my cancer grows slow, but still. I don't know if I should be happy to have the extra 5 weeks to be "normal", or worried that it is growing and…
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Stage 2A colon cancer Chemo or Surveillance?
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Remission
Just curious. When exactly does the remission start? Does it start after your last dose of chemo? Or is it from the result of your 1st follow-up scan after the chemo? I think it should start after your 1st scan result.
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Question about maintenance therapy
Has anyone ever been offered or have used Strivarga as a maintenance drug?? im not doing well on xeloda; hand and foot really bad. We’re currently lowering the dose to see how it goes. If my condition doesnt improve my options are to go back on the pump for 5 FU. Strivarga was also suggested, but honestly i thought that…
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Any Different After a Break?
Hey guys. I am amazed at how much easier the soreness has been in the past couple of days for me. Six weeks was the magic turning pointl. I still hurt and my energy is not the same but I am in so much more of a better place than I was a week or so ago. I was wondering about the second round of chemo I will start soon. Once…
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Folfiri and avastin chemo
Hello Group - I have recently been diagnosed with adenocarcinoma colorectal cancer with several mets to my liver. Will be starting folfiri and avastin chemo. Would anyone who has had folfiri and/or avastin, please post with their treatment, side effects, or suggestions. Thank you so much. Well wishes for everyone. Bellen
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Stage 2A to Stage 4
Hi everyone, I was NED for 3 years, and my recent CT scan showed a new growth in my liver. When i was diagnosed in 2016 we decided on 6 sessions of chemo and 5 weeks of radiation after my surgery. My Oncologist told me I was considered stage 4 now, and we dont know what the plan of attack is until i get a PET and MRI. Has…
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Targeted Drugs
Does anyone have experience with targeted drugs? I am currently between treatments while we find something to work at killing the two new lung lesions since they grew on folfox. Since I have been off chemo for 3 weeks, the lesions are still small (biggest is 1.1 cm) and I am realtively healthy, my oncologist wants me to go…