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Colorectal Cancer

I had a bit of a crazy week
I'm not sure if anyone else has had an experience like this, so I thought I would share. This past Monday I had about 20 minutes of what felt like something crawling around in my chest. I've had PVCs before (your heart beats a little out of sequence or something, feels like it skips a beat) and I thought it was probably…
First Available appt in May
I was accepted as a patient at MSK. My appt is in May. Does anyone know if that "your on the call if appt becomes available" list actually happens? That seems so long. I know that my cancer grows slow, but still. I don't know if I should be happy to have the extra 5 weeks to be "normal", or worried that it is growing and…
Stage 2A colon cancer Chemo or Surveillance?
Remission
Just curious. When exactly does the remission start? Does it start after your last dose of chemo? Or is it from the result of your 1st follow-up scan after the chemo? I think it should start after your 1st scan result.
Question about maintenance therapy
Has anyone ever been offered or have used Strivarga as a maintenance drug?? im not doing well on xeloda; hand and foot really bad. We’re currently lowering the dose to see how it goes. If my condition doesnt improve my options are to go back on the pump for 5 FU. Strivarga was also suggested, but honestly i thought that…
Any Different After a Break?
Hey guys. I am amazed at how much easier the soreness has been in the past couple of days for me. Six weeks was the magic turning pointl. I still hurt and my energy is not the same but I am in so much more of a better place than I was a week or so ago. I was wondering about the second round of chemo I will start soon. Once…
Folfiri and avastin chemo
Hello Group - I have recently been diagnosed with adenocarcinoma colorectal cancer with several mets to my liver. Will be starting folfiri and avastin chemo. Would anyone who has had folfiri and/or avastin, please post with their treatment, side effects, or suggestions. Thank you so much. Well wishes for everyone. Bellen
Stage 2A to Stage 4
Hi everyone, I was NED for 3 years, and my recent CT scan showed a new growth in my liver. When i was diagnosed in 2016 we decided on 6 sessions of chemo and 5 weeks of radiation after my surgery. My Oncologist told me I was considered stage 4 now, and we dont know what the plan of attack is until i get a PET and MRI. Has…
Targeted Drugs
Does anyone have experience with targeted drugs? I am currently between treatments while we find something to work at killing the two new lung lesions since they grew on folfox. Since I have been off chemo for 3 weeks, the lesions are still small (biggest is 1.1 cm) and I am realtively healthy, my oncologist wants me to go…
Looking for answers
I don't mean to be a damper on anyone else's battle with colorectal cancer, but I've just lost my wife to it and I'm looking for support groups... and answers. She was diagnosed stage IV in July 2017. It was a "right-sided" cancer, with the primary tumor in her transverse colon. By July 2018 they stopped trying to treat…
Ostomy help
Richard is recovering well from the surgery! I am learning and trying my best with changing the bag. i Am worried I am doing this all wrong and going to cause him more issues. today there was redness. It looks like the pouch is not sticking to the skin. His stomach is more inward. I looked in our goody bag from the…
New to this
Hi! 1/31 Colonoscopy - I had been passing blood. 5 inch tumor. Nothing else lit up in the CT scan done that day except a very teeny tiny spot on my lung. 2/25 Colon resection. Was in the hospital for 10 days due to complications post-op. Stage 3b - 1 lymph node. Oncologist visited me in the hospital and said he wasn’t…
fear over narcotic pain meds
It's been a while since i've posted here. I've been away from the board doing all kinds of fun things like swallowing Xeloda pills and laying inside a radiation machine. I have nine more treatments left before I get some time off to recuporate before surgery. For about three quarters of the radiation treatment I did well.…
I am not a Survivor
Ill try to make this brief. Rattling the cage, only annoys people. Theres no way out and venting doesn't help. I am not a survivor. I am not a fighter. I never will be. I have spent the last two months of my life trying to find the internal resources within me to have the courage and strength to fight cancer. Its not…
Another major surgery
We met with my surgeon this morning. After a discussion and an update on where things stand now, we’ve got a plan of action. First, we’re not doing anything about the fluid collection right away. I’ll continue taking dilaudid as needed. We also talked about the various surgeries to lower my risk of further cancers as a…
Surgery scheduled
So I finally got in for my MRI on Monday, and the results were good (or is it just not bad?). The CT in February was also normal. Today I had an appointment with the surgeon, and she said because the scan results showed no evidence of disease the plan would be for no chemoradiation before surgery and if lymph nodes test…
Hall Pass For Two More Weeks...
I got back to my moutain place yesterday. After having labs drawn (all looked good), I hit the road. It has been six weeks since surgery. Honestly, this weekend was the first time I actually thought I might turn the corner on this. This surgery was no picnic and I NEVER want to go thru anything like it again. I lost about…
Still has pain
Well Jim is still in a lot of pain. Tomorrow he is having an EDG done to check for an ulcer. I have begun to lose faith in the doctor that did his Y-90. He told us only 2% of patients could develop an ulcer, but I am reading 26% in studies....Which is it? Not that it matters really, the damage has been done, but I think he…
Steroid Receptor
So as a result of my chemo, I developed dry eye syndrome. I tried many OTC eye drops and nothing helped. I finally went to the optometrist and they prescribed steroid eye drops and anti-bacterial gel. I did that for a week and went back for a follow up. when you go to the optometrist, the first thing they do is an eye…
Visit to Surgeon - Another 4 Months
We went to see surgeon yesterday in hopes of obtaining date to have reversal surgery done on ileostomy. Should of known it would be something else that doctors neglect to inform their patients about. We now have to wait until mop up chemo is complete which will be middle of July as surgeon cannot perform surgery while…
How to Motivate Someone to Get Better?
My husband has been fantastic through all of this cancer crap I've gone through. He's taken care of me like a parent does when I've been bedridden or unable to leave the house. He's never been good about making meals because he and I eat very differently. There are some things we agree on but he likes spicy and fattening…
Surgery vs Cyber knife liver and lung
My sister has multiple smallish metastasis lighting up and liver and lungs. Her oncologist went to the tumor board and his thoughts were surgery on the liver and cyber knife on the lung with another round of big chemo afterwards. Yesterday my sister and I went to see the liver surgeon and had our first appointment with a…
Some sort of PTSD
Is this just me? No matter what I am going in for, chemo, scan results, whatever, I always have this fear in the back of my mind that he is going to tell me something is horribly wrong, and I must be hospitalized immediately, or that I have 2 weeks to live, or something along those lines. I am wondering if it is just me,…
CA19-9
has anyone had this tumor marker test done? For some reason my husband’s oncologist ran it, came back fine at 20 under 34 or maybe it was 37 is normal. it has not been tested before so I have nothing to gauge it against. He doesn’t see her for a month so he won’t ask her until then, maybe it’s because the bile duct tumor…
Anti-inlfammatory?
I have been having quite a bit of leg pain lately, possibly sciatica, or a different pinched nerve. I used to take aspirin liberally, but I have been warned to limit my use because of the risk of bleeding post-surgery. I tried iburprofen, but post-chemo, it caused some weird symptoms, so that is out. Prednisone is…
In remission or false hope
My wife is stage IV colon cancer with 2 suspected metastasize lymph nodes by the aorta. After 8 chemo cycle with 1 additional cycle thrown in, her 4th Pet scan last Wednesday (in 10 months) finally showed no convincing evidence of FDG-avid malignancy or metastatic disease. She was praying and hoping for this. Her…
Percentage question
I have a friend that had breast cancer about 7 years ago. She hasn't had a recurrance. She told me she's scared because her oncologist said there's a 50% chance it will come back. Here's my question. We all have an almost 50% chance of getting cancer including people that don't have it now. So doesn't that mean that she no…
The Big Talk Is Tomorrow
I am headed to SC tomorrow to meet with my oncologist to discuss mopup chemo and where I go from here. What a ride this has been. It has definitely made me think twice about how quick life can change on the spin of a dime. I was going to leave on Saturday but woke up having horrible pain and knew I could never make the…
Two Years
Two years ago I faced surgery for an obstructive tumor in my colon. I did not know if I would live to see another Spring (my favorite season, despite the allergies). After surgery, the results came back stage IIIb, and I did a single treatment with oxaliplatin, which I discontinued, and four months of capecitabine…
Therapist strongly suggested Hospice
Needless to say, I'm blown away and it's not helping me to climb out of the black hole that my Oncologist put me in with his harsh portrayal of my situation. No one can tell me that he could not have sounded so negative and dire. He crushed my spirit. I have felt like giving up and just way more physically sick since I saw…

Colorectal Cancer

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