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Newly Diagnosed
On 6/17 I had a colonoscopy done because of some rectal bleeding I had on 5/13. They had done a pelvic/abdominal CT which came back normal. After the colonoscopy my wife and I waited for the doc to come in expecting something minor. Boy, we were wrong, he found the following: An ulcerated 5 cm mass (which is considered…
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I think this is hilarious
I hope you guys enjoy it, too. And the link goes through okay. I've heard of every cancer 'cure' out there from possibilities to the ridiculous. Supposedly there are people doing reikie for me, whatever that is. And, yes, essential oils have been suggested. It both angers me and makes me laugh. I realize people have the…
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Nick 2 down 10 to go
So I saw my oncologist today as I said previeously I was upgraded to stage 4 I have a 9mm nodual lower L lobe increased from 2mm since March 27th upper L lobe 6cm nodual up from 2mm and a new 5mm nodual center R lobe that was not present the 27th of March doing my 2nd round of Folfox today starting a new pinpoint chemo…
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had another colonoscopy today
All clear , nothing found . Next one in three years. Ron.
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Back from Dana Farber
Hi All, Actually i got back on sunday in time to watch the SuperBowl. I'm from New England area, but would have been happy with either team winning. At least it was a close game. Well, the oncologist at DF confirmed that i am on the right course. Just a reminder-i was treated for rectal cancer...now has spread to lungs. He…
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Stage 3 Colon Cancer removed, finished chemo but CEA went up.
My husband was diagnosed with Stage 3 colon cancer last June. Ended up with emergency surgury, removed mass, 12 lyph nodes 4 of which tested positive, and some fatty tissue. Ended up with a colostomy. His CT scans at the time were clear for the lungs and liver. Did 12 rounds of 5FU/Oxyplatin. Had his first after chemo CT…
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Husband recently diagnosed has missed 2 weeks of chemo due to low WBC
Hi everyone, I hope I'm not breaking any protocol by having this be my first official post on this forum, though I've been reading for a while. My 46-year-old husband was diagnosed with colon cancer about 2 months ago. He had a colostomy and the surgeon said it will not be resectable because it's on the verge of being…
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Lonsurf results so far
This is my first post. I have been reading this board for some time. I felt it was time to report this to other members. I had been on every other chemo treatment available to me with moderate sucess, and they all quit working. I have colon cancer with mets tp liver, lungs, and peritoneal lining. I was diagnosed in Febuary…
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Hope
It has been a number of years since I was on this website. I actually lost my login info it has been so long. My cancer battle started in 2007 with rectal tumor. 1 1/2 years later it was in my liver with three tumors. Had surgery, chemo and was clear for about two years and it came back. Another liver resection, more chemo…
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A Happy thread
Please share your happy days. Your happy pictures. You happy thoughts. Your joy. Happiness is sometimes elusive when you are going through treatment, and especially when you are newly diagnosed. A happy thread is here, to show there is joy and hope for those neck deep in treatment, when things look dark and dreary, and all…
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1 down 11 to go update
So yesterday Doc told me I have upgraded to stage 4 it has spread to my lungs and in more lymph nodes. Radiologist and Oncologist putting together my new treatment will continue folfox6 and 5 FU pump but increasing dosage and duration. I have decided to end all my correspondences Letters, emails ect. with (So far so good!)…
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Whirlwind
The next 10 days are going to be a whirlwind. I had a liver resection in February and in March a PET scan showed a liver met that wasn’t there 30 days before. The plan was to see what 4 rounds of Folfox & Avastin would do to the new tumor. Unfortunately, I did not tolerate the oxalyplatin so for session 4 it was Xeloda &…
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Preparation for Colon Cancer related Liver resection
Hello, it’s been a while since I’ve been here. In the interim my medical team determined that despite being stage IV colon cancer (diagnosed 2.5 years ago), I am a candidate for a surgical option. The primary tumor was removed from the colon last March and I am back on chemo getting ready for liver resection sometime late…
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1 down 11 to go
NICKTACOMA STAGE 3 COLON CANCER. So on Monday I did my first chemo treatment. So far the only side effect is a little nausia when I turn my head to qiuckly and a little neuropathy. Had a full head to toe scan for possible hidden tumor CEA levels are rising. Will get results on Monday 17th. Praying for a negative result.…
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HAPPY BIRTHDAY, KIM (Annabelle41415)
It's party time on the forum Kim is having a birthday. WOO HOO ! Dearest Kim, I hope your day is fantastic from the minute you got up to the minute you lay back down again. HAPPY, HAPPY BIRTHDAY ! Tru
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Help. Rectal cancer. Now radiation and chemo 5 days a week
My partner was just diagnosed with rectal cancer. The tumor is close to the anus so they recommended 5 day a week radiation for 6 weeks and portable chemo that he will "plug" into a port using a take home machine and wear it 24 hours a day M-F and then have it undone and start over the next week for 6 weeks. Has anyone had…
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First Appointment W/New Oncologist
I had my initial appointment with my new doctor yesterday. I really liked him. He spent 1 1/2 hours just listening and talking with me. He truly listened and was genuinely interested in every detail of my care from the start to where it will go from here. He did not try to influence me on taking chemo. My oncologist in SC…
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Afinitor (everolimus) Chemo Pills
Mom has been on many different chemo and surgeries. She has stage 4 colon cancer mets to liver. Last chemo was Stivarga which she was on for 2 cycles and the CT scan showed tumor growth in the liver. We've tried all the common chemo for colon cancer so there's not much options let. Now the oncologist started us on Afinitor…
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DPD deficiency..another life lost
I switched over to the liver forum yesterday and was saddened to read of a member's story about the loss of her husband due to DPD defiency. By the time it was discovered he had it, it was too late. My husband had it as well. He suffered severely and expereienced horrible side effects that destroyed him from the inside…
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Inspiration
The pic I uploaded to my profile is one of a day that was full of joy and happiness. I uploaded it in honor of my husband and his fight with this God awful disease. You don't know him. If you did, you would know that he fought his battle with the disease with everything he had. He did it with more grace, dignity and…
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Hello, and Thanks To You All For the Information
I had my 10 year (OK, 12) colonoscopy, and when I woke up, the Dr. peeked around the curtain and said "Well Mr. Capox Dude, sometimes we have to deliver bad news..." So anyway, after surgery (large tumor in cecum removed in lap colectomy) they came back with III B and three lymph nodes positive. I had a good surgeon, and…
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Numbers Numbers Numbers
I have said it once and I will say it again.....I HATE NUMBERS! Jim's CEA is doing well small drops and that makes me so happy but on Friday, we got a call, his potassium numbers went down....way down.....hovering at severely low down, 2.3 (aka severe hypkalmeia).....Naturally they wanted to admit and he didn't want to go…
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Stivarga
Has anyone taken this drug? Does it work? What are the side effects?
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Glutamine And Neuropathy Caused By Chemotherapy
Starting chemo in 2 weeks my onc told me about the likelihood of peripheral neuropathy and suggetsed that I buy Glutamine has any one tried this suppliment? Did it help? just trying to get prepaired for up coming treatments. As always Thank You for the info.
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New Oncologist
I guess I am "attached" to you guys here, lol. I had an appointment with my family doctor here in the mountains after I got settled back in to update him and hopefully get him to monitor me so I wouldn't have to travel back to SC for scans, etc. He was wonderful and admitted that he would prefer me to be under the watch of…
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positive cologuard test
Hi all, I recently had a positive cologuard test which I took at the request of my primary. Now I have a colonoscopy scheduled this coming Friday. I had my first colonoscopy done 5 years ago and it was a complete disaster. The prep made me very sick, my colon did not clean out completely even though I followed the…
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Finally today is the day supposed to discuss treatments
I realize my cancer is slow growing but I have had such anxiety at tumors growing while no one seems to be in a hurry to discuss my treatment options with me. I sent message how anxious I am so they assured me today I would be finding out about possible treatments.
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Long term stage 4 survivor
I went to our local cancer support group this evening and we have a couple of new members. The eoamn I sat next to is a breat cancer survivor and when I told her the cancer I have she told me that she has a friend who is a 27 years stage four colon cancer survivor! He had some nasty chemo early that they don't use anymore…
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So we get to add a new Dr to our giant list
because the moron I am married to ( said with love and a little annoyance) did a dumb thing. We have to go to the wound center. Luckily I know everyone there and they are amazing because my Dad was there almost every day for years. One of the nurses came to his room and stayed with my mom when he died, she loved him so…
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Looking on lung mets options-need help!
i have stage 4 colon cancer that eventually wend into lungs. Dozens of small mets on both lobs. Doing chemo , the second line, there is a very minor growth on 4 of them let s say increase is about 1 mm. Vats surgery, SBRT is not an option because they need a much smaller number. Contacted Dr.Drews in Coswig hospital in…