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Colorectal Cancer

Ostomy bag covers
Has anyone made their own? I'm going to try it. I got a pattern off of the internet and I'll see if it works or is not worth it. If anyone has any tips for making these I'd really appreciate it! Maybe I'm better off just buying a few that are premade, I'll see. Thanks! Jan
Lonsurf or Time to look for a Trial?
Hi, This is the first time I have been on this forum. My husband was diagnosed with Stage IV Colon Cancer with Mets to the liver in December of 2015. He is amazing! He has never given up because he wants to be here for our family, and he continues to work full-time because he loves his job. He has had over seventy chemo…
CT Scan results, 2 months after last Y90 very bad
Saw my Oncologist yesterday, he brought the hammer down! He was grim and tried to take every last bit of my hope. My scan results were bad indeed. I have spots all in my lungs now, I only had a couple of tiny ones before. There was a lot of new dark areas in my liver. The doctor actually told me that the two Y90 treatments…
Chronic diaherra
I am six years out from surgery for colo rectal cancer. Have had chronic diaherra every since. Some days are worse than others. I have a kidney nephrostomy tube in my right kidney as my right urerter has a large stricture in it from radiation. This keeps me from swimming which is what I was doing before the tube. Now I…
Still waiting
So my initial diagnosis was over a month ago, and I'm still waiting for the staging to be done. Colonoscopy was 2/12, 0.9cm polyp removed from rectum near sigmoid. "The talk" with my GI was 2/19. CT scan (good news there) was 2/20. Initial consult with surgeon was scheduled for 2/27 but went completely sideways when I got…
APR Bladder question
Richard had the APR last Tuesday. He the catheter was removed Saturda. He was unable to go after 6 hours so the cathed him again. They also started flomax. the catheter was removed this morning at midnight. He was able to go little around 10:30am. an ultrasound showed he still had a lot of urine in the bladder. So he is…
Ostomy Bag and Gas
I've had my illeostomy for just over 5 years now. I've never had a problem with gas or noises. I've had the odd time where it's made a noise or filled with gas but it's been few and far between. Suddenly, in the past two weeks it's really noisy and makes some very clear fart noises several times a day. And gurgling noises…
Back in the ER
wrll, my troublesome back pain that was a symptom of my last liver abscess is back. Since it’s gotten worse over the last two weeks and now it hurts to take a deep breath and I’m not getting as deep a breath, my oncologist suggested heading to the ER to get checked out. So I’m now comfortable in the ER after a dose of…
Some good news
I figured I would share some good news. Today is the start of my last chemo round! It’s been a long 8 months for sure. Next up is new scans and blood work in mid March for a new baseline. If they’re clear, we’ll meet with surgery a few weeks later to start planning my total colectomy and my hysterectomy. My oncologist is…
Knee Replacement and Mop Up Chemo
Husband had knee replacement 9 years ago and is now going through mop up chemo. Currently 3 days on chemo with 11 day grace period. Just completed second treatment yesterday and he tells me today leg that had knee replacement is bothering him. Wondering if anyone out there has had similar issues. Thanks, Kate
High Bilirubin
Hello Friends, My total bilirubin came out 2.0 and Indirect Bilirubin is 1.0(normal is less tha 0.9), direct bilirubin is also high little bit. I wonder anybody has similar or almost the same bilirubin level. Would you suggest any suplement or food to lower the numbers. My sclera on eyes little bit yellowish now but skin…
Specifically mucinous adenocarcinoma
Hi Everyone, **** just finished his 28th treatment. He unhooked yesterday and helped me set up my classroom all day today. He is a wonderful man. He wants to know who out there also has mucinous adenocarcinoma and what your story is. In other words is there a pattern with this cancer? Did you find a treatment that worked?…
Try to read the tech
Am I the only one who tries to "read" the tech when they help you out of the scan machine. I know they can't read the results like a radiologist or doctor, but still, every time, I am looking for every look of pity or smile as if they saw or didn't see something on my scan. Yesterday was another pet scan to see if those…
17 Years Later!
17 Years Later! Hello CSN Family, Just wanted to share hope and inspiration to anyone starting this journey. Brief History: March 20, 2002 I had my surgery for Rectal Cancer at age 40. Stage 3C with 10 positive Lymph Nodes Had follow up Chemo and Chemo/ Radiation Combo No Recurrences So on this beautiful sunny day and the…
Extramural Venous Invasion
Hello everyone. I had my first colonoscopy since turning 50 and the doctor found what he suspected was a very early cancer (he did not remove it at the time but a biopsy confirmed cancer cells). I recently had surgery to remove my sigmoid colon. The pathology report came back as Stage 1. Seventeen lymph nodes were all…
Scan today
so yea, having the ole scanxiety! I finished treatment last December. The first scan at the end of 2018 was NED. It’s been 3 months and time for the next one and of course I can’t sleep. I wish I could turn off my brain. My sister, who I dearly love, tells me I must meditate and ”see” myself as healed. I really want to...…
Happy Birthday JanJan
- I know you got allot of Birthday wishes on my Birthday thread, but you get a thread all of your own - Thinking of you today, and hoping it is filled with all of the good things in life. Family, friends, Food and life. Tru
Mutations vs no mutations
So while I have been dealing with rectal cancer since May 2016, I have never understood the whole mutation thing. I know that sounds crazy but I just never focused on it. My oncologist told me that my tumor that was removed from my lung was rectal cancer but not the mutated kind. And that was all he said. To be honest, i…
Spouse Diagnosed - 31
Hello everyone, My husband has recently been diagnosed with colorectal cancer at the age of 31. It's been a huge shock, not just for him, but for myself as well. 3 weeks ago, we took him the ER due to vomiting, severe constipation, and pain in his abdomen. He had been having on and off symptoms of IBS since December 2018.…
Birthday celebration
This forum is a wonderful place. A place of information, advice, sorrow and joy. If anyone is interested in sharing their birthdate with me, I will try my best to post a celebration thread. When I was diagnosed, and all seemed dark, I wondered if I would reach my next birthday; so I decided to celebrate my birthday every…
Keytruda
Is anyone on this ? And what is your expericnce? My husband has peritoneal carcinomatosis and is not doing well - they want to try Keytruda - he is MSI H and tumor burden is 28.
Sleepless Nights
Husband diagnosed with rectal cancer 8.1.18 after colonoscopy which he had due to bleeding in his rectum. Treatment was radiation and chemo. Surgery 1.17.19; removed rectum, has temporary ileostomy. After surgery doctor stated they were able to get all of the cancer and it did not go into his other organs or seminal…
Newly diagnosed and unable to cope
I preface by say that I also have panic and anxiety disorder and PTSD, so its nearly impossible for me to control my thoughts and emotions. I have been in complete turmoil since the shocking diagnoses. My level of stress as caused my BP to be at stroke levels. I dont know how to calm down when my entire life has been…
Accuracy of CT scans in Right Colon Cancer
Here's a scary one: CT scans were inaccurate in almost half of the scans examined: https://www.ncbi.nlm.nih.gov/pubmed/30870227 Of 150 CT scans reviewed, CT failed to identify primary cancer in 19.3%. Overall accuracy of CT to identify unfavorable pathologic features was 63% with sensitivity, specificity, positive…
Liver Resection Pain
Hey guys. First I will say I am grateful to be healing. Of course I want the fast track approach but that ain't happening no matter what I do, lol. I wanted to throw this out there and see if any of you dealt with it. I am able to move and adjust in bed much better with the soreness. The big kicker for me is these random…
Travel Tips
My friend is taking my daughter and I to Arizona next month. I haven't crossed the border since my diagnosis so I have some possibly stupid questions. What's the best way to get my prescription meds across? Just take them in their bottles and only the amount I'll need? And they should be in a carry on, right? Will they…
3rd month of 6 mo. life expect
First time on the boards so please excuse me if my post is too long-winded. if I am a 57 year old female who was diagnosed in Oct. 2018 with stage 4 colorectal cancer with metastasis in the lungs. Three doctors said my tumors were very extensive and I was not a candidate for an operation or chemo (I have some exterior…
Colostomy vs Ileostomy
Surgery last summer left me with a colostomy. With Lynch, I’m strongly looking at the possibility of an ileostomy later this year. Can someone help me understand the practical realities between the two, from supplies needed to lifestyle changes, etc? I already understand the surgical and anatomical differences, but I’m…
Hubby got an APR
We are here at MD Anderson Hospital. Hubby has his APR last week and he is still recovering. The colon surgeon is confident all remaining cancer was removeD. This was left from what the first surgeon missed. She said they tested the tissues and most of it was dead from all of the chemo and radiation. Richard had A foot of…
Alkaline Phosphatase
For anyone who has had a liver resection, how long did it take for your liver enzymes to return to normal? I had 20% of my liver removed back in July and my liver enzymes still haven’t returned to normal, especially the levels of alkaline phosphatase. Since surgery, they haven’t been under 300 and a couple times it’s been…

Colorectal Cancer

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