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Post takedown
My husband is recovering from an ileostomy takedown he had 1 week ago. So many questions...! We didn’t realize it would be this hard. Do the nearly constant trips to the bathroom ease up soon? It’s very painful for him and we’re wanting to know if this is normal from people that have experienced this. Thank you. Mary
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Recurrence after almost 10 years NED - came back with a vengeance!
Hi, Well been a while since I have been on this board. My husband was diagnosed with stage II colon cancer back in Sept 2009. Had surgery and was NED ever since. Well during just a routine annual Xray guess its back in full force. They found liver mets and mets in the periitneal and also he has some ascites. He was felling…
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Cancer nerds/Vitamin D calculator
This information is probably only interesting to "cancer nerds," or those who believe Vitamin D levels are important. This is a calculator created by the authors of an article with a fairly small sample to to use Vitamin D levels to calculate a five-year colorectal cancer survival rate. Please note you will need to convert…
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Optimizing the odds of avoiding cancer recurrence: Go jogging in your Speedo or bikini!
Optimizing the odds of avoiding cancer recurrence: Go jogging in your Speedo or bikini! I have been looking around, mostly on pubmed ( https://www.ncbi.nlm.nih.gov/pubmed/ ), for non-chemotherapy strategies to reduce cancer recurrence and mortality. To avoid an overlong post, I will summarize very briefly the information I…
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Have you guys heard of sulforaphane?
I was just poking around on the PubMed site (as I often do, I know, I should get a life) I happened across an article where they were testing how you could increase the anticancer activity of 5-FU by adding in sulforaphane, which is a naturally occurring compound in broccoli and other members of that family (but found up…
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Been lurking for 4 years....
I was diagnosed in June of 2015 (3 weeks before my son's wedding!) at Stage 4B with mets to lymph nodes, both lungs and one adrenal. Didn't tell my family until after the kids got back from their honeymoon. By that time, surgery was only a few days away. Had 12 rounds of Folfox with 5FU followed by 12 rounds of Avastin…
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CEA is up again, so frustrated
I just got a call from my doctor's office. They have all the results now from my last bloood test. My creatine is up which means my kidneys are getting worse, as I mentioned previously, my magnesium is low again, and my CEA has gone back up tp 55. It was 5.6 in March when I stopped chemo. I feel so defeated. It's so…
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Happy Birthday Alice514
I hope you are having the best of days, and that this year will bring your nothing but good news, good times and lots and lots of love. Tru
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Vinegar
I've heard so much about taking a tablespoon or two everyday for health benefits and wondered if anyone here has done it. I've been doing it for about a week but wondered if anyone else has done this. Kim
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Jaw pain
Has anyone experienced jaw pain with the first few bites of food when on folfox 6, 5fu oxaliplatin and leuc. ? goes away after a few bites. thanks all Tim
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practical advise before surgery
I'm the caregiver to my husband who was diagnosed last June with rectal cancer. Over the past year we've completed chemo and radiation. Just yesterday we finally received the surgery date. June 13th. I'd love some practical advise/suggestions on how to prepare. He will have a temporary bag. We live in a three story house,…
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Crooked Drug Companies
I recently posted about pharmecutical companies being concerned with profit only and doing anything to control the market. The link below is an article that made headlines this morning..need I say more. https://news.yahoo.com/u-states-sue-teva-19-other-drug-companies-135226843--finance.html
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My horse, my support animal
I just wanted to post something nice because things seem to be a little bit negative right now. On Saturday I went out to see my horse and give him his pill. I haven't been feeling well because in all the chemo and IVs for magnesium I managed to somehow totally forget that I need to have an IV for my parathyroid issue so…
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Descending Colon thickened and Free Fluid at the Pelvic (Mild Ascites)
HI! Everyone. I'm actually from another disussion boards on kidney cancer. I had my surgical in 2017 and pathology is T1a Nx Mx, with 4 cm tumor Clear Cell RCC. Yesterday, i was having my normal 6 months MRI scan. Everything was Ok on my abdomen and chest. (X ray) But they accidentally found my descending colon thickened…
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I'm ready to fight for my family.
I'm new to this site. Found out I had a problem on Valentine's Day of this year. Sigmoid colon cancer. What a slap in the face. Had resection surgery. That went well. My surgeon was amazed how quickly I recovered. 2 of 20 lymph nodes were positive. Mets to my liver. Everything else in there looks clean according to scan.…
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In Hopes It May Help Someone Else During Chemo
I am posting this in hopes that it may offer some relief to someone going thru treatment. I make no apologies for not being a supporter of chemo. Before I could have surgery, I had to do at least four rounds with Avastin to even be considered. I actually did five before surgery. I took several things that kept my blood…
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"Mr. Bubbles" Is OUT
My grandson gifted my port with that name when it was put in, lol. Again, a much better name than what I had in mind. I had surgery to have it removed yesterday and I drove home to the mountains today. They knocked me out in the OR and used surgical glue so I wouldn't have to make an extra trip back to SC. I couldn't…
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Just read this news
https://advancingthescience.mayo.edu/2016/12/29/drug-combo-stems-tumor-growth-in-lung-cancer/
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Stage 2A to Stage 4
Hello all, Long story short, I had rectal cancer in 2016 received oxliplatin and radiation along with surgery to remove the mass. I am now 33 and my cancer has returned with a two inch met to my liver. My doctor initially decided to start me on the same oxliplatin and xeloda which was the regimen I was previously on. I…
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Neuropathy?
I have seen neuropathy discussed quite a bit, particularly as it relates to hands and feet. I am 9 days out from my last infusion. For the last 6 days I have struggled with numb lips and my tongue feels like it's burned. I am, of course, avoiding cold, but even room temperature water can be uncomfortable at times. Has any…
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Why A Good Doctor Is Important -MSK Giving Me Three Weeks Cycle
One of the things I consider myself very luck is that the staff - doctors, nurses, receptionists up and down the board, with one exception - have been absolutely great. More so when I see some of the things people go through here. Ditto for being lucky that I think I have avoided many of the major side issues. I mean other…
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Natural remedies to fight colorectal cancer
I recently had surgery to remove an ovarian mass only to find out during surgery that cancer had started in the colon and had spread to my ovaries. Everything was removed (hopefully), so I am very keen on building up my immune system and hopefully preventing anything from coming back in the colon. I have started taking…
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removing colon tumor before chemo or after
My husband was diagnosed with colorectal cancer and liver mets in October last year. He received Folfox for 6 rounds and then folfox, oxi and avastin for 6 rounds. At first his pain was severe but he had a pain block done and was great for 3 months. Last week he had a ct scan and the liver is doing well but the colon tumor…
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burning lungs????
My Husband is being treated for Colon Cancer with Capcetabine and Oxaliplatin. He is 110 days in to the treatment and has been experiencing his lungs burning. It feel to him like you are going for a hard run and your lungs start burning. The difference is he is maybe only walking or sometimes just sitting. He covers his…
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Major open surgery soon... Desperately need help
Im visiting my surgeon oncologist for the last time Monday before my surgery on May 9th. Im a bit worse for wear atm mentally and physically. I dont think I have been this psychologically depressed ever, and im having numerous panic attacks daily. I scheduled this appointment Monday due to them wanting to talk to me again…
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new to the colon Cancer/Colectomy
My husband has been in the hospial since May 1st. We thought it was a bad case of food posioning. Surprise as the doctors recommended an extended Colectomy. Adenocarcinoma and awaiting comfermation on Lynch syndrome 2. We are awaiting pathology results. A Colectomy seems pretty radical. I was told about a J pouch. any…
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ileus after open abdominal surgery
Since my oncologist nurse blocked my cell phone and email from asking any further questions about my surgery thursday morning, I guess ill pose the question here about ileus. How long does it take for your digestive system to function normally. Its kind of unpredictable in my case since I have gastroparesis, so it doesnt…
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Swimming with Ostomy bag
Hi Friends, I will have a little vacation in Cancun in May. I wonder if anybody has suggestions that had a good swim suits to cover Ostomy bag. I am nervous and cover Ostomy bag completely. Thank you for sharing your experience. Thanks Kadir
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Near the end
My wife, and best friend, of 49 years is nearing the end of colon cancer. We are in the “weeks” left stage. She is not in pain and sleeps most of the time. I am the primary caregiver and am going through treatment for Acute Myeloid Leukemia. I am pretty much on the backside, but still need chemo every 5 weeks to keep the…
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Retired!
i finally did it! Starting My official retirement today! I think I had more sleepless nights over this than actual work. LOL. I have worked for 50 years! Now time to relax. I worked through the last 3 Years of treatment and now that I’m NED, I will relax. Lots of home projects to keep me busy and lots of walking to keep me…