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New to this forum advice needed
I have stage 3c colon cancer. I had large tumor removed (colectomy) and gallbladder removed on the 24th of April I will be starting chemo in 2 weeks FOLFOX for 6 months not sure of radiaton yet meeting with radiologist in 1 week 12 of 38 lymphnodes were positive for Cancer cells. Getting nervous port will be put in next…
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Fatigue
Okay, I'm having a bad day and I'm so sick of the fatigue. Most days I push through it but today it's so hard although I'm still trying. I'm low on megnesium again so that doesn't help. I take 4 tablets a day but it doesn't absorb well so that affects my energy level. The food that have it in are mostly things I'm unable…
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Dandelions (More Than A Weed)
I have always been a supporter of natural supplements and nutrition..even more so now. All of us are different and at different stages of dealing with our cancer diagnosis. For me, my liver was the first place the cancer traveled. Dandelion leaves and tea are part of my diet. A simple weed that you can consume from flower…
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POST COLORECTAL TREATMENT
Hello to all CSN Members, I am in search of recommendations/suggestions that the community may be aware of with regard to discomfort from bowel movements as detailed below: Background: * Diagnosed with CR Cancer Stage III on Jan 4th 2018. CT Scan and follow-up biopsies taken during Colonscopy confirmed Low Grade…
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New here
Hi All Ive been lurking for a couple days and am so glad to have found you guys. I was diagnosed in July 2018with colon cancer.. Started chemo in August with the plan to have the 6 months of folfax oxiplatin etc. 6 mos came and went and I’m still getting the chemo every two weeks. My doctor has not discussed an end date…
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Kayak On The Water
The profile pic I uploaded was from my first kayak trip today. Boy, can I tell my energy level has changed.. lol Muscle tone wasted away over the past few months but I paddled thru.. lol.. The pic shows a momma duck and her babies. They came right up to me.. such a beautiful day. I am so grateful for this “moment”...Hope…
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Post takedown
My husband is recovering from an ileostomy takedown he had 1 week ago. So many questions...! We didn’t realize it would be this hard. Do the nearly constant trips to the bathroom ease up soon? It’s very painful for him and we’re wanting to know if this is normal from people that have experienced this. Thank you. Mary
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Recurrence after almost 10 years NED - came back with a vengeance!
Hi, Well been a while since I have been on this board. My husband was diagnosed with stage II colon cancer back in Sept 2009. Had surgery and was NED ever since. Well during just a routine annual Xray guess its back in full force. They found liver mets and mets in the periitneal and also he has some ascites. He was felling…
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Cancer nerds/Vitamin D calculator
This information is probably only interesting to "cancer nerds," or those who believe Vitamin D levels are important. This is a calculator created by the authors of an article with a fairly small sample to to use Vitamin D levels to calculate a five-year colorectal cancer survival rate. Please note you will need to convert…
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Optimizing the odds of avoiding cancer recurrence: Go jogging in your Speedo or bikini!
Optimizing the odds of avoiding cancer recurrence: Go jogging in your Speedo or bikini! I have been looking around, mostly on pubmed ( https://www.ncbi.nlm.nih.gov/pubmed/ ), for non-chemotherapy strategies to reduce cancer recurrence and mortality. To avoid an overlong post, I will summarize very briefly the information I…
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Have you guys heard of sulforaphane?
I was just poking around on the PubMed site (as I often do, I know, I should get a life) I happened across an article where they were testing how you could increase the anticancer activity of 5-FU by adding in sulforaphane, which is a naturally occurring compound in broccoli and other members of that family (but found up…
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Been lurking for 4 years....
I was diagnosed in June of 2015 (3 weeks before my son's wedding!) at Stage 4B with mets to lymph nodes, both lungs and one adrenal. Didn't tell my family until after the kids got back from their honeymoon. By that time, surgery was only a few days away. Had 12 rounds of Folfox with 5FU followed by 12 rounds of Avastin…
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CEA is up again, so frustrated
I just got a call from my doctor's office. They have all the results now from my last bloood test. My creatine is up which means my kidneys are getting worse, as I mentioned previously, my magnesium is low again, and my CEA has gone back up tp 55. It was 5.6 in March when I stopped chemo. I feel so defeated. It's so…
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Happy Birthday Alice514
I hope you are having the best of days, and that this year will bring your nothing but good news, good times and lots and lots of love. Tru
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Vinegar
I've heard so much about taking a tablespoon or two everyday for health benefits and wondered if anyone here has done it. I've been doing it for about a week but wondered if anyone else has done this. Kim
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Jaw pain
Has anyone experienced jaw pain with the first few bites of food when on folfox 6, 5fu oxaliplatin and leuc. ? goes away after a few bites. thanks all Tim
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practical advise before surgery
I'm the caregiver to my husband who was diagnosed last June with rectal cancer. Over the past year we've completed chemo and radiation. Just yesterday we finally received the surgery date. June 13th. I'd love some practical advise/suggestions on how to prepare. He will have a temporary bag. We live in a three story house,…
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Crooked Drug Companies
I recently posted about pharmecutical companies being concerned with profit only and doing anything to control the market. The link below is an article that made headlines this morning..need I say more. https://news.yahoo.com/u-states-sue-teva-19-other-drug-companies-135226843--finance.html
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My horse, my support animal
I just wanted to post something nice because things seem to be a little bit negative right now. On Saturday I went out to see my horse and give him his pill. I haven't been feeling well because in all the chemo and IVs for magnesium I managed to somehow totally forget that I need to have an IV for my parathyroid issue so…
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Descending Colon thickened and Free Fluid at the Pelvic (Mild Ascites)
HI! Everyone. I'm actually from another disussion boards on kidney cancer. I had my surgical in 2017 and pathology is T1a Nx Mx, with 4 cm tumor Clear Cell RCC. Yesterday, i was having my normal 6 months MRI scan. Everything was Ok on my abdomen and chest. (X ray) But they accidentally found my descending colon thickened…
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I'm ready to fight for my family.
I'm new to this site. Found out I had a problem on Valentine's Day of this year. Sigmoid colon cancer. What a slap in the face. Had resection surgery. That went well. My surgeon was amazed how quickly I recovered. 2 of 20 lymph nodes were positive. Mets to my liver. Everything else in there looks clean according to scan.…
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In Hopes It May Help Someone Else During Chemo
I am posting this in hopes that it may offer some relief to someone going thru treatment. I make no apologies for not being a supporter of chemo. Before I could have surgery, I had to do at least four rounds with Avastin to even be considered. I actually did five before surgery. I took several things that kept my blood…
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"Mr. Bubbles" Is OUT
My grandson gifted my port with that name when it was put in, lol. Again, a much better name than what I had in mind. I had surgery to have it removed yesterday and I drove home to the mountains today. They knocked me out in the OR and used surgical glue so I wouldn't have to make an extra trip back to SC. I couldn't…
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Just read this news
https://advancingthescience.mayo.edu/2016/12/29/drug-combo-stems-tumor-growth-in-lung-cancer/
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Stage 2A to Stage 4
Hello all, Long story short, I had rectal cancer in 2016 received oxliplatin and radiation along with surgery to remove the mass. I am now 33 and my cancer has returned with a two inch met to my liver. My doctor initially decided to start me on the same oxliplatin and xeloda which was the regimen I was previously on. I…
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Neuropathy?
I have seen neuropathy discussed quite a bit, particularly as it relates to hands and feet. I am 9 days out from my last infusion. For the last 6 days I have struggled with numb lips and my tongue feels like it's burned. I am, of course, avoiding cold, but even room temperature water can be uncomfortable at times. Has any…
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Why A Good Doctor Is Important -MSK Giving Me Three Weeks Cycle
One of the things I consider myself very luck is that the staff - doctors, nurses, receptionists up and down the board, with one exception - have been absolutely great. More so when I see some of the things people go through here. Ditto for being lucky that I think I have avoided many of the major side issues. I mean other…
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Natural remedies to fight colorectal cancer
I recently had surgery to remove an ovarian mass only to find out during surgery that cancer had started in the colon and had spread to my ovaries. Everything was removed (hopefully), so I am very keen on building up my immune system and hopefully preventing anything from coming back in the colon. I have started taking…
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removing colon tumor before chemo or after
My husband was diagnosed with colorectal cancer and liver mets in October last year. He received Folfox for 6 rounds and then folfox, oxi and avastin for 6 rounds. At first his pain was severe but he had a pain block done and was great for 3 months. Last week he had a ct scan and the liver is doing well but the colon tumor…
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burning lungs????
My Husband is being treated for Colon Cancer with Capcetabine and Oxaliplatin. He is 110 days in to the treatment and has been experiencing his lungs burning. It feel to him like you are going for a hard run and your lungs start burning. The difference is he is maybe only walking or sometimes just sitting. He covers his…