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Port area turned red
Last time I was given chemo it licked out toward the end of my 46 hour infusion. Spots in a t shirt in the morning and some redness on my chest. I was told to wash the area on my skin well. No brainer. I was also applying an antibiotic ointment that I successfully obtained after performing on myself an ingrown nail…
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2nd Opinion Extended Right Hemicolectomy Vs Transverse Colectomy
Hello all, I had went and got a 2nd opinion on my Transverse colon mass. The first doctor wants to do a open Transverse colectomy. I just got a 2nd opinion of an Robot assisted laparascopic extended right Hemicolectomy. The first doctor is a surgical oncologist, the 2nd is condsidered propably the best colorectal surgeon…
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6 month scan NED
I don’t know when the count actually begins...this nightmare began in 2016. It came back in my left lung in 2018. my doctor said I was cancer free right after my surgery in April.... so from that date, I have been NED for 14 months. I finished chemo the end of December 2018 so from that date, I have been NED for 6 months.…
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Anyone try Regorafenib/Stivarga lately, 2019?
Good Morning, All. I have stage 4 colorectal cancer, with mets in my liver and a couple of lymph nodes. So far I haven't had cancer in my lungs, but I've been getting breathless lately. I'm getting a CT scan this morning after a CEA tumor tracker that increased significantly. Started with FOLFOX plus avastin a year ago…
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Venting I guess
As I've mentioned, Hospice keeps being brought up to me. I don't understand it. Other than being really sick for the past month due to a respiratory flu, which my son also is battling for a month a he does NOT have cancer. It's a really bad bug!! Other than the major down time for that, I am normally getting dressed,…
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Keeping Ms Boop15 In Our Thoughts
Just wanted to remind everyone to send good energy and prayers to Elaine. This was the week of her liver resection. Hoping all has gone well and we get an update with good news on recovery and progress. Hugs, M
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Butt is venting---need feedback
Butt is venting......... I will apreciate a feedback and objective critique on where I am going off and hope for some good suggestions that will specifically assist. I got diagnosed with stage 4 colon cancer in Fall 2017. I had some chemo, radiation and surgeries and last summer was able to enter a brief remission. It…
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(Mostly) off-topic: Bucket List
I apologize for the long post. For those who are busy, here is a summary. Last week I hiked Grand Canyon from rim-to-rim-to-rim and I am proud of myself. You can skip the rest. When I was in my late 50's, I would visit the Grand Canyon, stand on the rim, and say to myself. “I wish I had hiked down to the river when I was…
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Maximum age at which a patient can undergo chemo
Is there an age beyond which chemo is not advised ? Is there an alternative treatment ?
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Newly Diagnosed
On 6/17 I had a colonoscopy done because of some rectal bleeding I had on 5/13. They had done a pelvic/abdominal CT which came back normal. After the colonoscopy my wife and I waited for the doc to come in expecting something minor. Boy, we were wrong, he found the following: An ulcerated 5 cm mass (which is considered…
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I think this is hilarious
I hope you guys enjoy it, too. And the link goes through okay. I've heard of every cancer 'cure' out there from possibilities to the ridiculous. Supposedly there are people doing reikie for me, whatever that is. And, yes, essential oils have been suggested. It both angers me and makes me laugh. I realize people have the…
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Nick 2 down 10 to go
So I saw my oncologist today as I said previeously I was upgraded to stage 4 I have a 9mm nodual lower L lobe increased from 2mm since March 27th upper L lobe 6cm nodual up from 2mm and a new 5mm nodual center R lobe that was not present the 27th of March doing my 2nd round of Folfox today starting a new pinpoint chemo…
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had another colonoscopy today
All clear , nothing found . Next one in three years. Ron.
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Back from Dana Farber
Hi All, Actually i got back on sunday in time to watch the SuperBowl. I'm from New England area, but would have been happy with either team winning. At least it was a close game. Well, the oncologist at DF confirmed that i am on the right course. Just a reminder-i was treated for rectal cancer...now has spread to lungs. He…
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Stage 3 Colon Cancer removed, finished chemo but CEA went up.
My husband was diagnosed with Stage 3 colon cancer last June. Ended up with emergency surgury, removed mass, 12 lyph nodes 4 of which tested positive, and some fatty tissue. Ended up with a colostomy. His CT scans at the time were clear for the lungs and liver. Did 12 rounds of 5FU/Oxyplatin. Had his first after chemo CT…
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Husband recently diagnosed has missed 2 weeks of chemo due to low WBC
Hi everyone, I hope I'm not breaking any protocol by having this be my first official post on this forum, though I've been reading for a while. My 46-year-old husband was diagnosed with colon cancer about 2 months ago. He had a colostomy and the surgeon said it will not be resectable because it's on the verge of being…
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Lonsurf results so far
This is my first post. I have been reading this board for some time. I felt it was time to report this to other members. I had been on every other chemo treatment available to me with moderate sucess, and they all quit working. I have colon cancer with mets tp liver, lungs, and peritoneal lining. I was diagnosed in Febuary…
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Hope
It has been a number of years since I was on this website. I actually lost my login info it has been so long. My cancer battle started in 2007 with rectal tumor. 1 1/2 years later it was in my liver with three tumors. Had surgery, chemo and was clear for about two years and it came back. Another liver resection, more chemo…
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A Happy thread
Please share your happy days. Your happy pictures. You happy thoughts. Your joy. Happiness is sometimes elusive when you are going through treatment, and especially when you are newly diagnosed. A happy thread is here, to show there is joy and hope for those neck deep in treatment, when things look dark and dreary, and all…
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1 down 11 to go update
So yesterday Doc told me I have upgraded to stage 4 it has spread to my lungs and in more lymph nodes. Radiologist and Oncologist putting together my new treatment will continue folfox6 and 5 FU pump but increasing dosage and duration. I have decided to end all my correspondences Letters, emails ect. with (So far so good!)…
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Whirlwind
The next 10 days are going to be a whirlwind. I had a liver resection in February and in March a PET scan showed a liver met that wasn’t there 30 days before. The plan was to see what 4 rounds of Folfox & Avastin would do to the new tumor. Unfortunately, I did not tolerate the oxalyplatin so for session 4 it was Xeloda &…
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Preparation for Colon Cancer related Liver resection
Hello, it’s been a while since I’ve been here. In the interim my medical team determined that despite being stage IV colon cancer (diagnosed 2.5 years ago), I am a candidate for a surgical option. The primary tumor was removed from the colon last March and I am back on chemo getting ready for liver resection sometime late…
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1 down 11 to go
NICKTACOMA STAGE 3 COLON CANCER. So on Monday I did my first chemo treatment. So far the only side effect is a little nausia when I turn my head to qiuckly and a little neuropathy. Had a full head to toe scan for possible hidden tumor CEA levels are rising. Will get results on Monday 17th. Praying for a negative result.…
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HAPPY BIRTHDAY, KIM (Annabelle41415)
It's party time on the forum Kim is having a birthday. WOO HOO ! Dearest Kim, I hope your day is fantastic from the minute you got up to the minute you lay back down again. HAPPY, HAPPY BIRTHDAY ! Tru
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Help. Rectal cancer. Now radiation and chemo 5 days a week
My partner was just diagnosed with rectal cancer. The tumor is close to the anus so they recommended 5 day a week radiation for 6 weeks and portable chemo that he will "plug" into a port using a take home machine and wear it 24 hours a day M-F and then have it undone and start over the next week for 6 weeks. Has anyone had…
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First Appointment W/New Oncologist
I had my initial appointment with my new doctor yesterday. I really liked him. He spent 1 1/2 hours just listening and talking with me. He truly listened and was genuinely interested in every detail of my care from the start to where it will go from here. He did not try to influence me on taking chemo. My oncologist in SC…
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Afinitor (everolimus) Chemo Pills
Mom has been on many different chemo and surgeries. She has stage 4 colon cancer mets to liver. Last chemo was Stivarga which she was on for 2 cycles and the CT scan showed tumor growth in the liver. We've tried all the common chemo for colon cancer so there's not much options let. Now the oncologist started us on Afinitor…
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DPD deficiency..another life lost
I switched over to the liver forum yesterday and was saddened to read of a member's story about the loss of her husband due to DPD defiency. By the time it was discovered he had it, it was too late. My husband had it as well. He suffered severely and expereienced horrible side effects that destroyed him from the inside…
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Inspiration
The pic I uploaded to my profile is one of a day that was full of joy and happiness. I uploaded it in honor of my husband and his fight with this God awful disease. You don't know him. If you did, you would know that he fought his battle with the disease with everything he had. He did it with more grace, dignity and…
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Hello, and Thanks To You All For the Information
I had my 10 year (OK, 12) colonoscopy, and when I woke up, the Dr. peeked around the curtain and said "Well Mr. Capox Dude, sometimes we have to deliver bad news..." So anyway, after surgery (large tumor in cecum removed in lap colectomy) they came back with III B and three lymph nodes positive. I had a good surgeon, and…