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DPD deficiency..another life lost
I switched over to the liver forum yesterday and was saddened to read of a member's story about the loss of her husband due to DPD defiency. By the time it was discovered he had it, it was too late. My husband had it as well. He suffered severely and expereienced horrible side effects that destroyed him from the inside…
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Inspiration
The pic I uploaded to my profile is one of a day that was full of joy and happiness. I uploaded it in honor of my husband and his fight with this God awful disease. You don't know him. If you did, you would know that he fought his battle with the disease with everything he had. He did it with more grace, dignity and…
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Hello, and Thanks To You All For the Information
I had my 10 year (OK, 12) colonoscopy, and when I woke up, the Dr. peeked around the curtain and said "Well Mr. Capox Dude, sometimes we have to deliver bad news..." So anyway, after surgery (large tumor in cecum removed in lap colectomy) they came back with III B and three lymph nodes positive. I had a good surgeon, and…
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Numbers Numbers Numbers
I have said it once and I will say it again.....I HATE NUMBERS! Jim's CEA is doing well small drops and that makes me so happy but on Friday, we got a call, his potassium numbers went down....way down.....hovering at severely low down, 2.3 (aka severe hypkalmeia).....Naturally they wanted to admit and he didn't want to go…
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Stivarga
Has anyone taken this drug? Does it work? What are the side effects?
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Glutamine And Neuropathy Caused By Chemotherapy
Starting chemo in 2 weeks my onc told me about the likelihood of peripheral neuropathy and suggetsed that I buy Glutamine has any one tried this suppliment? Did it help? just trying to get prepaired for up coming treatments. As always Thank You for the info.
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New Oncologist
I guess I am "attached" to you guys here, lol. I had an appointment with my family doctor here in the mountains after I got settled back in to update him and hopefully get him to monitor me so I wouldn't have to travel back to SC for scans, etc. He was wonderful and admitted that he would prefer me to be under the watch of…
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positive cologuard test
Hi all, I recently had a positive cologuard test which I took at the request of my primary. Now I have a colonoscopy scheduled this coming Friday. I had my first colonoscopy done 5 years ago and it was a complete disaster. The prep made me very sick, my colon did not clean out completely even though I followed the…
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Finally today is the day supposed to discuss treatments
I realize my cancer is slow growing but I have had such anxiety at tumors growing while no one seems to be in a hurry to discuss my treatment options with me. I sent message how anxious I am so they assured me today I would be finding out about possible treatments.
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Long term stage 4 survivor
I went to our local cancer support group this evening and we have a couple of new members. The eoamn I sat next to is a breat cancer survivor and when I told her the cancer I have she told me that she has a friend who is a 27 years stage four colon cancer survivor! He had some nasty chemo early that they don't use anymore…
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So we get to add a new Dr to our giant list
because the moron I am married to ( said with love and a little annoyance) did a dumb thing. We have to go to the wound center. Luckily I know everyone there and they are amazing because my Dad was there almost every day for years. One of the nurses came to his room and stayed with my mom when he died, she loved him so…
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Looking on lung mets options-need help!
i have stage 4 colon cancer that eventually wend into lungs. Dozens of small mets on both lobs. Doing chemo , the second line, there is a very minor growth on 4 of them let s say increase is about 1 mm. Vats surgery, SBRT is not an option because they need a much smaller number. Contacted Dr.Drews in Coswig hospital in…
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Manapart
Haven't heard from you in a while and just wanted to know how you are doing. Have you had anymore updates on pathology or any recent doctor appointments? If you are still here lurking on the boards, we just would like to know how you are feeling as you went through a lot of surgery. Continued healing. Kim
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Cancer come back?
I had surgery for colon cancer 4.5 years ago with no chemo or radiation, and my CEA's and labs show no problems. However, I have had an umbilical hernia repaired with the cancer surgery, and several months later a ventral hernia repair, both with synthetic mesh. I am having a CT scan tomorrow for possible adhesions or…
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Depression kicked in..................
Years ago I had a personal situation in my life that one day literally overnight sent me in a department of anxiety and depression. I eventually seeked a professional help and it made things sonewhat better. Some things took place later on that were very significant and the matter of depression and anxiety was resolved. It…
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Update- surgery last week
Hello all. Been away from the discussion boards because I needed a mental health break leading up to my surgery. Here's my quick update. Surgery went extremely well. It was the proctectomy with coloanal anastamosis. My family said surgeon actually did a happy dance in the consultation room post op. She said she had more to…
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Pain in port
I had my port flushed yesterday. It had been about 8 weeks or so since it was done. I have not had chemo since the end of December so it does not get used. Today I feel an ache where the port goes into my artery in my neck. It’s almost like twinges. So it doesn’t really hurt, just is kind of throbbing. Has anyone else had…
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Lyrica and gabepentin
I had fairly extreme neuropathy issues after my 2nd infusion of oxalyplatin...constant stinging, particularly in my hands. Some of the kind souls on this forum told me to make sure, not just the nurses knew, but that the doctor knew. Infusion 3 they took it down 20% and the neuropathy got worse. I said no more, onc agreed.…
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Medical MJ
Is anyone on It ? I am and it has been extremely helpful for me. I’m curious if I’m the only one and if there are people using it I’d be interested in knowing if it is helping you through side effects. It has been a god send for me personally. Anyway if it’s legal in your area I would encourage you to check it out, at…
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Husband just diagnosed update****
Update : We saw the oncologist. My husband is at stage 3. They are starting chemo and radiation for 6 weeks. Hell rest for 4 , have an MRI and if it looks good surgery will follow. And then another round of chemo for 4 to 6months. The dr. Said she could write a letter to get him on disability bc his job is very strenuous.…
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Hope this isnt too personal...
Now I'm reading that the surgery. Chemo and radiation can Cause erectile dysfunction. Anyone have experience with this? Is it more temporary or permanent? My husband is only 47 and I'm 40. What else do we have to deal with?
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As They Say ... Side Matters (Left vs Right Side Colon Cancer)
Seems that those in left side do better than right side. I am right sided :( But doctor told me my location was usually a good one in terms of position and prognois. https://www.statnews.com/2016/05/18/colon-cancer-side/
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No Regrets
My profile pic is from an outing with my "boys" this past Friday to a beautiful park near my home. We hiked and then spent the day swimming at the base of a waterfall. I couldn't help but think how this moment would never have happened had I continued with mopup chemo. I would have been too sick and weak or worse yet,…
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Remembering our forum friends, who have passed
This Memorial Day, I would like to remember BRHmichigan - Beth, who lost her life to this dreadful disease on November 30th. I read many of her posts, yesterday, and remember her for her strenght and fight. Her friendlness. Her desire to live. As always, there are forum members who pass away and we are not notified by…
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Metastasis to lungs
Hey y’all. I am new to this site. Here is my story... may 2017 stage 1 colorectal cancer - surgery and colorectal resection. 30 lymph nodes removed and all were negative. Went to a follow up scan and had one lymph node outside my bLadder. Started oxiplaten and xeloda for 8 cycles. Did 28 cycles of radiation. Had my 6 month…
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Chemo costs
We meet with the oncologist tomorrow but I'm just curious what chemo and raditon cost. We do have insurance through my work. I know everyone's costs are different, but a ball park. Also, we are going to have to switch to the affordable health care insurance inAugust. Does anyone have insurance through them ? Is it good ?…
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The Problem with Statistics
An accepted philosophy on this board, and one that I endorse, is, “I am not a statistic.” I came across this study (link) a few months ago, and it stuck with me, but I was really not sure why. But with some further thought, it demonstrates that simple statistics can be misleading. As a preliminary matter, let me say that I…
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My angel at the cancer support meeting
I went to our local cancer support group meeting tonight and we always try to have an agenda. This time it was talking about 'green sleeves'. I don't know if this is a Canadian thing, an Alberta thing, a general medical thing, or what. It involves a plastic envelope with green borders that holds a bunch of our medical…
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My new mantra
I woke up with this repeating in my head as I was reflecting about the wisdom being shared here especially by the long term members. There IS life with cancer... and where there is life, there is HOPE. You all have taught me that. Thank you SK
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Introduction
Hi All After being here a little while I thought I’d share my experiences so far I apologize for the long post that Im about to write but hope it may help someone else as the experiences I have read from others has helped me. I had been experiencing various stomach issues for a few months that I thought were related to my…