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Newly Diagnosed Stage 3A & Very Scared
Hi everyone, I am 47 and underwent a colon resection last Monday. I am recovering very well from surgery and have met with my oncologist and have a plan. From what I can gather the chemo mix he plans to use is standard but I've heard different doc's dose quite differently. My doc plans on weekly low doses for 26 weeks. A…
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Atlanta or GA anyone
Is anyone in or near Atlanta, GA
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Does anyone know about TM4?
My husband is stage IV and has blown through pretty much all of the standard chemo treatments except for Vectibix, which he is now taking without additional chemo agents. After his most recent recurrence he decided he wanted to find other alternatives and is now seeing some integrative practitioners who have been highly…
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Anyone used a port for the quemo?
I just came from my first appoitment with the oncologist, and every thing went fine until he told me that he wanted me to have what is call a PORT to get my treatment because the first to treatments I need to get like a pump home for 48 hours I said is fine, but now here at home reading the pamphlets about the device I got…
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julie 44??
Has anyone heard from Julie? Her last post was before the holidays and she hasn't picked up the pm I sent her :(
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Honesty...........off the beaten path......
Our teacher asked us what our favorite animal was, and I said, "Fried chicken." She said I wasn't funny, but she couldn't have been right, everyone else in the class laughed. My parents told me to always be truthful and honest, and I am. Fried chicken is my favorite animal. I told my dad what happened, and he said my…
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Chemo Side Effects
So I'm new to this cancer. Diagnosed on 02/06/2010. Offered Hospice immediately. I'd like to know a couple of things. First off, my first chemo, I came home and went to bed for two days, second chemo, same thing, this is now my 6th chemo and I come home and feel fine, if it wasn't for the cold symptoms of not being able to…
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Peter is in hospice
Three week ago I was in Hopkins to do a routine testing and CT scan for the upcoming clinical trial. They found my liver function close to failure, my billirubins is 10 times higher and I was running fever. I was hospitalized for three days. They cannot find any infections; the bile duct is not clogged. Their conclusion is…
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I'm home!!!!
It's sooooo green!!!! I had forgotten... It's now 9:30am...last night, it stayed light until almost midnight...I LOVE summer in this part of the world!!!! Hugs, Kathi
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Thank You
Haven't been on the board for days. Thank you all for your well wishes. He has had a bad couple of weeks. He did say ok to go to the hospital and they gave him IV fluids. He has lost 18 lbs. This morning he is feels much better. I will tell him about all of you sweet thoughts and prayers. Damn just read about Louann. I am…
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For those concerned about the amount of radiation we have been getting with all the scans
i just read the post on the concerns about getting too much radiation and i wanted to pass on that there is a new ct scanner out there called the Siemens Flash ct scanner. I live in a very small town and we recently got this scanner and it was a very big deal and made the news all around....we were the 14th in the nation…
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Had Colonoscopy Today
Happy first day of summer. Today has been a Blessed day. Colonoscopy was done and Dr. said that everything looked really good. They found no polyps so therefore, no need for biopsy of anything. Colon looks healthy and wants to see me in six months just for follow up. By the way, the medicine they gave me to put me in…
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Need some opinions\advice\experience
I was dx in July 2009 with Stage IV colon cancer at age 39. I had the tumor removed along with 8 inches of my colon in August and 6 months of chemo. I responded well to chemo and in March of 2010 after a PET and liver MRI, there was only one small spot on my liver and it was inactive. Late March, I had a liver resection…
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Nothing but bad news
I go every other week for lab work, see the doctor and take chemo. My lab work is starting to go down, my CEA is up to 13.2 (same as before surgery), my hair is falling out and my oncologist raised the amount I'm taking for Avastin and CPT-11. He raised the Avastin from 400 to 900 and the CPT-11 from 140 to 180. If this…
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Anyone at Memorial Sloan Kettering Hospital???
Hello all: I am through the liver resection and HAI pump insertion theory. All went relatively well. Now I am in the end of my recovery period. Day 8 likely to go till Monday or Tuesday. Let's hope Monday. Let me know if any of my fellow MSK patients are here for a visit. Perhaps we could meet for a coffee. Best to all.…
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Family
Although I have not scheduled my colon surgery yet I am trying to make arrangements for when I am hospitalized. Currently I am having all the necessary tests done. I am wondering if anyone in this group has encountered less than understanding family members. I live alone and my daughter will be my advocate. Her family has…
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Need some help with medication and no appetite
Hi everyone, I need some help from all of you that have been on irinotecan plus 5-FU or Xeloda. John is taking Xeloda and irinotecan plus the avastin every thee weeks. He just started this last Friday and Friday and Saturday we pretty good. Sunday was a big drop I thought is was the steroid they gave him. Monday rolls…
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Ports
Was wondering if anyone has had a mamogram while they still have their port.
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Reading Room: Johns Hopkins Update on Cancer - It is Beatable
This is an email that was sent to me. Subject: Johns Hopkins Update on Cancer - It is Beatable AFTER YEARS OF TELLING PEOPLE CHEMOTHERAPY IS THE ONLY WAY TO TRY ('TRY', BEING THE KEY WORD) TO ELIMINATE CANCER, JOHNS HOPKINS IS FINALLY STARTING TO TELL YOU THERE IS AN ALTERNATIVE WAY . Cancer Update from Johns Hopkins : 1.…
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Traditional Chinese Medicine
My Mother works at a local hospital and is friends with the tumor registrar who recommended a TCM doctor. I called the doc today, and she seems very anxious to meet with me. She's a physician in China who holds a Ph.D here, so i'm figuring she's very well versed in the methods. I'm looking forward to meeting her tomorrow…
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I know that the percentage is low...
but who here has Lynch syndrome?
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moving on
Hi Everyone, It has been 6 years since I was first dx. My youngest daughter has graduated high school and the time has come for me to move on. I am in the process of packing up my apartment and will be moving next week from Southern California to Nevada. I have mixed emotions about the whole thing. I have lived my entire…
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peterhw
I know things seem bleak, but you still have options. You may currently be in liver failure, but your liver does regenerate. If there is no infection and no blockage, then perhaps all you need is some time to heal. There is a device called ELAD being tested to support liver functions in the event of failing liver. If your…
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Stand up to Cancer 2010
I read in a magazine that the 2nd Stand Up To Cancer event is scheduled to be televised on September 10th. I enjoyed watching the first one and I believe they raised quite a bit of money. Just thought I would post this.
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Cancer cells killed by chemotherapy may cause cancer to spread...
Chemotherapy is known to come with a long list of side effects -- from debilitating nausea and hair loss to extreme fatigue -- and in many cases, it does not cure or even stop cancer from progressing. But what if chemotherapy does something no one has realized before during all the decades it has been in use? What if chemo…
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Can you explain this?
This is my first post so bear with me, please. After you have had an ileostomy reversal and you have to be so careful with what you eat if you don't want to stay in the bathroom, but, if you have an colostomy then you can eat whatever you want and not have to worry about having to constantly empty the bag. Why is this?…
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1 year ago today...........
One year ago today was my last chemo treatment. I just popped a bottle of champagne and I raise my glass and toast to all of you fellow survivors, people still going through treatments, caregivers, and friends/family of loved ones with cancer. I feel very lucky to have had 4 of my 3 month checkups come back still NED. I am…
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2 years 2 weeks 2 days
NED!!! last week CT scan NORMAL CEA 2.0 I don't see the oncologist for 6 more months!!
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JR
Hi everyone, Well it is Father's day today and after an awful week John has told me he is done with chemo. He will see the onc on July 2ed. I hope they will give us direction as to what to to with pain management and hospice. I hope he still has many months. I am very scared. I don't want him to be in pain. Thanks to you…
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Feeling very ill
I'm so frustrated! It's been two weeks since surgery, and i feel worse than i did the first week. The pain is still bad, but i also feel like overall crap, and a little nauseated. I don't want to eat or drink, and i'm exhausted. I don't remember feeling this badly after the last two surgeries. Has anyone else gone through…