-
Symptoms
Hello Again Everyone, I have finished my 4th round of chemotherapy and I have 8 more to go. I felt pretty good for the first three. After this past treatment I had aching calve muscles, back pain and joint pain. I also experienced some dizziness. That was yesterday. I went home and went to bed and I am feeling better…
-
i'm scared
i have had colon cancer was fortunate that i only had to have 1/3 of my colon removed and no colostomy bag. it has been 3 years since that and thus far tests have a come back negative .. also back 7 years ago had to have a complete hystorectomy due to cervical cancer and have done well on check ups there.. but for the past…
-
I would have never known about this
I finely got copies of my first and last CT scans. The hospital is 103 miles away and just never got around to it. Found something interesting in the reports. I have a bilobular, infrarenal abdominal aortic aneurysm. The damn thing measures 3.8 cm and has grown by .4 in 1.6 years. Did some research on this and found that 1…
-
a letter never written to be read....
Today is the big day when my Mom left a year ago...I survived a year, but I will never ever forget the last couple of days...my reflection...as it was... It was Sunday morning when I looked at her and realized that she has changed. She no longer spoke to me. She no longer reacted to my presence...she no longer knew what…
-
"hibi" needs to be kicked off the Network
I hope this "hibi" gets kicked off soon!!!!
-
Papa Jedi, very bad news
Papa Jedi (Robert) has been in the hospital for a week after having a blood clot to his lung. He's on oxygen around the clock. His bone scan showed many new bones mets. They'll restart FOLFOX on Monday but he said the doctor told him this is very bad news. Robert was dx'd just last July/August and was thought to be Stage…
-
Talked to KIMBY.... She's Not Good.... Needs Prayers, Good Vibes....whatever
Hey All I finally got a hold of Kimby today. She is very ill. She is SO weak she cannot get out of bed without help and is in fact bedridden most of the time. She said the problem is she has NO strength. She eats but still continues to lose weight. They have stopped all chemo ... all meds.. as her body cannot handle…
-
How are you doing Craig (Sundance)
I know the time is coming for your lung surgery, and I just wanted to check in to see how you are doing emotionally with this. I hope you are getting your mind and body into that special place that will help you to fight, fight fight! mary
-
Ok need a good kick up the backside so to speak, scan is tomorrow...
and I'm feeling a range of emotions. Part of me does not want to go, but that's keeping my head buried in the sand. Other part is if I go and all the big if's start to go around in my head. Already started taking the prep for it, and today on bowel watch (that should be as tv show)noticed my stools have started to narrow…
-
Dad has been DX with Lymphoma, now what
I have been pretty overwhelmed the past month, my dad been dx with lymphomia( second time for him, 10 years or so ago he had lymphomia, the same time i did). and history repeats it self, Not sure how to react, I was just coming to grips with the fact that i will die from this cancer one day, and reading some recent post, i…
-
Reading Room: 10 reasons to eat probiotics
Probiotics: A Billion Good Bugs Friendly Bacteria for Your Digestive System -- By Becky Hand, Licensed & Registered Dietitian Did you know that your digestive tract contains more than 400 types of “friendly” bacteria? These little guys, commonly referred to as probiotics (which means "pro-life"), help reduce the growth of…
-
Newly Diagnosed Stage 3A & Very Scared
Hi everyone, I am 47 and underwent a colon resection last Monday. I am recovering very well from surgery and have met with my oncologist and have a plan. From what I can gather the chemo mix he plans to use is standard but I've heard different doc's dose quite differently. My doc plans on weekly low doses for 26 weeks. A…
-
Atlanta or GA anyone
Is anyone in or near Atlanta, GA
-
Does anyone know about TM4?
My husband is stage IV and has blown through pretty much all of the standard chemo treatments except for Vectibix, which he is now taking without additional chemo agents. After his most recent recurrence he decided he wanted to find other alternatives and is now seeing some integrative practitioners who have been highly…
-
Anyone used a port for the quemo?
I just came from my first appoitment with the oncologist, and every thing went fine until he told me that he wanted me to have what is call a PORT to get my treatment because the first to treatments I need to get like a pump home for 48 hours I said is fine, but now here at home reading the pamphlets about the device I got…
-
julie 44??
Has anyone heard from Julie? Her last post was before the holidays and she hasn't picked up the pm I sent her :(
-
Honesty...........off the beaten path......
Our teacher asked us what our favorite animal was, and I said, "Fried chicken." She said I wasn't funny, but she couldn't have been right, everyone else in the class laughed. My parents told me to always be truthful and honest, and I am. Fried chicken is my favorite animal. I told my dad what happened, and he said my…
-
Chemo Side Effects
So I'm new to this cancer. Diagnosed on 02/06/2010. Offered Hospice immediately. I'd like to know a couple of things. First off, my first chemo, I came home and went to bed for two days, second chemo, same thing, this is now my 6th chemo and I come home and feel fine, if it wasn't for the cold symptoms of not being able to…
-
Peter is in hospice
Three week ago I was in Hopkins to do a routine testing and CT scan for the upcoming clinical trial. They found my liver function close to failure, my billirubins is 10 times higher and I was running fever. I was hospitalized for three days. They cannot find any infections; the bile duct is not clogged. Their conclusion is…
-
I'm home!!!!
It's sooooo green!!!! I had forgotten... It's now 9:30am...last night, it stayed light until almost midnight...I LOVE summer in this part of the world!!!! Hugs, Kathi
-
Thank You
Haven't been on the board for days. Thank you all for your well wishes. He has had a bad couple of weeks. He did say ok to go to the hospital and they gave him IV fluids. He has lost 18 lbs. This morning he is feels much better. I will tell him about all of you sweet thoughts and prayers. Damn just read about Louann. I am…
-
For those concerned about the amount of radiation we have been getting with all the scans
i just read the post on the concerns about getting too much radiation and i wanted to pass on that there is a new ct scanner out there called the Siemens Flash ct scanner. I live in a very small town and we recently got this scanner and it was a very big deal and made the news all around....we were the 14th in the nation…
-
Had Colonoscopy Today
Happy first day of summer. Today has been a Blessed day. Colonoscopy was done and Dr. said that everything looked really good. They found no polyps so therefore, no need for biopsy of anything. Colon looks healthy and wants to see me in six months just for follow up. By the way, the medicine they gave me to put me in…
-
Need some opinions\advice\experience
I was dx in July 2009 with Stage IV colon cancer at age 39. I had the tumor removed along with 8 inches of my colon in August and 6 months of chemo. I responded well to chemo and in March of 2010 after a PET and liver MRI, there was only one small spot on my liver and it was inactive. Late March, I had a liver resection…
-
Nothing but bad news
I go every other week for lab work, see the doctor and take chemo. My lab work is starting to go down, my CEA is up to 13.2 (same as before surgery), my hair is falling out and my oncologist raised the amount I'm taking for Avastin and CPT-11. He raised the Avastin from 400 to 900 and the CPT-11 from 140 to 180. If this…
-
Anyone at Memorial Sloan Kettering Hospital???
Hello all: I am through the liver resection and HAI pump insertion theory. All went relatively well. Now I am in the end of my recovery period. Day 8 likely to go till Monday or Tuesday. Let's hope Monday. Let me know if any of my fellow MSK patients are here for a visit. Perhaps we could meet for a coffee. Best to all.…
-
Family
Although I have not scheduled my colon surgery yet I am trying to make arrangements for when I am hospitalized. Currently I am having all the necessary tests done. I am wondering if anyone in this group has encountered less than understanding family members. I live alone and my daughter will be my advocate. Her family has…
-
Need some help with medication and no appetite
Hi everyone, I need some help from all of you that have been on irinotecan plus 5-FU or Xeloda. John is taking Xeloda and irinotecan plus the avastin every thee weeks. He just started this last Friday and Friday and Saturday we pretty good. Sunday was a big drop I thought is was the steroid they gave him. Monday rolls…
-
Ports
Was wondering if anyone has had a mamogram while they still have their port.
-
Reading Room: Johns Hopkins Update on Cancer - It is Beatable
This is an email that was sent to me. Subject: Johns Hopkins Update on Cancer - It is Beatable AFTER YEARS OF TELLING PEOPLE CHEMOTHERAPY IS THE ONLY WAY TO TRY ('TRY', BEING THE KEY WORD) TO ELIMINATE CANCER, JOHNS HOPKINS IS FINALLY STARTING TO TELL YOU THERE IS AN ALTERNATIVE WAY . Cancer Update from Johns Hopkins : 1.…