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One night in for tests
I haven't been feeling too good. Mostly dizzzy- thought, with good cause, that it was this new med I am on for depression. I had just started a new one, was only at the lowest dose. I also can't tolerate the heat like I used to- just going from the house to my car and I am whipped; dizzy and sweat running down my body. ICK…
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Thankful
Hello Hello, Just a little note to say all is going well with the chemotherapy. I have completed 4 rounds and I have 8 more to go. I am looking forward to November, when I will be able to drink something cold. It has been very hot outside, but I stay indoors. Although I am down to 159 pounds and back in size 10/12, that is…
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Eric38
Hi Eric, I am just wondering how you are doing; I haven't seen you on here for awhile + miss your wicked sense of humour.
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Question about summer heat/humidity to fellow colostamates:
Greetings!!!This is my first summer (heat wave) living with a colostomy. I use a ConvaTec 2-piece. In the past week, on three occasions the wafer that sticks to my skin came loose and the whole appliance (including semi-full pouch) started coming off (it was not due to contents in bag). I had to hold bag in place with hand…
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CEA tomorrow!
Need to get to bed. Have to get up and go have blood drawn in the morning. Yep, it's CEA time. Not really having anxiety at the moment, but I hate that it's the weekend, which means I have to wait until Monday for the results. *hugs* Gail
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Am I over doing the Vitamins!?!
I am taking AM Extra strength Fish oil 1000 mg of Vitamin C Stopped my multi vitamin due to it containing folic acid Drinking 2 oz of aloe juice PM Vtamin D3 1,000 mg Calcium 1,000 mg 325 mg of asprin B-12 dropper Vitamin E on my scars drink 2 oz of acai juice And.......I eat lots of veggies/fruit and juice. Eat very…
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Fix for chemo brain!
Guys, I think I found a fix for chemo brain. One of my neighbors put a fence up on my land. Now I know this system will not let me put certain words in post, so let’s just say his mother was not married at the time of his birth. It seems that the surveyors set the corner pins of my property correctly when I bought this…
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irinotecan and erbitux, ER tonight
Dear Friends, I've been reading here a lot but not posting much. You all gave so many helpful information and so many inspiration. Now I feel so down. My husband ended up in ER tonight after two days severe pain in this tummy. CAT scan revealed partial blockage in his small bowl. He was dx. in Dec. 2006 with rectal cancer.…
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Rapidarc=steriotactic radiosurgery in guatamala
For those of us that aren't candidates for surgery and are being led down paths they don't want to go because of Govt regulation or restrictions. Guatamala has begun treating patients with Rapidarc. The cost is about $15,000. Hope International Centre de Radioterapia. I want to get two tumors irradiated but Drs in the…
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Something that inspired me
The wings of eagles is a John Wayne flick. It was on again today. This movie inspired me back when undergoing chemo/rad 7/08 and I thought I would pass it on to you new folks. In the true story movie, he breaks his back and is paralyzed and told he will never walk again. In the hospital his friend and him get a little…
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Response DX tests in
My husband had his tumor tested for the ERCCI, TS, EFGR and BRAF gene to see if he had a low expression or a high expression and found out that Folfiri and Erbitux are best for him. Where as folfox would not be as effective because of his high expression of the TS. We just got our test results back so I'll spend some more…
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Update on David and Hospice
Thanks to all of you so much for your kind words, prayers and support you have given us since I announced we were going home from M D Anderson and beginning hospice care. That is over and we have selected an agency although I am not quite sure I am thrilled with them. David isn't ready to throw in the towel yet and neither…
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My wife and her Greek Chicken Recipe.....True Story...well most of it.......
Well, it all started when she tells me she needs to lose weight....ok, I agreed, and well automatically I am an **** for saying something like that...can't win, oh well, so she decides shes gonna start eating better and be more selective about what she cooks...so she gets into the kitchen and off she goes, get me this and…
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CEA question
Hello everyone....I had a question regarding CEA levels. I have done 2 rounds of Folfori with Avastin for my 'areas of concern' in my lung area. My CEA was tested before chemo started and was 27.9. After 2 rounds of chemo it is 28.2. So basically it has not moved. My Onc said it is too soon to tell, but now I am worried…
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Nodule in the Upper Right Lobe near the Hilum....... Advice Please????
Hey All!! I have been doing research on getting this nodule removed. It is growing(1.8cm) and lit up on PET/CT. This is a met previously thought to have been taken care of by chemo but it seems the little bugger just got knocked in the dirt for a while and now is back with a vengeance! Since chemo did not kill it in round…
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Friday Riddle
Remember NO Googling or searching the Internt allowed and good luck! RIDDLE: How many lengths did Secretariat win the Belmont Stakes in 1973 and what was the winning time?
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Thought of the Day
“Knowledge and ego are directly related. the less knowledge, the greater the ego” ~ Albert Einstein
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Need an MRI after PET/CT
After finishing adjuvant chemo a week ago, I had my PET/CT yesterday. The oncologist called today to say the scan was clean, but there was an area that they either couldn't see well or they saw something and needed to see it better. The area is near my stoma and/or surgical site. Could just be scar tissue or ......... ? In…
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Advice....
I dont post much... But just to refresh, my dad was dx w/Stage 4 mets to liver in June 08... He has been on chemo ever since.. CEA 400+ in beginning low of 1.8.. It has increased slightly usually stayed around 2.8 now it is 4, Dr isnt real concerned with the increas. Well he had his scan this morning and will get results…
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90 minutes in heaven
This is a must read, it gives you strength and hope which we all need especially when dealing with this horrible illness. Anyone who has read it, what do you think.
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New to this great board
Hello, I have been reading this board since my husband was diagnosed with stage IIIc in Dec. 09. I have found this board terrific and supportive although I've never posted! He's doing great and finished chemo in May. He is going in for his first follow up since finishing chemo. He is funny though as he will not discuss or…
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tight muscles in chest, weird
Hi, Has anyone had a problem with muscle joint pain after chemo? I have after each time I've finished a regimen of chemo. But this time it's different. My chest is very tight as is the muscle in the stomach. I had a Ct last week and will get results today. I hope and pray it's not the cancer growing really fast! My chest…
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Didn't understand your anxiety on CT Scan results
I can honestly say, I never understood the anxiety posted about getting your CT scan reports before you got them. I now understand. I've been waiting anxiously for tomorrow to get here to hear the results of my Scan last Monday, now that tomorrow is near, I'm worried and anxious, will it be good news? Bad news? I realize I…
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John and Adrein
Has anyone heard from John or Adrein. I can't remember their sign on's. I was going to send them a PM because i haven't seen them on the board for a while. But I have to admit I have had my plate full the last couple of weeks. If anyone has heard how John is doing please post. Thanks Paula
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Done with chemo...Now What???
After weekly chemo from April 2009 thru June 2010, I am done with chemo. I had a few breaks during that time due to infections, blockages, and other delightful set backs. Then, as many of you know, I found my way to Sloan Kettering in March 2010 and had 8 tumors removed from my liver and one ablated. There is no protocol…
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Looks like it's The Netherlands and Spain!!!! World Cup update!
EXCITING soccer last night!!! No score for ever, then a header from Spain!!! WHAT a GAME!!!! (I just hope the Dutch will make a showing in the finals...so far, as one dutchman said, "They have been consistently mediocre"...sigh...) Hugs, Kathi
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new to forum
hi new to this battling my second time with cancer this time it is colon cancer first time was liposarcoma. had my tumor and 70% of my colon removed. i start chemo in about a week..kinda nervous just wanted someone who might know what it is like. thanks
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Reading Room: New funding will grant dreams of cancer patients
Small local charity within the area I reside and wanted to pass along. http://www.loudountimes.com/index.php/news/article/new_funding_will_grant_dreams_of_cancer_patients367/
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2nd or 3rd opinions
I would like to know how to go about seeking opinions from medical professionals outside of my medical organization/hospital. I recently had tests done on liver that came back questionable. My oncologist is saying that he "believes" the spots are only blood vessels. The radiologist however thinks they may be matastisis.…
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CEA Results :)
Bloodwork results today. CEA normal (1.7) for the 4th month in a row! I sweat this out every month, and can't say how relieved we are when we get the results. We decided to give ourselves a little break and take a week off to relax and I've been feeling a little uncertain about it, although the onc insisted it was OK. Now…