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NED dream
At this point I am getting obsessed with an idea of becoming NED. I have multiple mets on my lungs and chemo is not erasing them. VAT surgery and radiation are not in a table. I want to enter NED and keep it going. All they offer me chemo for life including MD Anderson. Understanding that down the line things will become…
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Help with ileostomy!
I am looking for somebody who experienced this situation:I had a colorectal tumour surgery on May31,and left the hospital on June 7th with temporary ileostomy. After getting several instructions and help from Healthcare Centre nurses I started manage my ileostomy myself; it did not go very well,and in last 2 weeks I am…
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What is considered a round of chemo?
My last oncologist once told me I needed 4 rounds of chemo. At the 4th infusion, I said this is the last one. He said no 4 rounds is 8 infusions. I thought one round equals the 14 days starting with the infusion day, ending with the day before next infusion. So what is a round of chemo, as far as y'all know and believe the…
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Sugary Drinks and Cancer
I came accross this study in an article in the newspaper. There is no sense in looking back (I used to drink sodas a decade or so ago, before I cleaned up my diet), but the information may be useful looking forward or for family memebers: https://www.bmj.com/content/366/bmj.l2408 The consumption of sugary drinks was…
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Losing my hair
My hair thinned on folfox and folfiri. I was not prepared for all my hair to fall out on erbutix and irinotecan. I am so angry that my oncologist didn't warn me especially since I specifically said when looking at options I did not want to choose one that would make me lose all my hair. I am so angry right now. And to make…
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CEA 523
Been though many different chemo combinations...now on Infinitor (made for breast cancer but trying for colon cancer). Insurance doesn't cover it so been using physician samples. Mom's last CEA is at 523...stressing me out. We were as low as 20s before. Surgeon still doesn't want to remove the mets tumors in her liver.…
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Had pain in hip for a year, bone cancer discovered 3 weeks ago
I haven't been on the forum much lately due to stressing out over many new developments. I learned 3 weeks ago that I have a "lytic bone lesion" in my lower pubic ramus - at the part of the bone that hits the chair when you sit. A lytic lesion eats away at your bone, so it looks like Swiss cheese and makes your bone…
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Stivarga?
Have you been on it? How did you do? What about the side effects? $18,000 a month and waiting to see if the insurance approves us. Hope so, Lord only knows we can't pay for it! That's so absurd, $18,000 but in Canada it averages $6200....GRRRRRR
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Colonoscopy prep is not going well
its tomorrow but not until 2pm so round one is done, round 2 starts at 830. it started with 4 dulcolax pills at 3pm and by 445 he was puking. Drank his 3 cups of miralax and threw up around 7. He has type 2 diabetes and now his blood sugar was tanking down to 55. I admit I totally lost it. I am kind of failing miserably at…
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Positivety
How do you stay positive when reality is not matching your positive thinking, dreams and hopes??
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The "cool cap" to help prevent hair loss
Decided to make a new post so others can find this info more easily. I couln't find messages from my friend...many have been lost over time and upgrades of the site. I did a google search and found this:…
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Anyone have depression and anxiety long after treatment is finished?
I went thru Chemo, Radiation and Surgery in 2012. I can't understand why I'm not and I haven't felt "on top of the world" by winning the battle, that everything should just roll off my back but that's just not the case. I have been emotional, anxious and depressed. I'm wondering if anyone else has felt they are struggling…
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Turning point yesterday with Nurse Practitioner visit
First of all, I finally was going to make it to the office after missing several appointments. So my designated "helper", to my horror did not show up to take me. No signs of life at his place. Now, I can drive, but getting into the thick of downtown traffic just rattles my nerves, in a really bad way. So that did not…
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Followup Scan
my father has followup CT scan on Wednesday 17 july he is on 3 months surveillance and yearly Scan iam so worried getting anxiety attacks please pray for mY father i shall be very grateful to you all
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Hubby has NED at this time!
richard had his APR in March, just returned from MDA last night for 3 month scans. NED! Fist time since he was diagnosed as stage 4 in July 2017! Hope this NED stays around for a very long time! It’s been a long rough roller coaster ride, so we are going to enjoy the break for now!!!! There is always hope!!! We truly…
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Passing of a wonderful forum friend
I am so sad to have to share the news of the death of our dear friend, Lizzard44 - Grace. I was blessed to have Grace as a Facebook friend, and I can tell you, she was one strong woman. She fought long and hard and always with great spirit. She touched my life, and while I am saddened that she has left this earthly home, I…
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New to Forum - colonoscopy next Tuesday
Hi Folks - let me first start off by saying I've been researching and found these threads and am touched with some of the stories I've read on here. I hope everyone on this board can heal and live a long healthy life. It's truly inspiring to see strangers from all over get together on these boards to help each other…
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Stunned, crushed and numb
Literally just hung up the phone with the oncologist. Jim's cancer has all grown, the remaining mets in the liver, the tumor in the colon and now there is big time lymph involvement and a nodule on the lung NO ONE TOLD US ABOUT the last scan has also grown. I want to be angry, I want to cry I just am too shell shocked at…
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Scan Update
First, I want to say thank you to each of you who offered support in a response to the last post I shared. I just want to strike out some days at the unfairness of it all but there is no one person or thing to stike out at. It's just life. My oncologist called me today to give me the replay on his conversation with my…
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Thoughts on Erbitux (Cetuximab)
I might be taking this. Seeing if insurance approves it. Anyone know the good, the bad, and the ugly about this one. I would be taking it with irinotecan,
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FoundationOne
Has anyone had this test? I just recently signed a release for my 2 yr old lab specimens to be tested. I didn’t know I had lab specimens available. My regular onc is out of the office for a while. The new one suggested I get the test since I’ve been on different treatments and nothing seems to be slowing down the growth in…
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Hi… here for hope, positivity, and tips
2 weeks ago, at 43 years old, my husband went in for a colonoscopy because he was bleeding, and feeling discomfort. Numerous scans and a lung biopsy later, he's been diagnosed with stage 4 colon cancer which has spread to his lungs. Now I'm on an emotional rollercoaster jumping between ugly crying, fighty optimism, anger…
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stage 4 to terminal
What a whirlwind my life has become was diagnosed with colon cancer in March of this year had surgery in April to remove gallbladder and apendix colectomy to remove a large tumor and 36 lymph nodes 16 of which were positive for cancer so they said stage 2 then about to start chemo had port placed in May CEA at that time…
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Extramural Venous Invasion
Hello everyone. I had my first colonoscopy since turning 50 and the doctor found what he suspected was a very early cancer (he did not remove it at the time but a biopsy confirmed cancer cells). I recently had surgery to remove my sigmoid colon. The pathology report came back as Stage 1. Seventeen lymph nodes were all…
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Saying Hello..... along with a stoma reversal question. -update-
Well.....I can only say, this is the hardest thing I have ever gone through. I feel like I am in a nightmare, that I can't wake up from. My incredible, beautiful 42 yo wife, was diagnosed with colorectal cancer in March. Not a single risk factor, exercised 2 hours per day, didn't drink, didn't smoke, etc... Had some blood…
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Long term bladder issues
Richard had his APR back in March. He had issues with his bladder waking up and was on a cath for two after surgery. We saw urologist 1 Who didn’t bother doing a bladder scan, but prescribed oxibutoN( unsure of spelling). during a recent follower up At MDA we saw the urologist he did the bladder scan and said that he…
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Immediate neuropathy
Hi all. I'm new and desparately looking for info on how others have handled their neuropathy. Background info: colonoscopy in January because stool sample showed blood. Dr. who did colonoscopy said there was a tumor but the pathology came back showing nothing. Dr. wanted a new colonoscopy done right away to get more…
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Let Me Off Of This Ride
I am usually full of gratitude for the smallest things in life and most days I reach for everything positive. Today is not one of those days. I hate cancer. I hate what is has taken from me. I hate that I have to be super aware of most things like a guard on watch duty who never gets to just close their eyes and sleep.…
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6.5 earthquake in California
My son is down there, and is OK Hope all of the members in that area are doing well. You are in my prayers. Tru
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Best vehicle for people like us?
I think I'm going to have to sell my Camaro as much as I don't want to. Our financial situation has changed a bit so we don't really have to sell it but I'm fiding that the days when I'm not doing so well or am weak it's difficult to be in. First, it's a two door and the doors are so wide and heavy it can be a real…