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anyone else tried GCMAF or got any good or bad stories about it UPDATED great nagalase result <0.9
started on gcmaf yesterday, got a runny nose. just google it, its all about stimulating your immune system nothing on pubmed for colorectal but the method of action should be the same. here is the pubmed link for breast cancer test, yes i know not in vivo. http://www.ncbi.nlm.nih.gov/pubmed/22213287 it costs $170 dollars…
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Rising CEA Level
I know that this topic has been discussed multiple times but I have a question. Up until now, my dad's cea level has matched what was on the PET scan. If the level went up, we found 1 or 2 spots in his liver. In February, my dad had radiofrequency ablation to remove a spot, we were successful. His CEA was 2.8. In March it…
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It's been rough
Wow since my last post, Jim has fallen very ill! The Strivaga was approved and it arrived, still haven't heard from the new cancer Center either. He was feeling really weak and winded last week and was hopeful that the Iron Infusion and B-12 he had scheduled would help. I was sleeping on the couch Sunday night and in the…
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Is it safe to leave in chemo port long term?
I had a chemo port put in December 2018. I haven't used it since I finished a month of 5FU. Is it safe to just leave it in. Has anyone had problems with it down the line?
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Post Extended Right Hemicolectomy Treatment Options
Hello all, its been a while since I posted. I had an extended right hemicolectomy on 7/19 to remove a 5cm mass from my TC. It was originally supposed to be done by robot, but they had to convert because of its locations. They took 2/3 of my colon. The surgery lasted approx 2 hours and everything went well. The mass was…
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Buying chemo meds from Canada
My mom has stage 4 colon cancer mets liver. Been on different chemo meds and now trying Afinitor since we can't use the previous chemo that was used. Afinitor was FDA approved for breast cancer only. Oncologist says it targets similar tumor markers so trying it out. Our insurance won't cover it because it's not FDA…
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Twinzma
how is your husband doing? I have been thinking about you and your family.
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Sleeping..
Wondering if anyone else has sleeping issues since having chemo. I have NEVER had such a hars time with sleep. My body is tired most nights but it doesn’t make a difference. Sleep will not come some nights. I have fought taking anything on a regular basis but I know how important rest is. I have tried melatonin, various…
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Update Hawaii trip and new Doctor
Hi all, been away from this site for a couple of months or more. So I did make it to Hawaii, what a trip! My son went with me. I've never been on a trip that far away, 14 hour flights are killer! It was not exactly what I expected but so beautiful. Photos don't do it justice! We went to Waikiki, which is busy busy. I had…
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Can food affect ostomy leaking?
This is a question for all ileostomy holders: can a food cause ostomy leaking? I made a mistake in my food choices today: my ostomy was holding strong since yesterday morning,I got a good news from my surgeon,so I was feeling so good and happy that I stopped at a place for red curry chicken (which I love),and eventhough it…
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Port removed today!
just wanted to share good news. My onc approved port removal and I could not be happier! Got it removed today. Every one that I saw at the hospital congratulated me! I had a smile on my face all day! k
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NED dream
At this point I am getting obsessed with an idea of becoming NED. I have multiple mets on my lungs and chemo is not erasing them. VAT surgery and radiation are not in a table. I want to enter NED and keep it going. All they offer me chemo for life including MD Anderson. Understanding that down the line things will become…
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Help with ileostomy!
I am looking for somebody who experienced this situation:I had a colorectal tumour surgery on May31,and left the hospital on June 7th with temporary ileostomy. After getting several instructions and help from Healthcare Centre nurses I started manage my ileostomy myself; it did not go very well,and in last 2 weeks I am…
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What is considered a round of chemo?
My last oncologist once told me I needed 4 rounds of chemo. At the 4th infusion, I said this is the last one. He said no 4 rounds is 8 infusions. I thought one round equals the 14 days starting with the infusion day, ending with the day before next infusion. So what is a round of chemo, as far as y'all know and believe the…
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Sugary Drinks and Cancer
I came accross this study in an article in the newspaper. There is no sense in looking back (I used to drink sodas a decade or so ago, before I cleaned up my diet), but the information may be useful looking forward or for family memebers: https://www.bmj.com/content/366/bmj.l2408 The consumption of sugary drinks was…
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Losing my hair
My hair thinned on folfox and folfiri. I was not prepared for all my hair to fall out on erbutix and irinotecan. I am so angry that my oncologist didn't warn me especially since I specifically said when looking at options I did not want to choose one that would make me lose all my hair. I am so angry right now. And to make…
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CEA 523
Been though many different chemo combinations...now on Infinitor (made for breast cancer but trying for colon cancer). Insurance doesn't cover it so been using physician samples. Mom's last CEA is at 523...stressing me out. We were as low as 20s before. Surgeon still doesn't want to remove the mets tumors in her liver.…
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Had pain in hip for a year, bone cancer discovered 3 weeks ago
I haven't been on the forum much lately due to stressing out over many new developments. I learned 3 weeks ago that I have a "lytic bone lesion" in my lower pubic ramus - at the part of the bone that hits the chair when you sit. A lytic lesion eats away at your bone, so it looks like Swiss cheese and makes your bone…
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Stivarga?
Have you been on it? How did you do? What about the side effects? $18,000 a month and waiting to see if the insurance approves us. Hope so, Lord only knows we can't pay for it! That's so absurd, $18,000 but in Canada it averages $6200....GRRRRRR
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Colonoscopy prep is not going well
its tomorrow but not until 2pm so round one is done, round 2 starts at 830. it started with 4 dulcolax pills at 3pm and by 445 he was puking. Drank his 3 cups of miralax and threw up around 7. He has type 2 diabetes and now his blood sugar was tanking down to 55. I admit I totally lost it. I am kind of failing miserably at…
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Positivety
How do you stay positive when reality is not matching your positive thinking, dreams and hopes??
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The "cool cap" to help prevent hair loss
Decided to make a new post so others can find this info more easily. I couln't find messages from my friend...many have been lost over time and upgrades of the site. I did a google search and found this:…
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Anyone have depression and anxiety long after treatment is finished?
I went thru Chemo, Radiation and Surgery in 2012. I can't understand why I'm not and I haven't felt "on top of the world" by winning the battle, that everything should just roll off my back but that's just not the case. I have been emotional, anxious and depressed. I'm wondering if anyone else has felt they are struggling…
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Turning point yesterday with Nurse Practitioner visit
First of all, I finally was going to make it to the office after missing several appointments. So my designated "helper", to my horror did not show up to take me. No signs of life at his place. Now, I can drive, but getting into the thick of downtown traffic just rattles my nerves, in a really bad way. So that did not…
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Followup Scan
my father has followup CT scan on Wednesday 17 july he is on 3 months surveillance and yearly Scan iam so worried getting anxiety attacks please pray for mY father i shall be very grateful to you all
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Hubby has NED at this time!
richard had his APR in March, just returned from MDA last night for 3 month scans. NED! Fist time since he was diagnosed as stage 4 in July 2017! Hope this NED stays around for a very long time! It’s been a long rough roller coaster ride, so we are going to enjoy the break for now!!!! There is always hope!!! We truly…
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Passing of a wonderful forum friend
I am so sad to have to share the news of the death of our dear friend, Lizzard44 - Grace. I was blessed to have Grace as a Facebook friend, and I can tell you, she was one strong woman. She fought long and hard and always with great spirit. She touched my life, and while I am saddened that she has left this earthly home, I…
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New to Forum - colonoscopy next Tuesday
Hi Folks - let me first start off by saying I've been researching and found these threads and am touched with some of the stories I've read on here. I hope everyone on this board can heal and live a long healthy life. It's truly inspiring to see strangers from all over get together on these boards to help each other…
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Stunned, crushed and numb
Literally just hung up the phone with the oncologist. Jim's cancer has all grown, the remaining mets in the liver, the tumor in the colon and now there is big time lymph involvement and a nodule on the lung NO ONE TOLD US ABOUT the last scan has also grown. I want to be angry, I want to cry I just am too shell shocked at…
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Scan Update
First, I want to say thank you to each of you who offered support in a response to the last post I shared. I just want to strike out some days at the unfairness of it all but there is no one person or thing to stike out at. It's just life. My oncologist called me today to give me the replay on his conversation with my…