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Passing of a wonderful forum friend
I am so sad to have to share the news of the death of our dear friend, Lizzard44 - Grace. I was blessed to have Grace as a Facebook friend, and I can tell you, she was one strong woman. She fought long and hard and always with great spirit. She touched my life, and while I am saddened that she has left this earthly home, I…
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New to Forum - colonoscopy next Tuesday
Hi Folks - let me first start off by saying I've been researching and found these threads and am touched with some of the stories I've read on here. I hope everyone on this board can heal and live a long healthy life. It's truly inspiring to see strangers from all over get together on these boards to help each other…
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Stunned, crushed and numb
Literally just hung up the phone with the oncologist. Jim's cancer has all grown, the remaining mets in the liver, the tumor in the colon and now there is big time lymph involvement and a nodule on the lung NO ONE TOLD US ABOUT the last scan has also grown. I want to be angry, I want to cry I just am too shell shocked at…
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Scan Update
First, I want to say thank you to each of you who offered support in a response to the last post I shared. I just want to strike out some days at the unfairness of it all but there is no one person or thing to stike out at. It's just life. My oncologist called me today to give me the replay on his conversation with my…
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Thoughts on Erbitux (Cetuximab)
I might be taking this. Seeing if insurance approves it. Anyone know the good, the bad, and the ugly about this one. I would be taking it with irinotecan,
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FoundationOne
Has anyone had this test? I just recently signed a release for my 2 yr old lab specimens to be tested. I didn’t know I had lab specimens available. My regular onc is out of the office for a while. The new one suggested I get the test since I’ve been on different treatments and nothing seems to be slowing down the growth in…
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Hi… here for hope, positivity, and tips
2 weeks ago, at 43 years old, my husband went in for a colonoscopy because he was bleeding, and feeling discomfort. Numerous scans and a lung biopsy later, he's been diagnosed with stage 4 colon cancer which has spread to his lungs. Now I'm on an emotional rollercoaster jumping between ugly crying, fighty optimism, anger…
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stage 4 to terminal
What a whirlwind my life has become was diagnosed with colon cancer in March of this year had surgery in April to remove gallbladder and apendix colectomy to remove a large tumor and 36 lymph nodes 16 of which were positive for cancer so they said stage 2 then about to start chemo had port placed in May CEA at that time…
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Extramural Venous Invasion
Hello everyone. I had my first colonoscopy since turning 50 and the doctor found what he suspected was a very early cancer (he did not remove it at the time but a biopsy confirmed cancer cells). I recently had surgery to remove my sigmoid colon. The pathology report came back as Stage 1. Seventeen lymph nodes were all…
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Saying Hello..... along with a stoma reversal question. -update-
Well.....I can only say, this is the hardest thing I have ever gone through. I feel like I am in a nightmare, that I can't wake up from. My incredible, beautiful 42 yo wife, was diagnosed with colorectal cancer in March. Not a single risk factor, exercised 2 hours per day, didn't drink, didn't smoke, etc... Had some blood…
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Long term bladder issues
Richard had his APR back in March. He had issues with his bladder waking up and was on a cath for two after surgery. We saw urologist 1 Who didn’t bother doing a bladder scan, but prescribed oxibutoN( unsure of spelling). during a recent follower up At MDA we saw the urologist he did the bladder scan and said that he…
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Immediate neuropathy
Hi all. I'm new and desparately looking for info on how others have handled their neuropathy. Background info: colonoscopy in January because stool sample showed blood. Dr. who did colonoscopy said there was a tumor but the pathology came back showing nothing. Dr. wanted a new colonoscopy done right away to get more…
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Let Me Off Of This Ride
I am usually full of gratitude for the smallest things in life and most days I reach for everything positive. Today is not one of those days. I hate cancer. I hate what is has taken from me. I hate that I have to be super aware of most things like a guard on watch duty who never gets to just close their eyes and sleep.…
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6.5 earthquake in California
My son is down there, and is OK Hope all of the members in that area are doing well. You are in my prayers. Tru
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Best vehicle for people like us?
I think I'm going to have to sell my Camaro as much as I don't want to. Our financial situation has changed a bit so we don't really have to sell it but I'm fiding that the days when I'm not doing so well or am weak it's difficult to be in. First, it's a two door and the doors are so wide and heavy it can be a real…
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Press Pulse Metabolic Strategy
In this short 2017 talk Prof. Seyfried discusses an updated metabolic strategy for killing/suppressing cancer. He calls this strategy "Press-Pulse" and explains it starting about 13:15. https://www.youtube.com/watch?v=3TZnjC7SR_w&t=309s The paper can be found here:…
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3 months of Chemo vs. 6 Months
My husband was diagnosed with Colon Cancer stage 3B. Specifically, T3 N1 M0. 1/17 nodes was positive. Our Oncologist has proposed 6 months of Oxaliplatin and Fluorouracil (5FU FOLFOX). After reading a publication from another Cancer institution that prescribes Capecitabine (CAPEOX) by pill in place of theFluorouracil (5FU…
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Another fistula
Went to my family doctor yesterday to see what's up with me. I've been incontinent for months. I were Depends 24/7 because urine just comes out whenever and without warning. It's embarassing and I was hoping it would go away but it hasn't. My doctor told me yesterday that I have another fistula. So I had two repaired last…
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3 months chemo vs. 6 months
I' ve been reading a lot about 3 months vs, 6 months Oxaliplatin either FOLFOX or CAPOX. Please let me know if you have information or websites to get information. Thanks Bret
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Question about will, not colon cancer specifically
I hope this is okay to post about. I need some opinions and I need them from people who are totally non biased. I found out a couple of weeks ago that in Alberta we can do up a will on our own as long as it's completely handwritten. It can't be typed up and just signed. This is ensure that the person actually wrote it up…
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What's normal to expect from an oncologist?
I'm just posting again to see if I can get some opinions on what's normal to expect of an oncologist. My husband's oncologist and his staff are not very helpful about answering questions. My husband has called a couple times with questions and it always takes a couple of calls and days to get answers, which is always…
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Folfox vs Capox
Hi, I just found you guys, I’m newly diagnosed stage 3c colon cancer, it was in my sigmoid and they were able to remove and reconnect without a colostomy. There was a lot of lymph node involvement but that’s as far as it got. Thankfully! I had surgery 3 weeks ago and so far doing really well. I was presented with 2…
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Chemo Brain Help Suggestion
Maybe just a bit of help. I had a crappy memory for faces and names before I had cancer but now I have an excuse. Anyway, what bothred me the most was not getting my words. I'd struggle for the right word that I knew very well. I found it embarassing and uncomfortable. It got to the point where people would just start…
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Happy Birthday Inspired2013
Dear Inspired, I hope you had a wonderful Birthday and that you get to celebrate life every single day. for yesterday. Tru
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Meditations and hllasunations
Sorry, can t spell the second word...... I have never been heavily into meditations but needs to admit I tried it years ago for a while. I know many people practice it on this board. I know my post can come as a very strange one. Years ago when I did it I found it hard because I could get some nice peasful image but then…
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Preoperative neoadjuvant chemo and radiation to shrink tumor?
Hello, Scheduled to have a 5cm non obstructing tumor in my transverse removed on 7/19, but someone I know recommended I get Preoperative neoadjuvant chemo and radiation to shrink tumor before surgery. All other scans and bloodwork have been normal. Thanks you in advance for any advice you can give me.
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Post-Op Scan Results
Like most, I hate the waiting and guessing game involved with scans. Even tho' I am Stage IV and chose to do no more chemo, I do want to monitor what happens from here on to a point. I met with the oncolongist today and I kinda feel like I am still holding my breath. Neither my surgeon at MUSC or my oncologist in SC did a…
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CT Colonography Results - Flat Neoplasm and Redundancy
All, I finally received the full written results from my CT colonography (virtual). The conclusions read as follows: 1. scattered left colonic diverticula 2. Plaque-like wall thickening right rectal wall. This needs to be evaluated with colonoscopy. Adherent stool is possible however the colon was otherwise clean. Must…
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Low Platelet count
New to the site-This is a great support site, I only wish I found it sooner. My journey: Diagnosed with Stage 4 Colon Cancer on February 19,2018, Had surgury on the 20th to remove a mass the size of a tennis ball and 10" of my colon and I was also given an Ilieostomy.They also found two small mets on my Liver...Started…
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First Post-op Scan Today
I wish I could say I wasn't anxious about my first scan but that would not be true. I hate to even walk thru the doors of the hospital. Anything that even resembles a medical practice makes me cringe. I drank one of my "delicious" prep bottles last night before bed and have one more to go this morning..yuck, lol. Life has…