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New Long-Term Survivors Board
At the recent Colon Palooza in Texas it was discussed that having a board for long time survivors and their inherit issues would be nice. I was asked to contact Greta @CSN about it. She agreed and she and her staff have added one under the others list. I'm not active on this site much any more since the chemo options, side…
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initial visit with oncologist
well i am home from vanderbilt after meeting Dr. Emily Chan. she gave me her formula of 4 chemo drugs, one of which is specifically designed for the liver mets. she is going to contact a local group so i can have my treatments done here, also wants me to have a ct scan of liver. Goal is to shrink the 4 tumors to a point…
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JohnSFO update
I know we haven't been active here in a long time, but for the sake of those of you who remember us, I thought I'd give an update. Things change quickly and John's cancer (just over 3 years now and over 1 year with sacral mets) has continued to spread aggressively and appears to now be blocking one of the ureters causing…
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Dear Lord, Heck, maybe Hell
Dear Lord, You know me, I haven't been a faithful servant, heck, well, I've never been to prison, so I figure that counts for something. I've never totally denounced you, only half way cursed you now and then again. But, heck, I'm only human. I'm just praying for a lot of souls lately, to deny that mine is included in…
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Miss my husband so much...
My husband survived 15 months after dx'd with stage 4 rectal cancer....I think of you all every day and wish you all the best....Don't ever give up hope....Cancer took my life.
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laminaria japonica
My husband's radiologist told me to look up laminaria japonica (kelp) on the web. He said his colleagues wouldn't agree with him but he thought it was worth a try. Have any of you tried this? If you have tried this can you tell me where you bought it from? There are 100's of companies on the internet that sell kelp & I…
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Nutrition for people who have been NED for some time and want to prevent recurrence?
Hello everyone, I guess the subject says it all.My fiance has been NED for the past 6 years[Was diagnosed with stage II colorectal cancer and has a permanent colostomy,had also taken chemo and radiation during treatment] and follows a good diet and exercise regime.He is 28 and we are looking at a really long life…
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RectalCancer/JPouch
I was diagnosed with a low rectal cancer in October 2009. Had chemo/radiation and surgery in March 2010. Temporary bag until July 2010 and then the takedown. I am having constant fecal leaking and the surgeon said he isn't sure this will stop. I am using gauze evry day and doing an enema every night to clean out, so the…
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Pepecan - Paella
Pepe,do you have a good recipe for paella to share? I have not made it for a long time + it probably wouldn't be authentic. They just made paella in the book I am reading, but the two Spanish helpers slipped and dropped it on th gravel, then put it bavk in the pan -yuck!
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Note from Eric's Sister
Find myself coming here for comfort....something Eric always gave me. Sitting here trying to summarize what my brother has meant to me for a funeral service when i keep wanting to walk in his room and kiss him on the head like i have done from months. My head and my heart cannot make sense of this process. So, for those of…
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Tumor on Left side? Not there, it's on right side
On Monday I got a call that they had an earlier appt for colonoscopy. The reason for this was to see exactly where my tumor was, as apparently it was pretty close to rectum and they wanted to make sure exactly what type of surgery they would be doing. So did the prep yesterday, went to Stanford for the colonoscopy today.…
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alcohol, tylenol with liver mets?
I was going to ask my doctor but then remembered i have this resource at my disposal so here is my query. Is it safe to drink alcohol or take products containing aceteminophen with liver lesions? as a former R.N. i knew that both are metabolized in the liver and were containdicated in liver dx, has anyone asked their doc…
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Folfiri & Avastin w/ no signs of cancer
I'm newly dx stage4. My team wants to put me on my second round of chemo as I guess the first round,folfox, wasn't successful and recurred in my ovaries. I've had a hysterectomy and now I need to go 12 rounds with folfiri and Avastin with 5fu and Avastin after for maintenance for who knows how long. I don't have any other…
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scared
hey guys just to let you know i cant stop thinking of Eric's passing.I know what i'm thinking is bad but i cant stop.I look at my husband Jorge with his his stage4 to the liver that's Eric had and year ago now i'm looking at Jorge thinking about him passing away.i'm sooo scare
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Heading to Texas
I will be in Phoenix, San Antonio, and Corpus Christi over the next couple weeks. I will be visiting family, can't wait to get going!
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lmliess and Robinvan
Hadn't seen any posts from either of you lately. Wanted you to know you are both in my thoughts. Hope all is well. Amy
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Remembring
This is a paste from another post. Please let us remember all the survivors and the ones that struggled and lost. It seems like we give tribute to certain members and not others and this is wrong. Please give acknowledement to all members who have lost their life and the ones who are still fighting for a cure. We need not…
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Lit a candle for Eric
If you are interested there is a lovely place on gratefulness.org where you can light a candle for someone. I started a group called "Eric" . If you would like you can go to that group and light a candle. I find gratefulness.org to be a peaceful site to visit. Here's the link:…
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Lymphocyte's are low
My lymphocytes are low and was wondering if anyone knew anything about this. My doctor said it was chemo induced, but they just don't want to bounce back. They are just hovering at the same level. She said she could order some blood tests for lupus or HIV, but I don't have any of those symptoms. She also said that my…
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hello, my name is amber and i have colon cancer
i should say with mets to liver since that's what is consuming my thoughts these days, i am going to vanderbilt thusday to meet my oncologist, never thought i would be saying those words, not me. i have written my story on the about me tab if you want to read it, i don't feel like typing it again and since i have cancer i…
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colonoscopy #4 ....
And with each one I hate Gatorade even more! What a night! and, alas...4 MORE polyps... It's really kind of sad that at this point I can go to this place and know the nurses by name, and also run into people I know in the waiting room... This time however, he said he didn't need to see me back for 2 years, which is fine…
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Second opinion
I sent my records to my friend who is a nurse in oncology radiology at Duke. The doctor she works with (somewhat famous) agreed to look over my case for no charge. He's been really busy, but finally had a chance to go over it. He decided to present it at their conference meeting next Tuesday. So I'll get the benefit of a…
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When vital drugs run out, patients pay the price
By JoNel Aleccia Health writer msnbc.com msnbc.com updated 10/27/2010 8:24:19 AM ET http://www.msnbc.msn.com/id/39798646/ns/health-health_care When vital drugs run out, patients pay the price 150 medications in short supply so far this year; deaths, injuries have followed Cancer patient Bob Dierker had just finished eight…
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Breath of fresh air in Guatemala
So far, all I can say about my treatment is this is the way it should be. Complete harmony. I showed up for my appointment on time. They escorted me directly to treatment room. A Dr was in the room with me at all times. The nurses were quick and knowledgable and relayed everything they gathered directly to the Dr. I had…
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2011 Colon/Rectal Cancer Calendar All are welcome on the cover, no butts on cover, just faces of Col
Please make note, that everyone will get the final say on their "month", will not be final without your approval on how the edit of your month is done, and how the bio was added. Please note the rules in first posting of need for butts, that you need to make sure you have a bio added, say what you want or need to say.…
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Scan was clean
Hello all. 4.5 years ago I was dx Stage 4. Just had a third lung surgery in August and as usual was worried about this 3 month scan. All was clear and CEA under 1. YEA!!!I know there is so much pain here but moments of celebration are need ed as well. KEEP FIGHTING ALL! Chip
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Natalie - Braelee2 how are you doing?
Hi Natalie, I know you were having a tough time with the FOLFOX. How are you doing now? I hope better! Do you have any more information on the suspicous mass? I'm wishing you the very best.
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Cal / Mag infusion prior to Chemo Attn Craig
Hi everyone! I told Craig that I would report on Jacks side effects (or lack of) after receiving the Cal/Mag infusion before his chemo. The first night he did have sensitivity with his first bite of food. He did feel a shock when he picked up a bag of ice the next day(it's amazing how fast we forget...ha) He was able to…
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folfox side effects
Hi Friends! So, I started folfox 7 weeks ago. I didn't have too severe of side effects but 13 days later I had an emergency gallbladder surgery. So that put treatments off for another 4 weeks. Last week I had my 2nd folfox treatment and I was very tired, felt sick, had some reaction to drinking cold water (forgot to watch…
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Kim is Home from Gall Bladder Surgery
Hey Everybody Just thought I would take a minute to let you know that the gall bladder surgery was a success and went through without complications. I've got her home now, her meds in her, and got her laying down resting and hopefully sleeping awhile. She's in pain but is to be expected with that kind of surgery. She told…