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JohnnybeGood
Just wanted to say it was nice to see you back, even if for just one post. Sorry that you aren't doing better. Was so hoping that your symptoms would have let up some. My life now seems to revolved around before cancer and after cancer. It would be nice to see you post a little more if you get a chance. Glad that you're…
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Update-really low wbc
My husband had a fever last weekend. We spent two seperate days in the hospital getting IV antibiotics for his low WBC. There wasn't any infection in the port or blood line. His levels were back up enough on Thursday to get the triple treatment on Friday (CPT 11, Avastin and Erbitux). Thank you all for answering my…
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When does the 5 year start getting counted?
Hello Everyone, I am wondering when they start counting the 5 year thing? The date of diagnosis, when chemo ends, your 1st 3 month checkup? The reason I am asking, is I want to someday sign up for disability insurance, since I did not have it when I was diagnosed. We have Aflac coming to my work soon and I was just…
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The Ox in FOLFOX by Dr. Seuss? Chemo round 1
There's an OX in FOLFOX that pops out of the box just to remind you Hey, I'm TOX - eeeeeeeeeeeeeeeeeek! Ding ... Ding ... Ding So, chemo round #1 goes to Oxaliplatin. My fingers don’t like the keyboard so much ... bear with me. This is the first I noticed that. Yesterday, Got up took my cal/mag dose (same as night before),…
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we need some good news and here goes one!***UPDATE...... UNBELIEVABLE news......?*************
Let's remember present situation : I have got a recurrence in my liver 3cm. and 7 nodes affected in retroperitoneal lining also small. Plan was to try to stop it or better shrink it with chemo to can radiate the nodes and then operate liver met and nodes but only if thy shrunk.Well everything happened so fast!.Yesterday…
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Waiting. All clear. :)
I am sitting in the room waiting for my results from a second mammogram. **** is in the waiting room. My mom was diagnosed with stage 1 breast cancer 5 weeks ago. I went in for my mammogram last week. Got a call at work today we need another look. I lost it. Said I cannot wait must be seen today. Now waiting for results.…
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Oh Happy Day
Wow this has been such a big day for me. Had blood work earlier this month and then had a CT scan on October 15. This six month scan is always so scary for me as this will tell if the cancer has come back. Waiting from October 15 until today which is the 27th to go to the oncologist and get the results has set me in panic…
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Guatemala Update
Guatemala City is crazy. I'll write more about this later. I've had two of six treatments thus far. They adjusted my treatment today to encompass an area closer to my stomach. The Dr said I may feel a bit nauseous. I did. I spent 7 hours hurling. It was awful. No treatment until tuesday. I think I'll see about altering the…
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This thing called life...friggin SUCKS sometimes! Forgive me while I vent......
Hi all, Haven't posted for a while. As some of you know (full story in my "about me" page)...my 19yr old son has metastatic stage IIIc colon cancer. He's on FOLFIRI/Avastin for mets to multiple lymph nodes. The good news is that his last CT scan was clear, except one VERY small node. THANK YOU LORD!!! Now for the bad…
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Stage 4 survivor
I was diagnosed with Stage 4 colon cancer on Sept 29, 2007. I had surgery and chose not to have chemo treatments 6 months later PET scan all clear then in Dec 2008 I had reaccurance in my ovary and had surgery Jan 20, 2009. Since then I am cancer free. I was directed to this site shortly after my initial diaganoses in Oct…
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Hi mates ,It's FRIDAY again any interesting weekend plan????????
Just enjoy the city, go shopping and have lunch in any interesting fisherman village ,we will see where!
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Scan Issues, Big Bump In The Road, Anyone Know About IRE Nanoknife?
We went to get our Scan Results to be told that we have an issue, the scan shows a grape sized spot on his liver. (oh no) im scared. His Oncologist is going to do a PET Scan ASAP to make sure that it lites up. The doctor then talked to us about options and explained that surgery for him was out as he has already had a…
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Pepe-book finished
Hi Pepe, I finished "Spanish Lessons" last night. I would say it was good, but not great. I think the problem was the author was trying to be humourous, but was not that great at humour.
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Blessings
I have been really blessed. I may have been cursed with colon cancer but I found out that I have been blessed with a great Family, Friends and Neighbors. I have not cooked for such a long time. Everyone is dropping off meals for my family, My mother made a turkey dinner on Monday last week on Wed she made Veg. Soup, On…
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Eric has Died
Eric's MoM just called & said Eric died a little after 8am today. He went peacefully in his sleep. His MoM said she was very sad but doing ok. She asked me to pass this on to his semi family. GoD.... I miss him so muci already. RIP my dear friend. Jennie
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New Long-Term Survivors Board
At the recent Colon Palooza in Texas it was discussed that having a board for long time survivors and their inherit issues would be nice. I was asked to contact Greta @CSN about it. She agreed and she and her staff have added one under the others list. I'm not active on this site much any more since the chemo options, side…
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initial visit with oncologist
well i am home from vanderbilt after meeting Dr. Emily Chan. she gave me her formula of 4 chemo drugs, one of which is specifically designed for the liver mets. she is going to contact a local group so i can have my treatments done here, also wants me to have a ct scan of liver. Goal is to shrink the 4 tumors to a point…
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JohnSFO update
I know we haven't been active here in a long time, but for the sake of those of you who remember us, I thought I'd give an update. Things change quickly and John's cancer (just over 3 years now and over 1 year with sacral mets) has continued to spread aggressively and appears to now be blocking one of the ureters causing…
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Dear Lord, Heck, maybe Hell
Dear Lord, You know me, I haven't been a faithful servant, heck, well, I've never been to prison, so I figure that counts for something. I've never totally denounced you, only half way cursed you now and then again. But, heck, I'm only human. I'm just praying for a lot of souls lately, to deny that mine is included in…
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Miss my husband so much...
My husband survived 15 months after dx'd with stage 4 rectal cancer....I think of you all every day and wish you all the best....Don't ever give up hope....Cancer took my life.
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laminaria japonica
My husband's radiologist told me to look up laminaria japonica (kelp) on the web. He said his colleagues wouldn't agree with him but he thought it was worth a try. Have any of you tried this? If you have tried this can you tell me where you bought it from? There are 100's of companies on the internet that sell kelp & I…
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Nutrition for people who have been NED for some time and want to prevent recurrence?
Hello everyone, I guess the subject says it all.My fiance has been NED for the past 6 years[Was diagnosed with stage II colorectal cancer and has a permanent colostomy,had also taken chemo and radiation during treatment] and follows a good diet and exercise regime.He is 28 and we are looking at a really long life…
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RectalCancer/JPouch
I was diagnosed with a low rectal cancer in October 2009. Had chemo/radiation and surgery in March 2010. Temporary bag until July 2010 and then the takedown. I am having constant fecal leaking and the surgeon said he isn't sure this will stop. I am using gauze evry day and doing an enema every night to clean out, so the…
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Pepecan - Paella
Pepe,do you have a good recipe for paella to share? I have not made it for a long time + it probably wouldn't be authentic. They just made paella in the book I am reading, but the two Spanish helpers slipped and dropped it on th gravel, then put it bavk in the pan -yuck!
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Note from Eric's Sister
Find myself coming here for comfort....something Eric always gave me. Sitting here trying to summarize what my brother has meant to me for a funeral service when i keep wanting to walk in his room and kiss him on the head like i have done from months. My head and my heart cannot make sense of this process. So, for those of…
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Tumor on Left side? Not there, it's on right side
On Monday I got a call that they had an earlier appt for colonoscopy. The reason for this was to see exactly where my tumor was, as apparently it was pretty close to rectum and they wanted to make sure exactly what type of surgery they would be doing. So did the prep yesterday, went to Stanford for the colonoscopy today.…
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alcohol, tylenol with liver mets?
I was going to ask my doctor but then remembered i have this resource at my disposal so here is my query. Is it safe to drink alcohol or take products containing aceteminophen with liver lesions? as a former R.N. i knew that both are metabolized in the liver and were containdicated in liver dx, has anyone asked their doc…
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Folfiri & Avastin w/ no signs of cancer
I'm newly dx stage4. My team wants to put me on my second round of chemo as I guess the first round,folfox, wasn't successful and recurred in my ovaries. I've had a hysterectomy and now I need to go 12 rounds with folfiri and Avastin with 5fu and Avastin after for maintenance for who knows how long. I don't have any other…
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scared
hey guys just to let you know i cant stop thinking of Eric's passing.I know what i'm thinking is bad but i cant stop.I look at my husband Jorge with his his stage4 to the liver that's Eric had and year ago now i'm looking at Jorge thinking about him passing away.i'm sooo scare
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Heading to Texas
I will be in Phoenix, San Antonio, and Corpus Christi over the next couple weeks. I will be visiting family, can't wait to get going!