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good news (maybe)
I called for my CEA results today prior to my ct/scan on Thursday for possiblity of liver cancer. My CEA dropped from 1.1 a month ago to under 1 this week my last day of chemo. Hopefully this means my scan will come back negative and my family doctor was right about my thyroid causing the abdomenal swelling and fluid…
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Update on George:
Had the monthly visit with the oncologist yesterday. Things are looking up. The Camposar (CPT-11) and Avastin seem to be doing their job. George's CEA spiked last November to just under 200. After PET, CT, liver biopsies we knew the cancer was marching forward at a pretty good clip and the maintenance chemo was no longer…
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Silly people want to look inside my empty head now!
So saw the onc today and was going over my side effects that were still bothering me after stopping FOLFOX 6 weeks ago. I have neuropathy in my feet still pretty much ... less pins and needles but lots of numbness, burning, falling asleep and if cold then the pins and needles. My hands less noticeable than my feet. I can…
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Good day turned to %^$#*&
Well I am on my last treatment #12 of Folfox today. I thought it would be a good day but I have had a a bloated distended abdomen since about threatment #9 with some locatized pain on the right side over the liver. My liver function numbers are still good and my CEA has remained around 1. My ONC listened today and got a…
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Surgery Moved Forward.Update
Good Evening All, Just wanted to let you all know they have had a change in hubbys plans, they have cancelled chemo and liver stent. They are going to put hubby into surgery Tuesday am. They feel the tumor is growing to rapidly and in two weeks as planned surgery would not be possible. The head of the Transplant and Liver…
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Radiation starts today
Ok guys radiation starts today for jorge and chemo on Tuesday just hoping the is going to be a good week thanks all Tina
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Newly diagnosed - WTF!
I'm newly diagnosed with colorectal cancer stage IV. I'm 46 years old. I have one met on my liver. I am definitely scared. I have started to read "What Helped Me Get Through" by Julie Silver. Can anyone recommend other resources to help transition my fear to courage, hope, and peace? I'm getting a PET scan on Tuesday for…
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Erbitux
I have had one treatment of the erbitux and camposar so far. I am so sick with nausea and diarrhea. No engergy. I went for treatment today but they gave me nausea meds and fluids instead. I lost 10 lbs in one week. Water weight I'm sure. I get to go back again on Thursday to try again for treatment. Not loving this at all.…
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5 years NED for this stage IV survivor............cancer free/cured?
I recently had my semi-annual testing and everything looked great. My oncologist was pretty animated (very rare for him) with trying to figure out what and when to test with me going forward since I am in non-surgical remission. It seemed to freak him out that he can't "explain" my NEDness which strikes me as strange. You…
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Hoping for good news
Good morning everyone I hope you all had a great weekend. I'm headed off to the oncologist this afternoon to talk about my CEA results from last week as he was on vacation last week. This was my first test since being declared NED six weeks ago so needless to say I'm very nervous.
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Farewell Friends!
My friends! My liver has failed and there are no other options available for me. I was sent home today on hospice care and they will monitor me at home until my last few days. I believe I will get to fully enjoy this weekend and perhaps some of next week. Soon after the start of next week rising ammonia levels in my body…
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Erbitux and Camptosar
My onc wants to start me on Erbitux/Camposar regiment as the tumor markers are jumping up now after 3.5 years of a camposar, avasin, leuc, 5fu (46 hour pump infusion). I know about the potential rashes, eyelashes growing. What about hair loss? She said the camposar will be given in a larger dose 1x per month as opposed to…
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angelsbaby
How are you doing after your surgery?
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I'm starting a trial tomorrow
I have decided to participate in a phase 1 trial at Duke. I don't like the whole idea of trials, but the drug I'll be taking is unlike any other trial drug I've investigated. The drug is called Medi-565 and was developed by MedImmune. It's known that one reason some immune systems don't properly deal with cancer cells is…
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my scan results
Hi Everyone, I got my PET/CT scan report today from the hospital (I don't see my onc until Monday afternoon about it). Yesterday, just after the scan, I called my onc office to get the results of my most recent CEA test, which was taken on Tuesday. My prior test had come down 61 points over 4 weeks & I was hoping for the…
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Get Your Rear in Gear Twin Cities 5K - PLEASE JOIN US
I am our team leader for our local colon and rectal cancer support group's team for the 2011 Get Your Rear in Gear Twin Cities 5K Run/Walk. Anyone in the Minnesota area that is interested on information on our C.A.R.S. group (colon and rectal support), or joining our team to run or walk on May 22nd, please let me know. Or…
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Friday Riddle Answer
This weeks winner is........................ steved. CONTGRATS!!!!!!!!!!!!!!!!!!!!!!!!! RIDDLE: I end the race. I am the beginning of the end. The start of eternity and the end of space. There are two of me in Heaven and one in hell. I am in water, fire, sunshine and darkness. I am the beginning of earth and the end of…
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For cat lovers and anyone else who needs a laugh
We had this great 10 year old cat named Jack. Jack was a great cat and the kids would carry him around and sit on him and nothing ever bothered him. He used to hang out and nap all day long on the mat in our bathroom. We have 3 kids and at the time of this story they were 4 yrs old, 3 yrs old and 1 year old. The middle one…
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mother fighting stage IV colon cancer with mets to lung
My mother was diagnosed in march of 2010 with Stage IV colon cancer with mets to the lung. She was treated by resecting the tumor in her colon and Folfox for the lung mets which she received for six months and then maintence Avastin. Today found out her lung cancer is growing again and they want to treat her with Vectibix.…
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Anyone from the St Louis area?
Is anyone from the St Louis area? The Undy 5000 is next Saturday. I just found out about it. Just curious if anyone else is going.
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unexpected kindness trumps unexpected disease
HOW LUCKY AM I and grateful. I got this from a friend out of the blue this morning. "Hi Ellie and Peter Just wondering how you are both going. I have been thinking of you and hoping that everything is going as well as possible. I thought you might both like a bit of a break – I attach a gift certificate for Aqua Dining at…
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active polyp + exercise = diarrhea ????? early detection
active polyp + exercise = diarrhea ????? early detection any comments ??? this sounds plausible to me, never heard of this before and I have been focused on Bowel Cancer since the 3rd june 2010. Just heard this tonight from my good friends Dad. His very wise old surgeon said "if you have an active polyps and exercise they…
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For John and all of us feeling the pain...
I don't have the words... Please hear my feelings through this song. http://www.youtube.com/watch?v=Us-TVg40ExM I will always stand by each and every one of you. Peace and Love, Laurie
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Hi mates , it's FRIDAY here any interesting plan for the weekend?
Honestly , l didn't want to post it today but we must go on. Today Dinner with siblings , Saturday cinema of course . Have a nice weekend!
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Got CT Results today.....
And I'm blind-sided and upset. Last time I had a Ct scan was in December and my oncologist said I needed to do a follow up in March because my thymus appeared enlarged and she needed to confirm it was my thymus and not anything else. With the follow up CT the thymus should have returned to normal size but if it didn't…
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OK...Port Removal....Local or put to sleep
Ports coming out here also...got the ok from the onc so its outta here...which is best or easiest...local or being out....I am a little squeamish and OK I admit it, I passed out when they put the epidural in before lung surgery....yep, out like a light, when he told me to bend my head over and be still oh yeah I was,,,…
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A relatively SMALL step, but I'm proud of it
After reading all the stories of folks who have been waging this war for years and years, my news seems small and insignificant in comparison.... but I'M still proud of it. Had my FIRST 3 month checkup Thursday, and got the test results back yesterday... BLOODWORK CAME BACK GOOD!! My family and I were tickled, and just…
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Son accepted to UCSC
Okay, another proud mother here. My son was just accepted to the University of California Santa Cruz!!!!! My daughter is a Junior at Wright State University and my son will be a Junior this fall at UCSC (he did his two years at the community college, which he graduates from with his associates degree this June at Cabrillo…
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Buzzard and the rest of the semicolons for a laugh
Go to my expression page, and listen. I had a friend load this for me, he said this was the only way he could find to post it. Hope those who listen enjoy it....Steve
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AnneCan
Just checking... I know you started your Irinotecan and Erbitux on Tuesday. How are you doing... is it going ok for you? Cheryl