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pain/numbness
ive been having pain and numbness in my left leg from my thigh down to my calf. they did an ultrasound and a bone scan to rule out clots and bone mets. has anyone had this problem and figured out what it is? my onc has no idea why this is happening.
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5FU Question
I've been on Oxaliplatin and 5FU for 9 treatments, 6 of which included the pump for slow infusion of the 5FU. At the 7th treatment my Onc changed to an quick injection of 5FU following my 2 hour infusion of the Oxaliplatin. On the eight treatment I had severe chills and shaking for about a hour and very lethargic for…
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Christmas List
I am getting the list out tonight, please know that there are people on the list that have passed away, after some discussion, we have decided to leave those who have passed on the list, some still send cards to their families, but I wanted everyone to know so no one was shocked to see some names of those who have passed…
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Surgery Tuesday - Questions
As the day of my surgery gets closer I am trying to get things ready and prepare the best I can for what I'll be facing. I will be having a colo-anastomosis with a temporary ileostomy and I'll be having a hysterectomy at the same time, all open incision. The colorectal surgeon felt that my uterus needs to be removed…
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Does chemo itself ever raise CEA?
Does chemo treatment itself ever cause CEA to rise? K1
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Wanted: Prince Charming to take care of Sleeping Beauty forever.....
the so-called Sleeping Beauty jumping gene, that is: eurekalert.org/pub_releases/2011-11/wtsi-rdg110311.php "Researchers discover genes involved in CRC"
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STILL NED! Yes!!! CEA UPDATE
I received great news today PET and CT came back all clear. Thank you for prayers & great vibes, I will be checking my CEA in 30 days. I had it checked today and results will come in Friday. I will be continuing my supplements and going strong on juicing. I can't believe 2.5 years have gone by since my liver resection.…
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Lisa 42
Hi Lisa, Gail and I are planning a day trip to come and see you..... We need a group hug!
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Liver Resection Recovery
Hi Everyone. I put a post out on the discussion board a few weeks ago. Regarding diets. I joined the discussion board about a month ago. Even though I dont add very many comments I do read quite a few of the posts put out. I cant say how much this forum means. Just a quick review of my life since January 08. A routine…
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Johns Hopkins opinion
Hello all! Well, as you know I've been being treated at Georgetown Hospital since the beginning. And even though that is a major cancer center, I decided to go to Johns Hopkins for a 2nd opinion on treatment. WELL...they had nothing new to offer me. The doctor basically said that he would not have done anything different…
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Home again
Brought hubby home from the hospital today. They put the port operation off, will go back in next week as outpatient to have that put back in. I am told to watch the fluid build up, in case it increases quickly and he has to be drained again. He is so week, I wish they could somehow keep him from losing so much strength…
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slurring words
has anyone heard of slurring words during chemo?
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5 Join us Walking, Swimming, Cycling, Weights, Paddling, Jogging, Hurling, Yoga 4 SURVIVAL BOOST
*** GET MEDICAL OK AND ONGOING SUPPORT BEFORE STARTING ANY EXERCISE PROGRAM, I did *** *** DO YOUR STRETCHES BEFORE AND AFTER ALL WALKING, other exercises do relevant **** *** AT THE END OF THIS POST IS A SUMMARY OF OTHER POST THAT MAYBE OF INTEREST **** Join us Walking, Swimming, Cycling, Weights, Paddling, Jogging and…
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I have just read "being fat promotes angiogenesis" and mushrooms, greens, onions, berries help fight
I am satisfied that my healthy diet now vegan is based on science and sound arguments. just sharing these below, in case other crc are interested in this area. I am reading super immunity by joel fuhrman. anyone else got this, probably unlikely its hot off the presses, so the research is current as of printing. this book…
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"Remission"
I take that word with a grain of salt. But, we are celebrating anyway and the first time in almost 3 years, I feel I can relax (somewhat). No new growths shown on CT, CEA is a 2. Chemo has been reduced from once a week to every other week. Onc agrees that stopping all treatment would not be wise, as the two breaks Robert…
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yoga and symptom relief and some news items for walking, diet and a recipe
yoga and symptom relief and some news items for walking, diet and a recipe check these out if your interested, this articles give me hope. i'd rather be ahead of the pack than playing catchup, especially with crc bitting at our ****. ha ha ! literally for me, i got rectal cancer! more support for walking…
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SNOW****** SNOW ****and Remembrance
YOU MUST FORGIVE ME..for any number of reasons.....hahah our first snow and for Candians this is a big deal...you hate it you curse it but the first falls of the season are so lovely. Today is our Remembrance Day..in my small city we will remember largely WWI and WWII vets with some young guys from Afganistan. We all…
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Sir Spheres anyone?
Hello all, We are running down our list of options and have come to sir spheres. Jim decided to stop chemo in August. The tumors are growing on his liver so we have to do "something." We are trying protocel and paw paw after the sir spheres. Would sure appreciate any input on these things if any of you are familiar. I…
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TO ALL.....
The thread : Alkaline water and its benefits is a thread that dates back to 2009. If you click on the names, you'll see that many have not posted since 2009-2010. The reason for that, is that they are no longer with us. "Donna" for instance, has departed long ago. I too, forget at times to look at the date of the original…
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Friday Riddle
Remember NO googling or searching the Internet allowed, and good luck !!!!!!!!!!!! RIDDLE: Five young girls are all friends and are all big Disney fans. They have named their pets after cartoon characters from their favorite Disney movies. Each girl owns a pair of pets of the same species. Each pair consists of two…
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Metal Stents
Hi I know I dont get on here very often but I have been trying. For over a yr now I have been getting a stent in the right urter(sp), sorry I now I am not spelling that right. Due to damage from the radiation I had. They are also using metal stents instead of the one I have in. does anyone no anything about the metal…
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Extra meds.
Hi all, I just finished my last round of xelox on 10/31/11 and could not be any happier. On this happy day, I decided to clean out my med. drawer. I found things ranging from surgical wound care to butt cream to laxatives to nausea meds. to extra xeloda and so on. That's right, I said it: "extra xeloda". Earlier on in my…
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can anyone comment on round three chemo?
Hello, I am headed for round three on Tues. I am on Folfox and Avastan with the 48 hr. drip treatment, I was wondering if anyone could comment on how the third chemo treatment was for them. I was sick two days with nausea, fatigue and tingling in fingers and throat. The second was the same but for a day with the nausea and…
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Been gone along while
5.5 yars now...3 lung resections, liver resection, chemo, colon surgery...lots... Had to take a break but now Im back and so is the cancer... Well it could be worse and it could be a lot better....The word important constantly gets redefined and expanded when you meet with your oncologist. At work it is important to get…
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Immunochemotherapies
My wife's CTs show stable or disappearing features, one lung nodule disappeared in April, a "liver cyst" disappeared in September. The 2nd surgeon removed the leftover conglomerated para-aortic nodes in May and said, "chemo forever". She's been adding immunotherapies since diagnosis over a year and a half ago, UFT (5FU)…
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Has anyone taken Astragalus 10+ (Chinese herbs) during chemo?
We went to a local Chinese medicine doctor and he prescribed Seven Forests Astragalus 10+ (http://www.acuatlanta.net/seven-forests-astragalus-10+-420-tablets-p-21860.html?mclick=brand&osCsid=c62b3f28c17bec65397056b04d277ed4 )to help with the side effects during chemo. He says it won't interfere with the chemo, but I'm a…
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celebrating a year here, a year since surgery 7 november, and a year since my lost at sea rescue sto
Dear CRCs and supporters, just thought i'd mark the occaision. time flys when your getting treatment. sounds strange but its been a great year, hoping the next one is better. here is the nbc story of my lost at sea rescue and bowel cancer http://www.youtube.com/watch?v=cYN8vELkHT4 here is the abc story of my lost at sea…
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Vitamin D Deficiency
Has anyone been told post chemo, that their vitamin D is deficient? I have read that it can cause all sorts of muscle pains, joint pains, and I just wonder if that is a lot of the residual pain that so many of us have after treatments? Muscle cramping in my back is the worst. Any thought s from anyone would be appreciated.…
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PET scan Tuesday -UPDATE
**** has a PET scan tomorrow, Tuesday. Please pray that things are at least stable. His reoccurrence was in January and I just pray the chemo isn't losing its strength. I have to admit I am scared. I'll let you know later in the week. Thanks!!!! Aloha, Kathleen **Update** **** picked up his scan report today and there is…
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WOW WOW ****UPDATE****
Wow now just Hours away Jorges surgery on his liver to remove 2 Tumors we have been told its a 7hour surgery man this is so hard hugs all Tina**** Jorge is out of surgery 4hours of surgery the doctor came out to tell me that everything went well and he took 25% of his liver and he had 2tumors I just wanted to thank all of…