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New Drug to Follow
Referred to as KG5, and developed at UC San Diego: New Drug at UCSD From a personal perspective, if/when they start trials, UCSD is relatively local to me. Still, it is at least five years out from being generally available, and it may turn out to be like many of the promising drugs before it...
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Anyone have experience or knowledge of Protocel treatment?
Anyone have experience or know of anyone who has been on the Protocel treatment? I am pretty much on my last chemo option and haven't qualified for any clinical trials, so I am always on the lookout for alternative treatments. I would have to pay cash, as insurance doesn't cover alternative things like this. Please don't…
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Rectal pain now???
Hoping someone can help me out. My husband is almost 9 months pist surgical. Tonight he is having pretty bad recal pain has anyone else experienced this? Stephanie
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My decision
No more chemo for me! I say that confidently, but I also feel a bit of fear in saying it out loud, too. But I've decided, when I'm fully recovered from this pneumonia and my oncologist says it's safe to start up chemo again, I'm not going to. I've already "used up"/shown disease progression al all the usual FDA approved…
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A Funny Story
A friend of Jake's told him this story. It is supposed to be true. The friend was at the Mayo Clinic a few years ago and his doctor had had one of our former presidents for a patient. The President told the doctor to play along with him because he wanted to tease the nurse when she came in. When the nurse came into the…
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melatonin, milk thistle, flak seed, seeme seed, sunflower seed NO ITS NOT 4 the BIRDS and tumeric
Not advocating this for anyone, I am finished clinical treatment and starting intense lifestyle treatment. I am moving away from store purchased supplements towards macrobiotic vegan diet and juicing....... just sharing, thought i put in the prices here to show how cheap these supplements are here. be interested what it…
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Michael left a hole in my heart, and went to be with Jesus tonight
Tonight at 7:42 PM, Michael lost a fierce and courageous battle with cancer. He was at home surrounded by his Family and Friends. I am amazed at how many lives Michael touched in his 43 years and one day on earth. I can't begin to imagine what he can accomplish in heaven while he is watching over all the people who loved…
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Asking For Good Vibes
Everyone, please send out good vibes and warm thoughts for Johnnybegood. I spoke to her and she is having a down day. In addition to our worry of the upcoming liver surgery, her dad(my ex) is facing open heart surgery in the near future. My thoughts and love go out to both of them. Luv, Wolfen
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Guinness World Record for Most Surgeries?
Nah, probably not...this is only my 5th in two years, and I bet there are folks on this forum who can beat my record! I am thinking that maybe some kind of punch card would be nice, kind of like they do at my coffee shop. Buy 5 surgeries, get 1 free...that sort of thing. But really, I'm grateful that I can continue to get…
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hi mates this is FRIDAY any interesting plan for the weekend?
Just buying books!
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Drug expense question
Just have a quick question. It seemed that I remember reading that the company that makes Avastin only charges a certain amount per person per year--something like $50,000. Is that true and does the same apply for Erbitux?
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latest CT results not good . . . where do do I go from here???
Hello Fellow Colon Cancer Survivors, I haven't been around the board for a while . . . . wanted to spend time not thinking and worrying about cancer. Apparently not thinking about it doesn't make it go away!! Since my diagnosis of stage IV CC in July of 2010 I have been on FOLFIRI every two weeks with a couple of very…
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100% and then you have a chance!
only read this if you want a little inspiration!!!!!!!!! who said this to me ? 95% will not get you there. 100% percent and you may have a chance. on the dvd cover its written to peter, ellie, melanie and keith. "never stop believing" stephen bock 61st australian everest summitteer. i listened to his speech a few nights…
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Irinotecan side effects and infusion duration?
Hi please help. I am looking for more info on side effects of the Irinotecan and the duration of the infusion. I am also trying to contact someone on this site - her username is monicamelia. The reason is her case is similar to mine and i want to contact her personally to ask a few questions. Thank you.
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Guess who just called me..... BUZZARD!!!!!!!
Yep.... he FINALLY called me back! He said he has been and still is...sicker than a dog. He said that Folfiri is kicking his butt...BIG TIME! He said he is sick for 14 days..non stop....then has to go back and do it again. He is so sick to his stomach and tired that he just has to rest. He has had no strength to even get…
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pain/numbness
ive been having pain and numbness in my left leg from my thigh down to my calf. they did an ultrasound and a bone scan to rule out clots and bone mets. has anyone had this problem and figured out what it is? my onc has no idea why this is happening.
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5FU Question
I've been on Oxaliplatin and 5FU for 9 treatments, 6 of which included the pump for slow infusion of the 5FU. At the 7th treatment my Onc changed to an quick injection of 5FU following my 2 hour infusion of the Oxaliplatin. On the eight treatment I had severe chills and shaking for about a hour and very lethargic for…
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Christmas List
I am getting the list out tonight, please know that there are people on the list that have passed away, after some discussion, we have decided to leave those who have passed on the list, some still send cards to their families, but I wanted everyone to know so no one was shocked to see some names of those who have passed…
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Surgery Tuesday - Questions
As the day of my surgery gets closer I am trying to get things ready and prepare the best I can for what I'll be facing. I will be having a colo-anastomosis with a temporary ileostomy and I'll be having a hysterectomy at the same time, all open incision. The colorectal surgeon felt that my uterus needs to be removed…
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Does chemo itself ever raise CEA?
Does chemo treatment itself ever cause CEA to rise? K1
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Wanted: Prince Charming to take care of Sleeping Beauty forever.....
the so-called Sleeping Beauty jumping gene, that is: eurekalert.org/pub_releases/2011-11/wtsi-rdg110311.php "Researchers discover genes involved in CRC"
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STILL NED! Yes!!! CEA UPDATE
I received great news today PET and CT came back all clear. Thank you for prayers & great vibes, I will be checking my CEA in 30 days. I had it checked today and results will come in Friday. I will be continuing my supplements and going strong on juicing. I can't believe 2.5 years have gone by since my liver resection.…
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Lisa 42
Hi Lisa, Gail and I are planning a day trip to come and see you..... We need a group hug!
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Liver Resection Recovery
Hi Everyone. I put a post out on the discussion board a few weeks ago. Regarding diets. I joined the discussion board about a month ago. Even though I dont add very many comments I do read quite a few of the posts put out. I cant say how much this forum means. Just a quick review of my life since January 08. A routine…
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Johns Hopkins opinion
Hello all! Well, as you know I've been being treated at Georgetown Hospital since the beginning. And even though that is a major cancer center, I decided to go to Johns Hopkins for a 2nd opinion on treatment. WELL...they had nothing new to offer me. The doctor basically said that he would not have done anything different…
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Home again
Brought hubby home from the hospital today. They put the port operation off, will go back in next week as outpatient to have that put back in. I am told to watch the fluid build up, in case it increases quickly and he has to be drained again. He is so week, I wish they could somehow keep him from losing so much strength…
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slurring words
has anyone heard of slurring words during chemo?
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5 Join us Walking, Swimming, Cycling, Weights, Paddling, Jogging, Hurling, Yoga 4 SURVIVAL BOOST
*** GET MEDICAL OK AND ONGOING SUPPORT BEFORE STARTING ANY EXERCISE PROGRAM, I did *** *** DO YOUR STRETCHES BEFORE AND AFTER ALL WALKING, other exercises do relevant **** *** AT THE END OF THIS POST IS A SUMMARY OF OTHER POST THAT MAYBE OF INTEREST **** Join us Walking, Swimming, Cycling, Weights, Paddling, Jogging and…
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I have just read "being fat promotes angiogenesis" and mushrooms, greens, onions, berries help fight
I am satisfied that my healthy diet now vegan is based on science and sound arguments. just sharing these below, in case other crc are interested in this area. I am reading super immunity by joel fuhrman. anyone else got this, probably unlikely its hot off the presses, so the research is current as of printing. this book…
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"Remission"
I take that word with a grain of salt. But, we are celebrating anyway and the first time in almost 3 years, I feel I can relax (somewhat). No new growths shown on CT, CEA is a 2. Chemo has been reduced from once a week to every other week. Onc agrees that stopping all treatment would not be wise, as the two breaks Robert…